Browse Items (297 total)
- Tags: 2019
Survival, short-term morbidity of extremely low gestational age infants and their predictors
Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
We would have missed out so much had we terminated': What fathers of a child with Down syndrome think about current non-invasive prenatal testing for Down syndrome.
Tags: *Choice Behavior, *Down Syndrome/di [Diagnosis], *Father-Child Relations, *Fathers, *Health Knowledge, Attitudes, Practice, *Noninvasive Prenatal Testing, 2019, 2023 SE4 - Parent Perspectives, Adult, Barton, Rebecca, Child, How, Bethea, Humans, Journal of Intellectual Disabilities, Male, Qualitative Research, Smidt, Andy, Valentin, Chelsea, Wilson, Nathan J
Being a dad to a child with Down's syndrome: Overcoming the challenges to adjustment.
Organ donation after euthanasia in children: Belgian and Dutch perspectives
Religious and cultural challenges in paediatrics palliative care: A review of literature
Tags: 2019, Abd Ghani NA, Autopsy, Caregiver, Coping Behavior, cultural anthropology, Data Base, Decision Making, Human, Interpersonal Communication, Journal Of Pediatric Hematology/oncology, July List 2023, Khalid K, Ku Md Saad S, Life, Mohamed Abdul Kadher AN, organ donor, Palliative Care, Palliative Therapy, Pediatrics, Religion, Review, Software, Systematic Review, Terminal Care, terminally Ill Patient
Timing of palliative consultation for children during a fatal illness
Tags: 2019, African American, Article, Cardiovascular Disease, Caucasian, Child, Childhood Disease, Cohort Analysis, Female, Fosselman DD, Hospital Pediatrics, Human, Humphrey L, Insurance, Ketner AR, Length Of Stay, Major Clinical Study, Male, May List 2023, Miller R, Only Child, outcome assessment, Palliative Therapy, private health insurance, Referral And Consultation, Retrospective Study, Rossfeld ZM, Tobias JD, Tumin D
Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study
Multimorbidity in Children and Youth Across the Life-course (MY LIFE): protocol of a Canadian prospective study
Bereaved Parents' Perceptions of Infant Suffering in the NICU
The Long Road to Farewell: The Needs of Families With Dying Children
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, 2022 Special Edition 1 - Parent Perspectives, Female, Fetal Mortality, George T, Hospice, Infant, Journal of Palliative Medicine, Kamrath HJ, Mothers, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Perinatal, Perinatal Care organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Parents' Perspectives on Hospital Care for Children and Adolescents with Life-Limiting Conditions: A Grounded Theory Analysis of Narrative Interviews
Experience of Perinatal Death From the Father's Perspective
Experience of Parents Who Have Suffered a Perinatal Death in Two Spanish Hospitals: A Qualitative Study
Priorities for Nutrition Research in Pediatric Critical Care
Tags: 2019, Child, Child Nutrition Disorders/prevention & control/*therapy, Child Nutritional Physiological Phenomena, Children, Consensus, Critical Care/*methods, Critical Illness, Delphi Technique, Enteral Nutrition, Floh A A, Goday P, Humans, Intensive Care, Intensive care units (paediatric), Internationality, Jotterand Chaparro C, Journal Of Parenteral And Enteral Nutrition, Larsen B, Lee J H, Mehta N M, Moreno Y M F, Nutritional Support/*methods, October 2020 List, Parenteral Nutrition, Pathan N, Pediatric, Research, Tume L N, Valla F V, Verbruggen S
A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team
Tags: 2019, Anthropology, Attitude To Death, Child, Communication, Davis C S, Death, Health Communication, Hicks L, Humans, Irvin L, King L, Palliative Care, Parents/psychology, Patient Care Team, pediatric hospitals, Pediatrics, September 2020 List, Shukraft A, Snider M J, Sonda J D, spatial analysis, Time Factors, Uncertainty
Palliative care and paediatric cardiology: current evidence and future directions
Ethics and patient and public involvement with children and young people
Tags: 2019, Adolescent, Adult, Akhtar S, Archives of Disease in Childhood - Education and Practice, August 2020 List, Child, Coad J, Dale J, Female, Guidelines As Topic, Health Services Research/es [Ethics], Health Services Research/st [Standards], Humans, Hyde E, Khan D, Male, Middle Aged, Mitchell S J, Patient Participation/px [Psychology], Patient Participation/sn [Statistics & Numerical Data], Research Design/st [Standards], Research Personnel/es [Ethics], Research Personnel/px [Psychology], Research Personnel/st [Standards], Slowther A, United Kingdom
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, Adult, August 2020 List, Female, Fetal Diseases/diagnosis/*mortality, George T, Hospice, Humans, Infant, Journal of Palliative Medicine, Kamrath H J, Mothers/*psychology, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Palliative Care/*organization & Administration, Patient Care Planning/*organization & administration, Perinatal, Perinatal Care/*organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
The impact of ethical and legal decision-making in neonatal intensive care on psychosocial wellbeing of the health care professionals the overview of the HUNIC Project study design
Tags: 2019, August 2020 List, Berbik I, Cuttini M, End-of-life Decision Making, Ethics, European Journal of Mental Health, Feith H J, Gezsi A, Gradvohl E, Health Behavior, Job Satisfaction, Kiss Z S, Kovacs A, medical personnel, neonatal intensive care, Neonatologists, Pilling J, Social Support, Study Design, Szabo M, well-being of health workers
Fifteen-minute consultation: Not the whole story-considering children's spirituality and advance care planning
Tags: 2019, Adolescent, Adult, Advance Care Planning/*standards, Aldridge J, Archives of Disease in Childhood - Education and Practice, Attitude To Death, Attitude To Health, August 2020 List, Child, Clayton M, Family/*psychology, Female, Humans, Male, Middle Aged, Paediatric Practice, Palliative Care, Palliative Care/*psychology/*standards, Pediatrics/*standards, Practice Guidelines As Topic, Preschool, Spirituality, United Kingdom
The Long Road to Farewell: The Needs of Families With Dying Children
Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review
Challenges primary care providers face when caring for children with medical complexity
Good death term in the aspect of paediatric palliative care nursing
Characteristics and Outcomes of Critical Illness in Children With Feeding and Respiratory Technology Dependence
Tags: 2019, Adolescent, Artificial/adverse effects/*statistics & numerical data, Berg R A, Biomedical Technology, Carcillo J, Case-Control Studies, Child, Critical Care/*methods, Critical Illness/therapy, Dalton H, Dean J M, Health Care/*statistics & numerical data, Heneghan J A, Humans, Infant, Intensive Care Units, July 2020 List, Meert K L, Newborn, Newth C J L, outcome assessment, Parenteral Nutrition, Pediatric Critical Care Medicine, Pediatric/statistics & Numerical Data, Pollack M M, Preschool, Prospective Studies, Reeder R W, Respiration, Severity Of Illness Index, Tamburro R, Total/adverse effects/*statistics & numerical data
Discussing end-of-life issues in an adolescent with a terminal illness
Parents' experiences of feeding, swallowing, and nutrition in children receiving palliative care
Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Tags: 2019, Adult, Australian Critical Care, Bereavement, Butler A E, Child, child and family wishes, Copnell B, Critical Illness -- Singapore, Death, Female, Grounded Theory, Hall H, Health Personnel Attitude, Hospital Mortality, Hospitalized, Humans, Intensive care unit-paediatric, Intensive Care Units Pediatric, Interviews As Topic, June 2020 List, Male, Nurse, Parents, Parents/*psychology, Pediatric, Professional-family Relations, Victoria
Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
Tags: 2019, Adaptation, Adult, Attitude To Death, Child, Childhood Cancer, Depression, Depression/psychology, Fathers, Fathers/*psychology, Female, Grief, Humans, insomnia, Kreicbergs U, Male, May 2020 List, Mental Health/*statistics & numerical data, Middle Aged, Mothers, Mothers/*psychology, Parents/psychology, Pediatric Oncology, Pgd, Pohlkamp L, Posttraumatic stress, prolonged grief disorder, Psycho-Oncology, Psychological, Sveen J
Patients' priorities in a reminiscence and legacy intervention in palliative care
End-of-life care in the pediatric intensive care unit: Survey in Japan
Tags: 2019, Adolescent, April 2020 List, Attitude Of Health Personnel, Child, Clinical Decision-Making/mt [Methods], Health Care Surveys, Humans, Infant, Intensive Care Units, Japan, Kurosawa H, Niitsu T, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Pediatric/sn [Statistics & Numerical Data], Pediatric/st [Standards], Pediatrics International, Physicians'/sn [Statistics & Numerical Data], Physicians'/st [Standards], Practice Patterns, Practice Patterns Physicians'/*ethics, Preschool, Seino Y, Shiima Y, Terminal Care/mt [methods], Terminal Care/sn [statistics & Numerical Data], Terminal Care/st [standards]
How The Fault in Our Stars illuminates four themes of the Adolescent End of Life Narrative
Tags: 2019, Adolescent, Adolescent Behavior/psychology, Advance Care Planning, April 2020 List, Attitude To Death, Critical Illness/*psychology, Female, Hartsock J A, Humans, Kirkman A O, literature, literature and medicine, Male, Medical Humanities, Medicine in Literature, Modern, narrative ethics, narrative medicine, Paediatrics, Terminal Care/*psychology, Torke A M
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Increasing joy for pediatric palliative care providers: #pactimpact a quality improvement initiative for resiliency in the workplace
Pediatric palliative podcasting as a tool to reach families
What impedes timely pediatric palliative care consults? A preliminary report
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker