Browse Items (38 total)
- Tags: Australia
An Exploratory Study into the Experience of Health Care Professionals Caring for Adolescents and Young Adults with Incurable Cancer
Tags: 2019, Adolescent, Adult, Article, Australia, Berger I, cancer center, challenges, enablers, Exploratory Research, Health Care Personnel, Health care professionals, Human, incurable disease, Joubert L, Journal of adolescent and young adult oncology., multidisciplinary, Oncology 2019 List, Semi Structured Interview, Thompson K, Young Adult
An Objective Approach to Decisions to Withdraw or Withhold Life-sustaining Medical Treatment
Change in gross motor abilities of girls and women with rett syndrome over a 3- to 4-year period
Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult
Sleep disturbance in Mowat-Wilson syndrome
Tags: 0 (Homeodomain Proteins), 0 (Repressor Proteins), 0 (ZEB2 protein human), 2016, Adolescent, Adult, American Journal of Medical Genetics Part A, Australia, Behavior Rating Scale, characteristics, Child, Child Preschool, Einfeld S, Evans E, Facies, Female, Gene Expression, Hirschsprung Disease/co [Complications], Hirschsprung Disease/di [Diagnosis], Hirschsprung Disease/ge [Genetics], Hirschsprung Disease/pp [Physiopathology], Homeodomain Proteins/ge [Genetics], Humans, Intellectual Disability/co [Complications], Intellectual Disability/di [Diagnosis], Intellectual Disability/ge [Genetics], Intellectual Disability/pp [Physiopathology], Male, Microcephaly/co [Complications], Microcephaly/di [Diagnosis], Microcephaly/ge [Genetics], Microcephaly/pp [Physiopathology], Middle Aged, Mowat D, Mowat-Wilson syndrome, Mutation, Repressor Proteins/ge [Genetics], Severity Of Illness Index, sleep disturbance/disorders, Sleep Initiation and Maintenance Disorders/co [Complications], Sleep Initiation and Maintenance Disorders/di [Diagnosis], Sleep Initiation and Maintenance Disorders/ge [Genetics], Sleep Initiation and Maintenance Disorders/pp [Physiopathology], Surveys And Questionnaires, Trajectory, Wilson M
Use of time in people with a life-limiting illness: A longitudinal cohort feasibility pilot study
Tags: 2019, accelerometry, acceptability, Adult, Article, Australia, burden, Caregiver, Child, Clinical Article, Cohort Analysis, cohort study, Controlled Study, Currow D C, European Quality of Life 5 Dimensions Questionnaire, Feasibility, Feasibility Study, Female, Human, Jones T A, Karnofsky Performance Status, Male, multimedia, numeric rating scale, October 2019 List, Olds T S, Outpatient, Palliative Care, Palliative Medicine, Palliative Therapy, Pilot Study, Quality Of Life, Recall, time-use, Williams M T
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach
Tags: 2015, Adolescent, Agar M, April 2019 List, Australia, Brown N, Child, Collegian: Journal of the Royal College of Nursing, Collegian: Journal of the Royal College of Nursing, Australia, Davidson PM, Green A, Humans, Information Storage and Retrieval, Luckett T, Palliative Care/og [Organization & Administration], Phillips J, Respite Care, Siblings, Social Support, Virdun C
When Is It in a Child's Best Interests to Withhold or Withdraw Life-sustaining Treatment? An Evolving Australian Jurisprudence
Cultural considerations in the provision of paediatric palliative care music therapy services in Melbourne Australia
Palliative Care. Workforce Development
Masculinity, moralities and being cared for: An exploration of experiences of living and dying in a hospice
Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial
Tags: 2010, Abernethy AP, Adult, Aged, Air, Anxiety/chemically induced, Australia, Backlog, Booth S, Bull J, Clark K, Crockett AJ, Currow DC, Double-Blind Method, Dyspnea/drug therapy/therapy, Epistaxis/chemically induced, Female, Frith PA, Great Britain, Herndon JE, Humans, Journal Article, Lancet, Male, Marcello J, McDonald CF, Middle Aged, Oxygen/administration & dosage/adverse effects/blood, Palliative Care/methods, Quality Of Life, Sleep, Sleep Stages, Treatment Outcome, Tulsky JA, United States, Wheeler JL, Wilcock A, Young IH
Transition from pediatric to adult services: are we getting it right?
Tags: 2008, Adolescent, Adolescent Medicine/organization & administration, Adolescent Transitions, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Delivery of Health Care/organization & administration, Humans, Journal Article, Kennedy A, Models, Organizational, Patient Care Planning/organization & administration, Pediatrics, Sawyer S
Young people with chronic illness: the approach to transition
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Delivery of Health Care/organization & administration, Douglass JA, Humans, Internal Medicine Journal, Journal Article, Kennedy A, Pediatrics, Sawyer SM, Self Care, Sloman F
A report on location of death in paediatric palliative care between home, hospice and hospital
Tags: 2008, Attitude To Death, Australia, Backlog, Canada, Child, Choice Behavior, Collins JJ, Great Britain, Humans, Journal Article, Miller M, NET CV, Omesi L, Palliative Care, Palliative Medicine, Patient Satisfaction, Residence Characteristics/statistics & numerical data, Retrospective Studies, Siden H, Straatman L, Terminal Care, Tucker T
Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Tags: 2009, Adolescent, Adult, Armfield NR, Australia, Backlog, Barnett AG, Bensink ME, Child, Computer Communication Networks/economics, Computer Security, Continuity Of Patient Care, Cost-Benefit Analysis, Early Termination of Clinical Trials, Female, Hallahan A, Health Services Accessibility/economics, Home Care Services/economics, Humans, Irving H, Journal Article, Male, Neoplasms/therapy, Palliative Care, Palliative Medicine, Parents/psychology, Patient Acceptance of Health Care, Patient Satisfaction, Pinkerton R, PPC Book Chapter 2011 (Kim Widger), Preschool, Rural Health Services/economics, Russell T, Scuffham P, Telemedicine/economics/instrumentation/methods, Theodoros DG, Videoconferencing/economics/instrumentation, Wootton R
Investigating the cost-effectiveness of videotelephone based support for newly diagnosed paediatric oncology patients and their families: design of a randomised controlled trial
Tags: 2007, Adolescent, Adult, Ambulatory Care/economics, Australia, Backlog, Barnett AG, Bensink M, BMC Health Services Research, Child, Child Health Services/economics, Cost Of Illness, Cost-Benefit Analysis, Hallahan A, Health Services Accessibility/economics, Hospital/economics, Humans, Irving H, Journal Article, Neoplasms/economics/therapy, Oncology Service, Parent-child Relations, Patient Satisfaction, Preschool, Quality Of Life, Randomized Controlled Trials/methods, Research Design, Rural Health Services/economics, Russell T, Scuffham P, Study Design, Telemedicine/economics/instrumentation, Theodoros D, Videoconferencing/economics, Wootton R
Symptom pathways from referral to death: measuring palliative care outcomes.
Transition care for young people with chronic illness
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Age Factors, Australia, Backlog, Brodie L, Child, Continuity Of Patient Care/organization & Administration, Cooperative Behavior, Delivery of Health Care/organization & administration, Health Services Accessibility, Health Services Needs And Demand, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Patient Participation, Steinbeck KS, Towns SJ
A Delphi study of district nursing research priorities in Australia
Identification of patients with noncancer diseases for palliative care services
Tags: 2005, Australia, Backlog, Brown M, Critical Illness/nursing, Eligibility Determination/utilization, Grbich C, Health Services Needs and Demand/statistics & numerical data, Hofmeyer A, Hospice Care/utilization, Humans, Journal Article, Maddocks I, Needs Assessment/statistics & numerical data, Palliative & Supportive Care, Palliative Care/utilization, Parker D, Piller N, Willis E
Reducing family members' anxiety and uncertainty in illness around transfer from intensive care: an intervention study
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Analysis of Variance, Anxiety/prevention & control, Australia, Backlog, Courtney M, Family/psychology, Female, Humans, ICU Decision Making, Intensive and Critical Care Nursing, Intensive Care Units, Intervention, Interventions, Journal Article, Male, Middle Aged, Mitchell ML, Pamphlets, Patient Transfer, Social Support
Self-reconstruction and biographical revisioning: survival following cancer in childhood or adolescence.
Tags: 2003, Adolescence, Adolescent Transitions, Adult, Australia, Backlog, Cancer Patients -- Psychosocial Factors, Cancer Survivors -- Psychosocial Factors, Child, Childhood Neoplasms -- Psychosocial Factors, Drew S, Health: An Interdisciplinary Journal For The Social Study Of Health, Illness & Medicine, Human, Interviews, Journal Article, Narratives, Phenomenological Research, Psychological Theory, Psychosocial Aspects of Illness, Qualitative Studies, Questionnaires
Paediatric palliative care: distinctive needs and emerging issues
Chronic illness in adolescents: transfer or transition to adult services?
Tags: 1997, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Australia, Backlog, Blair S, Bowes G, Case Management/standards, Chronic Disease/therapy, Humans, Journal Article, Journal of Paediatrics and Child Health, Patient Transfer/organization & administration, Pediatrics/methods, Primary Health Care/organization & administration, Sawyer SM
Relationships between symptom relief, quality of life, and satisfaction with hospice care
Tags: 1998, Aged, Australia, Backlog, Cohort Studies, Female, Hannan TJ, Horton SM, Hospice Care/standards, Human, Journal Article, Male, Non-U.S. Gov't, Outcome Assessment (health Care), P.H.S., Pain Measurement, Palliative Medicine, Patient Care, Patient Satisfaction, Prospective Studies, Quality Of Life, Support, Tierney RM, Tierney WM, U.S. Gov't
Adverse events in hospice and palliative care: a pilot study to determine feasibility of collection and baseline rates
Tags: 2011, 80 And Over, Abernethy AP, Accidental Falls, Adult, Agar MR, Aged, Australia, Backlog, Confusion, Currow DC, Feasibility Studies, Female, Greene A, Hospice Care/standards, Humans, Hyperglycemia, Hypoglycemia, Hypotension, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care/standards, Pilot Projects, Retrospective Studies, Rowett D, To TH, Urinary Retention, Young Adult
Intensive care bereavement practices across New Zealand and Australian intensive care units: a qualitative content analysis
Tags: 2017, Adult, Australia, Bereavement, Child, Coombs M, Critical Care Nursing, Death, Dying, End-of-life Care, Family, Female, Humans, Intensive Care, Intensive Care Units, Internet, James S, January 2018 List, Journal of Clinical Nursing, Male, Mitchell M, New Zealand, nursing role, Patient-centered Care, Practice Patterns Nurses', Surveys And Questionnaires, Wetzig K
A report on location of death in paediatric palliative care between home, hospice and hospital
Tags: 2008, Attitude To Death, Australia, Canada, Child, Choice Behavior, Collins JJ, Great Britain, Humans, Miller M, Omesi L, Palliative Care, Palliative Medicine, Patient Satisfaction, Residence Characteristics/statistics & numerical data, Retrospective Studies, Siden H, Straatman L, Terminal Care, Tucker T
"It's not about treatment, it's how to improve your life": The lived experience of occupational therapy in palliative care
Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)
Tags: 2017, anxiety, Australia, Baggio S, Burr C, Child, Clinical Trial, Delaney A, Diagnosis, Donovan L, Duc J, Duffield J, Dyspnea, Education, Family Study, Female, Fleming S, Herbert A, Heywood M, Human, Hynson J, Irving H, Johnson S, Major Clinical Study, Male, McLarty A, Momber S, Nausea, Nurse, October 2017 List, Pain, Palliative Therapy, Patient Referral, Pedersen LA, Pediatric Blood and Cancer, Phillips M, Questionnaire, Ryan S, Seizure, Slater P, Staff, Symptom, Telehealth, Terminal Care, Trethewie S
Assessing The Presence And Severity Of Constipation With Plain Radiographs In Constipated Palliative Care Patients.
Palliative care guidelines recommend plain radiographs to assess constipation based on the presumption that visible fecal shadowing represents stool retention. Despite this, using plain radiographs in this way is not well…
Palliative Care In Undergraduate Medical Education—how Far Have We Come?
Tags: 2016, Adelaide, American Journal of Hospice and Palliative Medicine, Australia, Australia And New Zealand, Danielle Fitzpatrick, End-of-life Care, Helena Ward, July 2016 List, Medical Education, Medical School, Palliative And Supportive Care, Palliative Care, Professional Education, Rebecca Heah, Simon Patten, Undergraduate Medical Education