Browse Items (38 total)
- Tags: Multicenter Study
The critical role of education in shaping nurses' attitudes and intentions towards neonatal palliative care: A network analysis
Tags: 2025, Adult, Behavior, China, Clinical Trial, Cross-sectional Study, Education, Female, Health Personnel Attitude, Hu Y, Huang X, Human, Kain V, Li X, Li Y, Li YX, Luo B, Male, March List 2025, Multicenter Study, Neonatal Nurse, Newborn, newborn nursing, Nurse Education Today, Palliative Therapy, Peng H, Procedures, Psychology, Questionnaire, Shi Z, Wan X, Yang R
"Who Has the Relationship?": Caring for a Shared Population of Children with Medical Complexity
Tags: 2024, Adolescent, Adult, Article, Best Practice, care behavior, Caregiver, Child, DiDomizio PG, Drug Therapy, Female, Friedrich A, Human, Interview, Johnson M, Journal of Palliative Medicine, Male, March List 2025, Multicenter Study, Nurse Practitioner, Palliative Therapy, Pediatric Hospital, Pediatrics, Physician, Qualitative Analysis, Qualitative Research, Semi Structured Interview, Thematic Analysis, United States, University Hospital
Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers
Tags: 2024, Adolescent, Adult, Article, Caregiver, Child, Clinical Article, cognitive behavioral therapy, Content Analysis, content validity, Disease Severity, Dyspnea, Emotion, emotional appraisal, enzyme replacement, Fatigue, February List 2025, Female, glycogen storage disease type 2, Hahn A, Hennermann JB, Home Care, Huemer M, Human, inborn error of metabolism, Lagler FB, Landolt MA, Life Expectancy, Male, MAXQDA software, Moslinger D, Multicenter Study, Muscle Weakness, musculoskeletal pain, Orphanet Journal Of Rare Diseases, Pain, Pain Intensity, Palliative Therapy, Perception, Pfrimmer C, psychosocial care, Qualitative Analysis, Qualitative Research, Quality Of Life, Questionnaire, Rohrbach M, School Child, Semi Structured Interview, Severity Of Illness Index, social exclusion, Social Support, sore throat, Truninger MI, Vomiting, Werner H, Young Adult
Exploring Pediatric Code Status, Advance Care Planning, and Mode of Death Disparities at End of Life
Tags: 2024, Advance Care Planning, Article, Casas J, Caucasian, Child, Cross-sectional Study, date of death, Ethnicity, Female, Hispanic, Human, Infant, Journal of Pain and Symptom Management, Kim E, Major Clinical Study, Makinde KW, Male, Medical Record Review, mode of death, Multicenter Study, Palliative Therapy, Peckham-Gregory E, Personal Experience, race, September List 2024, Silverstein A, Surgery, Terminal Care, Texas, Therapy
End-of-Life Care for Newborn Infants: A Multicenter Real-Life Prospective Study
Tags: 2024, Article, August List 2024, Avila AS, Cardigni G, Congenital Malformation, Contrera PJ, Cross-sectional Study, Delivery Room, developed country, Diagnosis, Drug Withdrawal, Female, Fernandez AL, Fernandez Riera P, Human, Infant, Male, Mariani GL, middle income country, Multicenter Study, Neonatal Intensive Care Unit, Neonatology, Newborn, Newborn Death, Newborn Intensive Care, Perinatal Death, Portela MC, Prematurity, Prospective Study, Quality Of Life, Terminal Care, Urquizu Handal MI, Vain NE, Virasoro MDLA
Rights of the Dying Child: The Nurses' Perception
Tags: 2018, Adult, Article, Awareness, Benini F, Brugnaro L, Child, Cross-sectional Study, Dying, Female, health care planning, Human, Human Rights, Italy, Journal of Palliative Medicine, Lazzarin P, Likert scale, Major Clinical Study, Male, Marinelli E, May List 2024, Multicenter Study, nurse attitude, Only Child, Orzalesi M, Patient Right, Pediatric Hospital, Pediatrics, postgraduate education, Quality Of Life, Questionnaire, ward, work experience
Gastrointestinal symptoms and problems in children cared by pediatric palliative care teams. Observational study
Tags: 2024, abdominal pain, Adolescent, Andes Pediatrica, Article, Bernada Scarrone MM, Child, Constipation, Consultation, Diarrhea, digestive prosthesis, digestive system hemorrhage, Dysphagia, Gastrointestinal Symptom, Gastrostomy, Human, Infant, Le Pera Garofalo V, Major Clinical Study, May List 2024, mucosa inflammation, Multicenter Study, Nausea, Observational Study, Palliative Care, Palliative Therapy, pediatric patient, Preschool Child, Prevalence, Prospective Study, Quality Of Life, Questionnaire, School Child, Vomiting
Children's understanding of dying and death: A multinational grounded theory study
Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, Adult, Altruism, Article, Child, Clinical Article, Controlled Study, Deshommes T, Downing J, Female, Friebert S, Gassant PYH, genetic transcription, Grossoehme DH, Grounded Theory, Haiti, Human, Interview, Male, McPoland P, Multicenter Study, Only Child, Palliative And Supportive Care, Palliative Therapy, Qualitative Research, Religion, Sheehan DC, Sibling, Stephenson P, thinking, uganda, vocabulary
Factors associated with mental health service use among families bereaved by pediatric cancer
Tags: 2022, 2023 SE3 - Oncology, Akard TF, Article, Barrera M, Bereavement, Child, Child Behavior Checklist, Compas BE, Controlled Study, Cooperation, Demography, Distress Syndrome, Education, Educational Status, Fairclough DL, Father, Female, Gerhardt CA, Gilmer MJ, Health Care Personnel, Hill KN, Home Visit, Human, Major Clinical Study, Male, Malignant Neoplasm, mental health service, Mental Health Services, Mother, Multicenter Study, Olsavsky A, Palliative And Supportive Care, Palliative Therapy, race, Randomized Controlled Trial, self help, Self Report, Sibling, support group, Vannatta K
Treatment Decision Making and Regret in Parents of Children With Incurable Cancer
Tags: 2021, 2023 SE3 - Oncology, Article, Cancer Nursing, Cheng MH, Child, Controlled Study, Decision Making, Education, Female, Human, incurable cancer, Liang J, Liang MZ, Male, Multicenter Study, Only Child, Palliative Therapy, Propensity Score, Prospective Study, risk factor, risk perception, Sun Z, Tang Y, Ye ZJ, Yu YL, Zhang XY
Unfolding parental knowledge, attitudes, and beliefs toward palliative care for children with cancer
Tags: 2023, 2023 SE3 - Oncology, Abboud MR, Article, Caregiver, Child, Childhood Cancer, Demography, Education, Educational Status, Emotion, Fares S, Female, Huijer HAS, Human, Lebanon, Major Clinical Study, Male, Multicenter Study, Noureddine S, Pain, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, quantitative analysis, Questionnaire, Rassam RS, Smith EML, Structured Interview, Wolfe J
Palliative care for children with central nervous system tumors: results of a Spanish multicenter study
Tags: 2023, 2023 SE3 - Oncology, antiemetic agent, Article, asthenia, Cancer Patient, Central Nervous System, Central Nervous System Neoplasms, Central Nervous System Tumor, Child, Childhood Cancer, Clinical and Translational Oncology, communication disorder, Controlled Study, Cruz MO, de Noriega Í, dexamethasone, Female, Garcia AM, Garrido CC, Gros SL, Hospital Mortality, Huidobro LB, Human, Lassaletta A, Llort SA, Lopez IB, Major Clinical Study, Male, Marquez VC, Medulloblastoma, Moreno L, Morey OM, Morgenstern IA, motor dysfunction, Multicenter Study, Navarro-Marchena L, Opiate, Palliative Care, Palliative Therapy, Perez-Torres LM, Place Of Death, pontine glioma, Portugal RR, Preschool Child, Quiroga-Cantero E, Retrospective Study, Rubio PE, School Child, Sedation, Solano-Paez P, Surgery, Tallon GM, Valero AL
Facilitators and barriers perceptions to early referral to pediatric palliative care perceived
Tags: 2023, Adult, Andes Pediatrica, Article, Ceballos-Yanez D, Child, Clinical Practice, Controlled Study, Demography, Eugenin-Soto MI, Female, Human, Major Clinical Study, Male, Multicenter Study, Palliative Care, Palliative Therapy, Patient Referral, Patricio AP, Pediatrician, Perception, Professional Practice, Referral And Consultation, Religion, September List 2030
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
Tags: 2023, Agrawal AK, Article, August List 2038, Bogetz JF, Child, Communication Barrier, Controlled Study, Education, Female, Fogel AH, Human, Journal of Palliative Medicine, Lelkes E, Levine A, Life Sustaining Treatment, Major Clinical Study, Male, McPoland P, Multicenter Study, Palliative Care, Palliative Therapy, Pediatric Hospital, Perception, personnel shortage, Physician, Prognosis, Resident, Thematic Analysis, United States, Winn PA
End of life in patients attended by pediatric palliative care teams: what factors influence the place of death and compliance with family preferences?
Tags: 2023, Article, Child, Child Death, Childhood Mortality, death toll, Decision Making, Escobosa-Sanchez O, European Journal of Pediatrics, Female, Follow Up, Home Visit, Hospital Mortality, Human, living will, Madrid-Rodriguez A, Major Clinical Study, Martino-Alba R, May List 2023, Morales-Asencio JM, Multicenter Study, Navarro-Mingorance Á, neuromuscular function, Palliative Care, Palliative Therapy, Peláez-Cantero MJ, Place Of Death, Probability, Quality Of Life, Right to Die, Tavera-Tolmo A, Terminal Care
The Design of a Data Management System for a Multicenter Palliative Care Cohort Study
Validation of the FACETS-OF-PPC as an Outcome Measure for Children with Severe Neurological Impairment and Their Families-A Multicenter Prospective Longitudinal Study
Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis-A multicenter prospective study
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
End-of-life care among adolescent and young adult patients with cancer living in poverty
Tags: 2019, Adolescent, Adult, Article, Bakitas M, Cancer, Cancer Patient, Cancer Therapy, Controlled Study, Currie E R, Female, Friedman S, Gilbertson-White S, Hospice, Hospital Patient, Human, Insurance, Lindley L C, lowest income group, Mack J W, Male, Medical Record, Multicenter Study, Oncology 2019 List, Palliative Therapy, Patient Referral, Poverty, Retrospective Study, Roeland E J, Saeidzadeh S, Statistical Significance, Terminal Care, Young Adult
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults
Medication utilization for symptom management by pediatric inpatients with cancer at end-of-life
Tags: 2019, Adult, anxiety, Benzodiazepine, Black person, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Davidoff A, Death, Decision Making, do not resuscitate order, Drug Therapy, Ethnicity, Female, Gender, Hospital Patient, Hospitalization, Human, Length Of Stay, Major Clinical Study, Male, manager, Massaro S, Medicaid, Multicenter Study, Nausea, Oncology 2019 List, Opiate, Pain, patient history of bone marrow transplantation, Pediatric Blood and Cancer, pediatric patient, Prozora S, Recipient, Retrospective Study, Shabanova V, solid malignant neoplasm, tumor diagnosis, University Hospital, Young Adult
Preferences regarding end-of-life care among adolescents and young adults with cancer: results from a comprehensive multicenter survey in Japan
Tags: 2019, adolescent and young adult, Adult, Adverse Drug Reaction, anxiety, Article, Cancer, Cancer Prognosis, Cancer Survival, cancer survivor, Cancer Therapy, Chemotherapy, Child, Controlled Study, End-of-life Care, Female, Health Care Personnel, Higuchi A, Hirano H, Horibe K, Human, Japan, Journal of Pain and Symptom Management, Kawachi A, Major Clinical Study, Male, Multicenter Study, Oncology 2019 List, Ozawa M, Palliative Therapy, patient history of chemotherapy, preference, Prognostic Disclosure, Questionnaire, Shimizu C, Shimizu K, Side Effect, Tatara R, Terminal Care, Yoshida S, Young Adult
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Palliative care allocation among critically ill children is highly variable in the United States
Tags: 2019, Artificial Ventilation, Bennett K, Child, Cohort Analysis, conference abstract, Controlled Study, Critical Care Medicine, Critically Ill Patient, Czaja A, December 2019 List, Female, Hospitalization, household income, Human, Infant, Insurance, Length Of Stay, Maddux A, Major Clinical Study, Male, Morbidity, Mortality, Multicenter Study, Neonatal Intensive Care Unit, Newborn, O'Keefe S, Palliative Therapy, race, Resource Allocation, Retrospective Study, suburban area, United States, Youngwerth J
Integration of Pediatric Palliative Care Into Cardiac Intensive Care: A Champion-Based Model
Tags: 2019, Article, Bailey V, Blume E D, Child, Clinician, Comorbidity, Conceptual Framework, Consensus, coronary care unit, DeWitt A G, Feasibility Study, heart disease, Hospitalization, Human, Hwang J M, Kaye E C, Lafond D A, Morbidity, Morrison W E, Mortality, Moynihan K M, Multicenter Study, October 2019 List, Palliative Therapy, Patient Referral, Pediatrics, Rotation, Sacks L D, Skill, Snaman J M, Staff, Thompson J L, Total Quality Management, Wolfe J
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Parents' experiences of requests for organ and tissue donation: The value of asking
Tags: 2019, Archives of Disease in Childhood., Article, Awareness, Brierley J, Child, Clinical Article, Coping Behavior, coronary care unit, Darlington A S, Fear, Female, Hospice, Human, July 2019 List, Long-Sutehall T, Male, Multicenter Study, Neonatal Intensive Care Unit, Organ Donation, organ donor, Palliative Care, Palliative Therapy, Parents, Pediatric Intensive Care Unit, Qualitative Research, Randall D, Retrospective Study, Robinson V, Terminal Care, Wakefield C
The utilization of palliative care units by children with cancer: A nationwide survey
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Palliative care in children with spinal muscular atrophy type 1: How do they die? Results from a French multicentric study (National Hospital clinical Research Program)
Tags: 2017, 50-48-6 (amitriptyline), 52-26-6 (morphine), 549-18-8 (amitriptyline), 57-27-2 (morphine), Amitriptyline, Barnerias C, benzodiazepine derivative, Child, Clinical Article, Clinical Practice, Clinical Research, Desguerre I, Diagnosis, Drug Therapy, European Journal of Paediatric Neurology, Female, Follow Up, Hully M, Human, Infant, Intensive Care Unit, Interview, January 2018 List, Male, Morphine, Multicenter Study, nasogastric tube, Noninvasive Ventilation, Palliative Therapy, Psychologist, quantitative analysis, Resuscitation, time of death, Vanesse S, Viallard ML, Werdnig Hoffmann disease
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Tags: 2017, Adolescent, Adult, City, Clinical Trial, Controlled Study, D'Angelo LJ, December 2017 List, Female, Houston PE, Human, Human Dignity, Human Immunodeficiency Virus, Journal of Palliative Medicine, Justice, Kimmel AL, Lee BC, Lyon ME, Major Clinical Study, Male, Medical Decision Making, Mortality, Multicenter Study, Nonhuman, Palliative Therapy, Pediatric Hospital, Rana SR, Randomized Controlled Trial, Single Blind Procedure, Stigma
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Balkin E M, Blume E D, Cardiac Surgeon, Cardiologist, Child, Clinical Study, Clinical Trial, Controlled Clinical Trial, Controlled Study, Female, Heart Failure, Human, Intensivist, Kaufman BD, Kirkpatrick J N, Life Expectancy, Male, Medical School, Multicenter Study, Palliative Therapy, Pediatric Cardiology, Pediatric cardiology., September 2017 List, Skill, Sleeper L A, Swetz K M, Terminal Care, Wolfe J