Browse Items (52 total)
- Tags: Infant Newborn
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
Uncertainty and Perinatal Post?Traumatic Stress Disorder in the Neonatal Intensive Care Unit
Tags: 2022, After Care, April List 2023, Brown RL, Coefficient Alpha, Comparative Studies, Data Analysis Software, Descriptive Statistics, Female, Hospitalization, Human, Hypothesis, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Johnson TS, Lagatta J, Leuthner J, Male, Malin KJ, Malnory M, Mental Disorders, Palliative Care, Parent-Infant Relations, Parents, Patient Discharge, Perinatal Care, Prospective Studies, Psychologists, Psychosocial Factors, Questionnaires, reliability and validity, Research in Nursing and Health, Rholl E, scales, Stress Disorders Post-Traumatic, Summated Rating Scaling, Uncertainty, White?Traut R
Living With Loss: Study Protocol for a Randomized Controlled Trial Evaluating an Internet-Based Perinatal Bereavement Program for Parents Following Stillbirth and Neonatal Death
Tags: 2022, April List 2023, Astell C, Australia, Bereavement, Boyle FM, Callander E, Clinical Trials, Crocker S, Dean J, Ellwood D, Female, Flenady V, Grief, Horey D, Infant Newborn, Internet, Jackson C, Lancaster A, Loughnan SA, Male, Parents, Perinatal Death, Pregnancy, Prevention and Control, Psychosocial Factors, Quality Of Life, scales, Shand A, Trials
Ethical Considerations in Critically Ill Neonatal and Pediatric Patients
Patterns of Pediatric Palliative and End-Of-Life Care in Neonatal Intensive Care Patients in the Southern U.S
Tags: 2023, April List 2023, Bakitas MA, Boss R, Buckingham S, Currie ER, Dionne-Odom JN, Ejem D, End-of-life Care, Infant Newborn, intensity of care, Johnston EE, Journal of Pain and Symptom Management, KcKillip KM, Li P, Morvant A, neonatal intensive care, Nichols C, Paine C, Pediatric Palliative Care, Perna SJ, Terminal Care, Wolfe J
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
Sibling Mortality Burden in Low-Income Countries: A Descriptive Analysis of Sibling Death in Africa, Asia, and Latin America and the Caribbean
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Asia, Caribbean Region, Child, Child Preschool, Cost Of Illness, Developing Countries, Female, Global Health, Humans, Infant, Infant Newborn, Latin America, Male, Middle Aged, Mortality/trends, PLoS One, Poverty, Siblings, Smith-Greenaway E, Socioeconomic Factors, Weitzman A, West Indies, Young Adult
Identifying the Know-Do Gap in Evidence-Based Neonatal Care Practices among Informal Health Care Providers-A Cross-Sectional Study from Ujjain, India
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adult, Baghel SS, BMC Health Services Research, Clinical Competence, Cross-sectional Studies, Diwan V, Evidence-based Practice, Health Personnel/psychology/statistics & numerical data, Humans, India, Infant Care, Infant Newborn, Informal healthcare providers, Knowledge, Lundborg CS, Middle Aged, Mungai IG, Neonatal Care, Pathak A, Sharma M, Soni S, Tamhankar AJ, Vagela S
Integrating a Palliative Approach into the Healthcare provided by the French-African Pediatric Oncology Group's Pilot Units. Insights from a 3-year Training Program
Tags: 2021, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Africa, Archives de Pediatrie, Aubier F, Calmanti S, Child, Child Preschool, Doucot MS, Edan C, Education Medical Continuing/methods/organization & administration, France, French-speaking Africa, Gagnepain-Lacheteau A, Hessissen L, Humans, Infant, Infant Newborn, International Cooperation, Medical Oncology/education, Moreira C, Oncology, Pain Management, Palliative Care, Patient Care Team, Patte C, Pediatrics, Pediatrics/education, Poulain P, Thinlot C, Training, Viallard ML, Yao AJJ
Coronavirus Disease-19 Deaths among Children and Adolescents in an Area of Northeast, Brazil: Why So Many?
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adolescents, Age Distribution, Brazil/epidemiology, Child, Child Preschool, Children, Comorbidity, COVID-19, COVID-19/mortality, Cristina FLD, Cristina FVS, de Siqueira ALA, deaths, Eduardo CL, Female, Hospitalization/statistics & numerical data, Humans, Infant, Infant Newborn, Intensive Care Units, Lima SPR, Male, Mortality, Queiroz GR, Santana SV, Tropical Medicine & International Health
End-of-Life Decision-Making in Pediatric and Neonatal Intensive Care Units in Croatia-A Focus Group Study among Nurses and Physicians
Tags: 2022, Adult, April 2022 List, Borovecki A, Brajkovic L, Child, Critical Care, Croatia, Curkovic M, Death, Decision Making, end-of-life, Filipovic-Grcic B, Focus Groups, Humans, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Lah Tomulic K, Medicina (Kaunas), Mestrovic J, Neonatal Intensive Care Unit, Nevajdic B, Novak M, Nurses, Pediatric Intensive Care Unit, Peter B, Physicians, Rubic F, Terminal Care
To explore the neonatal nurses' beliefs and attitudes towards caring for dying neonates in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Chang YC, Chen CH, Cross-sectional Studies, Culture, Female, Huang LC, Humans, Infant Newborn, Intensive Care Units Neonatal, January 2018 List, Lee HY, Liu HL, Maternal & Child Health Journal, Neonatal Nursing, Neonatology, Peng NH, Surveys And Questionnaires, Taiwan, Terminal Care/px [psychology], Wu SY, Young Adult
Ethical decision making in neonatal units--the normative significance of vitality
Tags: 2001, Brinchmann BS, Decision Making, Ethics Medical, Euthanasia/px [Psychology], Female, Humans, Infant Mortality, Infant Newborn, Infant Premature, Infant Premature Diseases, Intensive Care Neonatal/st [standards], January 2018 List, Male, Medical Futility, Medicine, Health Care & Philosophy, Nortvedt P, Norway, Parents/px [psychology], Physician's Role, Qualitative Research
Consultation of Parents in Actual End-Of-Life Decision-Making in Neonates and Infants
Tags: 2006, Belgium, Bilsen J, Cools F, Critical Illness/th [therapy], Decision Making, Deconinck P, Deliens L, Deschepper R, European Journal of Pediatrics, Gestational Age, Humans, Infant, Infant Newborn, January 2018 List, Life Support Care/px [Psychology], Medical Futility/px [Psychology], Mortier F, Parents/px [psychology], Physician-patient Relations, Provoost V, Ramet J, Retrospective Studies, Surveys And Questionnaires, Terminal Care, Terminal Care/px [psychology], Vandenplas Y, Withholding Treatment
Retrospective cross-sectional review of survival rates in critically ill children admitted to a combined paediatric/neonatal intensive care unit in Johannesburg, South Africa, 2013-2015
Tags: 2016, Argent A, Ballot DE, Birth Weight, Bmj Open, Cause Of Death, Child, Chirwa T, Cooper PA, Critical Illness/ Mortality, Cross-sectional Studies, Davies VA, Female, Health services administration & management, Hospitalization/ statistics & numerical data, Humans, Infant, Infant Newborn, Infant Newborn Diseases/ mortality, Infant Very Low Birth Weight, Intensive Care Units Neonatal, January 2018 List, Male, Mer M, Neonatology, Patient Discharge/ statistics & numerical data, Population Surveillance, Retrospective Studies, Risk Factors, South Africa/epidemiology, Survival Rate/ trends
Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases
Tags: 2013, Adolescent, British Columbia, Chavoshi N, Child, Child Preschool, Female, Health Resources/ Utilization, Health Services Needs And Demand, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Length Of Stay/statistics & Numerical Data, Male, Miller T, Patient Discharge/statistics & Numerical Data, Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases, Siden H, Terminal Care, Young Adult
Mortality trends for pediatric life-threatening conditions.
Tags: 2014, Adolescent, British Columbia, Cause Of Death, Chavoshi N, Child, Child Mortality/trends, Child Preschool, Female, Hospice, Hospice Care/statistics & Numerical Data, Humans, Illness, Infant, Infant Newborn, Life-threatening Conditions, Male, Miller T, Mortality, Palliative, Palliative Care/statistics & Numerical Data, Pediatric, Pediatrics, Siden H, The American Journal of Hospice & Palliative Care
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult
The use of drugs with a life-shortening effect in end-of-life care in neonates and infants
Tags: 0 (analgesics Opioid), 0 (muscle Relaxants Central), 2006, 660yq98i10 (potassium Chloride), Analgesics Opioid, Belgium, Bilsen J, Cools F, December 2017 List, Decision Making, Deconinck P, Deliens L, Drug Utilization, Euthanasia, Humans, Infant, Infant Newborn, Intensive Care Medicine, Intention, Mortier F, Muscle Relaxants Central, Pain/dt [drug Therapy], Potassium Chloride, Practice Patterns Physicians', Provoost V, Ramet J, Terminal Care, Terminal Care/es [ethics], Van Herreweghe I, Vande Velde A, Vandenplas Y, Vander Stichele R
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Tags: 2016, Adaptation Psychological, Adult, Bereavement, Christian BJ, Currie ER, Day S, Decision Making, Female, Hinds PS, Humans, Infant Newborn, Intensive Care Neonatal/st [standards], Intensive Care Neonatal/td [trends], Intensive Care Units Neonatal, Interviews As Topic, Journal of Pediatric Nursing, Male, Meneses K, November 2017 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Perception, Perna SJ, Professional-family Relations, Qualitative Research, Robinson C, Stress Psychological, Terminal Care/mt [methods], Terminal Care/px [psychology], United States
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Children with life-shortening conditions are denied the support they need, says charity
Palliative Care in Obstetrics and Gynecology
Tags: 2016, Advance Care Planning, August 2017 List, Communication, Female, Genital Neoplasms Female/complications/psychology/ Therapy, Humans, Infant Newborn, Journal Of Obstetrics And Gynecology, Lefkowits C, Life Expectancy, Mood Disorders/etiology/therapy, Nausea/therapy, Pain Management, Pain/etiology, Palliative, Perinatal Care, Solomon C
Seeking the best training model for difficult conversations in neonatology
Tags: 2016, August 2017 List, Bender GJ, Communication, Computer Simulation, Curriculum, Fellowships And Scholarships, Female, Humans, Infant Newborn, Journal Of Perinatal Medicine, Lechner BE, Male, Models Educational, Neonatology/education, Parents, Pregnancy, Professional-patient Relations, Shields R, Terminal Care, Tucker R
Exploring perinatal death with midwifery students' using a collaborative art project
Tags: 2017, Affective Learning, Artist, Atkinson S, August 2017 List, Barry M, Bradshaw C, Brett M, Collaborative Artwork, Education Nursing, Female, Grief, Humans, Infant Newborn, Ireland, Midwifery Students, Midwifery/ Education, Mothers/psychology, New C, Noonan M, Nurse Education Today, Parents, Perinatal Death, Pregnancy, Quinn C, Students Nursing
Developing A Perinatal Memory-making Program At A Children's Hospital
Tags: 2014, American journal of maternal/child nursing, Child Health, Female, Fornehed ML, Hospice Care/methods, Hospice Care/psychology, Hospitals, Humans, Infant Newborn, Lindley LC, March 2016 List, Memory, Miller LH, Mixer SJ, Niederhauser VP., Perinatal Death, Postnatal Care/psychology, Pregnancy
Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on…
Tags: 2015, Borkhardt A, Caregivers, December 2016 List, European Journal of Pediatrics, Female, Germany, Höll J, Home Care, Home Care Services/statistics & Numerical Data, Hospitals Pediatric, Humans, Infant, Infant Mortality, Infant Newborn, Infants, Jansen G, Kuhlen M, Life-limiting Conditions, Male, Neonates, Palliative Care, Palliative Care/statistics & Numerical Data, Patient Comfort/statistics & Numerical Data, Sabir H, Terminal Care/statistics & Numerical Data
Advance Care Planning: Outpatient Antenatal Palliative Care Consultation
Tags: 2017, Adult, Advance Care Planning/organization & Administration, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Female, Humans, Infant Newborn, March 2017 List, Outpatients, Palliative Care/organization & Administration, Pregnancy, Prenatal Care/organization & Administration, Referral And Consultation
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Parent Experience Of Neonatal Encephalopathy: The Need For Family-centered Outcomes
Updated Perinatal Palliative Standards Emphasise Choice And Bereavement Support
Palliative Care In The Nicu And Why Education Matters
Tags: 2017, Discenza D, Emotional Intelligence, Humans, Infant Newborn, Intensive Care Units Neonatal/og [organization & Administration], Neonatal Network - Journal of Neonatal Nursing, Palliative Care, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents, Parents/ed [education], Parents/px [psychology], September 2017 List, Social Support
Neonatal Palliative Care-alice's Journey
Tags: 2016, Bereavement, Bereavement Support, Child, Doctor Patient Relation, Halkett C, Holistic Care, Human, Infant, Infant Newborn, May 2017 List, Medical Staff, Memory, Murdoch E, Newborn, Newborn Intensive Care, Nursing Staff, Palliative Care, Palliative Medicine, Palliative Therapy, Patient Referral, Pilot Projects, Rodger E, Sibling, Terminal Care
Caring For Premature Life And Death: The Relational Dynamics Of Detachment In A Nicu
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Evidence For Implementation Strategies To Provide Palliative Care In The Neonatal Intensive Care Unit.
Palliative care is a holistic framework that is designed to improve quality of life by identifying and treating distressing symptoms of life-threatening or complex conditions. Neonatal palliative care (NPC) has potential benefits for…
Tags: 2016, Advances in Neonatal Care, Attitude Of Health Personnel, Clinical Protocols, Evidence-based Practice, Gephart S, Hospice And Palliative Care Nursing/education, Humans, Infant Newborn, Intensive Care Units Neonatal, Neonatal Nursing/education, Neonatal Nursing/methods, October 2016 List, Palliative Care/methods, Patient Care Team, Quinn M
Staff Efficiency Trends Among Pediatric Hospices, 2002-2011.
Tags: 2016, Adolescent, California, Child, Child Preschool, Cozad MJ, Efficiency Organizational/statistics & Numerical Data, Female, Forecasting, Hospice Care/statistics & Numerical Data, Hospice Care/trends, Hospices/trends, Hospitals Pediatric, Hospitals Pediatric/statistics & Numerical Data, Humans, Infant, Infant Newborn, Lindley LC, Male, Mixer SJ, November 2016 List, Nursing Economic$, Personnel Staffing And Scheduling/statistics & Numerical Data, Personnel Staffing And Scheduling/trends, Workload/statistics & Numerical Data, Young Adult
More Than Medication: Perinatal Palliative Care
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Decision Making/ethics, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal, Maternal-fetal Relations/psychology, November 2016 List, Palliative Care/ethics, Palliative Care/legislation & Jurisprudence, Palliative Care/psychology, Parental Consent/ethics, Parental Consent/legislation & Jurisprudence, Parental Consent/psychology, Patient Rights/ethics, Patient Rights/legislation & Jurisprudence, Perinatal Care/ethics, Perinatal Care/legislation & Jurisprudence, Perinatal Care/standards, Personhood, Professional-family Relations, Resuscitation Orders/ethics, Resuscitation Orders/legislation & Jurisprudence, Resuscitation Orders/psychology