Browse Items (205 total)
- Tags: Retrospective Studies
Nationwide Study of Continuous Deep Sedation Practices Among Pediatric Palliative Care Teams
Tags: 2023, Adolescent, Betremieux P, Child, Cojean N, Deep Sedation, Female, Frache S, Humans, Hypnotics and Sedatives/tu [Therapeutic Use], Jounis-Jahan F, Journal of Pain and Symptom Management, Lervat C, Male, May List 2023, Palliative Care, Pediatrics, Retrospective Studies, Ridley A, Robert G, Terminal Care, Vial-Cholley E, Viallard ML
The Needs of Children Receiving End of Life Care and the Impact of a Paediatric Palliative Care Team: A Retrospective Cohort Study
Tags: 2023, Adolescent, April List 2023, Cancelinha C, Child, Child Preschool, Chronic Disease, Cohort Studies, Complex Chronic Conditions, Correia D, End Of Life, European Journal of Pediatrics, Female, Gomes B, Health Resources, Humans, Infant, Length Of Stay, Loureiro M, Male, Nogueira A, paediatric palliative care, Palliative Care, Palliative Care/methods, Retrospective Studies, Terminal Care, Terminal Care/methods, Tertiary Care Centers
Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability
Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review
Tags: 2022, Adolescent, anxiety, Autism spectrum disorder, behaviour, Child, Child, Preschool, Child: Care, Health and Development, Communication, Fletcher S, Huh L, Humans, hyperactivity, Infant, Infant, Newborn, Ip A, Medical Marijuana, Medicinal Cannabis, Oberlander TF, Parents, Pawliuk C, Prospective Studies, Rassekh SR, Retrospective Studies, Siden H
End-Of-Life Practices in Patients Admitted to Pediatric Intensive Care Units in Brazil: A Retrospective Study
Tags: 2021, 2021 Special Edition 1 - Low Resource Settings, Andrades GRH, Brazil/epidemiology, Bruno F, Child, Child Care, Costa CAD, Crestani F, Death, Fiori HH, Furtado RA, Garcia PCR, Humans, Infant, Intensive Care Units Pediatric, Length Of Stay, Life Support Care, Mortality, Palliative Care, Piva JP, Retrospective Studies, Terminal Care, The Journal Of Pediatrics, Tonial CT
Racial and Ethnic Disparities in Medical Complexity and In-Hospital Death Among US-Born VLBW Infants
Factors associated with admission of children to an intensive care unit and readmission to hospital within 28 days of discharge: A population-based study
Tags: 2022, Admission, Adolescent, Ampt A, Australia, Bond DM, Child, Festa M, Hospital Mortality, Hospitals Public, Humans, Intensive Care, Intensive Care Units, Journal of Paediatrics and Child Health, Length Of Stay, Male, May 2022 List, Nassar N, Paediatrics, Patient Discharge, patient readmission, Pediatric Intensive Care Units, Population Health, Readmission, Retrospective Studies, Risk Factors, Schell D, Teo A
Low-Resource Emergency Department Visits for Children With Complex Chronic Conditions
Adult healthcare is associated with more emergency healthcare for young people with life-limiting conditions
Admission factors associated with nutritional status deterioration and prolonged pediatric intensive care unit stay in critically ill children: PICU-ScREEN multicenter study
Tags: 2022, April 2022 List, Child, Child Preschool, Chronic Disease, Critical Illness, Hauschild DB, Humans, Infant, Intensive Care Units Pediatric, Journal Of Parenteral And Enteral Nutrition, Length Of Stay, malnutrition, Mehta NM, Moreno YMF, Nutritional Status, Oliveira LDA, Outcomes, Pediatric Intensive Care Unit, PICU-ScREEN Study Group, Prospective Studies, Retrospective Studies, Silveira TT, Ventura JC
Palliative sedation for children at end of life: a retrospective cohort study
Comparison between Rural and Urban Appalachian Children in Hospice Care
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, 2022 Special Edition 1 - Parent Perspectives, Female, Fetal Mortality, George T, Hospice, Infant, Journal of Palliative Medicine, Kamrath HJ, Mothers, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Perinatal, Perinatal Care organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
COVID-19 in pediatric palliative care: what can we learn from the pandemic and possible future directions
Surgical Interventions During End-of-Life Hospitalizations in Children's Hospitals
Tags: 2021, Adolescent, Age Factors, Antiel RM, Biopsy, Blinman TA, Camazine MN, Catheterization, Child, Chronic Disease, Eghtesady P, Ethnicity, February 2022 List, Feudtner C, Hall M, Hospitalization, Infant, International Classification of Diseases, Lam SK, Nance ML, Newborn Infant, pediatric hospitals, Pediatrics, Preschool Child, Prosthesis Implantation, Race Factors, Retrospective Studies, Salvage Therapy, Surgical Procedures, Operative, Terminal Care, Traynor MD, United States, Young Adult
Neonatal donation: are newborns too young to be recognized?
Tags: 2021, Baptist DH, Brain Death, Death, End-of-life Care, European Journal of Pediatrics, Hulzebos CV, Infant, January 2022 List, Neonatal, Newborn Infant, Organ Donation, Pediatric, Retrospective Studies, Siebelink MJ, Tissue and Organ Procurement, tissue donation, Tissue Donors, Toet MC, Verhagen EAA, Vileito A
Discharge Communication Practices for Children With Medical Complexity: A Retrospective Chart Review
Care Coordination Program for Children With Complex Chronic Conditions Discharged From a Rural Tertiary-Care Academic Medical Center
What Do We Know about Pediatric Palliative Care Patients Consulting to the Pediatric Emergency Department?
Treatment limitation and advance planning: Hospital-wide audit of paediatric death
Prediction of Acquired Morbidity Using Illness Severity Indices in Pediatric Intensive Care Patients
Tags: 2020, Adolescent, Allen JC Jr, Child, Child Preschool, Critical Care, Hospital Mortality, Humans, Infant, Infant Newborn, Intensive Care Units Pediatric, Lee JH, March 2021 List, Morbidity, Ong C, Pediatric Critical Care Medicine, Retrospective Studies, Risk Factors, Senna S, Severity Of Illness Index, Singapore/epidemiology, Sultana R, Wong JJ
Validation of an Electronic Pediatric Index of Mortality 2 Score in a Mixed Quaternary PICU
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, Adult, August 2020 List, Female, Fetal Diseases/diagnosis/*mortality, George T, Hospice, Humans, Infant, Journal of Palliative Medicine, Kamrath H J, Mothers/*psychology, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Palliative Care/*organization & Administration, Patient Care Planning/*organization & administration, Perinatal, Perinatal Care/*organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children
Tags: 2018, Acheson E, Adaptation, Adolescent, burden of treatment, Central Nervous System Neoplasms/therapy, Child, Death, Elger B S, European Journal of Cancer Care (Engl), Family, Female, Hengartner H, Hospitalization, Humans, Infant, inpatient stays, Kuhne T, Length Of Stay, leukaemia, Leukemia/therapy, Male, Medical Records, Neoplasms/*therapy, Newborn, Oncology 2019 List, Paediatric oncology, Place Of Death, Preschool, Psychological, Rakic M, Retrospective Studies, Rischewski J, Rost M, Switzerland, Terminal Care, Wangmo T
Dystonia in neurodegeneration with brain iron accumulation: outcome of bilateral pallidal stimulation
Tags: 2010, Adolescent, Adult, bilateral pallidal stimulation, Brain, Brain Diseases/physiopathology/therapy, Brain/physiopathology, Child, Child Preschool, Deep Brain Stimulation/adverse effects/methods, Dystonia, Dystonia/physiopathology/therapy, Female, Functional Laterality, Gill S S, Globus Pallidus/physiopathology, Haenggeli C A, Hayflick S J, Hogarth P, Humans, IND, Infant, Iron/metabolism, Jech R, Kurlemann G, Leenders K L, Limousin P, Malanga C J, Male, Moro E, Neurodegenerative Diseases/physiopathology/therapy, Ostrem J L, Pauls K A, Peker S, Retrospective Studies, Revilla F J, Santens P, Schnitzler A, Sharma N, surgical intervention, Timmermann L, Tisch S, tone and motor problems, Treatment Outcome, Valldeoriola F, Vesper J, Volkmann J, Wieland K, Woitalla D, Young Adult
Respiratory complications of mucopolysaccharide storage disorders
Tags: 1988, adenoidectomy, Adolescent, Adult, Airway Obstruction/et [Etiology], Anesthesia General/ae [Adverse Effects], beta adrenergic blockers, breathing difficulties, calcium antagonists, Cardiovascular Diseases/et [Etiology], Child, Child Preschool, digoxin, diuretics, Female, Humans, Infant, Intubation Intratracheal/ae [Adverse Effects], Lung Diseases/et [Etiology], Lung Diseases/pp [Physiopathology], Male, Medicine, MLII, MLIII, MPSI, MPSII, MPSVI, Mucopolysaccharidoses/co [Complications], Mucopolysaccharidoses/mo [Mortality], Mucopolysaccharidoses/pp [Physiopathology], pharmacologic interventions, Pyeritz R E, respiratory problems, Respiratory Tract Diseases/et [Etiology], Respiratory Tract Diseases/pp [Physiopathology], Respiratory Tract Diseases/ra [Radiography], Retrospective Studies, Semenza G L, Sleep Apnea Syndromes/et [Etiology], Spinal Diseases/et [Etiology], Spinal Diseases/ra [Radiography], surgical interventions, theophylline, Tonsillectomy, Tracheostomy
Sleep disordered breathing in childhood-onset acid maltase deficiency
Tags: 2009, Adolescent, Blood Gas Analysis, Brain and Development, breathing difficulties, Child, Female, glycogen storage disease type II, Glycogen Storage Disease Type II/pp [Physiopathology], Humans, Kagitani-Shimono K, Kato-Nishimura K, Male, Mohri I, Muscle Strength, Muscle Weakness, Nabatame S, non-invasive positive pressure ventilation, Okinaga T, Ozono K, physical intervention, Polysomnography, Positive-Pressure Respiration, Quality Of Life, Respiration, Respiration Disorders/pp [Physiopathology], Respiration Disorders/th [Therapy], Respiratory Function Tests, Retrospective Studies, Sakai N, Sleep apnea, Sleep Apnea Syndromes/pp [Physiopathology], Sleep Apnea Syndromes/th [Therapy], Sleep/ph [Physiology], Tachibana N, Taniike M
Change in gross motor abilities of girls and women with rett syndrome over a 3- to 4-year period
Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult
Esophageal strictures in children with recessive dystrophic epidermolysis bullosa: an 11-year experience with fluoroscopically guided balloon dilatation
Tags: 2006, 24GP945V5T (Barium), Adolescent, Azizkhan R G, barium, Catheterization, Child, Cohen A P, Dystrophica/co [Complications], epidermolysis bullosa, Esophageal Stenosis/et [Etiology], Esophageal Stenosis/th [Therapy], Farrell M K, feeding difficulties, Female, fluoroscopically guided balloon dilatation, Hammelman B D, Humans, Johnson N D, Journal Of Pediatric Surgery, Lucky A W, Male, Preschool, Racadio J M, Retrospective Studies, Stehr W, surgical intervention, Treatment Outcome, Wittkugel E
Deep brain stimulation in children: experience and technical pearls
Tags: 2011, Adolescent, Adult, Age, Air E L, Brain/ra [Radiography], Child, deep brain stimulation, Deep Brain Stimulation/ae [Adverse Effects], Deep Brain Stimulation/mt [Methods], Dystonia/pp [Physiopathology], Dystonia/th [Therapy], Factors Brain/pa [Pathology], Female, Follow-up Studies, Glutaric acidemia type I, Humans, Journal of Neurosurgery - Pediatrics, Lesch-Nyhan syndrome, Magnetic Resonance Imaging, Male, Movement, Ostrem J L, Preschool, Retrospective Studies, Sanger T D, secondary dystonia, Starr P A, Tomography, tone and motor problems, X-Ray Computed Treatment Outcome
Do-Not-Resuscitate Orders in the Neonatal ICU: Experiences and Beliefs Among Staff
Tags: 2018, Arzuaga BH, Attitude Of Health Personnel, Attitudes, Brodsky DD, Cummings CL, Female, Health Knowledge, Hospital/psychology, Humans, Intensive Care Units, Male, Mao W, Medical Staff, Miedema D, Neonatal/statistics & Numerical Data, November 2019 List, Nursing Staff, Pediatric Critical Care Medicine, Practice, Professional-family Relations, Resuscitation Orders/psychology, Retrospective Studies, Surveys And Questionnaires, United States, Withholding Treatment/statistics & Numerical Data, Wraight CL
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
Infant deaths from congenital anomalies: novel use of Child Death Overview Panel data
Tags: 2018, Archives of Disease in Childhood, Cause Of Death, Congenital Abnormalities/mortality, congenital anomaly, Consanguinity, Death Certificates, Disabled Children, England/epidemiology, Ethnic Groups/statistics & numerical data, Ethnicity, Female, Firth C, Humans, Infant, Infant Death, Infant Mortality, Infant Mortality/ethnology, Male, Maternal Age, Newborn, Oddie SJ, Petherick E, Retrospective Studies, September 2019 List
Pain in Nonverbal Children with Medical Complexity: A Two-Year Retrospective Study
Tags: 2018, Adolescent, Child, Child Behavior, Female, Humans, Intellectual Disability, July 2019 List, Longitudinal Studies, Male, Mauskar S, Morrill D, New England, Nursing Assessment, Pain Measurement/mt [Methods], Pain/di [diagnosis], Pain/pp [Physiopathology], Parents/px [psychology], Quinn B L, Retrospective Studies, Solodiuk J C, Surveys And Questionnaires, The American journal of nursing
Perceptions of discrimination among Mexican American families of seriously ill children
Disparities in location of death of adolescents and young adults with cancer: A longitudinal, population study in California
Tags: 2017, Adolescent, Adult, Attitude To Death, California, Cancer, Chamberlain LJ, Death, Female, Hospices/sn [statistics & Numerical Data], Hospital Mortality, Hospital Mortality/td [Trends], Humans, Johnston EE, Male, Neoplasms, Nursing Homes/sn [Statistics & Numerical Data], Oncology 2018 List, Patient Preference/sn [Statistics & Numerical Data], Rajeshuni N, Residence Characteristics/sn [Statistics & Numerical Data], Retrospective Studies, Sanders LM, Saynina O, Young Adult
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Unexpected Survivors: Children With Life-Limiting Conditions of Uncertain Prognosis
Tags: 2018, American Journal of Hospice & Palliative Medicine, Child, Cohort Studies, Congenital Abnormalities/mo [Mortality], Critical Illness/mo [Mortality], Female, Humans, Hurst A, Male, Nageswaran S, North Carolina, November 2018 List, Palliative Care/sn [Statistics & Numerical Data], Preschool, Prognosis, Radulovic A, Retrospective Studies, Survivors/sn [Statistics & Numerical Data], Survivorship
Life-Sustaining Treatment Status at the Time of Death in a Japanese Pediatric Intensive Care Unit
Tags: 2018, Adolescent, American Journal of Hospice & Palliative Medicine, Artificial, Brain Death di [Diagnosis], Child, Decision Making, Female, Humans, Inata Y, Intensive Care Units, Isaka K, Kinouchi K, Length Of Stay, Life Support Care, Male, November 2018 List, Pediatric sn [Statistics & Numerical Data], Preschool, Respiration, Resuscitation Orders, Retrospective Studies, Suzuki F, Tachibana K, Takeuchi M, Terminal Care px [Psychology], Terminal Care sn [Statistics & Numerical Data], Time Factors, Withholding Treatment
Association between religious and socio-economic background of parents of children with solid tumors and DNR orders
Tags: 2014, Adolescent, Adult, Backlog, Child, Decision Making, Education, Female, Follow-up Studies, Hakim F, Hileli I, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Parents, Pediatric Blood & Cancer, Postovsky S, Preschool, Prognosis, Religion, Resuscitation Orders, Retrospective Studies, Socioeconomic Factors, Survival Rate, Weyl Ben Arush M, Young Adult