Browse Items · Pediatric Palliative Care Library

End of life care in a level IV outborn neonatal intensive care unit

OBJECTIVE: Describe care surrounding the end of life (EOL) in the neonatal intensive care unit (NICU). STUDY DESIGN: Retrospective chart review of 208 infants who died in a level IV referral-only NICU over 5 years. RESULTS: A goals of care (GOC)…

Tags: 2024, Allen JD, Groden CM, Helft P, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Journal Of Perinatology, May List 2024, Raed M, Terminal Care

Grieving Children' Death in an Intensive Care Unit: Implementation of a Standardized Process

Background: The grief that accompanies witnessing the death of a child puts health care professionals at risk of secondary trauma, burnout, and turnover when left unaddressed. Objective: Support staff well-being and promote resiliency. Methods:…

Parents' experiences of palliative care decision-making in neonatal intensive care units: An interpretative phenomenological analysis

Aim: This work explores the experiences and meaning attributed by parents who underwent the decision-making process of withholding and/or withdrawing life-sustaining treatment for their newborn. Methods: Audio-recorded face-to-face interviews were…

Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review

This scoping review aimed to explore the characteristics of neonatal palliative care in the neonatal intensive care unit, including the features, contents, and experiences of infants, parents, and nurses during palliative care. Five databases…

Tags: 2024, Ahn SY, Child Parent Relation, Hospice Care, Human, Infant, Infant Newborn, Intensive Care Units, Journal of Hospice and Palliative Nursing, Kim ES, Kim S, Lee H, March List 2024, Neonatal Intensive Care Unit, Newborn, Nursing Care, Palliative Care, Palliative Therapy, Psychology

Doctors' experiences of referring and admitting patients to the intensive care unit: a qualitative study of doctors' practices at two tertiary hospitals in Malawi

OBJECTIVE: To explore doctors' experiences of referring and admitting patients to the intensive care unit (ICU) at two tertiary hospitals in Malawi. DESIGN: This was a qualitative study that used face-to-face interviews. The interviews were…

Tags: 2023, 2023 SE5 - Low Resource Setting, Adult intensive & critical care, Baker T, Bmj Open, Chikumbanje SS, Chipeta D, Critical Care, Gundo B, Gundo R, Hospitalization, Humans, Intensive Care Units, Kayambankadzanja RK, Malawi, Paediatric intensive & critical care, Quality In Health Care, Tertiary Care Centers

Palliative Communication in the Pediatric Intensive Care Unit

Communication is a central aspect of nursing care and is especially important when pertaining to progressive illnesses and end of life. This article reviews basic palliative care terminology and outlines a variety of communication frameworks from the…

Tags: 2023, Child, Critical Care Nursing Clinics Of North America, Davis S, Human, Intensive Care Units, Interpersonal Communication, Nunn M, nurse attitude, October List 2049, palliative nursing, Palliative Therapy, Pediatric Intensive Care Unit, Procedures, Terminal Care

Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit

Background and Aim: The birth prevalence of children with congenital heart disease is about one percent a year. This might mean that a palliative diagnosis maybe directly exists from birth due to the complexity of the congenital heart disease. The…

Clinician perception of care at the end of life in a quaternary neonatal intensive care unit

INTRODUCTION: Care for neonates at the end of life (EOL) is often challenging for families and medical teams alike, performed suboptimally, and requires an experienced and compassionate clinician. Much literature exists on adult and pediatric EOL…

Tags: 2023, Bock A, End Of Life Care, Frontiers in Pediatrics, Gray MM, Imai L, Infant, Newborn, Intensive Care Units, Intensive Care Units, Neonatal, Kim BJH, Lyle ANJ, Neonatal Death, Nicu, Palliative Care, Quality Of Death, September List 2041, Symptom Management, Weiss EM

End-of-life care in Brazilian Pediatric Intensive Care Units

OBJECTIVE: Most deaths in Pediatric Intensive Care Units involve forgoing life-sustaining treatment. Such deaths required carefully planned end-of-life care built on compassion and focused on palliative care measures. This study aims to assess topics…

Tags: 2023, Biomedical ethics, Cruz CT, End-of-life Care, Garros D, Intensive Care Units, June 2022 List, Palliative Care, Pediatric Intensive Care Units, Soares Lcdc, Sousa ITE, Terminal Care, The Journal Of Pediatrics, van Leeuwen G

Experiences of healthcare personnel with death in the neonatal intensive care unit: a systematic review of qualitative studies

OBJECTIVE: To synthesise evidence from qualitative studies on the experiences of healthcare personnel (HCP) in the neonatal intensive care unit (NICU) caring for dying neonates. METHODS: We conducted a systematic search, in accordance with Preferred…

Tags: 2023, Amin Z, Archives of Disease in Childhood Fetal and Neonatal Edition, Charles JS, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Mok HT, Ng YPM, Qualitative Research, Tan TSZ, Wong JQH

End-of-life care in Brazilian pediatric intensive care units: challenges and opportunities

Pediatric Critical Care Medicine has evolved drastically as a specialty since its inception more than five decades ago.1 Advances in technology and medical interventions have led to a substantial reduction in mortality rates, which are now in the…

Tags: 2023, Alibrahim O, Brazil, end-of life care, Intensive Care Units, July List 2023, Pediatric, Rotta AT, Terminal Care, The Journal Of Pediatrics

Ethics at the end of life in the newborn intensive care unit: Conversations and decisions

The unexpected birth of a critically ill baby raises many ethical questions for neonatologists. Some of these are obviously ethical questions, about whether to attempt resuscitation, and, if the baby is resuscitated and survives, whether to continue…

Characteristics of Critically Ill Infants at the End of Life in the Neonatal Intensive Care Unit

Objectives: About 16,000 infants die in the neonatal intensive care unit (NICU) each year with many experiencing invasive medical treatments and high number of symptoms.1 To inform better management, we characterized diagnoses, symptoms, and patterns…

Neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care: review of the literature

AIM: To review studies regarding neonatal nurses' knowledge and attitude toward neonatal palliative care (NPC). METHOD: The researchers searched internet sources such as Google Scholar for NPC, Nurses, Knowledge, Attitude, and Educational…

Tags: 2023, Ababneh H, Abuhammad S, Attitude, Elayyan M, Future Science Open Access, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Knowledge, NPC, Nurse, Palliative Care

Uncertainty and Perinatal Post?Traumatic Stress Disorder in the Neonatal Intensive Care Unit

Parents of infants in the neonatal intensive care unit (NICU) are at increased risk of developing perinatal post?traumatic stress disorder (PPTSD), a mental health condition known to interfere with healthy parental and infant attachment. Feelings of…

Social Workers in Pediatric Intensive Care Units: A Physician Perspective

Objective: The role of social workers, who are beginning to be integrated into the entire health system, is now becoming more and more understood. In our study, we aimed to discuss the duties of social workers at PICU, the results of their work in…

Coronavirus Disease-19 Deaths among Children and Adolescents in an Area of Northeast, Brazil: Why So Many?

OBJECTIVE: To describe COVID-19 deaths among children and adolescents in Sergipe, Brazil. METHODS: Ecological study of all COVID-19 reported cases and deaths occurring in children and adolescents

Parent Experiences of Child Loss and End-Of-Life-Care in a Paediatric Intensive Care Unit: A Qualitative Study Protocol

BACKGROUND: Death of a child in the Paediatric Intensive Care Unit is a rare event that can occur after failed cardiopulmonary resuscitation efforts, after a brain death diagnosis, or after a decision to limit therapeutic efforts. Nevertheless, even…

Tags: 2023, Alcón NS, González Gil MT, Intensive Care Units, Jmir Research Protocols, March List 2023, Terminal Care

Update on the palliative care approach at the pediatric intensive care unit

Pediatric palliative care aims at improving the care and quality of life of children who are terminally ill or have a fatal prognosis. In the hospital setting, end-of-life decisions and treatments are common in intensive care units. This is why the…

Tags: Child, Critical Care, Humans, Palliative Care, Terminal Care, 2022, Archivos Argentinos De Pediatria, Communication, García-Salido A, Intensive Care Units, January List 2023, Martino-Alba R, Navarro-Mingorance Á, Nieto-Moro M, Pediatric, Quality Of Life, Terminally Ill

Resource Utilization in Children who Receive a Pediatric Intensive Care Unit Consult in the Emergency Department: A Retrospective Cohort Study

OBJECTIVES: To describe the characteristics, critical care resource requirements, and outcomes of children who were hospitalized after a Pediatric Intensive Care Unit (PICU) consult in the Emergency Department (ED). METHODS: In this single-centre…

Tags: 2022, Boggs S, Critical Care, Critical Illness, de Caen G, Intensive Care Units, Journal of Intensive Care Medicine, Krmpotic K, Lobos AT, Nursing, October 2022 List, Pediatric, pediatrics resource utilization, Plint AC

Grief in Critical Care Nurses after Pediatric Suffering and Death

BACKGROUND: Working in the pediatric intensive care unit (PICU) exposes nurses to intense and recurrent experiences with loss. Such experiences may result in unresolved grief or despair among these providers. Although previous studies have explored…

Tags: 2022, Adaptation, Adewumi A, Annals Of Palliative Medicine, Child, Critical Care, Female, Gerhardt CA, Grief, Groves KA, Humans, Intensive Care Units, October 2022 List, Pediatric Terminal Care, Psychological, Skeens MA, Suttle ML

Factors associated with admission of children to an intensive care unit and readmission to hospital within 28 days of discharge: A population-based study

AIM: Hospital readmissions within 28 days are an important performance measurement of quality and safety of health care. The aims of this study were to examine the rates, trends and characteristics of paediatric intensive care unit admissions, and…

End-of-Life Decision-Making in Pediatric and Neonatal Intensive Care Units in Croatia-A Focus Group Study among Nurses and Physicians

Background and Objectives: Working in pediatric and neonatal intensive care units (ICUs) can be challenging and differs from work in adult ICUs. This study investigated for the first time the perceptions, experiences and challenges that healthcare…

Barriers and facilitators for parents in end-of-life decision-making for neonates at the Neonatal Intensive Care Unit: A qualitative study

BACKGROUND: Mortality and end-of-life decision-making can occur in newborns, especially within the Neonatal Intensive Care Unit. For parents, participating in end-of-life decision-making is taxing. Knowledge is lacking on what support is helpful to…

Nursing interventions for perinatal bereavement care in neonatal intensive care units: A scoping review

BACKGROUND: Despite technological advances and specialist training of neonatal teams, perinatal deaths still occur. Such events are traumatic experiences for the parents and increase the risk of pathological grieving. Nursing is one of the main…

Tags: 2021, Botigue T, Escobar-Bravo MA, Family, Gonzalez Alonso AV, Intensive Care Units, International nursing review, Interventions, Lavedan Santamaria A, March 2022 List, Masot O, Neonatal, Nursing, Paraiso Pueyo E, Parents, Perinatal grief

Machine learning to predict cardiac death within 1 hour after terminal extubation

Objectives: Accurate prediction of time to death after withdrawal of life-sustaining therapies may improve counseling for families and help identify candidates for organ donation after cardiac death. The study objectives were to: 1) train a long…

Tags: 2021, Aczon MD, Artificial, data science, Day TE, Intensive Care Units, June 2021 List, Ledbetter DR, machine learning, Newth CJL, Palliative Care, Pediatric, Pediatric Critical Care Medicine, Respiration, Ross PA, Terminal Care, Wetzel RC, Winter MC

Resources and Costs Associated With Repeated Admissions to PICUs

Objective: To determine the costs and hospital resource use from all PICU patients readmitted with a PICU stay within 12 months of hospital index discharge. Design: Cross-sectional, retrospective cohort study using Pediatric…

Tags: 2021, April 2021 List, Cecil C, Critical Care Explorations, Goodman DM, Hall M, healthcare costs, Intensive Care Units, Kane JM, Montgomery VL, patient readmission, Pediatric, Rakes LC, Rogerson C, Slain KN, Stockwell JA

Undernutrition at PICU Admission Is Predictor of 60-Day Mortality and PICU Length of Stay in Critically Ill Children

BACKGROUND: There are few studies that assess the role of different nutritional assessment variables at pediatric intensive care unit (PICU) admission in predicting clinical outcomes. OBJECTIVE: To identify nutritional variables in the first 4 days…

Characteristics and Outcomes of Critical Illness in Children With Feeding and Respiratory Technology Dependence

OBJECTIVES: Children with dependence on respiratory or feeding technologies are frequently admitted to the PICU, but little is known about their characteristics or outcomes. We hypothesized that they are at increased risk of critical illness-related…

Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies

This study was conducted to determine neonatal intensive care unit (NICU) nurses' opinions about the palliative care needs of neonates with multiple congenital anomalies. The study sample consisted of the 20 nurses who agreed to participate in the…

Palliative care in the neonatal intensive care unit

With increasing facilities for antenatal diagnosis, lowering gestation for intiation of intensive care, palliative care in the perinatal period is increasingly recognized as a specialist area. There have been standards and pathways developed in the…

Tags: 2020, Health Services Accessibility, Home Health Care, Hospice Care, Intensive Care Units, Jackson C, June 2020 List, Multidisciplinary Care Team, Neonatal, Paediatrics & Child Health, Palliative Care, Pediatricians, Perinatal Care, Perinatal Death – Psychosocial Factors, Prenatal Diagnosis, psychosocial, Support, United Kingdom, Vasudevan C

End-of-life care in the pediatric intensive care unit: Survey in Japan

BACKGROUND: End-of-life (EOL) care is an important topic in critical care medicine, but EOL discussions with families can be difficult and stressful for intensivists. The aim of this study was to clarify the current practices and barriers facing…

Does Pediatric Palliative Care Involvement Influence Location of Death?

This study describes the influence of a palliative care team on location of death and location of death discussions with patients/caregivers, and determines whether location of death discussions influence location of death. With palliative care or a…

Tags: 2019, Death, Hospice Care, Intensive Care Units, January 2020 List, Linebarger J, Palliative Care, Pediatric, Sherman A K, Singh M, Solano J

Perception of health professionals about neonatal palliative care

Objective: To identify the perception of health professionals about neonatal palliative care. Method: A phenomenological qualitative study, a non-probabilistic sample, of 15 health professionals from a neonatal intensive care unit in northern…

Tags: 2019, Attitude Of Health Personnel, Batoca Silva E M, Content Analysis, Human, Infant, Intensive Care Units, January 2020 List, Machado Silva M J, Marques Silva D, Neonatal, Newborn, Palliative Care -- In Infancy and Childhood, Phenomenological Research, Portugal, Professional-patient Relations, Qualitative Studies, Quality Of Life, Revista Brasileira de Enfermagem

Introduction of triggers for palliative care consultation improves utilization and satisfaction within a level four NICU

OBJECTIVE: We sought to explore the beliefs regarding palliative care team utilization, as well as increase consultation and awareness of the palliative care team's role in the NICU. STUDY DESIGN: The study design in this Level 4 NICU included…

Tags: 2018, Cooperberg DB, December 2019 List, Hospitals, Humans, Intensive Care Units, Journal Of Perinatology, Neonatal/organization & administration/standards, Nguyen LT, Palliative Care/standards/statistics & Numerical Data, Patient Care Team/organization & administration, Pediatric, Personal Satisfaction, Referral And Consultation/statistics & Numerical Data, Spear ML

Do-Not-Resuscitate Orders in the Neonatal ICU: Experiences and Beliefs Among Staff

OBJECTIVES: Studies in adult patients have shown that do-not-resuscitate orders are often associated with decreased medical intervention. In neonatology, this phenomenon has not been investigated, and how do-not-resuscitate orders potentially affect…

Grief reactions and coping strategies of trainee doctors working in paediatric intensive care

Background: The death of a child can have significant emotional effects on doctors responsible for their care. Trainee doctors working in the paediatric intensive care unit (PICU) may be particularly vulnerable. The aim of this study was to examine…

Tags: 2019, Adaptation Psychological, Attitude Of Health Personnel, Attitude To Death, August 2019 List, BJA: The British Journal of Anaesthesia, Crowe S, Doherty E M, Feeley T, ffrench-O'Carroll R, Grief, Intensive Care Units, Pediatrics, physicians - psychosocial factors

Parental Perspectives on Roles in End-of-Life Decision Making in the Pediatric Intensive Care Unit: An Integrative Review

Little is known about how parents perceive their role or the role of health care providers (HCPs) during end-of-life decision making (EOL DM) in the context of the pediatric intensive care unit (PICU). The authors searched CINAHL, PubMed, Ovid…

When and Why Do Neonatal and Pediatric Critical Care Physicians Consult Palliative Care?

BACKGROUND: Parents of children admitted to neonatal and pediatric intensive care units (ICUs) are at increased risk of experiencing acute and post-traumatic stress disorder. The integration of palliative care may improve child and family outcomes,…

Life-Sustaining Treatment Status at the Time of Death in a Japanese Pediatric Intensive Care Unit

BACKGROUND: Substantial variability exists among countries regarding the modes of death in pediatric intensive care units (PICUs). However, there is limited information on end-of-life care in Japanese PICUs. Thus, this study aimed to elucidate the…

Browse Items (151 total)