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Leveraging Grief: Involving Bereaved Parents in Pediatric Palliative Oncology Program Planning and Development

As pediatric palliative care (PPC) became a recognized medical specialty, our developing clinical PPC team longitudinally partnered with bereaved…

Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity

Importance: Advance care planning (ACP) is the process of discussing values and preferences for care to help inform medical decision-making. Children…

Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study

OBJECTIVES: Children with medical complexity (CMC) have high readmission rates, but relatively little is known from the parent perspective regarding…

Bereaved Parents' Perceptions of Infant Suffering in the NICU

CONTEXT: It is challenging to provide supportive intensive care to infants in the neonatal intensive care unit (NICU), giving them every chance for…

Experiencing place identity and place belongingness at a children's hospice: Parents' perspectives

Children's hospices are key players in the provision of palliative care services for families with children with life-limiting conditions (LLCs).…