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Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity

OBJECTIVE: Because children with medical complexity (CMC) display very different health trajectories, needs, and resource utilization than other…

Management of dystonia in paediatric palliative care

Dystonia is a challenging neurological symptom found in paediatric palliative care (PPC).1 While well defined as a movement disorder characterised by…

The engagement of young people in their own advance care planning process: A systematic narrative synthesis

BACKGROUND: An increasing number of young people are living with life-limiting conditions. Current research about advance care planning for young…

Low prevalence of palliative care and ethics consultations for children with chronic critical illness

Medical advances over the past two decades have increased the numbers of children who survive serious conditions. Mortality from pre-mature birth and…

Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014

BACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's…