Browse Items (85 total)
- Tags: Cohort Studies
Interventions Performed in Children With Immunocompromised Conditions in the Pediatric Intensive Care Unit Within 48 Hours of Death
Tags: 2024, Adolescent, August List 2024, Child, Child Preschool, Cohort Studies, Espinoza J, Female, Humans, Immunocompromised Host, Infant, Intensive Care Units Pediatric, Intensive Care Units Pediatric/sn [Statistics & Numerical Data], Journal of Palliative Medicine, Kegel A, Male, Palliative Care, Rahrig A, Retrospective Studies, Rowan CM, Schade-Wills T, Terminal Care, Time Factors
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort Study
Tags: 2024, Aczon M, Adult, Aged, Avesar M, Child, Clinical Feature, Cohort Analysis, Cohort Studies, conference abstract, Critical Care Medicine, Death, Drug Therapy, extubation, Fainberg N, family counseling, Female, Hsu S, Human, Intensive Care Unit, July List 2024, Laksana E, Ledbetter D, machine learning, Major Clinical Study, Male, McCrory M, Morrow K, O'Brien C, operating room, organ donor, Pediatric Intensive Care Unit, predictive value, Pringle C, Randomized Controlled Trial, Retrospective Study, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, vital sign, Wetzel R, Winter M, Zhou A
Appropriateness of end-of-life care for children with genetic and congenital conditions: a cohort study using routinely collected linked data
Tags: 2023, administrative health data, Article, August List 2043, Beernaert K, Belgium, Bereavement, Child, Cohen J, Cohort Analysis, Cohort Studies, computer assisted tomography, congenital disorder, Debulpaep S, Decision Making, Deliens L, Drawing, Empirical Research, European Journal of Pediatrics, Female, General Practitioner, genetic association, Genetic Disorder, Health Care System, Human, Major Clinical Study, Male, nuclear magnetic resonance imaging, Palliative Therapy, paramedical personnel, Pediatrics, Physician, Piette V, Terminal Care, X ray
Empathy Expression in Interpreted and Noninterpreted Care Conferences of Seriously Ill Children
The Needs of Children Receiving End of Life Care and the Impact of a Paediatric Palliative Care Team: A Retrospective Cohort Study
Tags: 2023, Adolescent, April List 2023, Cancelinha C, Child, Child Preschool, Chronic Disease, Cohort Studies, Complex Chronic Conditions, Correia D, End Of Life, European Journal of Pediatrics, Female, Gomes B, Health Resources, Humans, Infant, Length Of Stay, Loureiro M, Male, Nogueira A, paediatric palliative care, Palliative Care, Palliative Care/methods, Retrospective Studies, Terminal Care, Terminal Care/methods, Tertiary Care Centers
Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Acute Disease, Adult, agency, Berkley JA, Caregivers, Charo A, Child Health, Child Mortality, Child Preschool, Childhood acute illness, Cohort Studies, Continuity Of Patient Care, Delivery of Health Care/standards, Family, Family Characteristics, Female, Health Facilities, Hospitalization, Humans, Infant, International Journal for Equity in Health, Kelley M, Kenya/epidemiology, Kimani MN, Male, Marsh V, Molyneux S, Muraya K, Njeru RW, Prospective Studies, Qualitative Research, Rural Population, Sanga G, Sarma H, Social Support, Treatment-seeking, Uddin MF, VULNERABILITY, Vulnerable Populations, Walson JL, Zakayo SM
The Design of a Data Management System for a Multicenter Palliative Care Cohort Study
Validation of an Electronic Pediatric Index of Mortality 2 Score in a Mixed Quaternary PICU
Sleep disordered breathing in a cohort of children with achondroplasia: correlation between clinical and instrumental findings
Tags: 2017, achondroplasia, Achondroplasia/co [Complications], Achondroplasia/ge [Genetics], Age Factors, Antoniazzi F, Cantalupo G, characteristics, Child, Child Preschool, Cohort Studies, EC 2-7-10-1 (FGFR3 protein human), EC 2-7-10-1 (Receptor Fibroblast Growth Factor Type 3), feeding difficulties, Female, Gasperi E, Humans, Incidence, Infant, Lo Tartaro P, Male, Minerva Pediatrica, Piacentini G, Polysomnography/mt [Methods], Receptor Fibroblast Growth Factor Type 3/ge [Genetics], respiratory sleep disorder, Sleep Apnea Syndromes/di [Diagnosis], Sleep Apnea Syndromes/ep [Epidemiology], Sleep Apnea Syndromes/et [Etiology], Surveys And Questionnaires, Trajectory, Zaffanello M
Sleep dysfunction in Rett syndrome: lack of age related decrease in sleep duration
Tags: 2001, Adolescent, Age Factors, Brain, Brain and Development, characteristics, Child, Child Preschool, Christodoulou J, Cohort Studies, Ellaway C, Epilepsy, Female, Humans, Leonard H, Movement Disorders, Peat J, Rett syndrome, Sleep, sleep disturbance/disorders, Sleep Wake Disorders, Trajectory
Respiratory events and obstructive sleep apnea in children with achondroplasia: investigation and treatment outcomes
Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Unexpected Survivors: Children With Life-Limiting Conditions of Uncertain Prognosis
Tags: 2018, American Journal of Hospice & Palliative Medicine, Child, Cohort Studies, Congenital Abnormalities/mo [Mortality], Critical Illness/mo [Mortality], Female, Humans, Hurst A, Male, Nageswaran S, North Carolina, November 2018 List, Palliative Care/sn [Statistics & Numerical Data], Preschool, Prognosis, Radulovic A, Retrospective Studies, Survivors/sn [Statistics & Numerical Data], Survivorship
R Package for Pediatric Complex Chronic Condition Classification
Tags: 0 (Enzyme Inhibitors), 0 (Lamin Type A), 0 (Piperidines), 0 (prelamin A), 0 (Pyridines), 2018, Adolescent, Adult, Brazier J, Campbell SE, Cause Of Death, Child, Cohort Studies, D'Agostino Sr RB, EC 2.7.4.- (farnesyl phosphate kinase), EC 2.7.4.- (Phosphotransferases (Phosphate Group Acceptor)), Enzyme Inhibitors/therapeutic use, Female, Gordon LB, Humans, IOW153004F (lonafarnib), JAMA., July 2018 List, Kaplan-Meier Estimate, Kieran MW, Kleinman ME, Lamin Type A/biosynthesis/metabolism, Male, Massaro J, Phosphotransferases (Phosphate Group Acceptor)/antagonists & inhibitors, Piperidines/therapeutic use, Post-Translational, Progeria/drug therapy/genetics/mortality, Protein Processing, Pyridines/therapeutic use, Shappell H, Young Adult
Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study
Tags: 2017, Adolescent, Adult, April 2018 List, Attitude To Death, Attitude To Health, Carroll KW, Child, Child Health/statistics & numerical data, Cohort Studies, Critical Illness/epidemiology/ psychology, Decision-making, Female, Fenderson RM, Feudtner C, Health Surveys, Hill DL, Hope, hopes, Humans, Infant, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Middle Aged, Nathanson PG, Only Child, Parent-child Relations, parental concordance, Parents/ Psychology, Pediatrics, Philadelphia/epidemiology, Preschool, Prevalence, problems, Quality of Life/ psychology, Serious Illness, Terminal Care/ psychology, Young Adult
A cross-sectional study on prevalence of pain and breakthrough pain among an unselected group of outpatients in a tertiary cancer clinic
Tags: 2014, Adolescent, Adult, Aged, Ambulatory Care Facilities, Backlog, Breakthrough Pain, Brunelli C, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Hjermstad MJ, Humans, Journal Article, Kaasa S, Klepstad P, Male, Middle Aged, Neoplasms, Norway, Outpatients, Pain Measurement, Prevalence, Raj Sunil X, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Thronaes M, Young Adult
Impact of community based, specialist palliative care teams on hospitalisations and emergency department visits late in life and hospital deaths: a pooled analysis
Tags: 2014, Austin PC, Backlog, Barbera L, Bmj (clinical Research Ed.), Brazil K, Cohort Studies, Community Health Services, Emergency Service, Hospital, Hospital Mortality, Hospitalization, Humans, Husain A, Journal Article, Marshall D, Palliative Care, Patient Care Team, Pereira JL, Rangrej J, Retrospective Studies, Seow H, Specialization, Sussman J
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Tags: 2013, Attitude Of Health Personnel, Backlog, Child, Cohort Studies, Decision Making, Female, Health Care Surveys, Hinds PS, Humans, Intensive Care, Intensive Care Units, Journal Article, Male, October TW, Parents, Patient Care Team, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Physicians, Professional-family Relations, Prospective Studies, Questionnaires, Watson Anne C
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Differences in characteristics of dying children who receive and do not receive palliative care
Tags: 2013, Adolescent, Age Factors, Backlog, Bratton SL, Cause Of Death, Child, Cohort Studies, Complex Chronic Conditions, Female, Hospital Mortality, Hospitals, Humans, Infant, Intensive Care Units, Journal Article, Keele L, Keenan HT, Length Of Stay, Location Of Death, Male, Neonatal, Newborn, Palliative Care, Pediatric, Pediatric Palliative Care, Pediatrics, Preschool, Retrospective Studies, Sheetz J, Terminal Care, United States, Utilization Review
Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer
Tags: 2013, Adaptation, Adult, Backlog, Bereavement, Case-Control Studies, Child, Cohort Studies, Eilegård A, Female, Follow-up Studies, Health Status, Humans, Journal Article, Kreicbergs U, Male, Mental Health, Neoplasms, Nyberg T, Psycho-Oncology, Psychological, Questionnaires, Self Concept, sibling bereavement, Siblings, Sleep Initiation and Maintenance Disorders, Steineck G, Sweden, Young Adult
Absolute leukocyte telomere length in HIV-infected and uninfected individuals: evidence of accelerated cell senescence in HIV-associated chronic obstructive pulmonary disease
Tags: 2015, Adult, Backlog, Bourbeau J, Cell Aging, Chronic Obstructive, Cohort Studies, Female, Guillemi S, Hague C, Harrigan PR, Harris M, HIV Infections, Humans, Journal Article, Leipsic JA, Leukocytes, Leung JM, Li Y, Lima VD, Liu JCY, Male, Man SFP, Middle Aged, Montaner J, Nashta NF, Ngan DA, PLoS One, Pulmonary Disease, Raju Rekha, Shaipanich T, Sin Don D, Tam S, Tan Wan C, Telomere, Um Soo-Jung
Changing mortality in congenital heart disease
Tags: 2010, Abrahamowicz M, Adolescent, Adolescent Transitions, Age Factors, Aged, Backlog, Cardiac Surgical Procedures/methods/mortality, Cause Of Death, Child, Cohort Studies, Congenital/diagnosis/mortality/surgery, Female, Heart Defects, Humans, Infant, Ionescu-Ittu R, Journal Article, Journal of the American College of Cardiology, Khairy P, Mackie AS, Male, Marelli AJ, Middle Aged, Newborn, Pilote L, Preschool, Prognosis, Quebec, Retrospective Studies, Sex Factors, Survival Analysis, Young Adult
An international/multicentre report on patients with cystic fibrosis (CF) over the age of 40 years
Tags: 2008, Adolescent Transitions, Adult, Age Distribution, Aged, Assael B, Backlog, Canada, Castellani C, Cohort Studies, Corey M, Cystic Fibrosis/complications/epidemiology/physiopathology, Dodge JA, Female, Hodson ME, Humans, International Study Of Aging In Cystic Fibrosis, Italy, Journal Article, Journal of Cystic Fibrosis, Life Expectancy, London, Longevity, Male, Middle Aged, Minnesota, Retrospective Studies, Sex Distribution, Simmonds NJ, Survival Rate, Tullis E, Warwick WJ
No change in serum melatonin, or plasma beta-endorphin levels after sevoflurane anesthesia
Tags: 2007, Adult, Anesthesia, Anesthetics, Backlog, beta-Endorphin/blood/drug effects, Blood Pressure/drug effects, Chasiakos D, Cohort Studies, Dilatation and Curettage/methods, Electroencephalography/methods, Fassoulaki A, Female, General/methods, Heart Rate/drug effects, Humans, Inhalation/administration & dosage/pharmacology, Journal Article, Journal Of Clinical Anesthiology, Kostopanagiotou G, Markantonis S, Melatonin/blood, Meletiou P, Methyl Ethers/administration & dosage/pharmacology, Middle Aged, Oximetry/methods, Oxygen/blood, Postoperative Period, Prospective Studies, Reference Values, Sleep/drug effects, Time Factors
Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review
Rotavirus gastroenteritis and seizures in young children
Tags: 2010, Backlog, Bale Jr JF, Child, Cohort Studies, Databases, Electroencephalography, Factual, Female, Gastroenteritis/complications/virology, Gesteland PH, Humans, Infant, Journal Article, Length Of Stay, Lloyd JC, Lloyd MB, Male, Pediatric Neurology, Preschool, Retrospective Studies, Rotavirus Infections/complications, Seizures/complications/virology, Spinal Puncture, Utah
Miglustat for treatment of Niemann-Pick C disease: a randomised controlled study
Tags: 1-Deoxynojirimycin/analogs & derivatives/therapeutic use, 2007, Abel L, Adolescent, Adult, Age Factors, Analysis of Variance, Backlog, Child, Cohort Studies, Deglutition/drug effects, Double-Blind Method, Drug Administration Schedule, Enzyme Inhibitors/therapeutic use, Female, Humans, Journal Article, Lancet Neurology, Male, Niemann-Pick Disease, Patterson MC, Prady H, Preschool, Q3 Scoping Review Results, Retrospective Studies, Saccades/drug effects, Severity Of Illness Index, Type C/drug therapy/physiopathology, Vecchio D, Wraith JE
The economic and clinical impact of an inpatient palliative care consultation service: a multifaceted approach
Tags: 2007, 80 And Over, Academic Medical Centers, Adult, Aged, Backlog, Blum L, Ciemins EL, Cohort Studies, Episode of Care, Female, Humans, Inpatients, Journal Article, Journal of Palliative Medicine, Lasher A, Length Of Stay, Male, Middle Aged, Newman JM, Nunley M, Outcome Assessment (health Care), Palliative Care/economics, Referral and Consultation/economics/utilization, San Francisco
Prediction of pediatric death in the year after hospitalization: a population-level retrospective cohort study
Tags: 2009, Adolescent, Backlog, Child, Cohort Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital Mortality, Humans, Infant, Journal Article, Journal of Palliative Medicine, Logistic Models, Male, Models, Mortality, Newborn, Patient Discharge, Pediatrics, Pennsylvania/epidemiology, Preschool, Prognosis, Retrospective Studies, Shabbout M, Silber JH, Sochalski J, Theoretical, Young Adult
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Aged, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease/psychology, Cohort Studies, Continuity Of Patient Care/organization & Administration, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, McDonagh JE, Middle Aged, Parents, Patient Satisfaction, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Central hypothermia as a cause of acute pancreatitis in children with neurodevelopmental impairment
Tags: 2008, Adolescent, Backlog, Body Temperature Regulation, Child, Cohort Studies, Developmental Disabilities/complications/physiopathology, Developmental Medicine and Child Neurology, Female, Hauer JM, Humans, Hypothermia/complications/prevention & control/psychology, Journal Article, Male, Pancreatitis/diagnosis/etiology/therapy, Preschool, Q3 Scoping Review Results, Recurrence, Retrospective Studies, Risk Factors
Congenital heart disease in the general population: changing prevalence and age distribution
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Distribution, Backlog, Child, Circulation, Cohort Studies, Congenital/epidemiology, Databases, Factual/trends, Female, Heart Defects, Humans, Ionescu-Ittu R, Journal Article, Mackie AS, Male, Marelli AJ, Middle Aged, Pilote L, Population, Preschool, Prevalence, Quebec, Rahme E
Incidental neuroimaging findings in nonacute headache
Tags: 2010, Abdelmoity AT, Adolescent, Backlog, Child, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Graf WD, Headache Disorders/epidemiology/pathology/radiography, Humans, Incidental Findings, Journal Article, Journal of Child Neurology, Kayyali HR, Male, Morriss MC, Nervous System Malformations/epidemiology/pathology/radiography, Preschool, Retrospective Studies, Williams AR, Womelduff GL
Easing of suffering in children with cancer at the end of life: is care changing?.
Tags: 2008, Aldridge SA, Backlog, Berde C, Breyer J, Child, Cohort Studies, Comeau M, DNAR, Duncan J, Dussel V, Edwards KE, Grier HE, Hammel JF, Humans, Journal Article, Journal Of Clinical Oncology, Neoplasms/th [therapy], Oncology at EOL, Palliative Care/mt [methods], Palliative Care/td [trends], Psychological, Resuscitation Orders, Stress, Weeks JC, Wolfe J