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Individualised decision making: interpretation of risk for extremely preterm infants-a survey of UK neonatal professionals

BACKGROUND: The British Association of Perinatal Medicine (BAPM) published a revised framework for perinatal management of extremely preterm infants…

Parental bereavement - impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review

BACKGROUND: Losing a child tragically impacts the well-being and functioning of parents. With these effects extending beyond emotional, physical…

Community Resource Connection for Pediatric Caregivers with Unmet Social Needs: A Qualitative Study

OBJECTIVE: Pediatric health systems are increasingly screening caregivers for unmet social needs. However, it remains unclear how best to connect…

Development of the Dutch Structure for Integrated Children's Palliative Care

Children's palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This…

Identifying Patterns of Pediatric Mental and Behavioral Health at End of Life: A National Study

Children, who enroll in hospice, have complex mental and behavioral health (MHBH) problems. There is limited literature on patterns of these problems…