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Parental knowledge and opinions on palliative care for children

Purpose: A pilot study to ascertain awareness and understanding of palliative care among parents of pediatric patients at a single academic medical…

Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?

OBJECTIVE: To describe the current status of withholding or withdrawal of life-sustaining interventions (LSI) for neonates in Japan and to identify…

Cannabis Use in Children With Pantothenate Kinase-Associated Neurodegeneration

BACKGROUND: Pantothenate kinase-associated neurodegeneration is characterized by severe, progressive dystonia. This study aims to describe the…

A conceptual model of barriers and facilitators to primary clinical teams requesting pediatric palliative care consultation based upon a narrative review

BACKGROUND: Despite evidence that referral to pediatric palliative care reduces suffering and improves quality of life for patients and families, many…

Going straight to the source: A pilot study of bereaved parent facilitated communication training for pediatric subspecialty fellows

Background: Medical trainees consistently report suboptimal instruction and poor self-confidence in communication skills. Despite this deficit, few…