Browse Items (102 total)
- Tags: Cross-sectional Studies
Parent Perceptions of Infant Symptoms and Suffering and Associations With Distress Among Bereaved Parents in the NICU
Tags: 2021, Baughcum AE, Bereavement, Clark OE, Cross-sectional Studies, Dunnells ZDO, End Of Life, Fortney CA, Gerhardt CA, Grief, Infant, Journal of Pain and Symptom Management, Mothers, Neonatal Intensive Care Units, Newborn Infant, Nicu, Palliative Care, Parents, Perception, Pilot Projects, Retrospective Studies, Special Edition #1 2022 List
Complexity of Medication Regimens for Children With Neurological Impairment
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high-income countries
Tags: 2021, April 2021 List, Bakhbakhi D, Bereavement Care, Bjog, Boyle FM, Burden C, Cross-sectional Studies, Developed Countries, Female, Flenady V, Health Care Surveys, Horey D, Humans, Infant Newborn, Male, Medical Audit/methods, parent engagement, Parents, Patient Participation, Patient Safety, Perinatal Mortality, perinatal mortality review, Siassakos D, Silver RM, Stillbirth
Moral Distress of Clinicians in Canadian Pediatric and Neonatal ICUs
Tags: 2020, Canada, Child, Cross-sectional Studies, Dryden-Palmer K, Humans, Infant Newborn, Intensive Care Units Neonatal, Janvier A, Larson CP, March 2021 List, McNeil C, Moore G, Morals, Parshuram CS, Pediatric Critical Care Medicine, Roumeliotis N, Stress Psychological/diagnosis/epidemiology, Surveys And Questionnaires, Tomlinson G
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Evaluation of Comfort and Confidence of Neonatal Clinicians in Providing Palliative Care
Tags: 2018, Adult, Age Factors, April 2020 List, Chang Y C, Clinical Competence, confidence and comfort, Cross-sectional Studies, Educational Status, Female, Humans, Journal of Palliative Medicine, Lee H Y, Liang H F, Liu H F, Male, Marital Status, Neonatal Palliative Care, neonatal professional, Neonatology, Palliative Care, Peng N H, Self Concept, Social Support, Surveys And Questionnaires, Taiwan, Wang T M
Disorders of Upper Limb Movements in Ataxia-Telangiectasia
Tags: 2013, abnormal involuntary movements, accelerometry, Adolescent, Adult, Age Factors, ataxia telangiectasia, Ataxia Telangiectasia/pp [Physiopathology], Biomechanical Phenomena, characteristics, Child, Child Preschool, Crawford T O, Cross-sectional Studies, Female, Humans, kinetic tremor, Lederman H M, Male, Mandir A S, Motor Activity, Motor Activity/ph [Physiology], Movement, Movement Disorders/pp [Physiopathology], Movement/ph [Physiology], Periodicity, PLoS One, postural tremor, Posture/ph [Physiology], resting tremor, Severity Of Illness Index, Shaikh A G, tone and motor problems, Trajectory, Tremor/pp [Physiopathology], Upper Extremity, Upper Extremity/pp [Physiopathology], Young Adult, Zee D S
Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult
Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G
Respiratory events and obstructive sleep apnea in children with achondroplasia: investigation and treatment outcomes
Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K
Circumstances of hospital admissions in palliative care: A cross-sectional survey of patients admitted to hospital with palliative care needs
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult
Provider Perspectives on Use of Medical Marijuana in Children With Cancer
Religion and Spiritual Care in Pediatric Intensive Care Unit: Parental Attitudes Regarding Physician Spiritual and Religious Inquiry
Tags: 2018, Academic Medical Centers, Adolescent, Adult, Aged, American Journal of Hospice & Palliative Medicine, Arutyunyan T, Chaplaincy Service, Child, Cross-sectional Studies, Decision Making, Female, Hospital, Hospitalized/px [Psychology], Humans, Intensive Care Units, Male, Middle Aged, Niedner M, October 2018 List, Odetola F, Parents/px [psychology], Pediatric/og [Organization & Administration], Physician-patient Relations, Physician's Role, Physicians/px [Psychology], Religion, September 2018 List, Spirituality, Swieringa R, Terminal Care/px [psychology], Young Adult
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Attitude Of Health Personnel, Balkin EM, Blume ED, Cardiology, Child, Clinical Competence/sn [Statistics & Numerical Data], Cross-sectional Studies, Female, Heart Diseases/th [Therapy], Humans, Kaufman B, Kirkpatrick JN, Male, October 2018 List, Palliative Care/sn [Statistics & Numerical Data], Parents/px [psychology], Pediatric Cardiology, Physicians/px [Psychology], September 2018 List, Sleeper LA, Swetz KM, Wolfe J
Hospitalizations for mitochondrial disease across the lifespan in the U.S
Tags: 2017, Adolescent, Adult, Child, Cost Of Illness, Cross-sectional Studies, Cunningham ZZ, Damrauer SM, Databases, Factual, Falk MJ, Female, Ganetzky RD, Goldstein A, Health Services Research, Hospital Mortality, Hospitalization/ec [Economics], Hospitalization/sn [Statistics & Numerical Data], Humans, Infant, Karlsson M, Kilbaugh TJ, Longitudinal Studies, Male, McCormack SE, Middle Aged, Mitochondrial Diseases/ec [Economics], Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/mo [Mortality], Molecular Genetics and Metabolism, Preschool, September 2018 List, United States/ep [Epidemiology], Xiao Rui, Young Adult
A cross-sectional study on prevalence of pain and breakthrough pain among an unselected group of outpatients in a tertiary cancer clinic
Tags: 2014, Adolescent, Adult, Aged, Ambulatory Care Facilities, Backlog, Breakthrough Pain, Brunelli C, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Hjermstad MJ, Humans, Journal Article, Kaasa S, Klepstad P, Male, Middle Aged, Neoplasms, Norway, Outpatients, Pain Measurement, Prevalence, Raj Sunil X, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Thronaes M, Young Adult
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Assessment of the need for palliative care for children in South Africa
Tags: 2014, Adolescent, Backlog, Child, Connor S, Cross-sectional Studies, Downing J, Health Services Accessibility, Health Services Needs And Demand, Humans, Infant, International Journal of Palliative Nursing, Journal Article, King E, Lim Ah KP, Marston J, Newborn, Palliative Care, Preschool, Sisimayi C, South Africa, Yates R, Young Adult
Pediatric advance directives: parents' knowledge, experience, and preferences
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Directives, Advance Directives/px [Psychology], Attitude, Attitude To Health, Backlog, Child, Chronic Disease, Cross-sectional Studies, Decision Making, DNAR, End Of Life, Female, Health Services Needs And Demand, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Infant, Journal Article, Liberman DB, Logistic Models, Male, Nager AL, Palliative Care, Parents, Parents/px [psychology], Pediatrics, Pham PK, Preschool, Prospective Studies, Socioeconomic Factors, Special-needs Children
Parent perceptions of the quality of information received about a child's cancer
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L
Bereaved Jewish mothers of children who died of cancer: the relationship between the mother and the deceased child and the mother's perceived functioning
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
Neuropathic cancer pain: prevalence, severity, analgesics and impact from the European Palliative Care Research Collaborative-Computerised Symptom Assessment study
Tags: (EPCRC) European Palliative Care Research Collaborative, 2013, 80 And Over, Aass N, Adolescent, Adult, Aged, Analgesics, Backlog, Bennett MI, Caraceni A, Cross-sectional Studies, Fainsinger R, Female, Heitzer E, Hjermstad MJ, Humans, Journal Article, Kaasa S, Life Expectancy, Male, Middle Aged, Neoplasm Metastasis, Neoplasms, Neuralgia, Pain Measurement, Palliative Medicine, Prevalence, Quality Of Life, Rayment C, Strasser F, Symptom Assessment, Young Adult
Opinions of members of the National Civil (Family Proceedings) and Criminal Courts in withholding or withdrawing of life support situations in pediatrics
Tags: 2016, Archivos Argentinos De Pediatria, Argentina, Attitude To Death, Child, Ciruzzi MS, Cross-sectional Studies, Decision-making, Ethics, Garcia HO, Health Care Surveys, Humans, Ledesma F, Legislation And Jurisprudence, Life Support Care/ legislation & jurisprudence, March 2018 List, Menendez C, Pediatric Intensive Care Unit, Pediatrics/ legislation & jurisprudence, Roitman AJ, Selandari JO, Withholding Treatment, Withholding Treatment/ legislation & jurisprudence
Development and validation of the Communicating with Family about Brain Death Scale
Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Tags: 2015, Adaptation, Adolescent, Adult, Age Factors, Backlog, Baser RE, Breitbart W, Cause Of Death, Child, Corner GW, Cross-sectional Studies, Female, Grief, Health Services Accessibility, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Kissane DW, Li Y, Lichtenthal WG, Male, Mental Health Services, Middle Aged, Minority Groups, Neoplasms, Parents, Patient Acceptance of Health Care, Preschool, Prigerson HG, Psychological, Psychotherapy, Psychotropic Drugs, Roberts KE, Self Report, Self-Help Groups, Sweeney CR, Time Factors, United States, Wiener L, Young Adult
Pediatric patients receiving palliative care in Canada: results of a multicenter review
Tags: 2007, Archives Of Pediatrics & Adolescent Medicine, Backlog, Beaune L, Bishop M, Canada, Child, Congenital Abnormalities/mortality, Cross-sectional Studies, Daoust L, Davies D, Drouin DJ, Farran RP, Humans, Humbert N, Infant, Journal Article, Nalewajek F, Neoplasms/mortality, Nervous System Diseases/mortality, Palliative Care/utilization, Preschool, Rattray M, Retrospective Studies, Rugg M, Widger K
The role of partner relationships in the young person's adherence to the diabetes self-care regime
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Backlog, Cross-sectional Studies, Diabetes Mellitus, Female, Gillibrand R, Humans, International Journal Of Behavioral Medicine, Interpersonal Relations, Journal Article, Male, Patient Compliance/statistics & numerical data, Questionnaires, Self Care, Sexual Partners, Stevenson J, Type 1/drug therapy/psychology
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Tags: 2010, Adaptation, Adult, Aged, Attitude To Health, Backlog, Bonnaud-Antignac A, Breast Neoplasms/epidemiology/psychology, Cross-sectional Studies, Disease-Free Survival, Female, Florin A, Follow-up Studies, Humans, Journal Article, Journal Of Clinical Psychology In Medical Settings, Lelorain S, Middle Aged, Post-Traumatic/diagnosis/epidemiology/psychology, Predictive Value of Tests, Prevalence, Psychological, Quality Of Life/psychology, Retrospective Studies, Stress Disorders
Toward youth friendly services: a survey of young people in primary care
Tags: 2007, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adult, Age Factors, Backlog, Cross-sectional Studies, Female, Haller DM, Health Care Surveys, Health Services Needs and Demand/classification/statistics & numerical data, Humans, Journal Article, Journal Of General Internal Medicine, Male, Needs Assessment, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Satisfaction, Patton GC, Physician-patient Relations, Primary Health Care/utilization, Sanci LA, Sawyer SM
Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood
Tags: 2008, Adolescent, Adolescent Transitions, Adult, Aged, Attitude Of Health Personnel, Backlog, Cabana MD, Chronic Disease/psychology/therapy, Cross-sectional Studies, Davis MM, Demonner S, Family Practice/methods/trends, Female, Heisler M, Humans, Journal Article, Journal Of General Internal Medicine, Kerr EA, Male, Middle Aged, Okumura MJ, Pediatrics/methods/trends, Physician's Role/psychology, Young Adult
Gender differences in violence exposure among university students attending campus health clinics in the United States and Canada
Tags: 2009, Adolescent, Backlog, Brown D, Canada, Cross-sectional Studies, Female, Fleming MF, Humans, Journal Article, Male, Midwestern United States, Mundt MP, Pacific States, Plane M, Saewyc EM, Sex Factors, Student Health Services, Students/psychology, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Violence/psychology, Wiegel J, Young Adult, Zakletskaia L
Period prevalence of epilepsy in children in BC: a population-based study
Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult
Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Tags: 2010, Adaptation, Adolescent, Adult, Backlog, Child, Cross-sectional Studies, Curtis CM, Female, Florida, Health Care Surveys, Humans, Infant, Journal Article, Journal of Palliative Medicine, Knapp CA, Madden VL, Male, Multivariate Analysis, Palliative Care/organization & Administration, Parent-child Relations, Pediatrics/organization & Administration, Preschool, Professional-family Relations, Program Evaluation, Psychological, Psychometrics, Quality Of Life, Regression Analysis, Shenkman EA, Sloyer P, Social Support, Telephone, Young Adult
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan