Browse Items (47 total)
- Tags: Patient Care
Utilizing the Metaverse to Provide Innovative Psychosocial Support for Pediatric, Adolescent, and Young Adult Patients with Rare Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, anxiety, Article, avatar, Cancer Localization, Cancer Patient, Cancers, Demographics, Ewing sarcoma/di [Diagnosis], Fujiwara T, Hasei J, Health Care, Human, Ikuta K, Ishida H, Iwata S, Katayama H, Kunisada T, leukemia/di [Diagnosis], Likert scale, Maeda N, Male, Malignant Neoplasm, Nagano A, Nakahara R, Nakata E, Ochi M, Okamura M, Oncologist, osteosarcoma/di [Diagnosis], Ozaki T, Palliative Therapy, Participation, Patient Care, Psychological care, rural area, soft tissue tumor, Stigma, Yoshida S
Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey
Tags: 2023, 2025 SE1 - Oncology, Bereavement, Bergstraesser E, Childhood Cancer, De CE, EJC Paediatric Oncology, Health Services, Hendriks MJ, Hjorth L, Integrative Oncology, Michel G, Paediatrics, Palliative Care, Palliative supportive care, Patient Care, Pedraza EC, Raguindin PF, Rüesch K, Services, Tinner EM, Vokinger AK, von Bueren AO, Wiener L
Beyond treatment: Understanding family experiences in pediatric palliative care
Tags: 2024, Adolescent, Adult, Andres de Alvaro M, anxiety, Article, Burnout, care behavior, Caregiver, Caregiver Support, Child, Convenience Sample, CPAP device, Del Villar GP, Drug Therapy, Family, Garcia ML, Gene Expression, Health Care Personnel, Home Care, Human, Interpersonal Communication, Interview, lens (optics), Male, March List 2025, Mood, Palliative And Supportive Care, Palliative Therapy, Patient Care, Quality Of Life, Ramos PD, Semi Structured Interview, Tamayo-Morales O, Therapy
Goals of Surgical Interventions in Youths Receiving Palliative Care
Tags: 2024, adenoidectomy, Article, Assistive technology, Avery M, bone marrow aspiration, bone marrow biopsy, botulinum toxin/pv [Special Situation for Pharmacovigilance], bronchoscopy, Cancer Patient, cancer surgery, Cardiovascular Disease, central venous catheterization, cerebrospinal fluid shunting, Chemotherapy, Chen L, Child, Cohort Analysis, Controlled Study, dental procedure, Ellis DI, endoscopic biopsy, Endoscopy, February List 2025, Female, Genetic Disorder, Gordon Wexler S, heart catheterization, heart surgery, Human, JAMA Network Open, juvenile, Kaplan AJ, Kelleher C, Kim TD, laryngoscopy, life extension, lumbar puncture, Major Clinical Study, Male, Mazzola E, Neurologic Disease, Palliative Therapy, Patient Care, pediatric patient, pediatric surgery, phenol/pv [Special Situation for Pharmacovigilance], Retrospective Study, steroid therapy, steroid/pv [Special Situation for Pharmacovigilance], tenotomy, thorax surgery, Tonsillectomy, Tracheostomy, treatment indication, tympanostomy, Vascular Surgery, Wolfe J
The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases
Tags: 2024, Adolescence, Aggression, Agitation, antiemetic agent/pv [Special Situation for Pharmacovigilance], anxiety disorder, apathy, appetite stimulant/pv [Special Situation for Pharmacovigilance], Augustine EF, automutilation, Behavior Therapy, body weight gain, Brown HB, Caregiver Burden, Child Psychiatry, Childhood Mortality, choreoathetosis/dt [Drug Therapy], cognitive defect/si [Side Effect], collaborative care team, Comorbidity, degenerative disease/dm [Disease Management], degenerative disease/dt [Drug Therapy], Dementia, disease exacerbation, Dysphagia, Editorial, Expectation, extrapyramidal symptom, February List 2025, feeding disorder, feeding tube, first-line treatment, gabapentin/dt [Drug Therapy], gabapentin/pv [Special Situation for Pharmacovigilance], Hauptman AJ, high risk behavior, Human, Huntington chorea/dm [Disease Management], iatrogenic disease/si [Side Effect], Interpersonal Communication, Irritability, Journal Of The American Academy Of Child And Adolescent Psychiatry, juvenile neuronal ceroid lipofuscinosis/dm [Disease Management], Lafora disease, Live Birth, Medication therapy management, mental health care, mirtazapine/pv [Special Situation for Pharmacovigilance], mood disorder, motor dysfunction, neuroleptic agent/ae [Adverse Drug Reaction], neurologic disease/dm [Disease Management], neuropsychiatry, obsession, onset age, Palliative Therapy, parenting education, parkinsonism, Patient Care, Patient Comfort, pediatric patient, perseveration, Polypharmacy, Prevalence, Prognosis, psychiatric neuropalliative care, psychoeducation, psychosis, Quality Of Life, quetiapine/dt [Drug Therapy], quetiapine/pv [Special Situation for Pharmacovigilance], responsibility, risperidone/dt [Drug Therapy], risperidone/pv [Special Situation for Pharmacovigilance], Seizure, sensory dysfunction, Side Effect, sleep disorder, Spasticity, Symptom, symptom burden, tardive dyskinesia/si [Side Effect], Tay Sachs disease, trazodone/dt [Drug Therapy], trazodone/pv [Special Situation for Pharmacovigilance], visual impairment, Young Adult
A quality improvement evaluation of a standardized intervention for children with medical complexity transitioning to adult care
Tags: 2024, Adams S, Adolescent, Adult, Article, assisted ventilation, Caregiver, Checklist, Child Psychiatry, Children With Medical Complexity, chronicity, Chung C, Conversation, decision support system, Demographics, dietitian, Disability, Esser K, Family physicians, feedback system, General Practitioner, Health Care Access, Health Care Personnel, Health care transition, Health Care Utilization, Hospital, Human, Information Processing, Lee S, Major Clinical Study, McKay T, Medical Record Review, Medical Technology, Moore C, Multidisciplinary team, Multiple Chronic Conditions, November List 2024, Nurse Practitioner, Orkin J, Paediatrics And Child Health, Patient Care, pediatric patient, Pediatrician, Pediatrics, pharmaceutical care, pharmacist, Quality Improvement, Rehabilitation, School, Social Worker, standardization, Total Quality Management, Transition To Adult Care, vascular access, Wagman H
Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review
Tags: 2024, Adaptation Psychological, Adolescent, Article, Awareness, Bmc Pediatrics, Burnout, Charepe Z, Child, Child Preschool, Chronic Disease, Continuity Of Patient Care, Decision Making, Diagnostic Accuracy, family functioning, Ferreira AM, geographic distribution, health care organization, health practitioner, Health Promotion, Health Transition, healthcare, Hospitalization, Human, Humans, immunosuppressive treatment, Infant, Interpersonal Communication, investment, Loura D, Medical Education, Palliative Therapy, Parent, Parents, Patient Care, Polypharmacy, population dynamics, Preschool Child, Prevalence, psychological adjustment, Psychology, Quality Of Life, Questionnaire, Romeiro J, Scoping review, September List 2024, Sleep Quality, Terminal Care, Therapy, Transitional Care, VULNERABILITY, Young Adult
The Special Delivery Unit: A Novel Concept for Mother-Baby Continuity for Major Fetal Abnormalities
Tags: 2024, American Journal of Perinatology, Anesthesiology, anxiety, Apgar score, Article, August List 2024, Bebbington MW, Birth Weight, Blood Transfusion, body mass, Cesarean Section, Clinical Outcome, colonoscopy, community hospital, Cost Effectiveness Analysis, diabetic ketoacidosis, electronic medical record, Female, Fetus, fetus disease, fetus echography, fetus surgery, Gestational Age, Health Care Access, Health Care Cost, Health Care Delivery, health Insurance, hospital discharge, Human, Intensive Care Unit, interatrial septum, Kosko A, Length Of Stay, Medical Education, Moise KJ, neuroprotection, newborn surgery, Nix M, obstetric delivery, obstetrical nursing, operating room, outcome assessment, oxygen consumption, Palliative Therapy, Parenteral Nutrition, patent ductus arteriosus, Patient Care, Patient Satisfaction, pharmacist, preeclampsia, Pregnancy, pregnant woman, Prenatal Care, Prenatal Diagnosis, puerperium, Resuscitation, Systematic Review, Teaching, telephone interview, Thomas H, wound infection
"Somebody Hug the Interpreter": Enhancing Pediatric Palliative Care Partnership with Medical Interpreters
Tags: 2024, Child, Clinical Practice, Clinician, collaborative care team, conference abstract, Distress Syndrome, diversity equity and inclusion, Frechette EM, health disparity, health literacy, hospital planning, Human, Journal of Pain and Symptom Management, June List 2024, medical interpreter, Palliative Therapy, Patient Care, Personal Experience, Porter AS, professionalism, Snaman JM, Speech, structural racism, Teamwork, video interview, videorecording, Wise AF
Not Just Small Adults: The Birth and Early Years of a Pediatric Hospice Program
Tags: 2024, Adolescent, Adult, case manager, Child, conference abstract, Distress Syndrome, Female, Hospice, Hospice Care, Human, Infant, Journal of Pain and Symptom Management, June List 2024, MacDonell-Yilmaz RE, Male, obstetric delivery, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, professionalism, Ritzau J, special situation for pharmacovigilance, Teamwork, Terminal Care, terminally Ill Patient, United States
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
Thirty-day mortality as a metric for palliative radiotherapy in pediatric patients
Tags: 2023, Adult, Article, biological marker, Child, Current Opinion in Supportive and Palliative Care, Female, Human, Johnstone PAS, Keit E, Male, March List 2024, Metronidazole, Mortality, Nanda R, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, Quality Of Life, Radiotherapy, terminally Ill Patient
Impact of Animal-Assisted Interaction on Anxiety in Children With Advanced Cancer and Their Caregivers
Tags: 2023, 2023 SE3 - Oncology, Advanced Cancer, Akard TF, Animal Experiment, Animal Model, Animal Shells, Animals, Anticipation, anxiety, Article, Cancer Patient, Cancer Recurrence, Caregiver, Caregivers, Child, Comparative Effectiveness, Controlled Study, Cowfer BA, Dietrich MS, Dog, Feasibility Study, Female, Gilmer MJ, Human, Journal of Palliative Medicine, Mahoney AB, Male, Newton JL, Nonhuman, Only Child, Palliative Therapy, Patient Care, pediatric patient, refractory disease, State Trait Anxiety Inventory
Consulting parents bereaved by childhood cancer: A qualitative study to improve bereavement services
Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit
Tags: 2023, Cardiology In The Young, Child, Cinahl, conference abstract, Decision Making, Eissler AB, Female, Heart, Holistic Care, Human, Intensive Care, Intensive Care Units, Kroger Y, Male, Medline, Memory, Nursing, October List 2034, Palliative Therapy, Patient Care, Pediatric Intensive Care Unit, Rare Disease, Satisfaction, Systematic Review, Terminal Care, Wieden N
An Audit Analysing The Standard Of Patient Care And Service Provision In Sppc At A Tertiary Hospital And Hospice
Tags: 2023, Archives of Disease in Childhood, Child, Clinical Article, conference abstract, Coulson-Smith P, Durrant E, Female, Hospice Care, Hospices, Human, Male, manager, October List 2030, Palliative Therapy, Patient Care, patient coding, Patient Referral, Place Of Death, Renton K, Sample Size, staff training, tertiary care center, Warlow T
Redirecting Care: Compassionate Management of the Sick or Preterm Neonate at the End of Life
Tags: 2022, August List 2052, Children, compassionate care, Distress Syndrome, doctor patient relationship, emotionality, family relation, family support, Hain R, Health Care Personnel, Human, Infant, Newborn, intersectoral collaboration, Newborn Care, Newborn Death, Pain, Palliative Therapy, parent counseling, parental behavior, Patient Care, Personal Experience, Philosophy, Psychological care, Review, Terminal Care, Wyatt J
Sharing care at the End of life for adolescent patients with neuro-disability: A case series
Tags: 2023, Adolescent, Adult, ADULTHOOD, Aspey H, August List 2031, Bereavement Support, BMJ Supportive and Palliative Care, Bond E, Case Study, Child, Clinical Article, Community Health Nursing, conference abstract, Deterioration, Elverson J, family support, Female, groups by age, health hazard, Hoskins R, Hospital Admission, hospital discharge, Human, Learning, Mackerness C, Male, Neurodisability, Palliative Therapy, Patient Care, Shiell A, Terminal Care, Young Adult
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
Implementation Science of Paediatric Palliative Care in Lower-Middle-Income Countries in Southeast Asia: An Integrative Review
I feel like my house was taken away from me': Parents' experiences of having home adaptations for their medically complex, technology-dependent child
Tags: 2022, Adolescent, Adult, Article, August 2022 List, biotechnology, Blake L, Bray L, Carter B, Child, Chronic Patient, Conceptual Framework, Controlled Study, Decision Making, Dickinson A, disabled person, England, Father, Female, Health And Social Care In The Community, Heat, Home Care, Human, Human Experiment, Interview, Male, Mitchell TK, Mother, Patient Care, Preschool Child, regeneration, Scotland, Thematic Analysis, thinking, Wales, Wellbeing
Speech-Language Pathologists in Pediatric Palliative Care: An International Study of Perceptions and Experiences
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Family Conferences in Prenatal Palliative Care
Tags: 2020, August 2020 List, Barbosa T V A, Benute G R G, Bernardes L S, Bolibio R, fetal malformation, Francisco R P, Gibelli M A B C, Gomes A L, Jesus R C A, Journal of Palliative Medicine, Nascimento N B, Oliveira F F, Palliative Medicine, Patient Care, Perinatal, Qualitative Research, Rocha L S N, Rosa G R, Setubal M S V
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
GPs' role in caring for children and young people with life-limiting conditions: a retrospective cohort study
Tags: 2020, accident, Adult, April 2020 List, Article, Attention, care behavior, Child, Clinical Article, Clinical Practice, Cohort Analysis, Consultation, England, Female, Fraser L K, general practice, Health Care Utilization, Hewitt C, Hospital Patient, Human, Icd-10, Jarvis S, Male, Mitchell S, Parslow R C, Patient Care, Primary Health Care, Read code, Retrospective Study, secondary health care, The British journal of general practice : the journal of the Royal College of General Practitioners.
Increasing joy for pediatric palliative care providers: #pactimpact a quality improvement initiative for resiliency in the workplace
Addressing Psychosocial Support in Children with Cancer in Low- and Middle-Income Countries
Tags: 2019, Bansal D, Cancer Mortality, Cancer Palliative Therapy, childhood cancer/dm [Disease Management], Developing World 2019 List, Health Care Personnel, health practitioner, Human, Indian Journal Of Pediatrics, low income country, middle income country, Note, Patient Care, patient counseling, Psychologist, psychosocial care, Quality Of Life, Social Worker, tertiary health care, Totadri S
Evaluation of residents' level of comfort with palliative care concepts before and after
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium
Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T
Early Identification of Pediatric Neurology Patients With Palliative Care Needs: A Pilot Study
Palliative Care in the Pediatric Emergency Department: Findings From a Qualitative Study
Tags: 2019, Annals of Emergency Medicine., Article, Child, clinical evaluation, Controlled Study, Cote A J, Critically Ill Patient, Distress Syndrome, Emergency Ward, Female, Gaucher N, genetic transcription, Human, Intensive Care, July 2019 List, Major Clinical Study, Male, Palliative Therapy, Patient Care, Payot A, pediatric emergency medicine, Qualitative Research, Software, Thematic Analysis, theoretical study
A demanding act of love: Barriers and challenges in communication and decision-making for infants at the limits of viability
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Hospital admissions into paediatric palliative care: A retrospective study
Tags: 2019, Anales de Pediatria., Article, Barcelo M, Child, de Noriega Í, Death, Female, García-Salido A, Gastrostomy, Hospice Care, Hospital Admission, Hospitalisation, Hospitalization, Human, Major Clinical Study, Male, Martino R, May 2019 List, Paediatric hospitals, Palliative Care, Palliative Therapy, Patient Care, Pediatric Hospital, Perez M A, Puertas V, Respiratory System, Retrospective Study
Talking to parents about their preferences for their child's place of death: A prospective study
Tags: 2018, achievement, Advanced Cancer, Al-Khabbaz E, Archives of Disease in Childhood, Bluebond-Langner M, Case Study, Child, Clinician, conference abstract, Craig F, Death, Dinsdale A, Female, government, Hematologic Malignancy, Henderson E, Hospice, Human, Langner R, Major Clinical Study, March 2019 List, Multidisciplinary team, outcome assessment, Palliative Therapy, Patient Care, Peake J, Prospective Study, social aspect, solid malignant neoplasm
A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs
Tags: 2019, Article, Barcelo M, Child, Chocarro L, Decision Making, genetic transcription, Gonzalez P, Grounded Theory, Human, International Journal of Palliative Nursing, March 2019 List, Martino R, Moreno A, Palliative Therapy, Patient Care, Perception, Problem Solving, Semi Structured Interview, Spain, stomach tube
Perceptions of barriers and facilitators to early integration of pediatric palliative care: A national survey of pediatric oncology providers
Tags: 2018, Article, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Dalberg T, Friebert S, Human, McNinch NL, Nurse Practitioner, Oncologist, Oncology 2018 List, Only Child, outcome assessment, Palliative Care, Palliative Therapy, Patient Care, Patient Education, Pediatric Blood and Cancer, Perception, Prognosis, Social Work, Software
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Ethical dilemmas encountered by a palliative care team at a Pediatric cancer center in guatemala
Tags: 2018, Adolescent, Adult, Bioethics, Blood Transfusion, Brain Death, Bustamante Tuchez LM, cancer center, Cancer Patient, cancer surgery, Cancer Therapy, Case Study, Child, Childhood Cancer, Close P, conference abstract, Developing World 2018 List, Drug Withdrawal, Female, Guatemala, Human, Intensive Care, Justice, Major Clinical Study, Medical Record Review, Multidisciplinary team, Palliative Therapy, Patient Autonomy, Patient Care, Paz G, Pediatric Blood and Cancer, Physician, Poverty, Pregnancy, Religion, Retrospective Study, Rivas S, Sound, substance abuse, Surgery, Treatment Refusal, Treatment Withdrawal, Valverde P, Zaidi A