Browse Items (369 total)
- Tags: 2023
The Experience of Parental Caregiving for Children With Medical Complexity
Tags: 2023, 2024 SE2 - Parent Perspectives, Arje D, Caregivers, Caregivers/psychology, Child, Children With Medical Complexity, Chronic Disease, Clinical Pediatrics, Cohen E, Esser K, Humans, Mental Health, Moore C, Orkin J, Parenting, Parents/psychology, Qualitative Research, Quality Of Life, Teicher J, Weiser N
Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique
Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey study
Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea
Tags: 2023, 2025 SE1 - Oncology, Article, Bereavement, Caregiver, Child, Choi S, Clinical Article, congenital disorder, Controlled Study, emotional support, Female, Human, Hwang HL, Infant, Interview, Journal of Hospice and Palliative Nursing, Kim S, Leukemia, Male, Min H, Newborn, Oh SJ, Palliative Therapy, Parent, Phenomenology, School Child, South Korea
Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey
Tags: 2023, 2025 SE1 - Oncology, Bereavement, Bergstraesser E, Childhood Cancer, De CE, EJC Paediatric Oncology, Health Services, Hendriks MJ, Hjorth L, Integrative Oncology, Michel G, Paediatrics, Palliative Care, Palliative supportive care, Patient Care, Pedraza EC, Raguindin PF, Rüesch K, Services, Tinner EM, Vokinger AK, von Bueren AO, Wiener L
Parental perspectives on home-based palliative care in children with advanced cancer
Tags: 2023, 2025 SE1 - Oncology, Advanced Cancer, Bereavement Support, Biji MS, cancer center, Child, Childhood Cancer, conference abstract, Drug Therapy, Father, Fatigue, Female, friend, Gopakumar KG, Home Care, Human, Jithin TK, Journal Of Pediatric Hematology/oncology, Likert scale, Male, Nimitha T, Observational Study, Only Child, oral drug administration, Pain, Palliative Care, Palliative Therapy, Questionnaire, refractory disease, relapse, Rizwana KN, social media, Therapy
What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature
Tags: 2023, 2025 SE1 - Oncology, administrative health data, Adolescent, Adult, Analgesia, Anticipation, Body Image, cancer center, Cancer Chemotherapy, Cancer Diagnosis, Cancer Palliative Therapy, Cancer Patient, Cancer Prognosis, cancer radiotherapy, Cancer Therapy, Checklist, Childhood Cancer, Chinese Version of the Medical Coping Mode Questionnaire, clinical assessment, clinical evaluation, Condren C, Coping, Data Base, data extraction, Demographics, Depression, Depression Anxiety and Stress Scale-21, developmental stage, Disease Burden, Disease Severity, Distress Syndrome, Dying, Edmonton Classification System of Cancer Pain, emotional support, Fatigue, Female, financial management, Follow Up, Gender Identity, Guerin S, Health Care, Health Personnel Attitude, Hematologic Malignancy, Hospital Anxiety and Depression Scale, Human, illness trajectory, Journal Of Adolescent And Young Adult Oncology, Looney K, Male, malignant neoplasm/rt [Radiotherapy], Mental Health, mood change, Neylon K, occupation, Oncology, Patient Autonomy, Patient Referral, patient-reported outcome, Pediatric Quality of Life Inventory, Personal Experience, Population, Prevalence, program appropriateness, Prospective Study, Psycho-Oncology, psychological aspect, psychosocial care, Psychosocial Intervention, Qualitative Analysis, Qualitative Research, quantitative analysis, Questionnaire, Review, Self Report, Semi Structured Interview, sexual health, Short Form 12, Side Effect, social needs, Social Support, Social Support Rating Scale, Social Worker, solid tumor, Study Design, Symptom, Systematic Review, Terminal Care, Thematic Analysis, unmet medical need, Western Australia, workshop, Young Adult
Cannabinoids for symptom management in children with cancer: A systematic review and meta-analysis
Tags: 2023, 2025 SE1 - Oncology, Acute Lymphoblastic Leukemia, Article, Ben-Eltriki M, Bowers A, Bradford N, Brain Tumor, Cancer, cannabinoid/ae [Adverse Drug Reaction], cannabinoid/dt [Drug Therapy], cannabinoid/pv [Special Situation for Pharmacovigilance], chemotherapy induced nausea and vomiting/dt [Drug Therapy], chemotherapy induced nausea and vomiting/pc [Prevention], chemotherapy-induced febrile neutropenia/dt [Drug Therapy], Chhabra M, childhood cancer/dt [Drug Therapy], delta8 tetrahydrocannabinol/dt [Drug Therapy], delta8 tetrahydrocannabinol/pv [Special Situation for Pharmacovigilance], dizziness/si [Side Effect], domperidone/cm [Drug Comparison], domperidone/dt [Drug Therapy], domperidone/pv [Special Situation for Pharmacovigilance], dronabinol/dt [Drug Therapy], dronabinol/pv [Special Situation for Pharmacovigilance], Drug Efficacy, drug formulation, drug indication, Drug Safety, Hematologic Malignancy, Herbert A, Human, Kelly LE, levonantradol/dt [Drug Therapy], levonantradol/pv [Special Situation for Pharmacovigilance], Lymphoma, Me-Linh LE, meta analysis, nabilone/cm [Drug Comparison], nabilone/dt [Drug Therapy], nabilone/pv [Special Situation for Pharmacovigilance], nephroblastoma, Neuroblastoma, Oberoi S, Osteosarcoma, Palliative Therapy, Paul A, prochlorperazine/cm [Drug Comparison], prochlorperazine/dt [Drug Therapy], prochlorperazine/pv [Special Situation for Pharmacovigilance], Rassekh SR, somnolence/si [Side Effect], Systematic Review, xerostomia/si [Side Effect]
Changes in Relationships in Bereaved Families: Perspectives of Mothers
Tags: 2023, 2025 SE1 - Oncology, Bereavement\, Cancer Patients\, Child\, Emotions\, Family, Family Attitudes\, Funding Source\, Grief\, Howey W, Human\, Interpersonal Relations\, Interviews\, Kim MA, Korea\, Mothers, Neoplasms\, OMEGA - Journal of Death and Dying, Psychosocial Factors, Psychosocial Factors\, Sang J, Sung J, Thematic Analysis\, Yi J
Parental knowledge and views regarding palliative care for children with cancer in Greece
Tags: 2023, 2025 SE1 - Oncology, Adult\, Analysis of Variance\, Baka M, Chi Square Test\, Child\, Childhood Neoplasms, Cross Sectional Studies\, Data Analysis Software\, Descriptive Research\, Descriptive Statistics\, Dousis E, Educational Status\, Evagelou E, Evaluation\, Female\, Govina O, Greece\, Health Knowledge, Hospitalization\, Human\, Income\, Male\, Mann-Whitney U Test\, Mavrougiannou A, Middle Age\, Nosileftiki, Oncology Nursing\, Palliative Care\, Parental Attitudes, Parents, Pearson's Correlation Coefficient\, Pediatric Nursing\, Petsios K, Polychronopoulou S, Psychosocial Factors\, Quality of Life\, Questionnaires\, T-Tests\, Therapy, Vlachou E
Realities and ideals: Experiences and needs of pediatric oncology nurses in communication processes with children and their families at the end-of-life period: A photovoice qualitative study
Tags: 2023, 2025 SE1 - Oncology, Algul G, Article, Child, Childhood Cancer, Clinical Article, Controlled Study, environmental factor, Female, Human, Kilicarslan TE, Male, mindfulness, Nurse, Nursing and Health Sciences, oncology nurse, oncology ward, Ozdemir KH, Palliative Therapy, Qualitative Research, Semi Structured Interview, Terminal Care, Thematic Analysis, Uncertainty, University Hospital, Voice
Symptoms of advanced cancer in palliative medicine: a longitudinal study
Tags: 2023, 2025 SE1 - Oncology, Antineoplastic Agents, BMJ Supportive and Palliative Care, Child, Groenvold M, Hansen MB, Humans, Longitudinal Studies, Neoplasms, Neoplasms/co [complications], Neoplasms/ep [Epidemiology], Neoplasms/th [therapy], Pain, Palliative Care/px [psychology], Palliative Medicine, Petersen MA, Quality Of Life, Rojas-Concha L, Surveys And Questionnaires
Taboo words in pediatric oncology: Communication experiences of nurses and physicians with dying children and their families
Tags: 2023, 2025 SE1 - Oncology, Advance Care Planning, Article, Aydin A, Bingol H, Child, Childhood Cancer, Clinical Article, Diagnosis, Dying, European Journal Of Oncology Nursing, Family, Female, Health Care Personnel, Human, Interpersonal Communication, Kebudi R, Male, Nurse, Oncology, Palliative Therapy, Physician, Qualitative Research, Savas EH, taboo, Terminal Care, Thematic Analysis
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes
Tags: 2023, 2025 SE1 - Oncology, Adolescent, Advance Care Planning, Article, Benchmarking, Bogetz JF, Child, Chromosome Disorder, Clinician, Consultation, Diagnosis, Distress Syndrome, Dyspnea, Fatigue, Friedrichsdorf SJ, Hospital Pediatrics, Hospitalization, Human, Length Of Stay, Male, O'Riordan DL, Pain, Palliative Therapy, Pantilat SZ, Patient Referral, Postier AC, psychosocial care, Purser L, Root MC, solid tumor, Total Quality Management, Treatment Outcome
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in Brazil
Tags: 2023, 2025 SE2 - LRS, Adult, Agulnik A, Antunes Geronutti Ayub D, Article, Baker JN, Beatriz Costa Neves Do Amaral A, Bereavement, Boldrini E, Brazil, Cancer Palliative Therapy, Child, Childhood Cancer, clinical assessment, Consultation, Cristina Cunha Ferreira EFonseca I, De Oliveira Junior A, Devidas M, emotional support, Esmeraldo Andrade De Almeida A, Female, Francisco Oliveira De Lima A, Friedrich P, Godfrey A, Grief, Health Care Access, health care need, Health Education, Health Survey, Home Care, Human, JCO Global Oncology, Job G, Loggetto P, Lopes Garcia J, Male, McNeil MJ, Medical Expert, Metzger ML, Pediatric Palliative Care, Pediatrics, physical activity, Physician, Physician Attitude, professional knowledge, Qualitative Analysis, Quality Of Life, Regina Costa Murra G, Spiritual Care, World Health Organization
Coping with paediatric end-of-life care: Insights from South African paediatric registrars
Tags: 2023, 2025 SE2 - LRS, Child, conference abstract, Coping Behavior, Coping Strategy Questionnaire, Cross-sectional Study, Female, high income country, Human, Kimmie-Dhansay F, Kling S, Kruger M, Male, Psychological Well-being, Religion, School Child, South African, South African Journal of Child Health, Sullivan A, Terminal Care
Unmet Needs of Palliative Care Among Iranian Children with Cancer and Their Families: A Qualitative Study
Vulnerability in women primary caregivers of children in palliative care due to intimate partner violence in a pediatric hospital in Mexico
End-of-life care in neonatal intensive care units in Iberoamerica: A look from the nursing perspective
Tags: 2023, 2025 SE2 - LRS, Anales de Pediatría, Article, Cross-sectional Study, Follow Up, Grief, Human, Medical Record, Montes Bueno MT, Munoz C, Neonatal Intensive Care Unit, Newborn Death, Newborn Intensive Care, newborn nursing, Nurse, Perinatal Death, Privacy, Rodriguez S, social network, Sola A, Terminal Care
Music therapy in paediatric palliative care: A scoping review
Context of death and end-of-life decision-making in paediatric patients with neurological conditions
Tags: 2023, Adolescent, Adult, Advance Care Planning, Age, Aguirre IA, Article, brain tumor/th [Therapy], Carmona-Nunez A, Cerebral Palsy/th [Therapy], Child, Controlled Study, Death, Demographics, Echaniz JS, Follow Up, Hospital Admission, Human, hypoxic ischemic encephalopathy/th [Therapy], Intensive Care Unit, Irazabal GM, Lopez-Bayon J, Major Clinical Study, Medical Decision Making, Medicina Paliativa, Murguiondo MI, neurologic disease/th [Therapy], October List 2024, Palliative Therapy, patient coding, pediatric patient, Pejenaute IS, Preschool Child, Retrospective Study, Sarriegui AZ, Terminal Care, Treatment Withdrawal, ward
Experiences of medical traumatic stress in parents of children with medical complexity
Tags: 2023, 2024 SE2 - Parent Perspectives, Birnie K, Child: Care, Child: Care, Health and Development, Children With Medical Complexity, chronic conditions, complex, Dewan T, Drury J, Health and Development, Jordan I, medical traumatic stress, Miller M, Neville A, Noel M, Parent, post-traumatic stress, Randhawa A, Trauma, Trauma-informed care, Zadunayski A, Zwicker J
Trauma and resilience informed research principles and practice: A framework to improve the inclusion and experience of disadvantaged populations in health and social care research
Palliative Care Family Support in Neonatology
Tags: 2023, Acute Stress Disorder, anxiety, Currie ER, Decision-making, Depression, End Of Life Care, End-of-life Care, Family bereavement supports, family support, Family-centered Care, Fetal Diagnosis, Grandparent bereavement, Life-limiting, Life-threatening, May List 2024, Navaneethan H, Neonatal, Non-Hispanic Black infants, Non-Hispanic White infants, Palliative Care, Parent grief, Perinatal Death, Perinatal Mortality, PostTraumatic Stress Disorder, Principles of Neonatology, Question Prompt List, sibling bereavement, Stress, Trisomy 18, Weaver MS
Psychometrics assessment of ethical decision-making around end-of-life care scale for adolescents in the final stage of life
Tags: 2023, Adolescent, April List 2024, Article, case control study, Child, confirmatory factor analysis, Cronbach alpha coefficient, Decision Making, Ethical Decision Making, exploratory factor analysis, Female, Frontiers in Pediatrics, Health Care Personnel, Hosseiny SMM, Human, Human Experiment, Internal Consistency, Iran, Khazaei S, Male, Masoumi SZ, Mohammadi F, nurse manager, Psychometrics, psychometry, Reliability, Terminal Care, Validity
Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Tags: 2023, alternative medicine, Article, Bottigelli C, Burnout, Campione G, care behavior, Child, Child Psychology, Ciappina S, Clinical Practice, clinical psychology, Controlled Study, diastolic blood pressure, Emotional Stress, Fagioli F, Health Care Personnel, Heart Rate, Human, Italy, Lijoi S, March List 2024, Nurse, oxygen saturation, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Parrinello A, Pilot Projects, Pilot Study, Piu P, Psychologist, Quarello P, Reiki, Self Care, special situation for pharmacovigilance, systolic blood pressure, work environment, Workplace, Zucchetti G
Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia
Tags: 2023, Article, Australia, Bmj Open, care behavior, Child, courage, Decision Making, Gillam L, Human, Hynson J, Interpersonal Communication, Interview, Male, March List 2024, O'Neill J, Palliative Therapy, Parent, Pediatrician, Phenomenology, shared decision making, Signal Transduction, Simulation, Vemuri S, Williams K
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K
Thirty-day mortality as a metric for palliative radiotherapy in pediatric patients
Tags: 2023, Adult, Article, biological marker, Child, Current Opinion in Supportive and Palliative Care, Female, Human, Johnstone PAS, Keit E, Male, March List 2024, Metronidazole, Mortality, Nanda R, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, Quality Of Life, Radiotherapy, terminally Ill Patient
Whispers in the waiting room
Grieving Parents' Meaning-Making Narration in Relation to Value Orientations: A Cross-Cultural Study
Tags: 2023, Adult\, Autobiographical Memory\, Chinese Persons, Comparative Studies\, Complicated Grief, Cultural Values\, Descriptive Statistics\, Ethnological Research\, Evaluation\, February List 2024, Female\, Human\, Jia X, Killikelly C, Life Experiences\, Life Purpose\, Maercker A, Male\, Middle Age\, Narratives\, Parent-Child Relations\, Parents, Psychosocial Factors\, Reflection\, Scales\, Self Assessment\, Self Report\, Swiss Persons, Transcultural Psychiatry, Xiu D, Yang Y
Pediatric palliative care utilization by decedent children: A nationwide population-based study, 2002-2017
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY
Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M
Palliative care for children: methodology for the development of a national clinical practice guideline
Tags: 2023, Advance Care Planning, Article, Bereavement, BMC Palliative Care, Borggreve BCM, Child, Drug Administration, evidence based medicine, February List 2024, Human, Kremer LCM, Methodology, Michiels EMC, Mulder RL, Palliative Therapy, Practice Guideline, psychosocial care, Qualitative Research, Randomized Controlled Trial, Rippen H, shared decision making, special situation for pharmacovigilance, Systematic Review, Therapy, van Teunenbroek KC, Verhagen AAE, Verheijden JMA
Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives
Tags: 2023, Adolescent, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Cross-sectional Study, Disease Management, Drug Therapy, European Journal of Pediatrics, February List 2024, Female, Guillen M, Human, Limonero JT, Male, nonparametric test, Palliative Therapy, Parent, Perception, psychologic assessment, Quality Of Life, sociodemographics, special situation for pharmacovigilance, Toro-Perez D, Vilarrubi SN, Voice
Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU: A Descriptive Phenomenological Study
Shared decision-making in pediatric palliative care
Parents' hope in perinatal and neonatal palliative care: a scoping review
Tags: 2023, Autonomy\, BMC Palliative Care, Charepe Z, CINAHL Database\, Coping\, Critical Illness\, Dias PLM, February List 2024, Franco LF, Funding Source\, Hope\, Human\, Intensive Care Neonatal\, Interpersonal Relations\, Medline\, Palliative Care\, Parental Attitudes\, Parenthood\, Parents, Perinatal Care\, Perinatal Period\, Psychosocial Factors\, Psycinfo\, Scoping Review\, Silveira AO, Uncertainty\, Wernet M