Browse Items (460 total)
- Tags: Article
Children's and adolescents' perspectives on living with advanced cancer: A meta-synthesis of qualitative research
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Ali R, An E, Article, Awareness, Child, Disease Management, Emotional Stress, ethnography, Female, Human, Johnson A, Major Clinical Study, Male, Only Child, Palliative Therapy, Qualitative Research, Quality Of Life, Quality of Life Research, Widger K, Wilson C
Bereaved parent preferences on quality end-of-life care for children with cancer in the South
Tags: 2024, 2025 SE1 - Oncology, Adult, Aged, Alabama, Article, at home mortality, Bhatia S, Cancer, Central Nervous System Tumor, Child, Cohort Analysis, Content Analysis, Currie E, Davis ES, Drug Therapy, Family Decision Making, Female, Hospital Mortality, Human, Interview, Johnston EE, Kumar R, Lawhon V, Likert scale, Male, Malignant Neoplasm, Martinez I, open access, Palliative Therapy, Parent, Parental Death, Patient Comfort, Place Of Death, Religion, Rosenberg AR, Semi Structured Interview, Sibling, Snaman JM, special situation for pharmacovigilance, Tefera RB, Terminal Care
Experiences with a national team-based learning program for advance care planning in pediatric palliative care
Tags: 2024, 2025 SE1 - Oncology, Adult, Advance Care Planning, Article, BMC Palliative Care, Brounen MJ, Childhood Cancer, Controlled Study, Conversation, de Groot M, De Weerd W, Dutchman, Education Program, Engel M, Fahner JC, Female, Health Care Personnel, Hennus MP, Hermans M, Hofman SC, Human, Joosen C, Kars MC, Lalbahadoersing-Jharap S, Learning, learning program, Maebe S, Male, Michiels EMC, Middle Aged, Miedema S, Netherlands, Palliative Therapy, Patient Care Team, Pediatrics, Personal Experience, professional knowledge, Questionnaire, Raphael MF, Schieving J, self-reflection, Skill, University Hospital, van Capelle C, Work, workload, Young Adult
Is it early enough? The authentic meaning of the pediatric palliative approach between early and late referral in pediatric oncology: a case study
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advance Care Planning, Affinita MC, anxiety, Article, Artificial Ventilation, Avagnina I, Benini F, Brain Metastasis, Child, Childhood Cancer, Clinical Article, cognitive behavioral therapy, colonoscopy, community hospital, computed tomographic angiography, doctor patient relationship, Dysphagia, Dyspnea, facial nerve paralysis, Female, Follow Up, Frontiers in Oncology, Headache, Health Promotion, hearing impairment, hematothorax, hemoptysis, Hospitalization, Human, Intensive Care Unit, Life Expectancy, Morphine, nerve paralysis, neurofibromatosis type 1, nuclear magnetic resonance imaging, Oncology, oncology ward, Palliative Therapy, Patient Referral, Quality Of Life, Questionnaire, refugee, Rhabdomyosarcoma, Santini A, Terminal Care, thorax pain, tracheobronchial toilet, Verbal Communication, visual field, Zanin A
Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died from Cancer
Tags: 2024, 2025 SE1 - Oncology, Adult, Ananth PJ, Article, Baker JN, Bereavement, biological marker, Child, Child Death, Childhood Cancer, Clinician, Controlled Study, Cross-sectional Study, Diagnosis, Disease Severity, Drug Therapy, Feder SL, Female, Human, Interpersonal Communication, Journal of Pain and Symptom Management, Knobf MT, Major Clinical Study, Male, Malignant Neoplasm, Middle Aged, multiple linear regression analysis, Ouyang N, Parent, prolonged grief, Snaman JM, Terminal Care
Storytelling to support legacy making for bereaved parents of children with cancer
Tags: 2024, 2025 SE1 - Oncology, Article, Caregiver, Child, Childhood Cancer, Controlled Study, Coping, Daniels S, Female, Grief, Hart K, Human, Human Relation, Interview, Kaye EC, Love A, Malignant Neoplasm, meaning-making, Oncology, Palliative Therapy, Parent, Paul TK, Pediatric Blood and Cancer, School Child, special situation for pharmacovigilance, Storytelling, Therapy
Utilizing the Metaverse to Provide Innovative Psychosocial Support for Pediatric, Adolescent, and Young Adult Patients with Rare Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, anxiety, Article, avatar, Cancer Localization, Cancer Patient, Cancers, Demographics, Ewing sarcoma/di [Diagnosis], Fujiwara T, Hasei J, Health Care, Human, Ikuta K, Ishida H, Iwata S, Katayama H, Kunisada T, leukemia/di [Diagnosis], Likert scale, Maeda N, Male, Malignant Neoplasm, Nagano A, Nakahara R, Nakata E, Ochi M, Okamura M, Oncologist, osteosarcoma/di [Diagnosis], Ozaki T, Palliative Therapy, Participation, Patient Care, Psychological care, rural area, soft tissue tumor, Stigma, Yoshida S
Parental Attitudes Towards Palliative Care in Pediatric Oncology: Insights from Bereaved Families
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Article, Awareness, Bereavement, Caregiver, Child, Child Death, Childhood Cancer, Davis ES, do not resuscitate order, Drug Therapy, Family, Female, Hospice Care, Human, Infant, Johnston EE, Journal of Pain and Symptom Management, Major Clinical Study, Male, Martinez I, Oncology, Palliative Therapy, Parental Attitude, Patient Referral, Place Of Death, School Child, special situation for pharmacovigilance, sudden death, Towry L, United States, Walsh KM, Wimberly CE
Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea
Tags: 2023, 2025 SE1 - Oncology, Article, Bereavement, Caregiver, Child, Choi S, Clinical Article, congenital disorder, Controlled Study, emotional support, Female, Human, Hwang HL, Infant, Interview, Journal of Hospice and Palliative Nursing, Kim S, Leukemia, Male, Min H, Newborn, Oh SJ, Palliative Therapy, Parent, Phenomenology, School Child, South Korea
Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Aggression, Article, Chronic Disease, Decision Making, Drug Therapy, extended family, Female, Gerhardt CA, Hill K, Himelhoch A, Human, Humphrey L, Interview, Kenney AE, Male, Nahata L, Olsavsky AL, Olshefski R, Palliative And Supportive Care, Qualitative Analysis, Schaefer M, shared decision making, Skeens MA, Sutherland-Foggio M, symptom burden
Access to legacy-oriented interventions at end of life for pediatric oncology patients: A decedent cohort review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Article, Bereavement, cadaver, Cantrell K, Child, Childhood Cancer, Cohort Analysis, Daniels S, Drug Therapy, Female, Franqui-Rios ND, Gaitskill E, Health Care Personnel, Hispanic, Human, Kaye EC, Major Clinical Study, Male, Mothi SS, Palliative Therapy, Pediatric Blood and Cancer, Retrospective Study, special situation for pharmacovigilance, Terminal Care, Therapy
Cannabinoids for symptom management in children with cancer: A systematic review and meta-analysis
Tags: 2023, 2025 SE1 - Oncology, Acute Lymphoblastic Leukemia, Article, Ben-Eltriki M, Bowers A, Bradford N, Brain Tumor, Cancer, cannabinoid/ae [Adverse Drug Reaction], cannabinoid/dt [Drug Therapy], cannabinoid/pv [Special Situation for Pharmacovigilance], chemotherapy induced nausea and vomiting/dt [Drug Therapy], chemotherapy induced nausea and vomiting/pc [Prevention], chemotherapy-induced febrile neutropenia/dt [Drug Therapy], Chhabra M, childhood cancer/dt [Drug Therapy], delta8 tetrahydrocannabinol/dt [Drug Therapy], delta8 tetrahydrocannabinol/pv [Special Situation for Pharmacovigilance], dizziness/si [Side Effect], domperidone/cm [Drug Comparison], domperidone/dt [Drug Therapy], domperidone/pv [Special Situation for Pharmacovigilance], dronabinol/dt [Drug Therapy], dronabinol/pv [Special Situation for Pharmacovigilance], Drug Efficacy, drug formulation, drug indication, Drug Safety, Hematologic Malignancy, Herbert A, Human, Kelly LE, levonantradol/dt [Drug Therapy], levonantradol/pv [Special Situation for Pharmacovigilance], Lymphoma, Me-Linh LE, meta analysis, nabilone/cm [Drug Comparison], nabilone/dt [Drug Therapy], nabilone/pv [Special Situation for Pharmacovigilance], nephroblastoma, Neuroblastoma, Oberoi S, Osteosarcoma, Palliative Therapy, Paul A, prochlorperazine/cm [Drug Comparison], prochlorperazine/dt [Drug Therapy], prochlorperazine/pv [Special Situation for Pharmacovigilance], Rassekh SR, somnolence/si [Side Effect], Systematic Review, xerostomia/si [Side Effect]
Development and Validation of a Ready-to-Talk Measure for Use in Adolescents and Young Adults Living With Advanced Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advanced Cancer, Article, Awareness, Bell CJ, Cancer Nursing, Clinician, Cognition, conceptual model, content validity, Controlled Study, Conversation, Deatrick JA, Dickens DS, Female, Hinds PS, Human, Interview, Kavanaugh KL, Major Clinical Study, Male, Palliative Therapy, Reliability, shared decision making, Sibling, Spruit JL, Terminal Care, Validity, Weaver MS, Young Adult
Mixed-methods evaluation of a face-to-face educational intervention for health and social care professionals to deliver family-centred cancer supportive care when a parent with dependent children is at end of life
Tags: 2024, 2025 SE1 - Oncology, Adult, Article, Cancer Prognosis, Child, Clinical Practice, Communication Skill, Counselor, Course Content, early childhood intervention, face to face consultation, Fatigue, Female, Hanna JR, Health Care Personnel, Human, Interview, Knowledge, Learning, Male, paramedical personnel, Personal Experience, physiotherapist, Psycho-Oncology, registered nurse, Self Concept, Semple CJ, Social Care, Social Worker, Systematic Review, Young Adult
Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework
Tags: 2024, 2025 SE1 - Oncology, Article, BMC Palliative Care, Child, Childhood Cancer, Coping, Damani A, Feedback, Hughes S, Human, lens (optics), Malignant Neoplasm, Palliative Care, Palliative Therapy, Patient Referral, pediatric oncologist, Preston N, Qualitative Research, Rao K, Salins N, Therapy
Realities and ideals: Experiences and needs of pediatric oncology nurses in communication processes with children and their families at the end-of-life period: A photovoice qualitative study
Tags: 2023, 2025 SE1 - Oncology, Algul G, Article, Child, Childhood Cancer, Clinical Article, Controlled Study, environmental factor, Female, Human, Kilicarslan TE, Male, mindfulness, Nurse, Nursing and Health Sciences, oncology nurse, oncology ward, Ozdemir KH, Palliative Therapy, Qualitative Research, Semi Structured Interview, Terminal Care, Thematic Analysis, Uncertainty, University Hospital, Voice
Taboo words in pediatric oncology: Communication experiences of nurses and physicians with dying children and their families
Tags: 2023, 2025 SE1 - Oncology, Advance Care Planning, Article, Aydin A, Bingol H, Child, Childhood Cancer, Clinical Article, Diagnosis, Dying, European Journal Of Oncology Nursing, Family, Female, Health Care Personnel, Human, Interpersonal Communication, Kebudi R, Male, Nurse, Oncology, Palliative Therapy, Physician, Qualitative Research, Savas EH, taboo, Terminal Care, Thematic Analysis
The Impact of Qualification and Hospice Education on Staff Attitudes during Palliative Care in Pediatric Oncology Wards-A National Survey
Tags: 2024, 2025 SE1 - Oncology, Adult, Article, Attitude, Attitude Of Health Personnel, Burnout, Child, Childhood Cancer, Children, Compassion Fatigue, Content Analysis, Csanadi K, Csoka M, Dergez T, Education, Emotion, Emotional Stress, Female, Fodor E, Foldesi E, Garami M, Hauser P, Hospice, Hospice Care, Hospices, Human, Hungary, Interpersonal Communication, Kiss C, Knowledge, Kovacs G, Krivan G, Male, Nurse, oncology ward, Ottoffy G, Palliative Care, Palliative Therapy, Professional Practice, professional well-being, Psychological care, Salamon E, Semi Structured Interview, Teamwork, Thematic Analysis, Therapy, Tiszlavicz LG
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes
Tags: 2023, 2025 SE1 - Oncology, Adolescent, Advance Care Planning, Article, Benchmarking, Bogetz JF, Child, Chromosome Disorder, Clinician, Consultation, Diagnosis, Distress Syndrome, Dyspnea, Fatigue, Friedrichsdorf SJ, Hospital Pediatrics, Hospitalization, Human, Length Of Stay, Male, O'Riordan DL, Pain, Palliative Therapy, Pantilat SZ, Patient Referral, Postier AC, psychosocial care, Purser L, Root MC, solid tumor, Total Quality Management, Treatment Outcome
The role of 'familiarity' and 'normality' in supporting transition to end of life care in paediatric oncology: A qualitative study
Tags: 2024, 2025 SE1 - Oncology, Adult, Article, Awareness, Child, Child Death, Childhood Cancer, Clergy, Clinical Article, Clinician, Closs M, Emotion, emotional support, Family, Female, Human, Journal Of Advanced Nursing, Kelly D, Male, McAndrew R, pediatric oncologist, Qualitative Research, Semi Structured Interview, Smith P, Terminal Care, Thematic Analysis, Therapy
Use of Cancer-Directed therapy at the end of life among adolescents and young adults
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Adverse Drug Reaction, Altschuler A, Article, California, cancer center, Cannizzaro N, Casperson M, Cernik C, Chao CR, Cohort Analysis, Cooper RM, drug combination, drug comparison, Drug Therapy, electronic health record, Ethnicity, Female, Fisher L, Human, Journal of the National Cancer Institute, Kushi LH, Lakin JR, Laurent CA, Mack JW, Major Clinical Study, Male, Malignant Neoplasm, Munneke J, Retrospective Study, Schwartz CM, Side Effect, special situation for pharmacovigilance, Therapy, Uno H, Wiener L, Xu L, Young Adult
Nurturing hope: pioneering paediatric palliative care in Pakistan
Brazilian Physicians' Attitudes and Feelings Towards Palliative Care in Pediatrics
Tags: 2024, 2025 SE2 - LRS, Acta Bioethica, Adolescent, Article, Attitude, Child, Chile, Cross-sectional Study, de Assis LCL, Female, Health Care Quality, Human, Meirelles BG, Nunes RML, Palliative Therapy, pediatric patient, Pediatrics, phylogenetic tree, Physician, Physician Attitude, Questionnaire, Rocha AA, Sadness, special situation for pharmacovigilance
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in Brazil
Tags: 2023, 2025 SE2 - LRS, Adult, Agulnik A, Antunes Geronutti Ayub D, Article, Baker JN, Beatriz Costa Neves Do Amaral A, Bereavement, Boldrini E, Brazil, Cancer Palliative Therapy, Child, Childhood Cancer, clinical assessment, Consultation, Cristina Cunha Ferreira EFonseca I, De Oliveira Junior A, Devidas M, emotional support, Esmeraldo Andrade De Almeida A, Female, Francisco Oliveira De Lima A, Friedrich P, Godfrey A, Grief, Health Care Access, health care need, Health Education, Health Survey, Home Care, Human, JCO Global Oncology, Job G, Loggetto P, Lopes Garcia J, Male, McNeil MJ, Medical Expert, Metzger ML, Pediatric Palliative Care, Pediatrics, physical activity, Physician, Physician Attitude, professional knowledge, Qualitative Analysis, Quality Of Life, Regina Costa Murra G, Spiritual Care, World Health Organization
Clinical and socio-demographic profile of children receiving pediatric palliative care in a tertiary hospital of a metropolitan city in India
Tags: 2024, 2025 SE2 - LRS, Adolescent, Article, Bisen P, Child, Child Preschool, Childhood Disease, Chronic Disease, Chronic Disease/th [Therapy], Confusion, Constipation, Controlled Study, Deodhar J, Diagnosis, Disability, Dysphagia, European Journal of Pediatrics, Fatigue, Female, fever, Holistic Care, Human, Humans, immunopathology, India/ep [Epidemiology], Infant, Infant Newborn, Major Clinical Study, Male, Malik S, Muckaden MA, Neuromuscular Disease, Observational Study, Palliative Care, Palliative Care/sn [Statistics & Numerical Data], Palliative Therapy, pediatric patient, Rathi S, Retrospective Studies, Sample Size, Seizure, Socioeconomic Factors, Talawadekar P, terminal disease, tertiary care center, Tertiary Care Centers, Tertiary Care Centers/sn [Statistics & Numerical Data], Therapy, Wade P
End-of-life care in neonatal intensive care units in Iberoamerica: A look from the nursing perspective
Tags: 2023, 2025 SE2 - LRS, Anales de Pediatría, Article, Cross-sectional Study, Follow Up, Grief, Human, Medical Record, Montes Bueno MT, Munoz C, Neonatal Intensive Care Unit, Newborn Death, Newborn Intensive Care, newborn nursing, Nurse, Perinatal Death, Privacy, Rodriguez S, social network, Sola A, Terminal Care
Cross-sectional study of the perceived well-being of children in palliative care
Tags: 2025, Adolescent, Adult, Anales de Pediatría, anxiety, Article, Bolance C, Camprodon-Rosanas E, catastrophizing, Child, Cognition, Cross-sectional Study, Depression, emotion regulation, Female, Guillen M, Human, Limonero JT, Major Clinical Study, Male, March List 2025, multiple linear regression analysis, Navarro Vilarrubi S, Palliative Therapy, problem behavior, psychologic assessment, Psychological care, rumination, special situation for pharmacovigilance, Toro-Perez D, Visual Analog Scale, Wellbeing
Biography Writing in the Pediatric Palliative Care Context: Review and Feasibility Data
Palliative Care Outcomes for Critically ill Children After Rapid Whole Genome Sequencing
Tags: 2024, acutely ill patient, Adolescent, Article, Beauchamp Walters J, Boulil Z, Child, Consultation, Controlled Study, Coufal NG, Critically Ill Patient, Diagnosis, Dimmock D, Doshi A, emergency visit, extubation, Female, Human, Infant, Intensive Care, Intubation, Journal of Intensive Care Medicine, Kaplan Meier method, Kingsmore S, Lee E, Major Clinical Study, Male, March List 2025, Medical Record Review, molecular diagnosis, molecular diagnostics, Newborn, outcome assessment, Palliative Therapy, pediatric intensive care nursing, Pediatric Intensive Care Unit, Perofsky K, Personalized medicine, Poisson regression, Retrospective Study, Therapy, whole genome sequencing
Developing a toolkit to support parents' involvement in child death review: an experience-based co-design study
Tags: 2024, Adult, Archives of Disease in Childhood, Article, Bereavement Support, Child, Child Death, Clinical Article, clinical trial registration, Female, Garstang JJ, Grief, Health Care Personnel, Hospital Admission, Human, Interview, Kenyon S, Male, March List 2025, Mortality, Palliative Therapy, Parent, Pease A, Pediatric Intensive Care Unit, Prevention, Routledge G, Semi Structured Interview, Shaw KL, social media, Spry J, Therapy, videorecording, workshop
A Rapid Review on Shared Decision Making in Pediatric Palliative Care and End-of-Life Care: Implications for Clinical Practice, Research, and Policy
Tags: 2024, Article, Child, Clinical Practice, Clinician, Cormack CL, Fisher B, Hagen KA, Haskamp AC, Human, Interpersonal Communication, Journal of Hospice and Palliative Nursing, Logan A, March List 2025, Medical Society, Palliative Therapy, Quality Of Life, rapid review, shared decision making, Systematic Review, Terminal Care
Virtual Support for Bereaved Parents: Acceptability, Feasibility, and Preliminary Efficacy of HOPE Group
Tags: 2024, Adult, Aged, Archer E, Article, Bereavement, Bereavement Support, Caregiver, Child, Child Death, Clinical Article, Drouin K, Female, Grief, Hayes A, Hildenbrand AK, Human, Journal of Palliative Medicine, Male, March List 2025, meaning-making, Middle Aged, Miller EG, Palliative Therapy, Parent, Quality Of Life, support group, Therapy
"Who Has the Relationship?": Caring for a Shared Population of Children with Medical Complexity
Tags: 2024, Adolescent, Adult, Article, Best Practice, care behavior, Caregiver, Child, DiDomizio PG, Drug Therapy, Female, Friedrich A, Human, Interview, Johnson M, Journal of Palliative Medicine, Male, March List 2025, Multicenter Study, Nurse Practitioner, Palliative Therapy, Pediatric Hospital, Pediatrics, Physician, Qualitative Analysis, Qualitative Research, Semi Structured Interview, Thematic Analysis, United States, University Hospital
Beyond treatment: Understanding family experiences in pediatric palliative care
Tags: 2024, Adolescent, Adult, Andres de Alvaro M, anxiety, Article, Burnout, care behavior, Caregiver, Caregiver Support, Child, Convenience Sample, CPAP device, Del Villar GP, Drug Therapy, Family, Garcia ML, Gene Expression, Health Care Personnel, Home Care, Human, Interpersonal Communication, Interview, lens (optics), Male, March List 2025, Mood, Palliative And Supportive Care, Palliative Therapy, Patient Care, Quality Of Life, Ramos PD, Semi Structured Interview, Tamayo-Morales O, Therapy
Exploring the experiences of children's palliative care for forced migrant families in the United Kingdom: an interpretative phenomenological study
Tags: 2024, alienation, Article, Bradbury-Jones C, Burnout, Child, Childhood Disease, Clancy M, Communication Barrier, Coping Strategy Questionnaire, Family, forced migrant, forced migration, Frontiers in Pediatrics, Grief, Health Care Personnel, Hospice Care, Human, interdisciplinary education, March List 2025, moral reasoning, Palliative Therapy, Personal Experience, Phenomenology, Phillimore J, Quality Of Life, refugee, Spiritual Care, Taylor J, United Kingdom
Advancing Advance Care Planning: Evaluating a Revised Version of Voicing My CHOiCES
Tags: 2024, Adolescent, Adult, Advance Care Planning, Article, Bedoya S, Child, Ciampa D, Female, Frediani J, Gordon M, Human, identifiable information, Journal of Palliative Medicine, Kasper K, Male, March List 2025, Moynihan L, Pao M, Quality Of Life, Ruble K, Structured Interview, Wiener L, Young Adult, Zabokrtsky K
Prevalence of pain in the last 2 weeks of life in hospitalized pediatric patients
Tags: 2024, Adolescent, Adult, Analgesia, Article, Bastidas-Legarda S, Child, Data Analysis Software, Female, Flores-Munoz MA, Gutierrez-Cortes C, Hernandez-Ramirez E, Hospital Patient, Hospitalization, Human, Infant, longitudinal study, Major Clinical Study, Male, March List 2025, Medical Practice, Newborn, Observational Study, Pain Assessment, Pain Intensity, Pain/ep [Epidemiology], Palliative Therapy, pediatric patient, Prevalence, Quality Of Life, Questionnaire, Retrospective Study, Revista Medica del Hospital General de Mexico, SPSS version 21, terminally Ill Patient
The effect of musical-animated toys and audiobooks on fear and pain in the tracheostomy care of children in the palliative care
Tags: 2024, Akay G, anxiety, Article, Artificial Ventilation, atelectasis, Attention, audiobook, Autism, behavior change, book, breathing rate, Bulut DK, Child, Clinical Trial, Controlled Study, Drug Therapy, Fear, Female, Hospitalization, Human, interrater reliability, intervention study, Kadiroglu T, Learning, Major Clinical Study, Male, March List 2025, mean corpuscular volume, Music Therapy, musical animated toy, musical instrument, Oncer A, oxygen saturation, Pain, Pain Assessment, Palliative Therapy, Patient Satisfaction, Post Hoc Analysis, procedural pain, pulse oximeter, pulse rate, Questionnaire, Revista da Associacao Medica Brasileira, sleep disorder, special situation for pharmacovigilance, systolic blood pressure, trachea stenosis, Tracheostomy, Tufekci FG, videorecording
"Death is Not a Dirty Word:" A Qualitative Study of Emergency Clinician End-of-Life Communication
Tags: 2024, Acute Disease, Article, Best Practice, Child, Clinical Article, Clinician, Communication Skill, Content Analysis, Controlled Study, Conversation, Coping, Diagnosis, Emergency Ward, Family Centered Care, Family Structure, family support, February List 2025, Female, Hinds PS, Human, Interpersonal Communication, Interview, knowledge gap, Kotler H, Male, Needs Assessment, Nurse, pediatric patient, Pediatrics, Physician, Qualitative Research, self-reflection, Semi Structured Interview, Wolfe AHJ
Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers
Tags: 2024, Adolescent, Adult, Article, Caregiver, Child, Clinical Article, cognitive behavioral therapy, Content Analysis, content validity, Disease Severity, Dyspnea, Emotion, emotional appraisal, enzyme replacement, Fatigue, February List 2025, Female, glycogen storage disease type 2, Hahn A, Hennermann JB, Home Care, Huemer M, Human, inborn error of metabolism, Lagler FB, Landolt MA, Life Expectancy, Male, MAXQDA software, Moslinger D, Multicenter Study, Muscle Weakness, musculoskeletal pain, Orphanet Journal Of Rare Diseases, Pain, Pain Intensity, Palliative Therapy, Perception, Pfrimmer C, psychosocial care, Qualitative Analysis, Qualitative Research, Quality Of Life, Questionnaire, Rohrbach M, School Child, Semi Structured Interview, Severity Of Illness Index, social exclusion, Social Support, sore throat, Truninger MI, Vomiting, Werner H, Young Adult