Browse Items (118 total)
- Tags: Cross-sectional Studies
Psychosocial factors affecting the quality of life of parents who have children with home mechanical ventilation
Tags: 2024, 2024 SE2 - Parent Perspectives, Adult, Bakirarar B, Bayav S, Child, Child Preschool, Cobanoglu N, Cross-sectional Studies, Duman B, Female, home care services, home mechanical ventilation, Humans, Male, Middle Aged, Ozcan G, Parents, Parents/psychology, Pediatric Pulmonology, Quality Of Life, Quality Of Life/psychology, Respiration Artificial/psychology, Social Support, Surveys And Questionnaires, Tekin MN, Zirek F
Healthcare for children depend on medical technology and parental quality of life in Japan
Tags: 2022, 2024 SE2 - Parent Perspectives, Arai J, Caregivers, Child, Chronic Disease, Cross-sectional Studies, Disabled Children, Health Service, Hirasawa A, Humans, Japan/epidemiology, Matsuzawa A, Parents, Patient Acceptance of Health Care, Pediatrics International, Quality Of Life, Shiroki Y, Technology
PACOPED QL: Development and evaluation of the quality-of-life scale for children with life-Threatening illnesses
Tags: 2025, Adolescent, Child, Child Preschool, Chronic Disease, Cross-sectional Studies, Cross-sectional Study, devices, Female, Human, Humans, Male, March List 2025, PACOPED QL, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Pediatric Palliative Care, Pediatrics, Pilot Projects, Pilot Study, Preschool Child, Procedures, Psychology, Psychometrics, psychometry, Quality Of Life, Questionnaire, Reliability, Reproducibility, Reproducibility of Results, Riera-Negre L, Rosselló MR, Surveys And Questionnaires, Validity, Varona J, Verger S
Perceived barriers to paediatric palliative care in a Palestinian children's hospital
Tags: 2025, Adult, Arabs, Attitude Of Health Personnel, Child, Cross-sectional Studies, Female, Ghareeb G, Health Services Accessibility, Hospitals Pediatric, Humans, International Journal of Palliative Nursing, Kelly D, Male, March List 2025, Middle Aged, Palliative Care, Qualitative Research, Surveys And Questionnaires
Specialized pediatric palliative care in Italy: where are we going? The Palliped 2022-2023 study
Tags: 2025, Benini F, Child, Cross-sectional Studies, Di Nunzio S, Female, Humans, Italian Journal of Pediatrics, Italy, March List 2025, Mercante A, Palliative Care, Palliative Care/og [Organization & Administration], Papa S, Pediatrics, Pediatrics/og [Organization & Administration], Surveys And Questionnaires
The Effect of Neonatal Intensive Care Nurses' Attitudes Towards Palliative Care on Death Anxiety and Burnout: An Analytic Cross-Sectional Study
Tags: 2024, Adiguzel G, Article, Attitude, attitude scale, Baykal T, Burnout, Cesarean Section, Child, Clinician, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death Anxiety Scale, Dizdar EA, fear of death, Female, Hospital Bed Capacity, Human, Infant Newborn, July List 2024, Kayademir N, Male, Mutlu DK, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Nurse, nurse attitude, OMEGA - Journal of Death and Dying, Palliative Care, Palliative Therapy, Terzioglu F, Tozlu G, Uslu-Sahan F
Knowledge, attitudes and practices of critical care unit personnel regarding pediatric palliative care: a cross-sectional study
Tags: 2024, Adolescent, Adult, Article, Attitude, BMC Palliative Care, Cesarean Section, Child, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Female, Health Care Personnel, Human, Intensive Care, Intensive Care Unit, Jin L, July List 2024, Knowledge, Lu H, Male, Nurse, Palliative Care, Palliative Therapy, Pediatric Intensive Care Unit, Personnel, Physician, pyriprole, Questionnaire
The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study
Tags: 2023, Aujoulat I, Belgium, Brichard B, Cesarean Section, Children, children’s palliative outcome scale (CPOS-2), Cross-sectional Studies, Degryse JM, Fonteyne C, Friedel M, Life-limiting Conditions, Outcomes, paediatric palliative care, Parents, patient-centred outcome measures, Quality Of Life, Renard M, September List 2037
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Identifying the Know-Do Gap in Evidence-Based Neonatal Care Practices among Informal Health Care Providers-A Cross-Sectional Study from Ujjain, India
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adult, Baghel SS, BMC Health Services Research, Clinical Competence, Cross-sectional Studies, Diwan V, Evidence-based Practice, Health Personnel/psychology/statistics & numerical data, Humans, India, Infant Care, Infant Newborn, Informal healthcare providers, Knowledge, Lundborg CS, Middle Aged, Mungai IG, Neonatal Care, Pathak A, Sharma M, Soni S, Tamhankar AJ, Vagela S
Vaccine Preventable Diseases in Pediatric Palliative Care - A Multicenter Cross-Sectional Study
Neonatal Palliative Care: Assessing the Nurses Educational Needs for Terminally Ill Patients
Limitation of Futile Therapy in the Opinion of Nursing Staff Employed in Polish Hospitals-Results of a Cross-Sectional Study
Tags: 2022, Adult, Attitude Of Health Personnel, Cesarean Section, Child, Cross-sectional Studies, Damps M, Gajda M, Human, International Journal of Environmental Research and Public Health, Kowalska M, Kucewicz-Czech E, March List 2023, Medical Futility, Nursing Staff, Poland, Quality Of Life, Surveys And Questionnaires
Patient and Family Participation in Medication Decisions on Discharge to Hospice Care
Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement
Tags: 2021, 2023 SE1 - Parent Perspectives, Adolescent, Caregivers, Cross-sectional Studies, English K, family caregiver, Female, Hamilton CB, Hawke LD, Health Expectations, Hoens AM, Humans, Li LC, McKinnon AM, McQuitty S, patient and public involvement, Patient Participation, patient-oriented research, Prospective Studies, Psychometrics, reliability and validity
Demographic and Clinical Differences Between Applied Definitions of Medical Complexity
Racial and Ethnic Disparities in Medical Complexity and In-Hospital Death Among US-Born VLBW Infants
Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit
Impact of COVID-19 on Admissions and Outcomes for Children With Complex Chronic Conditions
Experience of Pediatric Patient Death, Moral Distress, and Turnover Intention among Pediatric Nurses at a Tertiary Hospital in South Korea: A Cross-Sectional Study
Multidisciplinary Health Care Professionals' Perceptions About Pediatric End of Life Discussions: A Cross-Sectional Survey and Needs Analysis
Complexity of Medication Regimens for Children With Neurological Impairment
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high-income countries
Tags: 2021, April 2021 List, Bakhbakhi D, Bereavement Care, Bjog, Boyle FM, Burden C, Cross-sectional Studies, Developed Countries, Female, Flenady V, Health Care Surveys, Horey D, Humans, Infant Newborn, Male, Medical Audit/methods, parent engagement, Parents, Patient Participation, Patient Safety, Perinatal Mortality, perinatal mortality review, Siassakos D, Silver RM, Stillbirth
Moral Distress of Clinicians in Canadian Pediatric and Neonatal ICUs
Tags: 2020, Canada, Child, Cross-sectional Studies, Dryden-Palmer K, Humans, Infant Newborn, Intensive Care Units Neonatal, Janvier A, Larson CP, March 2021 List, McNeil C, Moore G, Morals, Parshuram CS, Pediatric Critical Care Medicine, Roumeliotis N, Stress Psychological/diagnosis/epidemiology, Surveys And Questionnaires, Tomlinson G
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Evaluation of Comfort and Confidence of Neonatal Clinicians in Providing Palliative Care
Tags: 2018, Adult, Age Factors, April 2020 List, Chang Y C, Clinical Competence, confidence and comfort, Cross-sectional Studies, Educational Status, Female, Humans, Journal of Palliative Medicine, Lee H Y, Liang H F, Liu H F, Male, Marital Status, Neonatal Palliative Care, neonatal professional, Neonatology, Palliative Care, Peng N H, Self Concept, Social Support, Surveys And Questionnaires, Taiwan, Wang T M
Disorders of Upper Limb Movements in Ataxia-Telangiectasia
Tags: 2013, abnormal involuntary movements, accelerometry, Adolescent, Adult, Age Factors, ataxia telangiectasia, Ataxia Telangiectasia/pp [Physiopathology], Biomechanical Phenomena, characteristics, Child, Child Preschool, Crawford T O, Cross-sectional Studies, Female, Humans, kinetic tremor, Lederman H M, Male, Mandir A S, Motor Activity, Motor Activity/ph [Physiology], Movement, Movement Disorders/pp [Physiopathology], Movement/ph [Physiology], Periodicity, PLoS One, postural tremor, Posture/ph [Physiology], resting tremor, Severity Of Illness Index, Shaikh A G, tone and motor problems, Trajectory, Tremor/pp [Physiopathology], Upper Extremity, Upper Extremity/pp [Physiopathology], Young Adult, Zee D S
Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult
Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G
Respiratory events and obstructive sleep apnea in children with achondroplasia: investigation and treatment outcomes
Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult
Provider Perspectives on Use of Medical Marijuana in Children With Cancer
Hospitalizations for mitochondrial disease across the lifespan in the U.S
Tags: 2017, Adolescent, Adult, Child, Cost Of Illness, Cross-sectional Studies, Cunningham ZZ, Damrauer SM, Databases, Factual, Falk MJ, Female, Ganetzky RD, Goldstein A, Health Services Research, Hospital Mortality, Hospitalization/ec [Economics], Hospitalization/sn [Statistics & Numerical Data], Humans, Infant, Karlsson M, Kilbaugh TJ, Longitudinal Studies, Male, McCormack SE, Middle Aged, Mitochondrial Diseases/ec [Economics], Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/mo [Mortality], Molecular Genetics and Metabolism, Preschool, September 2018 List, United States/ep [Epidemiology], Xiao Rui, Young Adult
A cross-sectional study on prevalence of pain and breakthrough pain among an unselected group of outpatients in a tertiary cancer clinic
Tags: 2014, Adolescent, Adult, Aged, Ambulatory Care Facilities, Backlog, Breakthrough Pain, Brunelli C, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Hjermstad MJ, Humans, Journal Article, Kaasa S, Klepstad P, Male, Middle Aged, Neoplasms, Norway, Outpatients, Pain Measurement, Prevalence, Raj Sunil X, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Thronaes M, Young Adult
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Assessment of the need for palliative care for children in South Africa
Tags: 2014, Adolescent, Backlog, Child, Connor S, Cross-sectional Studies, Downing J, Health Services Accessibility, Health Services Needs And Demand, Humans, Infant, International Journal of Palliative Nursing, Journal Article, King E, Lim Ah KP, Marston J, Newborn, Palliative Care, Preschool, Sisimayi C, South Africa, Yates R, Young Adult
Pediatric advance directives: parents' knowledge, experience, and preferences
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Directives, Advance Directives/px [Psychology], Attitude, Attitude To Health, Backlog, Child, Chronic Disease, Cross-sectional Studies, Decision Making, DNAR, End Of Life, Female, Health Services Needs And Demand, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Infant, Journal Article, Liberman DB, Logistic Models, Male, Nager AL, Palliative Care, Parents, Parents/px [psychology], Pediatrics, Pham PK, Preschool, Prospective Studies, Socioeconomic Factors, Special-needs Children