Browse Items (151 total)
- Tags: Only Child
Children's and adolescents' perspectives on living with advanced cancer: A meta-synthesis of qualitative research
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Ali R, An E, Article, Awareness, Child, Disease Management, Emotional Stress, ethnography, Female, Human, Johnson A, Major Clinical Study, Male, Only Child, Palliative Therapy, Qualitative Research, Quality Of Life, Quality of Life Research, Widger K, Wilson C
Parental perspectives on home-based palliative care in children with advanced cancer
Tags: 2023, 2025 SE1 - Oncology, Advanced Cancer, Bereavement Support, Biji MS, cancer center, Child, Childhood Cancer, conference abstract, Drug Therapy, Father, Fatigue, Female, friend, Gopakumar KG, Home Care, Human, Jithin TK, Journal Of Pediatric Hematology/oncology, Likert scale, Male, Nimitha T, Observational Study, Only Child, oral drug administration, Pain, Palliative Care, Palliative Therapy, Questionnaire, refractory disease, relapse, Rizwana KN, social media, Therapy
“Understanding why she had to leave me”: The roles of religion and spirituality in narratives of parents grieving the loss of a child to cancer
Concerns of Primary Caregivers of Children with Complex Chronic Conditions in Kerala: A Qualitative Analysis
Parent and Provider Perspectives of Clinical Outcomes of Critically Ill Children
Tags: 2024, Adult, Artificial Ventilation, Child, Clinical Outcome, Cohort Analysis, conference abstract, Controlled Study, Critical Care Medicine, Critical Illness, Critically Ill Patient, Female, Human, July List 2024, Krippendorff's alpha coefficient, Length Of Stay, Major Clinical Study, Male, Mortality, Noninvasive Ventilation, Only Child, oxygen, Parent, Pediatric Intensive Care Unit, Pennsylvania, Shannon M, Short Survey, ventilated patient, ventilator, Yehya N
Racial and Ethnic Disparities in End-of-Life Care of Children Undergoing Terminal Extubation in ICU
Tags: 2024, Adult, Age Distribution, Aged, airway pressure, Benzodiazepine, Burkiewicz K, Caucasian, Child, conference abstract, Critical Care Medicine, electronic medical record, ethnic difference, Ethnic Group, Ethnicity, extubation, Female, Hispanic, Human, hypertensive factor, Intensive Care, Intensive Care Unit, July List 2024, Major Clinical Study, Male, Morphine, Only Child, Pediatric Intensive Care Unit, positive end expiratory pressure ventilation, positive pressure ventilation, racial disparity, Secondary Analysis, Terminal Care, Tripathi S, ventilator, Winter M
Children with palliative care needs - the landscape of the nordic countries
Tags: 2024, Adolescent, Adult, Aland, Article, Birgisdottir D, BMC Palliative Care, Castor C, Child, Child Health Care, Controlled Study, Denmark, evidence based medicine, Faroe Islands, Finland, Greenland, Gronroos M, health care need, health care planning, Health Service, Holmen H, Human, Iceland, July List 2024, Kero J, Kristinsdottir O, Lövgren M, Lykke C, Medical Research, Neergaard MA, Norway, Only Child, Palliative Care, Palliative Therapy, Petursdottir AB, Sweden, Winger A
Barriers and facilitators to accessing pediatric specialty care for rural-dwelling children with complex chronic conditions: An integrative review
Living with the threat of losing a child: Parents' experiences of the transplantation process with a severely ill child who received stem cells from a sibling
Procedural Interventions for Terminally Ill Children - Are We Aiding Palliation?
Tags: 2024, Acquired Immunodeficiency Syndrome, Adolescent, Article, Carlisle EM, Caucasian, Child, Chronic Disease, Chronic Patient, Cohort Analysis, Diagnosis, Female, Hospice Care, Hospitalization, Human, Infant, Intubation, invasive procedure, Journal Of Palliative Care, July List 2024, Length Of Stay, Major Clinical Study, Male, Medical Record Review, Only Child, Palliative Therapy, pediatric surgeon, Perry S, Phillips H, Retrospective Study, Shinkunas LA, Surgery, Terminally Ill, terminally Ill Patient
Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers
Tags: 2024, Article, Bluebond-Langner M, Braybrook D, Bristowe K, Caregiver, Child, Cognition, content validity, Coombes L, Downing J, Ellis-Smith C, Female, Fraser LK, Hardardottir D, Harding R, Human, Interview, July List 2024, Male, Murtagh FEM, Only Child, outcome assessment, Palliative Medicine, Palliative Therapy, Parent, Parents, patient-reported outcome, Scott HM, United Kingdom
Examining Emotional and Behavioural Trajectories in Siblings of Children with Life-Threatening Conditions
Development of the pediatric family-based dignity therapy protocol for terminally ill children (ages 7-18) and their families: A mixed-methods study
Rights of the Dying Child: The Nurses' Perception
Tags: 2018, Adult, Article, Awareness, Benini F, Brugnaro L, Child, Cross-sectional Study, Dying, Female, health care planning, Human, Human Rights, Italy, Journal of Palliative Medicine, Lazzarin P, Likert scale, Major Clinical Study, Male, Marinelli E, May List 2024, Multicenter Study, nurse attitude, Only Child, Orzalesi M, Patient Right, Pediatric Hospital, Pediatrics, postgraduate education, Quality Of Life, Questionnaire, ward, work experience
National characteristics of emergency care for children with neurologic complex chronic conditions
Tags: 2024, Adolescent, Adult, Article, Caglar D, Carlin K, Child, Childhood Disease, Childhood Mortality, Chronic Disease, Clinical Feature, Clinical Outcome, Controlled Study, Critical Illness, Cross-sectional Study, Current Procedural Terminology, Emergencies, Emergency Care, Emergency Health Service, Emergency Medical Services, endotracheal intubation, Female, Hospital Admission, hospital charge, Human, Infant, Jafari K, Klein EJ, Major Clinical Study, Male, May List 2024, Medicaid, Medicare, Morbidity, multivariate logistic regression analysis, Neurologic Disease, Newborn, Only Child, Retrospective Study, Simon TD, Tracheostomy, Western Journal of Emergency Medicine, Young Adult
Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study
Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child
Tags: 2024, Article, Bereavement, Bidstrup PE, Child, Child Death, Family, Family Therapy, Grief, Guldin MB, Hoeg BL, Hogh J, Human, Larsen HB, May List 2024, Only Child, Palliative Medicine, Palliative Therapy, Practice Guideline, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, School Child, Scoping review, Sibling, Systematic Review, Therapy, Volkmann JE, Wolfe J
Supporting parents while their child is receiving neurocritical care
Tags: 2024, Adolescent, Adult, Article, Child, Farias-Moeller R, Human, Intensive Care, Intensive Care Unit, Interpersonal Communication, May List 2024, Middle Aged, new onset refractory status epilepticus, Only Child, organ donor, Palliative Therapy, Parent, Physician, post intensive care syndrome, Seminars In Pediatric Neurology, Wong N
Indi Gregory: A Wider Perspective on Children's Best Interests at the End-of-life
My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition
Tags: 2024, Adolescent, Bluebond-Langner M, Braybrook D, Bristowe K, Child, Communication, Coombes L, Downing J, Ellis-Smith C, Fraser L, Harding R, Harðardóttir D, Hospice Care, Humans, Language, Linguistics, May List 2024, Murtagh F, Only Child, Paediatrics, Palliative Care, Palliative Carepsychology, Palliative Medicine, Qualitative Research, Roach A, Scott HM
Meaning-Making Among Parents of Children With Severe Neurologic Impairment in the PICU
Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measure
Tags: 2024, Amin Z, Ang FJL, BMC Palliative Care, Child, Chong PH, Chow CCT, Clinical Assessment Tools, content validity, Delphi Technique, Finkelstein EA, Funding Source, Gandhi M, Human, Instrument Validation, Interviews, Malhotra C, Malhotra R, May List 2024, Only Child, Ostbye T, Patient Centered Care, Pilot Studies, Process Assessment (Health Care), surveys, Tan TSZ, Tewani K, Thematic Analysis
Collaboration: How does it work according to therapists and parents of young children? A systematic review
Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment
Tags: 2024, Adult, April List 2024, Article, Beck AF, Child, Chronic Disease, Cohort Analysis, Controlled Study, Corley AMS, Cortezzo DE, economic inequality, Ethnicity, Female, Gestational Age, Hispanic, Human, Jones MN, Journal of Pediatrics, Major Clinical Study, Male, Medicaid, Morbidity, Mortality, Multidisciplinary team, Neurologic Examination, Only Child, Patient Referral, primary medical care, racial disparity, racism, Referral And Consultation, Retrospective Study, Simpson SL, Socioeconomic Factors, special situation for pharmacovigilance, tertiary care center, Thienprayoon R, Thomson J
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Grieving Children' Death in an Intensive Care Unit: Implementation of a Standardized Process
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Exploration of the Strategies of Iranian Nurses in Providing Palliative Care to Children with Cancer: A Qualitative Study
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin America
Tags: 2023, 2023 SE5 - Low Resource Setting, Agulnik A, Baker JN, Bustamante M, Child, Devidas M, Dussel V, Ehrlich B, Female, Friedrich P, Garcia Quintero X, Gillipelli SR, Gomez Garcia W, Graetz D, Humans, JAMA Network Open, Kaye EC, Latin America, McNeil MJ, Metzger M, Neoplasms/therapy, Only Child, Palliative Care, Physicians, Quality Of Life, Sabato Danon CV, Wang H
Unmet palliative care needs of a child with cancer in Indonesia
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Children's understanding of dying and death: A multinational grounded theory study
Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, Adult, Altruism, Article, Child, Clinical Article, Controlled Study, Deshommes T, Downing J, Female, Friebert S, Gassant PYH, genetic transcription, Grossoehme DH, Grounded Theory, Haiti, Human, Interview, Male, McPoland P, Multicenter Study, Only Child, Palliative And Supportive Care, Palliative Therapy, Qualitative Research, Religion, Sheehan DC, Sibling, Stephenson P, thinking, uganda, vocabulary
Clinical and genetic characteristics of Tunisian children with infantile nephropathic cystinosis
Tags: 2023, 2023 SE5 - Low Resource Setting, Achour A, Article, Ben Youssef S, bicarbonate/dt [Drug Therapy], bicarbonate/pv [Special Situation for Pharmacovigilance], calcitriol/dt [Drug Therapy], calcitriol/pv [Special Situation for Pharmacovigilance], Child, citrate potassium/dt [Drug Therapy], citrate potassium/pv [Special Situation for Pharmacovigilance], Clinical Article, Clinical Feature, Controlled Study, CTNS gene, cystine/ec [Endogenous Compound], cystinosis/di [Diagnosis], cystinosis/dt [Drug Therapy], El Younsi M, exon, Fanconi renotubular syndrome, Female, founder mutation, Gargah T, gene, Gene Deletion, gene mutation, genetic analysis, genetic trait, Hammi Y, heterozygosity, homozygosity, Human, hypothyroidism/dt [Drug Therapy], Infant, infantile nephropathic cystinosis/di [Diagnosis], infantile nephropathic cystinosis/dt [Drug Therapy], Information Processing, Kharrat M, kidney disease/di [Diagnosis], kidney disease/dt [Drug Therapy], M'Rad R, Maazoul F, Male, mercaptamine/dt [Drug Therapy], mercaptamine/pv [Special Situation for Pharmacovigilance], molecular diagnosis, molecular fingerprinting, Only Child, Ouertani I, Palliative Therapy, Pediatric Nephrology, pediatric patient, Prenatal Diagnosis, Preschool Child, Retrospective Study, RNA splicing, Sanger sequencing, thyroid hormone/dt [Drug Therapy], thyroid hormone/pv [Special Situation for Pharmacovigilance], Trabelsi M, Tunisian
Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review
Children with palliative care needs in Papua New Guinea, and perspectives from their parents and health care workers: a qualitative study
Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V
Exploring the Palliative Care Needs of Children in Refugee Settlements in Uganda
Tags: 2023, 2023 SE5 - Low Resource Setting, Adult, Bagasha P, Child, Chronic Disease, conference abstract, Data Analysis, Distress Syndrome, Downing J, Grant L, Howarth K, Human, Ikong H, Leng M, Maku S, McGeough K, mentor, Nabirye L, Nalutaaya F, Namukwaya E, Needs Assessment, Only Child, Opia V, Oziti G, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, refugee camp, Santiago T, Smith C, Thermometer, uganda, Venkatesh C
Development of Children's Palliative Care in Perm Krai
Differences in palliative opportunities across diagnosis groups in children with cancer.
Tags: 2023, 2023 SE3 - Oncology, Adolescent, Allen KE, Brock KE, Castellino SM, Child, Child Preschool, Clinical Trials Phase I as Topic, DeGroote NP, Ebelhar J, Humans, Infant, Infant Newborn, Labudde E, Leukemia, Lymphoma, Massie AM, Neoplasms/therapy, Only Child, Palliative Care, Pediatric Blood and Cancer, Quality Of Life, Recurrence, Retrospective Studies, Terminal Care/psychology, Wasilewski-Masker K