Browse Items (395 total)
- Tags: Terminal Care
Pediatric End-of-life Care: An 'additional Layer Of Complexity'
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
Factors important to patients' quality of life at the end of life
Tags: 2012, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Caregivers, Drug Therapy, Female, Follow-up Studies, Humans, Journal Article, Male, Meditation, Middle Aged, Models, Neoplasms, Nilsson ME, Pastoral Care, Physician-patient Relations, Prigerson HG, Prospective Studies, Quality Of Life, statistical, Terminal Care, Terminally Ill, United States, Zhang B
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Advance care planning for adolescent patients with life-threatening neurological conditions: A survey of Japanese paediatric neurologists
Tags: 2017, Adult, Advance Care Planning, Article, Artificial Ventilation, BMJ Paediatrics Open, Cross-sectional Study, do not resuscitate order, Family, Female, Health Care Survey, hematologist, Human, Japan, Kizawa Y, living will, Male, Middle Aged, Neurologic Disease, neurologist, November 2018 List, Pediatrician, Priority Journal, Prognosis, Shintaku H, Terminal Care, Yotani N
Redirecting Care: Compassionate Management of the Sick or Preterm Neonate at the End of Life
Tags: 2022, August List 2052, Children, compassionate care, Distress Syndrome, doctor patient relationship, emotionality, family relation, family support, Hain R, Health Care Personnel, Human, Infant, Newborn, intersectoral collaboration, Newborn Care, Newborn Death, Pain, Palliative Therapy, parent counseling, parental behavior, Patient Care, Personal Experience, Philosophy, Psychological care, Review, Terminal Care, Wyatt J
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Content review of pediatric ethics consultations at a cancer center
Tags: 2019, Article, cancer center, Child, Childhood Cancer, Clinical Article, Ethics, Female, Friedman D N, Human, invasive procedure, Male, McCabe M S, Oncology 2019 List, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Physician, Resuscitation, Retrospective Study, Risk Benefit Analysis, Terminal Care, Voigt L P, Winter M C
Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care
Tags: 2022, Alleviation, April 2022 List, BMC Palliative Care, Child, concept, Früh EA, Health care professionals, Holmen H, Hospice And Palliative Care Nursing, Humans, Kvarme LG, Lee A, Life Limiting, Lorentsen VB, Misvær N, Paediatric, Palliative Care, Palliative Care/psychology, Pediatric, Ppc, Qualitative Research, Quality Of Life, Riiser K, Social Support, Steindal SA, Terminal Care, Winger A
Development and Implementation of an End-of-Life Curriculum for Pediatric Residents
When Is It in a Child's Best Interests to Withhold or Withdraw Life-sustaining Treatment? An Evolving Australian Jurisprudence
Palliative Care and Population Management: Utilization of Palliative Care in Pediatric Critical Care Nursing
Tags: 2022, April 2022 List, Child, Critical Care Nursing, Critical Care Nursing Clinics Of North America, Family-centered Care, Hospice And Palliative Care Nursing, Humans, Infant Newborn, Palliative Care/methods, Pediatric End-of-life Care, Pediatric Palliative Care, Quality Of Life, Terminal Care, Williams LJ
End of life care in the setting of extreme prematurity - practical challenges and ethical controversies
When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices
Cultural and religious considerations in pediatric palliative care
Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit
Tags: 2023, Cardiology In The Young, Child, Cinahl, conference abstract, Decision Making, Eissler AB, Female, Heart, Holistic Care, Human, Intensive Care, Intensive Care Units, Kroger Y, Male, Medline, Memory, Nursing, October List 2034, Palliative Therapy, Patient Care, Pediatric Intensive Care Unit, Rare Disease, Satisfaction, Systematic Review, Terminal Care, Wieden N
Children's End-of-life Health Care Use And Cost
Intensity of end-of-life care among children with life-threatening conditions: a national population-based observational study
The lived experience of physicians dealing with patient death.
Tags: 2014, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, BMJ Supportive & Palliative Care, Clinical encounter, Communication, Emotions, Female, Humans, Journal Article, Male, Middle Aged, Palliative Care/psychology, Physician-patient Relations, Psychological care, Terminal Care, Terminal Care/psychology, Whitehead PR
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Evaluation of paediatric palliative care ambulance plans: A retrospective study
Tags: 2024, ambulance, Article, Australia, Child, Coombs S, data completeness, Drug Therapy, Drug Use, Human, Jaaniste T, Journal Of Child Health Care, Male, March List 2024, New South Wales, Palliative Care, Palliative Therapy, paramedical personnel, Retrospective Studies, Retrospective Study, Scope Of Practice, Shepherd E, special situation for pharmacovigilance, Terminal Care, Trethewie S, Vaughan A, Wan J
Professional social work education in end-of-life care: contributions of the Project on Death in America's Social Work Leadership Development program
When paediatricians and families can't agree
Impact of writing "comfort measures only" orders in a community teaching hospital.
Tags: 2010, 80 And Over, Adult, Aged, Backlog, Baltimore, Community, DNAR, Female, Hospitals, Humans, Journal Article, Journal of Palliative Medicine, Kearney CD, Male, Mayo RL, Medical Audit, Middle Aged, Palliative Care/og [Organization & Administration], Peltier H, Resuscitation Orders, Retrospective Studies, Teaching, Terminal Care, Walker KA
Communication and advanced care planning in palliative and end-of-life care.
Final transitions: family caregiving at the end of life
Tags: 2005, 80 And Over, Aged, Backlog, Caregivers/psychology, Female, Finn W, Humans, Interviews, Journal Article, Journal of Palliative Medicine, Kramer BJ, Male, Middle Aged, Milch RA, Non-U.S. Gov't, Psychological/etiology, Research Support, Skretny JA, Stress, Terminal Care, United States, Waldrop DP
Physician board certification in hospice and palliative medicine
Tags: 2000, Accreditation, Backlog, Certification, Hospice Care, Hospices, Journal Article, Journal of Palliative Medicine, Licensure, Palliative Care, Palliative Medicine, Palliative Treatment, Physicians, Portenoy RK, Respite Care, Schonwetter RS, Sloan PA, Speciality Boards, Terminal Care, Trustees of the American Board of Hospice, von Gunten CF
End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Bringing Home To The Hospital: Development Of The Reflection Room And Provider Perspectives
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Tags: 2010, Andrews B, Artificial, Backlog, Bos AF, Canada, Cross-cultural Comparison, Decision Making, Diseases/mortality, Female, Gestational Age, Humans, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Leuthner SR, Male, Meadow W, Neonatal, Netherlands, Newborn, Physician Assisted Dying PAD, Respiration, Terminal Care, The Journal Of Pediatrics, United States, Verhagen AAE, Withholding Treatment/statistics & Numerical Data
Teamwork and conflicts in paediatric end-of-life care
Tags: 2018, Acta Paediatrica, Conflict, conflict management, Coping Behavior, Editorial, Emotion, Health Care Personnel, Human, March 2018 List, Medical Decision Making, Nurse, Parental Attitude, Pediatrics, Physician, physiotherapist, Priority Journal, Psychologist, Teamwork, Terminal Care, Verhagen AAE