Browse Items (430 total)

Tags: 2017, April List 2024, Article, Child, Child Health, Childhood Mortality, college, Human, Infant, Nursing Standard, Palliative Therapy, Pearce L, Pediatrics, Terminal Care, Western Europe

Tags: 2017, Adult, Anspacher M, Burd A, Conroy R, Curriculum, Education, feedback system, Female, Human, Infant Newborn, Male, March List 2024, MedEdPORTAL, medical student, Neonatal Intensive Care Unit, Neonatology, Newborn, Organization And Management, Palliative Therapy, Procedures, Stroh J, Teaching

Tags: *Fathers/px [Psychology], *Graphic Novels as Topic, *Grief, *Perinatal Death, *Stillbirth, 2017, 2023 SE4 - Parent Perspectives, Death, Humans, Journal Of Medical Humanities, Male, Narration, Qualitative Research, Weaver-Hightower, Marcus B

Tags: 2017, 2031 SE2 - Parent Perspectives, Andrews GS, behavior problems, Cadell S, Child Behavior Problems, Chronic Illness, Complex Chronic Conditions, DeLongis A, Families, Family, Journal of Pediatric Psychology, Palliative Care, Pediatric Palliative Care, Pediatrics, Posttraumatic Growth, Siblings, Siden H, Steele R, Stephenson E

Tags: 2017, 2026 SE2 - Parent Perspectives, behavior problems, Behaviour Problems, Child: Care, Health and Development, Childhood Development, Emotional Adjustment, Fullerton JM, Hain R, Hastings RP, Impact On Siblings, Life‐limiting, Quality Of Life, Sibling Relations, Terminally Ill Patients, Totsika V

Tags: 2017, achondroplasia, Achondroplasia/co [Complications], Achondroplasia/ge [Genetics], Age Factors, Antoniazzi F, Cantalupo G, characteristics, Child, Child Preschool, Cohort Studies, EC 2-7-10-1 (FGFR3 protein human), EC 2-7-10-1 (Receptor Fibroblast Growth Factor Type 3), feeding difficulties, Female, Gasperi E, Humans, Incidence, Infant, Lo Tartaro P, Male, Minerva Pediatrica, Piacentini G, Polysomnography/mt [Methods], Receptor Fibroblast Growth Factor Type 3/ge [Genetics], respiratory sleep disorder, Sleep Apnea Syndromes/di [Diagnosis], Sleep Apnea Syndromes/ep [Epidemiology], Sleep Apnea Syndromes/et [Etiology], Surveys And Questionnaires, Trajectory, Zaffanello M

Tags: 2017, Autism, Autism Research, Behavioral Sciences, bruxism, CDKL5, characteristics, chinese patients, Disorders, Epilepsy, Ganglia, girls, hair pulling, Hung P L, Jan T Y, Lee W T, lip protrusion, manifestations, mecp2, mecp2 mutations, motor stereotypies, Movement Disorders, Psychology, retropulsion, Rett syndrome, stereotypies, stereotypy, tone and motor problems, Trajectory, Wong L C

Tags: 2017, cerebral-palsy, Childs Nervous System, deep brain stimulation, Dystonia, globus-pallidus internus, Granader Y, hemidystonia, IND, Keating R F, Lavenstein B, Neurosciences & Neurology, Oluigbo C O, Pediatric neurosurgery, Pediatrics, Reddy S K, secondary dystonia, Surgery, surgical intervention, surgical-treatment, Tochen L, tone and motor problems, Tsering D

Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M

Tags: 2-minute, 2017, 6-minute, adults, Bisgaard A M, cerebral-palsy, Children, Disability And Rehabilitation, disability inventory, Downs J, functional mobility scale, girls, Leonard H, Modified two-minute walk test, Nordmark E, pediatric evaluation, Rehabilitation, Rett syndrome, Rett syndrome specific functional mobility scale, RSGMS, scale development, Stahlhut M, test-retest reliability, tone and motor problems, tool development, two-minute walk test, Walking

Tags: 2017, functional scales, Mendoza-Pulido C, MFM, motor function measure, Motor Skills, Neuromuscular Diseases, Ortiz-Corredor F, Reliability, Ruiz-Cortes X, scale development, The Journal of International Medical Research, tone and motor problems, tool development

Tags: 2017, angelman-syndrome, behavioral problems, bowel incontinence, characteristics, Children, Constipation, Curfs L, Education & Educational Research, Einfeld S, enuresis, Equit M, features, fecal incontinence, hirschsprungs-disease, Mowat D, Mowat-Wilson syndrome, Niemczyk J, Phenotype, psychopathology, Rehabilitation, Research in Developmental Disabilities, Trajectory, urinary incontinence, urinary-incontinence, von Gontard A, Wagner C

Tags: 2017, behavioral problems, Bergsaker D K, characteristics, chromosome 4p deletion, European Journal of Medical Genetics, Hoxmark L B, Hunn B S, Nag H E, Schmidt S, sleep disturbance, tone and motor problems, Trajectory

Tags: 102767-28-2 (levetiracetam), 1069-66-5 (valproic acid), 1309-48-4 (magnesium oxide), 1317-74-4 (magnesium oxide), 14093-02-8 (iron), 14378-32-6 (zinc), 146-22-5 (nitrazepam), 1622-61-3 (clonazepam), 2017, 22316-47-8 (clobazam), 298-46-4 (carbamazepine), 461-06-3 (carnitine), 50-06-6 (phenobarbital), 53858-86-9 (iron), 541-15-1 (carnitine), 56-99-5 (carnitine), 57-30-7 (phenobarbital), 57-88-5 (cholesterol), 59-30-3 (folic acid), 6484-89-5 (folic acid), 68291-97-4 (zonisamide), 7439-89-6 (iron), 7440-66-6 (zinc), 7782-49-2 (selenium), 8028-68-0 (phenobarbital), 8047-84-5 (carbamazepine), 84057-84-1 (lamotrigine), 99-66-1 (valproic acid), acute brain disease, Adult, albumin, albumin blood level, anticonvulsant therapy, Aomatsu T, Article, bacterial meningitis, bed rest, body mass, brain infarction, carbamazepine/dt [Drug Therapy], carnitine, carnitine deficiency, carnitine deficiency/dt [Drug Therapy], carnitine/dt [Drug Therapy], Cerebral Palsy, Child, cholesterol blood level, cholesterol/ec [Endogenous Compound], Clinical Article, Clinical Trial, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], Constipation, constipation/dt [Drug Therapy], constipation/pc [Prevention], Controlled Study, copper blood level, cupric ion/ec [Endogenous Compound], diet supplementation, Disease Severity, Endogenous Compound, enema/dt [Drug Therapy], enteric feeding, epilepsy/dt [Drug Therapy], Female, folic acid, folic acid blood level, folic acid/ec [Endogenous Compound], Gene Expression, groups by age, Hospital, Human, Human Tissue, infantile spasm, Inoue K, Intellectual Impairment, iron blood level, iron/ec [Endogenous Compound], Journal of Clinical Biochemistry and Nutrition, lamotrigine/dt [Drug Therapy], levetiracetam/dt [Drug Therapy], magnesium oxide/dt [Drug Therapy], Male, Medical Record Review, Middle Aged, motor dysfunction, Murata S, NCL3, neuronal ceroid lipofuscinosis, nitrazepam/dt [Drug Therapy], Pelizaeus Merzbacher disease, Pelizaeus- Merzbacher disease, periventricular leukomalacia, pharmacologic intervention, phenobarbital/dt [Drug Therapy], prealbumin, prealbumin/ec [Endogenous Compound], Preschool Child, Retrospective Study, School Child, selenium blood level, selenium/ec [Endogenous Compound], sex difference, Tamai H, trace element, Tuberous Sclerosis, valproic acid, valproic acid/dt [Drug Therapy], West syndrome, Yoden A, Young Adult, zinc/ec [Endogenous Compound], zonisamide/dt [Drug Therapy]

Tags: 2017, behavioral problems, characteristics, De Lange syndrome, Developmental Medicine and Child Neurology, Hennekam R C, Huisman S A, Mulder P A, Oliver C, Piening S, Trajectory, Van Balkom I D C

Tags: 2017, Adolescent, Adult, Article, auditory hallucination, CAG repeat, characteristics, Child, Clinical Article, Controlled Study, Epping E, Espe-Pfeifer P, Female, Health Survey, Hudgell D, Human, Huntington chorea, juvenile, Juvenile Huntington disease, leg pain, Male, Martin E, Mathews K, Moser A D, Nance M, Neurodegenerative Disease Management, Nopoulos P, Pain, Priority Journal, pruritus, psychosis, Quarrell O, skin irritation, sleep disorder, sleep disturbance/disorders, tic, Trajectory, visual hallucination, Zhorne L

Tags: 1134-47-0 (baclofen), 2017, acquired brain injury, Adolescent, Article, Baclofen/dt [drug Therapy], baclofen/tl [Intrathecal Drug Administration], Campbell D I, Case Study, central nervous system disease, Cerebral Palsy, Child, Clinical Article, Constipation, Dystonia, dystonia/dt [Drug Therapy], feed induced dystonia, feed induced dystonia/dt [Drug Therapy], feeding difficulties, Female, Gastroesophageal Reflux, Gastroscopy, GERD, Human, Hydrocephalus, Hyperglycinemia, Infant, infantile spasm, intestinal dysmotility, intestine motility, Intestine Obstruction, Journal Of Pediatric Gastroenterology And Nutrition, Male, microcephaly, Mordekar S R, motor dysfunction, MPSIII, onset age, Parenteral Nutrition, Percutaneous Endoscopic Gastrostomy, peristalsis, pharmacologic intervention, Practice Guideline, Preschool Child, Priority Journal, reflux esophagitis, Retrospective Study, Rett syndrome, Sanfilippo syndrome, School Child, tone and motor problems, total parenteral nutrition, Velayudhan M, West syndrome

Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory

Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K

Tags: 2017, Adolescent, Adult, Article, Brain Depth Stimulation, Burke Fahn Marsden Dystonia Rating Scale movement rating scale, Case Report, deep brain stimulation, Dou W, Dystonia, Female, fluency disorder, Follow Up, globus pallidus internus, Guo J, Guo Y, Human, IND, Liu Y, Liu Z, Ma W, Male, Middle Aged, neurodegeneration with brain iron accumulation/th [Therapy], neurologic disease assessment, Neurologic Examination, Neuromodulation, pantothenate kinase-associated neurodegeneration, scoring system, subthalamic nuclei, subthalamic nuclei stimulation, Subthalamic Nucleus, surgical intervention, tone and motor problems, Treatment Outcome, Wan X, Wang L, Wang R, Wang Y, Yang Y

Tags: 2017, Bogdanova-Mihaylova P, bowel incontinence, bowel symptoms, characteristics, Emmanuel A, Friedreich's ataxia, Giunti P, Lad M, lower UTI symptoms, Murphy S, Orphanet Journal Of Rare Diseases, Pandolfo M, Panicker J, Parkinson M H, Rai M, Trajectory, urinary incontinence, Walsh R A

Tags: 2017, adults, aspiration, characteristics, Corben L A, Delatycki M B, Dysphagia, feeding difficulties, Friedreich's ataxia, Gait disorders/ataxia, Gupta I, interrater reliability, Keage M J, Management, molecular-genetics, Otorhinolaryngology, pathogenesis, Pathology, penetration, penetration-aspiration scale, Quality Of Life, Speech, Swallowing, Trajectory, Trinucleotide repeat diseases, Videofluoroscopy, Vogel A P

Tags: 1309378-01-5 (botulinum toxin A), 1638949-86-6 (botulinum toxin A), 1800016-51-6 (botulinum toxin A), 2017, 93384-43-1 (botulinum toxin A), Adolescent, Adult, Aicardi-Goutières syndrome, anamnesis, Article, aspiration pneumonia, Assessment, Bernard G, botulinum toxin A/dt [Drug Therapy], breathing difficulties, characteristics, Child, Clinical Article, Cohort Analysis, Comorbidity, Daniel S J, Drool, drooling, Dysphagia, feeding difficulties, head and neck disease, hearing impairment, Human, hypersalivation/su [Surgery], International Journal of Pediatric Otorhinolaryngology, Kay-Rivest E, Khendek L, Krabbe disease, Leukodystrophy, leukodystrophy/dt [Drug Therapy], nose feeding, otolaryngologist, Pelizaeus-Merzbacher disease, physical examination, Physician Attitude, Priority Journal, Quality Of Life, quality of life assessment, Questionnaire, sleep disturbance, stomach tube, Trajectory, x-linked adreno-leukodystrophy

Tags: 2017, agenesis of the corpus callosum, characteristics, Churchill S S, Ingram D G, Pediatric Neurology, Quality Of Life, sleep disturbance/disorders, Trajectory

Tags: 2017, Adolescent, Adult, Anesthesia, Article, Ates U, Balloon dilatation, Can O S, Child, Clinical Article, Clinical Effectiveness, colon interposition, digestive endoscope, Dindar H, Diseases of the Esophagus, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Ergun E, esophagus balloon, esophagus perforation, esophagus stenosis/co [Complication], esophagus stenosis/th [Therapy], feeding difficulties, Female, Gastrostomy, Gollu G, Human, Male, Patient Safety, Preschool Child, Priority Journal, Retrospective Study, School Child, surgical intervention, Young Adult

Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory

Tags: 2017, Actigraphy, Autism, D'Gama A M, definitions, Dy M E, girls, hand stereotypies, Kapur K, Kaufmann W E, Neurosciences & Neurology, O'Leary H, operational, Pediatric Neurology, Pediatrics, Regression, Rett syndrome, Sahin M, scale development, Sharma N, tone and motor problems, tool development, Urion D K, video analysis, Waugh J L

Tags: 2017, Adolescent, Adult, characteristics, Controlled Study, Cross-sectional Study, Data Base, Developmental Medicine and Child Neurology, Downs J, Female, Hill K, Human, Leonard H, linear regression analysis, Major Clinical Study, Model, Newton N, Quantitative Study, Rett syndrome, scoliosis, Seizure, tone and motor problems, Trajectory, Wakefulness, Walking, Wong K

Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G

Tags: 2017, Adolescent, Attention, Becher J G, Bolster E A M, Buizer A I, Cerebral Palsy, Child, Clinical Article, Comfort, Congenital Malformation, Controlled Study, dorsal rhizotomy, Dystonia, European Journal of Paediatric Neurology, Follow Up, Human, leg muscle, lipidoses, Medical History, Pain, risk factor, Satisfaction, School Child, scoliosis, selective dorsal rhizotomy, Spasticity, Stadhouder A, Strijers R L, surgical intervention, tone and motor problems, van de Pol L A, van Ouwerkerk W J, van Schie P E M, Vermeulen R J

Tags: 2017, Adolescent, Adult, alertness, Article, Bossie H M, cellular subcellular and molecular biological phenomena and functions, characteristics, Child, Clinical Article, Comparative Study, Controlled Study, Cross-sectional Study, Disease Severity, electrostimulation, endurance, energy, Fatigue, Female, Friedreich ataxia, Godin Leisure Time Physical Activity Score, Human, Male, McCully K K, mechanomyography, mitochondrial capacity, Muscle and Nerve, muscle endurance, muscle exercise, myography, near infrared spectroscopy, O'Connor P J, oxygen consumption, physical energy, Priority Journal, Schoick R A V, School Child, scoring system, skeletal muscle, Trajectory, Willingham T B

Tags: 2017, brain hemorrhage, Child, conference abstract, Death, Decision Making, Drug Withdrawal, Female, Gudrun J, Human, June 2019 List, Major Clinical Study, Male, Neonatal Intensive Care Unit, Newborn, newborn period, Palliative Therapy, Pregnancy, Susanne A, Swiss Medical Weekly, Switzerland, Trisomy 18

Tags: 2017, Abraham A, Child, conference abstract, Decision Making, Delivery Room, Empathy, Hendriks M J, Honesty, Human, Infant, June 2019 List, Parental Attitude, Patient Care, Prematurity, responsibility, Semi Structured Interview, Swiss Medical Weekly, University Hospital

Tags: 2017, Brain Tumor, Cancer Patient, Child, Clinical Article, Female, Hematologic Malignancy, Human, Japan, Kizawa Y, Male, Multicenter Study, Nurse, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, Questionnaire, Yotani N

Tags: 2017, Attitude Of Health Personnel, Communication Barriers, Cultural Competency, Culturally Competent Care, Disclosure, Emigrants and Immigrants, European Journal Of Cancer Care, Humans, Lieveld A, Morocco/eh [Ethnology], Neoplasms/th [therapy], Netherlands, Nurses Pediatric, oncologists, Oncology 2018 List, Oncology Nursing, Palliative Care, Pediatrics, Qualitative Research, Schouten-van Meeteren AYN, Suurmond J, Turkey/eh [Ethnology], van de Wetering M

Tags: 2017, Child, Hospitals Pediatric, Kang TI, Mack JW, Oncology 2018 List, Only Child, Pediatrics, Prognosis, Sisk BA

Tags: 2017, Adolescent, Adult, Attitude To Death, California, Cancer, Chamberlain LJ, Death, Female, Hospices/sn [statistics & Numerical Data], Hospital Mortality, Hospital Mortality/td [Trends], Humans, Johnston EE, Male, Neoplasms, Nursing Homes/sn [Statistics & Numerical Data], Oncology 2018 List, Patient Preference/sn [Statistics & Numerical Data], Rajeshuni N, Residence Characteristics/sn [Statistics & Numerical Data], Retrospective Studies, Sanders LM, Saynina O, Young Adult

Tags: 2017, astrocytoma, Farina S, Fonte C, Genitori L, Guidi M, Moscheo C, Neuro-oncology, Oncology 2018 List, Paderi B, Renda R, Sardi I

Tags: 2017, Adult, Child, Communication, Emotions, Female, Humans, Kelly D, Male, McAndrew R, Medical Oncology, Nelson M, Oncology 2018 List, Parents/px [psychology], Patient Education and Counseling, Pediatrics, Physician-patient Relations, Smith P, Truth Disclosure

Tags: 2017, Animal Shells, animal-assisted intervention, Animals, anxiety, Gilmer MJ, Grossman NJ, Guerin NA, Health-related quality of life, Hellman C, Holley L, Jenkins MA, Journal Of Pediatric Oncology Nursing, Linder DE, McCullough A, O'Haire ME, Olson J, Oncology 2018 List, Only Child, Parent, Pawar A, Pediatric Oncology, Pichette D, Ruehrdanz A, Sierra-Rivera S, Stress