Browse Items (339 total)
- Tags: Article
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
The Use of Cannabinoids in Pediatric Palliative Care-A Retrospective Single-Center Analysis
Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J
Changing the Landscape of the Neighborhood: The Expanding Role of the Pediatric Palliative Advanced Practice Registered Nurse
Tags: 2024, Adolescent, April List 2024, Article, Bass AK, Child, Consensus, Emergency Care, evidence based practice, Human, Journal of Hospice and Palliative Nursing, Medical Society, neighborhood, Overstreet K, Palliative Therapy, pharmacology, registered nurse, Sartor N, special situation for pharmacovigilance
Social work practice in perinatal palliative care: an overview
Tags: 2024, Adult, April List 2024, Article, Bereavement, care behavior, collaborative care team, Female, Health Care Access, Human, Knowledge, Male, Palliative Care, Palliative Therapy, Quality Of Life, Santiago-Warner S, Social Justice, Social Work, Social Work in Health Care, Social Work Practice, Social Worker
End of life care for infants, children and young people with life-limiting conditions
Flourishing, religion, and burnout among caregivers working in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Article, Burnout, Caregiver, Child, Controlled Study, Convenience Sample, Coping, Cross-sectional Study, Doolittle BR, Dying, Female, Human, International Journal of Psychiatry in Medicine, Job Satisfaction, job stress, life satisfaction, Male, Multidisciplinary team, Oberholzer AE, Palliative Care, Palliative Therapy, Prevalence, Qualitative Analysis, Religion, South Africa, terminally Ill Patient, work environment
The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care
Tags: 2024, Adolescent, April List 2024, Article, Caregiver, Child, Clinical Article, clinical assessment tool, Clinical Practice, Clinics and Practice, Coping, Coping Strategy Questionnaire, Family, Female, grandchild, grandparent, Human, Male, Nogueira AJ, Palliative Care, Palliative Therapy, Portugal, psychologic assessment, Ribeiro MT, Semi Structured Interview, Sibling, Social Support
Psychometrics assessment of ethical decision-making around end-of-life care scale for adolescents in the final stage of life
Tags: 2023, Adolescent, April List 2024, Article, case control study, Child, confirmatory factor analysis, Cronbach alpha coefficient, Decision Making, Ethical Decision Making, exploratory factor analysis, Female, Frontiers in Pediatrics, Health Care Personnel, Hosseiny SMM, Human, Human Experiment, Internal Consistency, Iran, Khazaei S, Male, Masoumi SZ, Mohammadi F, nurse manager, Psychometrics, psychometry, Reliability, Terminal Care, Validity
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
How to move forward in shared decision-making in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Aris-Meijer JL, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Decision Making, Human, Infant, Joren CY, Lantos J, Palliative Care, Palliative Therapy, shared decision making, special situation for pharmacovigilance, Therapy, Verhagen AAE
Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment
Tags: 2024, Adult, April List 2024, Article, Beck AF, Child, Chronic Disease, Cohort Analysis, Controlled Study, Corley AMS, Cortezzo DE, economic inequality, Ethnicity, Female, Gestational Age, Hispanic, Human, Jones MN, Journal of Pediatrics, Major Clinical Study, Male, Medicaid, Morbidity, Mortality, Multidisciplinary team, Neurologic Examination, Only Child, Patient Referral, primary medical care, racial disparity, racism, Referral And Consultation, Retrospective Study, Simpson SL, Socioeconomic Factors, special situation for pharmacovigilance, tertiary care center, Thienprayoon R, Thomson J
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
The most painful estrangement: Death at birth
Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident
"We Want to Talk about Death, Dying and Grief and to Learn about End-of-Life Care"-Lessons Learned from a Multi-Center Mixed-Methods Study on Last Aid Courses for Kids and Teens
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Article, Australia, Awareness, Bollig G, Child, Children, Curriculum, Drexler D, Dying, Education, Europe, Graf K, Grief, Gruna H, Human, Interview, literacy, Male, Palliative Therapy, Pothmann R, Questionnaire, Terminal Care
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Tags: 2023, alternative medicine, Article, Bottigelli C, Burnout, Campione G, care behavior, Child, Child Psychology, Ciappina S, Clinical Practice, clinical psychology, Controlled Study, diastolic blood pressure, Emotional Stress, Fagioli F, Health Care Personnel, Heart Rate, Human, Italy, Lijoi S, March List 2024, Nurse, oxygen saturation, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Parrinello A, Pilot Projects, Pilot Study, Piu P, Psychologist, Quarello P, Reiki, Self Care, special situation for pharmacovigilance, systolic blood pressure, work environment, Workplace, Zucchetti G
Evaluation of paediatric palliative care ambulance plans: A retrospective study
Tags: 2024, ambulance, Article, Australia, Child, Coombs S, data completeness, Drug Therapy, Drug Use, Human, Jaaniste T, Journal Of Child Health Care, Male, March List 2024, New South Wales, Palliative Care, Palliative Therapy, paramedical personnel, Retrospective Studies, Retrospective Study, Scope Of Practice, Shepherd E, special situation for pharmacovigilance, Terminal Care, Trethewie S, Vaughan A, Wan J
Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia
Tags: 2023, Article, Australia, Bmj Open, care behavior, Child, courage, Decision Making, Gillam L, Human, Hynson J, Interpersonal Communication, Interview, Male, March List 2024, O'Neill J, Palliative Therapy, Parent, Pediatrician, Phenomenology, shared decision making, Signal Transduction, Simulation, Vemuri S, Williams K
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
Parents' experiences of palliative care decision-making in neonatal intensive care units: An interpretative phenomenological analysis
Tags: 2024, Acta Paediatrica, ambivalence, Article, Clinical Article, Decision Making, Father, Female, Human, Infant Newborn, Intensive Care Units, Interview, Lamore K, Life Sustaining Treatment, Male, March List 2024, meaning-making, Medical Ethics, Mur S, Nandrino JL, Neonatal Intensive Care Unit, Newborn Intensive Care, Palliative Therapy, Parent, Prieur C, Qualitative Research, Rethore S, SaintDenny K, shared decision making, Storme L
The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K
Palliative Care in the Neonatal Intensive Care Unit: An Evolutionary Concept Analysis of Uncertainty in Anticipated Loss
Tags: 2024, Advances in Neonatal Care, Article, Complication, Concept analysis, Confusion, Diagnosis, Dick T, Drug Administration, Dudding KM, Fazeli PL, Genetic Disorder, genetic screening, Human, Infant, Infant Newborn, Lenington K, March List 2024, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Nurse, Palliative Care, Palliative Therapy, Patrician P, Prognosis, Uncertainty
Thirty-day mortality as a metric for palliative radiotherapy in pediatric patients
Tags: 2023, Adult, Article, biological marker, Child, Current Opinion in Supportive and Palliative Care, Female, Human, Johnstone PAS, Keit E, Male, March List 2024, Metronidazole, Mortality, Nanda R, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, Quality Of Life, Radiotherapy, terminally Ill Patient
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Judge rules that baby should be removed from ventilator and given palliative care
Whispers in the waiting room
Training perinatal nurses in palliative communication by using scenario-based simulation: A quasi-experimental study
Tags: 2024, Article, Chen HW, Cheng SF, Chuang YH, Communication Skill, continuing education, Controlled Study, Delivery Room, experimental design, Female, Health Care Personnel, Hsiung Y, Human, Intensive Care Unit, Interpersonal Communication, Kuo CL, Learning, Liu TY, March List 2024, Newborn, Nurse, Nurse Education In Practice, Palliative Therapy, Purposive Sample, quasi experimental study, registered nurse, Simulation, structured questionnaire, Taiwan, Teaching, terminal disease, Therapy, Training
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY
Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M
Palliative care for children: methodology for the development of a national clinical practice guideline
Tags: 2023, Advance Care Planning, Article, Bereavement, BMC Palliative Care, Borggreve BCM, Child, Drug Administration, evidence based medicine, February List 2024, Human, Kremer LCM, Methodology, Michiels EMC, Mulder RL, Palliative Therapy, Practice Guideline, psychosocial care, Qualitative Research, Randomized Controlled Trial, Rippen H, shared decision making, special situation for pharmacovigilance, Systematic Review, Therapy, van Teunenbroek KC, Verhagen AAE, Verheijden JMA
Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives
Tags: 2023, Adolescent, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Cross-sectional Study, Disease Management, Drug Therapy, European Journal of Pediatrics, February List 2024, Female, Guillen M, Human, Limonero JT, Male, nonparametric test, Palliative Therapy, Parent, Perception, psychologic assessment, Quality Of Life, sociodemographics, special situation for pharmacovigilance, Toro-Perez D, Vilarrubi SN, Voice
Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Tags: 2023, Adolescent, Article, Bereavement Support, BMC Palliative Care, Canada, Child, Chronic Disease, Controlled Study, Coping Behavior, coronavirus disease 2019, family support, February List 2024, Female, Health Care Access, health care facility, Health Care Policy, Health Service, Health Status, Human, Infant, Infection Control, Interview, Male, Nicholas DB, Palliative Therapy, Pandemic, Parental Attitude, Personal Experience, physical activity, Public Health, Qualitative Research, Rapoport A, Risk Assessment, Social Support, Terminal Care, Zulla RT
Palliative Care in Children with Inherited Metabolic Diseases: Why does it matter?
Tags: 2023, Article, Bereavement Support, Cancelinha C, Child, Cohort Analysis, communication disorder, Diogo L, drug combination, Emergency Ward, emotional support, Endocrine, Metabolic and Immune Disorders - Drug Targets, enteric feeding, February List 2024, Female, Ferreira S, Follow Up, Grilo E, Home Care, Hospital Admission, Hospitalization, Human, Intensive Care, Male, medical device, Metabolic Disorder, motor dysfunction, Neurologic Disease, Nogueira A, Noninvasive Ventilation, Palliative Therapy, Patient Referral, Pereira MJ, Place Of Death, respiratory equipment, Retrospective Study, School Child, Symptom Assessment
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
A psychological experience assessment protocol of parent caregivers in paediatric palliative care
Tags: 2023, Adult, Annals Of Medicine, Article, Caregiver, Child, Clinical Article, Coping Behavior, Coping Strategy Questionnaire, February List 2024, Human, Nogueira AJ, Palliative Therapy, Parent, Portugal, psychologic assessment, Questionnaire, Ribeiro MT, Semi Structured Interview, Social Support, Therapy, United Kingdom, VULNERABILITY
Implementing Palliative care, based on family-centered care, in a highly complex neonatal unit
Tags: 2023, Article, Blanco DE, Camprubi CM, Cause Of Death, Child, Clotet CJ, Congenital Malformation, Controlled Study, February List 2024, Female, Human, intimacy, Jornal De Pediatria, Major Clinical Study, Male, Morillo PA, Mortality, Neonatal Intensive Care Unit, Newborn Death, Observational Study, Palliative Therapy, Prognosis, Retrospective Study, Riverola de Veciana A, Silla GJ, Terminal Care, Transitional Care