Browse Items (395 total)
- Tags: 2005
Skin temperature in the extremities of healthy and neurologically impaired children
Tags: 2005, Brain Diseases/diagnosis/physiopathology, characteristics, Child, Child Preschool, chromosome 22q11.2 deletion, European Journal of Paediatric Neurology, Female, Foot, Hand, Humans, Infrared Rays, Lundeberg T, Male, Nordahl G, Skin Temperature, SMA1, Spinal Cord Diseases/diagnosis/physiopathology, Stener-Victorin E, Svedberg L E, temperature regulation, Trajectory, Walking
Measuring Friedreich ataxia: Interrater reliability of a neurologic rating scale
Tags: 2005, Adolescent, Adult, Age of Onset, Arm/pp [Physiopathology], Ashizawa T, Brain Stem/pp [Physiopathology], Cooperative Ataxia Group, Disease Progression, Female, Fischbeck K, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Friedreich's ataxia, Friedrich's Ataxia Scale, Gait Disorders, Gomez C, Hallett M, Lynch D, May W, Neurologic/di [Diagnosis], Neurologic/et [Etiology], Neurology, scale development, Subramony S H, Taylor P, tone and motor problems, tool development, Wilson R
Behavioral aspects of Lesch-Nyhan disease and its variants
Tags: 2005, Adolescent, Adult, Aggression, alertness, anxiety, behavioral problems, characteristics, Child, Depression, Developmental Medicine and Child Neurology, distractibility, Female, Harris J C, Humans, Jinnah H A, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/px [Psychology], Male, Meyer S M, Nyhan W L, Puig J G, Schretlen D J, Self-Injurious behavior, self-injury, Severity Of Illness Index, Trajectory, Ward J, Yun J
The association between environmental events and self-injurious behaviour in Cornelia de Lange syndrome
Tags: 2005, Adolescent Child, Arron K, behavioral problems, characteristics, Child, De Lange syndrome, De Lange Syndrome/ep [Epidemiology], Environment, Female, Hall S, Humans, Journal Of Intellectual Disability Research, Male, Moss J, Oliver C, Petty J, Preschool, Self-Injurious behavior, Self-Injurious Behavior/di [Diagnosis], Self-Injurious Behavior/ep [Epidemiology], Self-Injurious Behavior/px [Psychology], Severity Of Illness Index, Sloneem J, Trajectory
Effect of melatonin dosage on sleep disorder in tuberous sclerosis complex
Tags: 2005, Administration Oral, Adult, Antioxidants/pharmacology/therapeutic use, Child, Child Preschool, Cross-Over Studies, Dose-Response Relationship Drug, Double-Blind Method, Female, Hancock E, Humans, Infant, Journal of Child Neurology, Male, melatonin, Melatonin/pharmacology/therapeutic use, O'Callaghan F, Osborne J P, pharmacologic intervention, sleep disturbance/disorders, Sleep Wake Disorders/drug therapy/etiology, Treatment Outcome, Tuberous Sclerosis, Tuberous Sclerosis/complications
Melatonin excretion in normal children and in tuberous sclerosis complex with sleep disorder responsive to melatonin
Tags: 0 (Antioxidants), 2005, 2208-40-4 (6-sulfatoxymelatonin), Administration Oral, Adolescent, Antioxidants, Antioxidants/ad [Administration & Dosage], Antioxidants/pk [Pharmacokinetics], Case-Control Studies, characteristics, Child, Child Preschool, Circadian Rhythm, English J, Female, Hancock E, Humans, JL5DK93RCL (Melatonin), Journal of Child Neurology, Male, melatonin, Melatonin/aa [Analogs & Derivatives], Melatonin/ad [Administration & Dosage], Melatonin/pk [Pharmacokinetics], Melatonin/ur [Urine], O'Callaghan F, Osborne J P, Reference Values, sleep disturbance/disorders, Sleep Wake Disorders, Sleep Wake Disorders/co [Complications], Sleep Wake Disorders/pp [Physiopathology], Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/co [Complications], Tuberous Sclerosis/pp [Physiopathology]
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Behavior Therapy, Benzodiazepines, characteristics, Child, Child Preschool, Delatycki M B, Fraser J, Gason A A, Humans, Incidence, Infant, Infant Newborn, melatonin, Melatonin/therapeutic use, MPS III, Mucopolysaccharidosis III/psychology, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, sleep disturbance/disorders, Trajectory, Treatment Outcome, Wraith J E
Pallidal stimulation improves pantothenate kinase-associated neurodegeneration
International Cooperative Ataxia Rating Scale (ICARS): Appropriate for studies of Friedreich's ataxia?
Forgoing treatment at the end of life in 6 European countries
Tags: 2005, 80 and over Cause of Death/trends Child Child, Adolescent Adult Aged Aged, Archives Of Internal Medicine, Attitudes, Backlog, Bilsen J, Bosshard G, Faisst K, Journal Article, Miccinesi G, Nilstun T, Non-U.S. Gov't Retrospective StudiesTerminally Ill Treatment Refusal/statistics & numerical data, Norup M, PedPal Lit, Practice Humans Infant Life Support Care, Preschool Comparative StudyDecision Making Europe/epidemiology Female Health Knowledge, statistics & numerical data Male Middle Aged Physician's Practice Patterns, statistics & numerical data Physician-Patient Relations Questionnaires Refusal to Treat, statistics & numerical data Registries, statistics & numerical data Research Support, van Delden JJ, van der Heide A
Medical end-of-life decisions for children in the Netherlands
Tags: 2005, 21% by the alleviation of pain or symptoms with a possible life-shortening effect, Adolescent Child Child, Archives Of Pediatrics & Adolescent Medicine, Arts WF, Assisted/statistics & numerical data Terminal Care/, Backlog, Decision Making Euthanasia/, Journal Article, Non-U.S. Gov't Retrospective Studies Suicide, Onwuteaka-Philipsen BD, Passive/statistics & numerical data Female Hospitals, Pediatric Humans Infant Interviews Male Netherlands/epidemiology Pediatrics/, PedPal Lit, Pieters R, Preschool Death Certificates, Rietjens JA, statistics & numerical data Euthanasia, statistics & numerical data Physician-Patient Relations Professional-Family Relations Questionnaires Research Support, van der Heide A, van der Maas PJ, van der Voort E, van der Wal G, Vrakking AM
Is there any consensus about end-of-life care in pediatrics?
Tags: 2005, Adolescent Analgesics Child Child, Archives Of Pediatrics & Adolescent Medicine, Backlog, Burns JP, Journal Article, Mitchell C, Newborn Morals Neuromuscular Blockade Pediatrics/ethics Terminal Care/ethics/legislation & jurisprudence United States, PedPal Lit, Preschool ConsensusDecision Making Euthanasia/ethics/legislation & jurisprudence Humans Infant Infant
Adolescents' reports of parental knowledge of adolescents' use of sexual health services and their reactions to mandated parental notification for prescription contraception
Tags: 2005, Adolescent, Adolescent Transitions, Attitudes, Backlog, Confidentiality/legislation & jurisprudence/psychology, Contraception Behavior, Data Collection, Empirical Approach, Family Planning Services/legislation & jurisprudence/utilization, Female, Finer LB, Genetics and Reproduction, Health Knowledge, Humans, JAMA, Jones RK, Journal Article, Logistic Models, Parental Notification/legislation & jurisprudence, Parents, Practice, Purcell A, Questionnaires, Sexual Behavior, Singh S, Unsafe Sex
Missing clinical information during primary care visits
Tags: 2005, Araya-Guerra R, Backlog, Bublitz C, Communication, Cross-sectional Studies, Dickinson LM, Family Practice/organization & administration, Humans, JAMA, Journal Article, Medical Records, Pace WD, Parnes B, Primary Health Care/organization & administration, Smith PC, United States, Van Vorst R, Westfall JM
Palliative sedation in dying patients: "we turn to it when everything else hasn't worked"
Tags: 2005, Active Humans Hypnotics and Sedatives/administration & dosage Myoclonus/therapy Pain, and emotional issues they raise., and health care workers can all benefit from talking about the complex medical, as well as to the medical and nursing staff, Backlog, clinicians must understand and document which actions are consistent with an intention to relieve symptoms rather than to hasten death. The patient or family should agree with plans for palliative sedation. The attending physician needs to explain to them, Conscious Sedation Euthanasia, developed myoclonus. After other approaches proved ineffective, ethical, Extramural Research Support, Family, Intractable/therapyPalliative Care Physician-Patient Relations Research Support, JAMA, Journal Article, Lo B, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Terminal Care Unconsciousness%X Despite skilled palliative care, palliative sedation was an option of last resort. The doctrine of double effect, PedPal Lit, permits physicians to provide high doses of opioids and sedatives to relieve suffering, provided that the intention is not to cause the patient's death and that certain other conditions are met. Such high doses are permissible even if the risk of hastening death is foreseen. Because intention plays a key role in this doctrine, receiving high doses of opioids administered to relieve pain, Rubenfeld G, some dying patients experience distressing symptoms that cannot be adequately relieved. A patient with metastatic breast cancer, the details of care and the justification for palliative sedation. Because cases involving palliative sedation are emotionally stressful, the patient, the traditional justification for palliative sedation, U.S. Gov't
Beyond advance directives: importance of communication skills at the end of life
Tags: 2005, Advance Directives Colonic Neoplasms/secondary/therapy, Backlog, Communication, Decision Making Humans Interprofessional Relations Liver Neoplasms/secondary/therapy Male Middle Aged Palliative Care Pancreatic Neoplasms/pathology/therapy, Extramural Research Support, JAMA, Journal Article, N.I.H., Non-P.H.S. Research Support, Non-U.S. Gov't Research Support, P.H.S.Terminal Care, PedPal Lit, Physician-Patient Relations Research Support, Tulsky JA, U.S. Gov't
Gastro-oesophageal reflux treatment for prolonged non-specific cough in children and adults
Tags: 2005, 383 participants) were included. None of the paediatric studies could be included in meta-analysis. In adults, Adult Child Chronic Disease Cough/complications/, analysis on use of H(2) antagonist, Backlog, Chang AB, Cochrane Database of Systematic Reviews, Connor FL, Gaffney J, Garske LA, Journal Article, Lasserson TJ, motility agents and conservative treatment for GORD were not possible (fr(TRUNCATED), PedPal Lit, therapy Gastroesophageal Reflux/complications/, therapy Humans Randomized Controlled Trials
Five-day courses of irinotecan as palliative therapy for patients with neuroblastoma
Tags: 15 patients had stable disease, 2 (n=3), 2 (n=9), 2005, 22 (n=1 patient), 3 (n=1), 4 (n=2(TRUNCATED), 4 (n=6), 7 (n=1 patient), 7 were not evaluable for response because of concurrent radiotherapy, Adolescent Adult Antineoplastic Agents, although they did not have progressive disease (PD) after receiving 1 (n=10), and 1 patient had a major response. Twenty-one patients had PD after 1 (n=3, and myelosuppressive effects were readily managed. Hospitalizations were limited to three patients with bacteremia. Twenty-three patients had a change in therapy, Backlog, Cancer, Cheung NK, diarrheal, Intravenous Male Nervous System Neoplasms/drug therapy Neuroblastoma/drug therapyPalliative Care Quality of Life Research Support, Journal Article, Kramer K, Kushner BH, Modak S, Non-U.S. Gov't Research Support, or 24 (n=1) courses. The most common reasons for changing treatment were to intensify retrieval therapy or to pursue immunotherapy. Of those 23 patients, P.H.S. Retrospective Studies Treatment Outcome, PedPal Lit, Phytogenic/administration & dosage/adverse effects Camptothecin/administration & dosage/adverse effects/analogs & derivatives Child Child, Preschool Female Humans Infusions, U.S. Gov't
Anorexia/cachexia-related quality of life for children with cancer
Tags: 2005, Adolescent, Age Distribution, Anorexia/diagnosis/epidemiology/psychology/therapy, Backlog, Barocas J, Cachexia/diagnosis/epidemiology/psychology/therapy, Cancer, Cella D, Child, Comparative Study, Cross-sectional Studies, Female, Goldman S, Humans, Incidence, Journal Article, Lai JS, Male, Neoplasms/diagnosis/epidemiology/psychology, Non-U.S. Gov't, Nutritional Failure, Peterman A, Prognosis, Psychometrics, Quality Of Life, Questionnaires, Research Support, Risk Assessment, Severity Of Illness Index, Sex Distribution, Sickness Impact Profile
Transdermal fentanyl in the management of children with chronic severe pain: results from an international study
Tags: 2005, Administration, Adolescent, Analgesics, Backlog, Cancer, Child, Chronic Disease, Cutaneous, Dose-Response Relationship, Drug, Female, Fentanyl/administration & dosage, Finkel JC, Finley A, Follow-up Studies, Greco C, Humans, International Cooperation, Intractable/diagnosis/drug therapy, Journal Article, Male, Opioid/administration & dosage, Pain, Pain Measurement, Preschool, Risk Assessment, Severity Of Illness Index, Single-Blind Method, Skin Absorption/drug effects, Weisman SJ, Zeltzer L
Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer
Tags: 2005, Adolescent Adult Age Factors Child Child Development Child Welfare Female Humans Male Neoplasms/psychologyParent-Child Relations PsychometricsQuality of Life Reproducibility of Results Research Support, and comparison of group means. In addition, Backlog, Chang PC, intraclass correlation (ICC), Journal Article, parent-proxy of QOL for adolescents provides significantly different information than self-report and proxy data of QOL for adolescents should be used with caution., parents can provide valid information about their QOL. However, PedPal Lit, Psycho-Oncology, QOLCC) were completed by 141 patients (82 children and 59 adolescents) and 141 of their parents. Three different statistical approaches were employed to evaluate convergence of self-report and proxy-report: product-moment correction coefficient, scatter bias was used to examine the degree of differences across the range of measurement. Our findings indicate that neither Pearson product correlation, Yeh CH
Parental communication and children's behaviour following diagnosis of childhood leukaemia
Tags: 2005, Acute/diagnosis/drug therapy/psychology Male Parent-Child Relations Research Support, Adaptation, Backlog, Clarke SA, Davies H, Eiser C, Glaser A, Jenney M, Journal Article, Lymphocytic, mean age = 7.33 years) newly diagnosed with acute lymphoblastic leukaemia (ALL) were interviewed about (i) the child's reactions and behaviour following diagnosis, parents differ in their views about what to tell the child. In this study 55 parents of children (36 boys and 19 girls, parents' perceptions of childhood cancer affect the way they communicate with their child. These findings may be used to inform training packages in order to facilitate improved communicatio n amongst health professionals., PedPal Lit, Psycho-Oncology, Psychological Affect Antineoplastic Agents/administration & dosage Child Child BehaviorCommunication Female Health Education Humans Interview, Psychological Leukemia, Truth Disclosure
Brain tumors in children and adolescents: cognitive and psychological disorders at different ages
Tags: 2005, Adduci A, Adolescent Adolescent Behavior Age Factors Age of Onset Brain Neoplasms/complications/psychology Child Child Behavior Disorders/etiology Child, and all the patients received a standardized battery of age-matched cognitive and psychological tests.According to our findings, Backlog, Castelli E, Clerici CA, differentiate these disorders according to age of assessment, Fossati-Bellani F, Galbiati S, Gandola L, identify correlations between the two types of impairments and define possible associations between these impairments and clinical variables.The study involved 76 patients diagnosed with brain tumor before age 18 years. Three age groups were formed, Journal Article, Liscio M, Massimino M, PedPal Lit, Poggi G, Preschool Cognition Disorders/etiology Female Humans Infant Infant, Psycho-Oncology, Sommovigo M, Spreafico F, the recommendation to diversify psychological interventions and rehabilitation plans according to the patients' age.
The validity of the family relationships index as a screening tool for psychological risk in families of cancer patients
Tags: 2005, Adult Anxiety/, and clinical levels of depression and anxiety in 48 families where the patient had been recently diagnosed. Over the three phases, Backlog, because of the FRI's poor specificity, Clarke V, Depression/psychology, diagnosis/etiology/psychology, diagnosis/etiology/psychology Breast Neoplasms/, Edwards B, Family Relations Female Humans Longitudinal Studies Male, further follow-up of those families that are identified as being at some risk of a poor psychological outcome should be undertaken before referral to a mental health professional is warranted., Journal Article, Mass Screening Prostatic Neoplasms/, PedPal Lit, Psycho-Oncology, psychology Child Colorectal Neoplasms/, psychology Psychometrics Research Support, suggested that the FRI identified too many false positive s, the FRI identified all families at risk of family dysfunction, the higher sensitivity of the FRI makes it preferable to the FAD-GF as a screening measure for families at risk of a poor psychological outcome in the oncology setting. However
Menkes' kinky hair syndrome
Tags: 2005, Backlog, Cerebral Angiography, Ceruloplasmin/analysis, Copper/blood, George S, Histidine/administration & dosage/analogs & derivatives/therapeutic use, Humans, Indian Journal Of Pediatrics, Infant, Injections, Journal Article, Low Birth Weight, Male, Matthai SA, Menkes Kinky Hair Syndrome/blood/diagnosis/drug therapy/radiography, Newborn, Organometallic Compounds/administration & dosage/therapeutic use, Prognosis, Sosamma MM, Subcutaneous, Sukumaran TU
Effective parenteral clodronate treatment of a child with severe juvenile idiopathic osteoporosis
Tags: 2005, Age Factors, Antimetabolites/administration & dosage/therapeutic use, Backlog, Bone Density/drug effects, Child, Clodronate, Clodronic Acid/administration & dosage/therapeutic use, European Journal of Pediatrics, Humans, Infusions, Journal Article, Male, Melchior R, Osteoporosis/drug therapy, Parenteral, Puberty, Recurrence, Schumacher R, Spranger J, Zabel B
A literature review on off-label drug use in children
Tags: 2005, Adolescent, Adult, Age Factors, Backlog, Bonati M, Child, Clodronate, Community Health Services/statistics & numerical data, Drug Labeling/statistics & numerical data, Drug/statistics & numerical data, European Journal of Pediatrics, Hospitals, Humans, Infant, Journal Article, Legislation, Newborn, Pandolfini C, Pediatric/statistics & Numerical Data, Preschool, Prescriptions
Problems and pitfalls of transition from paediatric to adult renal care
Tags: 2005, Adolescent, Adolescent Health Services, Adolescent Transitions, Adult, Backlog, Child, Chronic Disease, Continuity of Patient Care/standards, Humans, Journal Article, Kidney Diseases/psychology/therapy, Patient Transfer/standards, Pediatric Nephrology (berlin, Germany), Pediatrics, Watson AR
Experience in the use of the palliative care outcome scale.
Tags: 2005, 80 And Over, A'hern R, Adult, Aged, Backlog, Broadley K, Cancer Care Facilities, DNAR, Female, Great Britain, Gwilliam B, Hardy J, Humans, Journal Article, Male, Medical Oncology, Middle Aged, Palliative Care/px [psychology], Patient Satisfaction, Pilot Projects, Quality Of Life, Questionnaires, Stevens A-M, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Treatment Outcome
The use of clonidine for severe and intractable sleep problems in children with neurodevelopmental disorders--a case series
Tags: 2005, Adolescent, Antipsychotic Agents/administration & dosage/therapeutic use, Attention Deficit Disorder with Hyperactivity/complications/physiopathology, Backlog, Brain/physiopathology, Child, Clonidine/administration & dosage/therapeutic use, Developmental Disabilities/complications/physiopathology, Drug Administration Schedule, European Child & Adolescent Psychiatry, Female, Humans, Ingrassia A, Journal Article, Male, Q3 Scoping Review Results, Severity Of Illness Index, Sleep Disorders/complications/diagnosis/drug therapy, Turk J
Biochemical, clinical and molecular findings in LCHAD and general mitochondrial trifunctional protein deficiency
Tags: 2005, Acyl-CoA Dehydrogenase, Andresen BS, Backlog, Bischoff C, Bonham JR, Cardiomyopathies/diagnosis/genetics, Carnitine/analogs & derivatives/metabolism, Chakrapani A, Clark S, Downing M, Exons, Fatty Acids/metabolism, Fibroblasts/metabolism, Gregersen N, Homozygote, Humans, Inborn Errors/diagnosis/genetics, Journal Article, Journal Of Inherited Metabolic Disease, Lipid Metabolism, Long-Chain/deficiency, Longitudinal Studies, Male, Manning NJ, Mitochondria/pathology, Multienzyme Complexes/deficiency, Muntoni F, Mutation, Olpin SE, Olsen RK, Phenotype, Polyneuropathies/diagnosis/genetics, Pourfarzam M, Prognosis, Rhabdomyolysis/diagnosis/genetics, Sharrard M, Turnbull DN
Should age be a deciding factor in ethical decision-making?
Tags: 2005, AdultAge Factors Child Decision Making/ethicsEthics, Backlog, but inexact, gauge of that capacity. The inexactitude of age as a surrogate of capacity is a con tributing factor to the problem posed in this series of articles. Therefore, Health Care Anal, it is when a person has lost their ability for making those choices that the question of age as a contributing factor in ethical decision making is raised. The question therefore becomes one of capacity more then age, Journal Article, level, Medical Humans Mental Competency/psychology Moral Development Motivation Personal Autonomy Philosophy, Medical%X The question of age as a factor in ethical decision-making takes two forms. The first form considers age as a factor at the societal, or policy, PedPal Lit, Pretzlaff RK, to define the relative contribution of age to the capacity for ethical decision-making this article will focus not on the loss of that ability, with age as a useful
A two-year prospective study of the health-related quality of life of children with chronic illness--the parents' perspective
Tags: 2005, Adolescent Asthma/physiopathology/psychology Child Chronic Disease Diabetes Mellitus/physiopathology/psychology Family Humans Parents/psychology Peer GroupQuality of Life Questionnaires Research Support, Backlog, Baghurst PA, Couper JJ, French DJ, Journal Article, Kennedy D, Martin J, Non-U.S. Gov't Schools, PedPal Lit, Quality of Life Research, Reynolds KE, Sawyer MG, Staugas R