Browse Items (28 total)
- Tags: Follow Up
Palliative team involvement in end-of-life care for Jewish and Muslim children in Jerusalem: A unique clinical and cultural context
Tags: 2023, Analgesia, Article, Child, Decision Making, Female, Follow Up, Fried I, Genetic Disorder, Human, invasive procedure, living will, Major Clinical Study, Male, May List 2023, Medical Record Review, Muslim, Palliative And Supportive Care, Palliative Therapy, pediatric patient, psychosocial care, religious background, Retrospective Study, Shack AR, Siedner-Weintraub Y, Spiritual Care, Terminal Care
Population-Level Analysis of Appropriateness of End-of-Life Care for Children with Neurologic Conditions
Tags: 2023, Analysis of Variance, Article, Beernaert K, Belgium, Child, Cohen J, Cohort Analysis, Comfort, Deliens L, Drawing, Female, financial management, Follow Up, General Practitioner, Human, Intensive Care Unit, Major Clinical Study, Male, May List 2023, nationality, Palliative Therapy, Phlebotomy, Physician, Piette V, Retrospective Study, Sibling, Smets T, Surgery, Terminal Care, The Journal Of Pediatrics, Total Quality Management, van Berlaer G
End of life in patients attended by pediatric palliative care teams: what factors influence the place of death and compliance with family preferences?
Tags: 2023, Article, Child, Child Death, Childhood Mortality, death toll, Decision Making, Escobosa-Sanchez O, European Journal of Pediatrics, Female, Follow Up, Home Visit, Hospital Mortality, Human, living will, Madrid-Rodriguez A, Major Clinical Study, Martino-Alba R, May List 2023, Morales-Asencio JM, Multicenter Study, Navarro-Mingorance Á, neuromuscular function, Palliative Care, Palliative Therapy, Pelaez-Cantero MJ, Place Of Death, Probability, Quality Of Life, Right to Die, Tavera-Tolmo A, Terminal Care
Social Workers in Pediatric Intensive Care Units: A Physician Perspective
Tags: 2022, abuse, Adolescent, April List 2023, Article, Aslan K, Atakul G, Caglar A, Child, child custody, child neglect, Child Psychiatry, community mental health center, Consultation, Counseling, Demircan TO, Female, Follow Up, hospital information system, Hospitalization, Human, Infant, Intensive Care Units, Male, Ozhan P, Palliative Therapy, Pediatric Intensive Care Unit, Physician, Retrospective Study, social problem, Social Work, Social Worker, Turkey (republic), Turkish Journal of Pediatric Disease
Massage therapy for symptom reduction and improved quality of life in children with cancer in palliative care: A pilot study
Tags: 2020, Adolescent, Article, Carcinoma, Child, Clinical Article, Complementary Therapies in Medicine, Controlled Study, Expectation, Female, Follow Up, Genik L M, Human, Leukemia, Lymphoma, Male, Marshall S, Massage, McMurtry C M, Oncology 2020 List, Pain, Pain Measurement, Palliative Therapy, patient worry, Pilot Study, Quality Of Life, Quantitative Study, Rapoport A, Sarcoma, Stinson J
The Use of Concurrent Home Hospice for Pediatric Heart Failure Patients Awaiting Heart Transplant on Milrinone and/or Ventricular Assist Device
Tags: 2020, 78415-72-2 (milrinone), Adams V L, Body Weight, Burnette A L, Child, Clergy, conference abstract, Controlled Study, dietitian, Emergency Ward, Feeding, Follow Up, Heart Failure, heart graft, Henderson H T, Home Visit, Hospice, Hospital Admission, hospital discharge, hospital readmission, Human, inotropism, Journal of Heart and Lung Transplantation, May 2020 List, milrinone, money, Mortality, Outpatient, Palliative Therapy, Satisfaction, Savage A J, Social Worker, travel
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
Feasibility and Acceptability of Recruiting Very Young Hospitalized Children Receiving Palliative Care to an Integrative Therapy Study (S743)
Tags: 2020, Adolescent, Allmendinger-Goertz K, Child, conference abstract, Controlled Study, Critically Ill Patient, Feasibility Study, Female, Follow Up, Foster Care, Friebert S, Hospitalized Child, Human, Ibach M, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Pilot Study, Reiki, Shaner V, Thrane S
Pediatric palliative podcasting as a tool to reach families
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Tags: 2020, Child, Clinical Article, Comfort, community hospital, conference abstract, Consensus, Education, Evan E, Feasibility Study, Female, Follow Up, Human, Human Experiment, Journal of Pain and Symptom Management, Likert scale, Male, March 2020 List, Mock K O, Palliative Therapy, Primary Health Care, program feasibility, Questionnaire, Sandesara A, Satisfaction, Telehealth, tertiary care center, Total Quality Management
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Clinical practice and outcomes of palliative radiation therapy in pediatric oncology patients: An international comparison of experiences from two distinct countries and health care systems
Tags: 2019, Alcorn S R, Anorexia, Article, bradycardia, Brain Metastasis, Cancer Palliative Therapy, cancer radiotherapy, Cancer Survival, Chen M J, Chen Q, Child, Childhood Cancer/rt [radiotherapy], Clinical Outcome, Clinical Practice, Cohort Analysis, Figueiredo M L S, Follow Up, Human, Ladra M, leukemia/rt [Radiotherapy], lymphoma/rt [Radiotherapy], Major Clinical Study, mucosa inflammation, neuroblastoma/rt [Radiotherapy], Oncology 2019 List, Opiate/dt [drug Therapy], opiate/pv [Special Situation for Pharmacovigilance], osteosarcoma/rt [Radiotherapy], Pain/dt [drug Therapy], Palliative radiation therapy, Palliative Therapy, pediatric patient, Pediatric radiation therapy, Preschool Child, Priority Journal, radiation dermatitis, Radiation Dose Fractionation, radiation induced neoplasm, Radiotherapy and Oncology, Rao A D, rectum hemorrhage, Sehgal S, Terezakis S A, Treatment Outcome, treatment response, tumor growth, Villar R, Yegya-Raman N
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
Comparison of treatment modalities in syndromic children with Obstructive Sleep Apnea-A randomized cohort study
Tags: 2014, adenotonsillectomy, apnea hypopnea index, Article, Arumugam S V, breathing difficulties, Child, Clinical Effectiveness, Continuous Positive Airway Pressure, Controlled Study, CPAP device, Down Syndrome, Epworth sleepiness scale, ess-c, Female, Follow Up, Human, International Journal of Pediatric Otorhinolaryngology, Kameswaran M, Major Clinical Study, Male, MPSI, MPSII, MPSIII, MPSIIIA, MPSIIIB, MPSVI, MPSVII, Mucopolysaccharidoses, Mucopolysaccharidosis, Murali S, osa-18, outcome assessment, Paramasivan V K, Pediatric obstructive sleep apnea, physical interventions, positive end expiratory pressure, Priority Journal, Quality Of Life, radiofrequency ablation device, Randomized Controlled Trial, sleep disordered breathing/su [Surgery], sleep disordered breathing/th [Therapy], Sudarsan S S, surgical interventions, Treatment Outcome
Subthalamic Nuclei Stimulation in Patients With Pantothenate Kinase-Associated Neurodegeneration (PKAN)
Tags: 2017, Adolescent, Adult, Article, Brain Depth Stimulation, Burke Fahn Marsden Dystonia Rating Scale movement rating scale, Case Report, deep brain stimulation, Dou W, Dystonia, Female, fluency disorder, Follow Up, globus pallidus internus, Guo J, Guo Y, Human, IND, Liu Y, Liu Z, Ma W, Male, Middle Aged, neurodegeneration with brain iron accumulation/th [Therapy], neurologic disease assessment, Neurologic Examination, Neuromodulation, pantothenate kinase-associated neurodegeneration, scoring system, subthalamic nuclei, subthalamic nuclei stimulation, Subthalamic Nucleus, surgical intervention, tone and motor problems, Treatment Outcome, Wan X, Wang L, Wang R, Wang Y, Yang Y
Effect of selective dorsal rhizotomy on daily care and comfort in non-walking children and adolescents with severe spasticity
Tags: 2017, Adolescent, Attention, Becher J G, Bolster E A M, Buizer A I, Cerebral Palsy, Child, Clinical Article, Comfort, Congenital Malformation, Controlled Study, dorsal rhizotomy, Dystonia, European Journal of Paediatric Neurology, Follow Up, Human, leg muscle, lipidoses, Medical History, Pain, risk factor, Satisfaction, School Child, scoliosis, selective dorsal rhizotomy, Spasticity, Stadhouder A, Strijers R L, surgical intervention, tone and motor problems, van de Pol L A, van Ouwerkerk W J, van Schie P E M, Vermeulen R J
Deep Brain Stimulation in Rare Inherited Dystonias
Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]
Efficacy and safety of endoscopic dilation of esophageal strictures in epidermolysis bullosa
Tags: 2004, Adolescent, Adult, Anderson S H C, Article, Balloon dilatation, barium, Body Weight, Chappiti U, contrast enhancement, Doig L, Dysphagia, Eady R A J, endoscopic balloon dilatation, endoscopic therapy, epidermolysis bullosa, epidermolysis bullosa/th [Therapy], esophagus dilatation, esophagus stricture/th [Therapy], feeding difficulties, Female, Follow Up, Gastrointestinal Endoscopy, Human, Major Clinical Study, Male, Meenan J, Morbidity, Nutritional Status, Prinja H, Priority Journal, Propofol, School Child, scoring system, surgical intervention, Thompson R P H, Treatment Outcome, Williams K N
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Courageous conversations: Advance care planning and family communication
Tags: 2018, Adult, Advance Care Planning, anxiety assessment, anxiety disorder, Battles H, conference abstract, Controlled Study, Conversation, Cooperation, De Arruda Colli MNF, Donovan KA, Fasciano K, Follow Up, Heath C, Human, Leonard S, Lyon M, Oncology 2018 List, Pao M, Pediatric Blood and Cancer, social media, Wiener L, Young Adult, Zadeh BS
Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand
Tags: 2018, 52-26-6 (morphine), 57-27-2 (morphine), Bereavement, Brain Tumor, cancer center, Cancer Recurrence, Cancer Survival, Cancer Therapy, Chamnanprai S, Child, Childhood Cancer, Cohort Analysis, conference abstract, Controlled Study, Counseling, Death, Developing World 2018 List, Female, Follow Up, Home Visit, Human, Leukemia, Lymphoma, Major Clinical Study, Male, median survival time, Morphine, Nuchprayoon I, Pain, Palliative Therapy, Pediatric Blood and Cancer, Quality Of Life, Raksrithong T, solid malignant neoplasm, Thailand
Bereaved parents' experiences of research participation
Bereavement follow-up: Listening and learning
Tags: 2018, Bereavement, Child, Clinical Article, conference abstract, Consterdine K, Consultation, Diagnosis, Female, Follow Up, genetic transcription, Human, Intensivist, Learning, Male, Memory, November 2018 List, Nurse, Pediatric Critical Care Medicine, Ryan C, Staff, Subramanian G, Terminal Care
Palliative care in children with spinal muscular atrophy type 1: How do they die? Results from a French multicentric study (National Hospital clinical Research Program)
Tags: 2017, 50-48-6 (amitriptyline), 52-26-6 (morphine), 549-18-8 (amitriptyline), 57-27-2 (morphine), Amitriptyline, Barnerias C, benzodiazepine derivative, Child, Clinical Article, Clinical Practice, Clinical Research, Desguerre I, Diagnosis, Drug Therapy, European Journal of Paediatric Neurology, Female, Follow Up, Hully M, Human, Infant, Intensive Care Unit, Interview, January 2018 List, Male, Morphine, Multicenter Study, nasogastric tube, Noninvasive Ventilation, Palliative Therapy, Psychologist, quantitative analysis, Resuscitation, time of death, Vanesse S, Viallard ML, Werdnig Hoffmann disease
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Neonatal Palliative Care
Analysis Of Death And Palliative Care In A Neonatal Intensive Care Unit
Tags: 2017, Analgesia, Analgesic Agent, Article, Ceccon M E J, Clinical Article, De Barbosa S M M, Descriptive Research, Female, Follow Up, Hospitalization, Human, Male, Marcola L, Neonatal Intensive Care Unit, Newborn, Newborn Death, October 2017 List, Pain Assessment, Palliative Therapy, Polastrini R T V, Prematurity, Resuscitation, Retrospective Study, Revista Paulista de Pediatria, Sedation, Sedative Agent, Zoboli I
Mechanical Ventilation In Children With Life-limiting Conditions
Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult