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The sleep patterns of a cohort of 83 Rett syndrome females were characterized using a sleep diary for 7 consecutive days and nights and compared with…
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Purpose: A pilot study to ascertain awareness and understanding of palliative care among parents of pediatric patients at a single academic medical…
Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?
OBJECTIVE: To describe the current status of withholding or withdrawal of life-sustaining interventions (LSI) for neonates in Japan and to identify…
BACKGROUND: Pantothenate kinase-associated neurodegeneration is characterized by severe, progressive dystonia. This study aims to describe the…
A conceptual model of barriers and facilitators to primary clinical teams requesting pediatric palliative care consultation based upon a narrative review
BACKGROUND: Despite evidence that referral to pediatric palliative care reduces suffering and improves quality of life for patients and families, many…
Going straight to the source: A pilot study of bereaved parent facilitated communication training for pediatric subspecialty fellows
Background: Medical trainees consistently report suboptimal instruction and poor self-confidence in communication skills. Despite this deficit, few…