Browse Items (76 total)
- Tags: Retrospective Study
Palliative team involvement in end-of-life care for Jewish and Muslim children in Jerusalem: A unique clinical and cultural context
Tags: 2023, Analgesia, Article, Child, Decision Making, Female, Follow Up, Fried I, Genetic Disorder, Human, invasive procedure, living will, Major Clinical Study, Male, May List 2023, Medical Record Review, Muslim, Palliative And Supportive Care, Palliative Therapy, pediatric patient, psychosocial care, religious background, Retrospective Study, Shack AR, Siedner-Weintraub Y, Spiritual Care, Terminal Care
Timing of palliative consultation for children during a fatal illness
Tags: 2019, African American, Article, Cardiovascular Disease, Caucasian, Child, Childhood Disease, Cohort Analysis, Female, Fosselman DD, Hospital Pediatrics, Human, Humphrey L, Insurance, Ketner AR, Length Of Stay, Major Clinical Study, Male, May List 2023, Miller R, Only Child, outcome assessment, Palliative Therapy, private health insurance, Referral And Consultation, Retrospective Study, Rossfeld ZM, Tobias JD, Tumin D
Population-Level Analysis of Appropriateness of End-of-Life Care for Children with Neurologic Conditions
Tags: 2023, Analysis of Variance, Article, Beernaert K, Belgium, Child, Cohen J, Cohort Analysis, Comfort, Deliens L, Drawing, Female, financial management, Follow Up, General Practitioner, Human, Intensive Care Unit, Major Clinical Study, Male, May List 2023, nationality, Palliative Therapy, Phlebotomy, Physician, Piette V, Retrospective Study, Sibling, Smets T, Surgery, Terminal Care, The Journal Of Pediatrics, Total Quality Management, van Berlaer G
How Do Hospitalised Children Die? The Context of Death and End-Of-Life Decision-Making
Tags: 2023, Advance Care Planning, April List 2023, Article, Astigarraga I, Cardiovascular Disease, Carmona-Nunez A, Child, Childhood Mortality, Controlled Study, Decision Making, Demographics, Documentation, Drug Withdrawal, Female, Hospitalized Child, Human, Infant, Intensive Care Unit, Journal of Paediatrics and Child Health, Life Sustaining Treatment, Lopez-Bayon J, Major Clinical Study, Male, Martin-Irazabal G, Medical Record, Nervous System, Observational Study, Only Child, Palliative Therapy, pediatric patient, Respiratory Tract Disease, Resuscitation, Retrospective Study, Sanchez-Echaniz J, Serrano-Pejenaute I, Treatment Withdrawal, Zorrilla-Sarriegui A
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Social Workers in Pediatric Intensive Care Units: A Physician Perspective
Tags: 2022, abuse, Adolescent, April List 2023, Article, Aslan K, Atakul G, Caglar A, Child, child custody, child neglect, Child Psychiatry, community mental health center, Consultation, Counseling, Demircan TO, Female, Follow Up, hospital information system, Hospitalization, Human, Infant, Intensive Care Units, Male, Ozhan P, Palliative Therapy, Pediatric Intensive Care Unit, Physician, Retrospective Study, social problem, Social Work, Social Worker, Turkey (republic), Turkish Journal of Pediatric Disease
Cardiopulmonary Resuscitation in Pediatric Patients Under Palliative Home Care - A Multicenter Retrospective Study
Tags: 2022, advanced pediatric life support, Cardiopulmonary Resuscitation, Chronic Illness, CPR, Dechert O, emergency medial services, end-of-life (EOL), Ethics, Frontiers in Pediatrics, Hauch H, home care services, Janßen G, March List 2023, palliative home care, Rare Diseases, Retrospective Study, Rohde M, Sander M, Schmitz L, Schneck E, Trocan L, Vaillant V, Voelker T
Local Paediatric Death Data for Barnet 2015- 2021: Which Children are Potentially Eligible for Hospice Care?
Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death
Utilization of a Prenatal Palliative Care Consultation Pathway for Congenital Heart Disease
Over 4 decades, short- and long-term survival for children with congenital heart disease (CHD) has significantly increased. Those with complex CHD have a 1-year mortality rate of approximately 25%. Prenatal access to palliative care ensures…
Tags: 2023, Child, Congenital, Congenital Diagnosis, Congenital Therapy, Female, Gandhi R, Heart Defects, Human, Infant, Journal of Hospice and Palliative Nursing, March List 2023, Mikal M, Palliative Care, Palliative Care Psychology, Parents Psychology, Pregnancy, Referral And Consultation, Retrospective Study, Walsh SM
Patient-Centered Perinatal Palliative Care: Family Birth Plans, Outcomes, and Resource Utilization in a Diverse Cohort
Tags: 2022, Article, Child, Female, Fetus, Infant, Newborn, American Journal of Obstetrics & Gynecology MFM, Buskmiller C, Chen M, Cohort Analysis, Comfort, Consultation, Controlled Study, Crowe E, Demographics, Expectation, Fetus Malformation, Gants S, Ho S, Hospice, Human, income group, Lopez S, November 2022 List, outcome assessment, Palliative Therapy, postpartum hemorrhage, Prenatal Diagnosis, Prognosis, Retrospective Study, Trisomy 13
Palliative Care Services for Children with Life-Limiting Conditions
Tags: 2022, Adolescent, Article, Child, Male, Nurse, Terminal Care, Cohort Analysis, community support, Conroy M, Controlled Study, Gallagher S, Hayden J, Hospice, Human, Ireland, Irish Journal Of Medical Science, Larkin MA, Major Clinical Study, Noonan H, November 2022 List, O'Reilly V, Palliative Therapy, Patient Referral, Place Of Death, residential care, Retrospective Study, Social Welfare, Twomey F
At the End of Life: Pediatric Palliative Care Can Make a Difference in Caring for the Child and Family
Tags: 2022, Agitation, Alvarez T, anxiety, Bolanos J, Cancer Patient, care behavior, Child, Claros A, Cleves D, conference abstract, Controlled Study, Cuervo M, December List 2022, Demography, Dyspnea, Fear, Female, Garcia X, Hospital Mortality, Human, Intensive Care Unit, Irritability, Leukemia, Major Clinical Study, Male, middle income country, Molina K, Pain, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, quasi experimental study, Retrospective Study, School Child, Seizure, Skill, social needs, Terminal Care, ward
Impact of Concurrent Hospice Care on Primary Care Visits Among Children in Rural Southern Appalachia
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
Healthcare utilization among children and young people with life-limiting conditions: Exploring palliative care needs using National Health Insurance claims data
Tags: 2692, April 2020 List, Article, Child, Controlled Study, Female, Health Care Utilization, Human, Kim C H, Kim M S, Lee J Y, Length Of Stay, Lim N G, Male, Malignant Neoplasm, Mortality Rate, national health insurance, Palliative Therapy, Prevalence, Retrospective Study, Scientific reports, Shin H Y, Song I G
GPs' role in caring for children and young people with life-limiting conditions: a retrospective cohort study
Tags: 2020, accident, Adult, April 2020 List, Article, Attention, care behavior, Child, Clinical Article, Clinical Practice, Cohort Analysis, Consultation, England, Female, Fraser L K, general practice, Health Care Utilization, Hewitt C, Hospital Patient, Human, Icd-10, Jarvis S, Male, Mitchell S, Parslow R C, Patient Care, Primary Health Care, Read code, Retrospective Study, secondary health care, The British journal of general practice : the journal of the Royal College of General Practitioners.
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Sign Me Up! Understanding Referral and Enrollment to Community-Based Pediatric Hospice and Palliative Care (FR420D)
Tags: 2020, Caliboso M, Child, Cohort Analysis, conference abstract, Controlled Study, Demography, Female, Hospice, Human, Insurance, Journal of Pain and Symptom Management, Lindley L, Lotstein D, Major Clinical Study, Male, March 2020 List, Neonatal Intensive Care Unit, Nervous System, Palliative Therapy, Patient Referral, Pediatric Hospital, Preschool Child, Retrospective Study, Speech, Total Quality Management, Wolfe J
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Content review of pediatric ethics consultations at a cancer center
Tags: 2019, Article, cancer center, Child, Childhood Cancer, Clinical Article, Ethics, Female, Friedman D N, Human, invasive procedure, Male, McCabe M S, Oncology 2019 List, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Physician, Resuscitation, Retrospective Study, Risk Benefit Analysis, Terminal Care, Voigt L P, Winter M C
Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records
Tags: 2707, Acheson E, Adolescent, Ansari M, Article, Brazzola P, Cancer Mortality, Cancer Palliative Therapy, central nervous system tumor/th [Therapy], Child, childhood cancer/th [Therapy], Clinical Decision Making, diagnosis related group, Elger B S, Female, Human, Kuhne T, leukemia/th [Therapy], Major Clinical Study, Male, Medical Record, Niggli F, Oncology 2019 List, Pacurari N, Priority Journal, Retrospective Study, Rost M, Supportive Care In Cancer, Switzerland, treatment duration, Wangmo T
End-of-life care among adolescent and young adult patients with cancer living in poverty
Tags: 2019, Adolescent, Adult, Article, Bakitas M, Cancer, Cancer Patient, Cancer Therapy, Controlled Study, Currie E R, Female, Friedman S, Gilbertson-White S, Hospice, Hospital Patient, Human, Insurance, Lindley L C, lowest income group, Mack J W, Male, Medical Record, Multicenter Study, Oncology 2019 List, Palliative Therapy, Patient Referral, Poverty, Retrospective Study, Roeland E J, Saeidzadeh S, Statistical Significance, Terminal Care, Young Adult
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults
Medication utilization for symptom management by pediatric inpatients with cancer at end-of-life
Tags: 2019, Adult, anxiety, Benzodiazepine, Black person, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Davidoff A, Death, Decision Making, do not resuscitate order, Drug Therapy, Ethnicity, Female, Gender, Hospital Patient, Hospitalization, Human, Length Of Stay, Major Clinical Study, Male, manager, Massaro S, Medicaid, Multicenter Study, Nausea, Oncology 2019 List, Opiate, Pain, patient history of bone marrow transplantation, Pediatric Blood and Cancer, pediatric patient, Prozora S, Recipient, Retrospective Study, Shabanova V, solid malignant neoplasm, tumor diagnosis, University Hospital, Young Adult
Defining palliative opportunities in pediatric patients with bone and soft tissue tumors
Tags: 2019, Adolescent, Allen K, bone marrow, bone tumor, Brock K, Cancer Patient, Cancer Recurrence, Child, conference abstract, Controlled Study, Death, disease exacerbation, do not resuscitate order, Ebelhar J, Female, Hospice, Hospital Admission, Human, Intensive Care, Major Clinical Study, Male, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, phase 1 clinical trial, relapse, Retrospective Study, soft tissue tumor, solid malignant neoplasm, Statistics, Wasilewski-Masker K
Procedural burden experienced by children with cancer during their terminal hospital admission
Tags: 2019, acute respiratory failure, Adolescent, amputation, Article, Artificial Ventilation, bone marrow biopsy, Bone Marrow Transplantation, brain ventricle peritoneum shunt, Cancer Palliative Therapy, Central Nervous System Tumor, central venous catheter, Child, Childhood Cancer, Cohort Analysis, Corkum K S, craniotomy, debridement, Disease Burden, excision, fasciotomy, Female, Heart Arrest, heart surgery, Hebal F N, Hospital Admission, Human, intestine resection, invasive procedure, Journal Of Pediatric Surgery, laparoscopy, Lautz T B, Length Of Stay, Leukemia, lobectomy, Major Clinical Study, Male, myringotomy, Oncology 2019 List, Ostomy, Pain, Priority Journal, public health insurance, Retrospective Study, Rowell E E, segmentectomy, Sepsis, spine fusion, Stem Cell Transplantation, Terminal Care, thoracoscopy, Thoracotomy, vascular access, ventriculostomy
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
Center, Gestational Age, and Race Impact End-of-Life Care Practices at Regional Neonatal Intensive Care Units
Tags: 2019, Article, Asselin J, Bartman T, Black person, Brozanski B, Cause Of Death, Central Nervous System, Child, Coghill C H, Cohort Analysis, Controlled Study, Datta A, DiGeronimo R, do not resuscitate order, Drug Withdrawal, Durand D, Dykes F, Evans J, February 2020 List, Female, Fry J T, Gestational Age, Grover T, Human, Infant, injury, Journal of Pediatrics, Leuthner S R, Life Sustaining Treatment, Major Clinical Study, Male, Matoba N, Murthy K, Natarajan G, Neonatal Intensive Care Unit, Newborn, Newborn Death, Niehaus J Z, Padula M, Pallotto E, Piazza A, Reber K, Retrospective Study, Schlegel A B, Shah A, Short B, Sullivan K M, Terminal Care, Zaniletti I
Sleep-disordered breathing and its management in children with achondroplasia
Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M
Gait, Balance, and Coordination Impairments in Niemann Pick Disease, Type C1
Tags: 2 hydroxypropyl beta cyclodextrin, 2018, 94035-02-6 (2 hydroxypropyl beta cyclodextrin), Adolescent, Adult, Alter K, Article, balance impairment, body equilibrium, case control study, characteristics, Child, Clinical Article, clinical evaluation, Comparative Study, coordination disorder, disease severity assessment, Farhat N, Female, gait disorder, Human, Human Development, intervention study, Journal of Child Neurology, Keener L A, Male, molecular stability, motion analysis system, Neurologic Examination, Niemann Pick disease, NIH NPC Neurologic Severity Scale, NPC, outcome assessment, performance, Porter F, Preschool Child, Priority Journal, Research, Retrospective Study, Sansare A, School Child, scoring system, spatiotemporal analysis, stabilography, Stanley C, tone and motor problems, Trajectory, Upper limb, vts 270, Young Adult, Zampieri C
Supplementation with carnitine reduces the severity of constipation: A retrospective study of patients with severe motor and intellectual disabilities
Tags: 102767-28-2 (levetiracetam), 1069-66-5 (valproic acid), 1309-48-4 (magnesium oxide), 1317-74-4 (magnesium oxide), 14093-02-8 (iron), 14378-32-6 (zinc), 146-22-5 (nitrazepam), 1622-61-3 (clonazepam), 2017, 22316-47-8 (clobazam), 298-46-4 (carbamazepine), 461-06-3 (carnitine), 50-06-6 (phenobarbital), 53858-86-9 (iron), 541-15-1 (carnitine), 56-99-5 (carnitine), 57-30-7 (phenobarbital), 57-88-5 (cholesterol), 59-30-3 (folic acid), 6484-89-5 (folic acid), 68291-97-4 (zonisamide), 7439-89-6 (iron), 7440-66-6 (zinc), 7782-49-2 (selenium), 8028-68-0 (phenobarbital), 8047-84-5 (carbamazepine), 84057-84-1 (lamotrigine), 99-66-1 (valproic acid), acute brain disease, Adult, albumin, albumin blood level, anticonvulsant therapy, Aomatsu T, Article, bacterial meningitis, bed rest, body mass, brain infarction, carbamazepine/dt [Drug Therapy], carnitine, carnitine deficiency, carnitine deficiency/dt [Drug Therapy], carnitine/dt [Drug Therapy], Cerebral Palsy, Child, cholesterol blood level, cholesterol/ec [Endogenous Compound], Clinical Article, Clinical Trial, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], Constipation, constipation/dt [Drug Therapy], constipation/pc [Prevention], Controlled Study, copper blood level, cupric ion/ec [Endogenous Compound], diet supplementation, Disease Severity, Endogenous Compound, enema/dt [Drug Therapy], enteric feeding, epilepsy/dt [Drug Therapy], Female, folic acid, folic acid blood level, folic acid/ec [Endogenous Compound], Gene Expression, groups by age, Hospital, Human, Human Tissue, infantile spasm, Inoue K, Intellectual Impairment, iron blood level, iron/ec [Endogenous Compound], Journal of Clinical Biochemistry and Nutrition, lamotrigine/dt [Drug Therapy], levetiracetam/dt [Drug Therapy], magnesium oxide/dt [Drug Therapy], Male, Medical Record Review, Middle Aged, motor dysfunction, Murata S, NCL3, neuronal ceroid lipofuscinosis, nitrazepam/dt [Drug Therapy], Pelizaeus Merzbacher disease, Pelizaeus- Merzbacher disease, periventricular leukomalacia, pharmacologic intervention, phenobarbital/dt [Drug Therapy], prealbumin, prealbumin/ec [Endogenous Compound], Preschool Child, Retrospective Study, School Child, selenium blood level, selenium/ec [Endogenous Compound], sex difference, Tamai H, trace element, Tuberous Sclerosis, valproic acid, valproic acid/dt [Drug Therapy], West syndrome, Yoden A, Young Adult, zinc/ec [Endogenous Compound], zonisamide/dt [Drug Therapy]
Feed-induced Dystonias in Children with Severe Central Nervous System Disorders
Tags: 1134-47-0 (baclofen), 2017, acquired brain injury, Adolescent, Article, Baclofen/dt [drug Therapy], baclofen/tl [Intrathecal Drug Administration], Campbell D I, Case Study, central nervous system disease, Cerebral Palsy, Child, Clinical Article, Constipation, Dystonia, dystonia/dt [Drug Therapy], feed induced dystonia, feed induced dystonia/dt [Drug Therapy], feeding difficulties, Female, Gastroesophageal Reflux, Gastroscopy, GERD, Human, Hydrocephalus, Hyperglycinemia, Infant, infantile spasm, intestinal dysmotility, intestine motility, Intestine Obstruction, Journal Of Pediatric Gastroenterology And Nutrition, Male, microcephaly, Mordekar S R, motor dysfunction, MPSIII, onset age, Parenteral Nutrition, Percutaneous Endoscopic Gastrostomy, peristalsis, pharmacologic intervention, Practice Guideline, Preschool Child, Priority Journal, reflux esophagitis, Retrospective Study, Rett syndrome, Sanfilippo syndrome, School Child, tone and motor problems, total parenteral nutrition, Velayudhan M, West syndrome
Balloon dilatation in esophageal strictures in epidermolysis bullosa and the role of anesthesia
Tags: 2017, Adolescent, Adult, Anesthesia, Article, Ates U, Balloon dilatation, Can O S, Child, Clinical Article, Clinical Effectiveness, colon interposition, digestive endoscope, Dindar H, Diseases of the Esophagus, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Ergun E, esophagus balloon, esophagus perforation, esophagus stenosis/co [Complication], esophagus stenosis/th [Therapy], feeding difficulties, Female, Gastrostomy, Gollu G, Human, Male, Patient Safety, Preschool Child, Priority Journal, Retrospective Study, School Child, surgical intervention, Young Adult
Palliative care allocation among critically ill children is highly variable in the United States
Tags: 2019, Artificial Ventilation, Bennett K, Child, Cohort Analysis, conference abstract, Controlled Study, Critical Care Medicine, Critically Ill Patient, Czaja A, December 2019 List, Female, Hospitalization, household income, Human, Infant, Insurance, Length Of Stay, Maddux A, Major Clinical Study, Male, Morbidity, Mortality, Multicenter Study, Neonatal Intensive Care Unit, Newborn, O'Keefe S, Palliative Therapy, race, Resource Allocation, Retrospective Study, suburban area, United States, Youngwerth J
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium
Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T
Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital
Tags: 2019, Academic pediatrics., Article, Bamat T, Burnout, Child, Controlled Study, Death, Drug Withdrawal, Education, End-of-life Care, Female, Feudtner C, Griffis H, Human, Life Sustaining Treatment, Major Clinical Study, Male, McConathey E, Medical Record Review, October 2019 List, Palliative Care, Palliative Therapy, postgraduate student, Resident, resident education, Resuscitation, Retrospective Study, Statistics, Terminal Care, Trowbridge A, Walter J K
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Tags: 2019, Anales de Pediatria., Article, Barbieri G, Bellavia N, Bereavement Support, Bermudez Cortes M D M, Child, Controlled Study, Death, End-of-life Care, Female, Galera Minarro A M, Garcia-Marcos B P, Human, Human Experiment, Improvements, Male, Navarro M A, Newborn, Observational Study, October 2019 List, Paediatric, Palliative Care, Palliative Therapy, Parental Perspectives, Pediatrician, Pediatrics, Plaza Fornieles M, Questionnaire, Retrospective Study, Satisfaction, shared decision making, Survey, Terminal Care
Hospital inpatient use in mainland Portugal by children with complex chronic conditions (2011 - 2015). [Portuguese]
Tags: 2019, Acta Medica Portuguesa, Adolescent, Article, Cancelinha C, cancer radiotherapy, Child, Controlled Study, Death, developed country, Female, Hospital Patient, Hospitalization, Human, Lacerda A F, Length Of Stay, Lopes S, Male, Mortality, national health service, Needs Assessment, Newborn, nonparametric test, October 2019 List, Oliveira G, Outpatient, Palliative Care, Palliative Therapy, pediatric patient, Portugal, Radiotherapy, Retrospective Study