Browse Items (23 total)
- Tags: Pilot Study
Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning
Tags: 2024, Adolescent, Adult, Advance Care Planning, Bernacki RE, Cohort Analysis, Critical Illness, DeCourcey DD, Feasibility Study, Female, Human, Human Relation, Interpersonal Communication, JAMA Network Open, Lach S, Male, Nava-Coulter B, Parent, Pediatrics, Pilot Study, Procedures, Psychology, September List 2024, Therapy, Wolfe J, Xiong N, Young Adult
Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Tags: 2024, Adolescent, Adult, Advance Care Planning, Aged, anxiety, Aoun S, Article, Beck Anxiety Inventory, Brodie N, care behavior, Caregiver, Caregiver Burden, Child, Clark H, Controlled Study, Detwiler K, Diagnosis, Distress Syndrome, Female, Follow Up, Fraser JL, Functional Assessment of Chronic Illness Therapy, Guerrera MF, Health Care Utilization, household income, Human, intention to treat analysis, July List 2024, Lyon ME, Major Clinical Study, Male, Needs Assessment, Pediatrics, Pilot Study, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, Single Blind Procedure, Therapy, Thompkins JD, Torres C, Trujillo Rivera EA, Younge T
Bereavement Needs Assessment of a Growing Pediatric Palliative Care Program
Tags: 2024, Adolescent, Adult, Autrey AK, Bereavement, Bereavement Support, Caregiver, Caucasian, Cause Of Death, Child, Collette J, conference abstract, Controlled Study, Cross-sectional Study, Female, Grief, Hispanic, Human, James C, Journal of Pain and Symptom Management, June List 2024, leisure, married person, Needs Assessment, Palliative Therapy, Personal Experience, Pilot Study, Sample Size, Social Support, support group, time of death, Total Quality Management, Vaden A
The Alluring, Enduring, and Troubling Concept of a "Good Death" in Pediatric Palliative Care
Tags: 2024, Adult, Awareness, Bereavement, Broden EG, Child, Child Death, Clinician, conference abstract, Decision Making, Distress Syndrome, Ethical dilemma, Grief, Human, Journal of Pain and Symptom Management, June List 2024, McCarthy S, Palliative Therapy, Personal Experience, Pilot Study, Religion, Snaman JM, Terminal Care
A Prospective Pilot Study of Longitudinal Parent Anxiety Screening: Implications for Data-Driven Palliative Care
Tags: 2024, Adult, anxiety, Bemis H, Caregiver, Caucasian, Child, conference abstract, Controlled Study, Decision Making, Diagnosis, Distress Syndrome, Female, Hispanic, Human, Journal of Pain and Symptom Management, June List 2024, Klein M, Lotstein D, Major Clinical Study, Male, Palliative Therapy, Parent, Patient Referral, patient triage, Pilot Study, Practice Guideline, preliminary data, Ritter MD, Screening, Self Report, Spaniard, supportive care need, Treatment Outcome
Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Tags: 2023, alternative medicine, Article, Bottigelli C, Burnout, Campione G, care behavior, Child, Child Psychology, Ciappina S, Clinical Practice, clinical psychology, Controlled Study, diastolic blood pressure, Emotional Stress, Fagioli F, Health Care Personnel, Heart Rate, Human, Italy, Lijoi S, March List 2024, Nurse, oxygen saturation, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Parrinello A, Pilot Projects, Pilot Study, Piu P, Psychologist, Quarello P, Reiki, Self Care, special situation for pharmacovigilance, systolic blood pressure, work environment, Workplace, Zucchetti G
Implementation of an Innovative Palliative Care Screening Tool in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2023, Article, Child, Chronic Disease, Comorbidity, Congenital Malformation, Controlled Study, Deeter DM, Eckman ST, Even KM, February List 2024, Female, Freeman MC, Hodge CH, Human, Intensive Care, Journal of Palliative Medicine, Kerris EW, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pilot Study, Prospective Study, tertiary health care
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation
Tags: 2023, Adolescent, Article, Artificial Ventilation, August List 2025, Boss RD, Child, Cohort Analysis, Content Analysis, Counseling, Decision Making, Ding Y, Female, Henderson CM, home ventilation, Human, Intensive Care Unit, Jabre NA, Lanier CL, Length Of Stay, Male, McDermott A, Mercer A, Palliative Therapy, PEC Innovation, pediatric patient, Pilot Study, Quality Of Life, Question Prompt List, respiratory failure, Semi Structured Interview, Shepard J, Tracheostomy, Ventilators, Mechanical, Vo HH, Wilfond BS
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
Tags: 2023, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Controlled Study, Cross-sectional Study, Demography, Emotion, emotional well-being, Female, Guillen M, health practitioner, Human, Limonero JT, Male, May List 2023, Navarro Vilarrubi S, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Perception, Pilot Projects, Pilot Study, psychologic assessment, School Child, Toro-Perez D, vision, Visual Analog Scale, Wellbeing
Use of the interRAI PEDS HC in Children Receiving Home Care in Ontario, Canada
Massage therapy for symptom reduction and improved quality of life in children with cancer in palliative care: A pilot study
Tags: 2020, Adolescent, Article, Carcinoma, Child, Clinical Article, Complementary Therapies in Medicine, Controlled Study, Expectation, Female, Follow Up, Genik L M, Human, Leukemia, Lymphoma, Male, Marshall S, Massage, McMurtry C M, Oncology 2020 List, Pain, Pain Measurement, Palliative Therapy, patient worry, Pilot Study, Quality Of Life, Quantitative Study, Rapoport A, Sarcoma, Stinson J
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
Feasibility and Acceptability of Recruiting Very Young Hospitalized Children Receiving Palliative Care to an Integrative Therapy Study (S743)
Tags: 2020, Adolescent, Allmendinger-Goertz K, Child, conference abstract, Controlled Study, Critically Ill Patient, Feasibility Study, Female, Follow Up, Foster Care, Friebert S, Hospitalized Child, Human, Ibach M, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Pilot Study, Reiki, Shaner V, Thrane S
The Incidence and Evolution of Parkinsonian Rigidity in Rett Syndrome: A Pilot Study
Tags: 2016, 5 hydroxyindoleacetic acid, Adolescent, Adult, Age, ankle, Article, Barrowman N, Canadian Journal of Neurological Sciences, Cerebrospinal Fluid, characteristics, Child, Cohort Analysis, Cross-sectional Study, Disease Severity, Dopamine, Dystonia, Female, genetic susceptibility, homovanillic acid, homovanillic acid/ec [Endogenous Compound], Human, Humphreys P, hva, Incidence, Major Clinical Study, mecp2, methyl CpG binding protein 2, methyl CpG binding protein 2/ec [Endogenous Compound], missense mutation, mobilization, muscle rigidity, muscle tone, musculoskeletal disease assessment, neck, parkinsonism, Pharmacokinetics, Pilot Study, Priority Journal, Prospective Study, Quantitative Study, Rett syndrome, Rett syndrome rigidity distribution score, rigidity, scoring system, Speech, tone and motor problems, Trajectory, walking difficulty
Use of time in people with a life-limiting illness: A longitudinal cohort feasibility pilot study
Tags: 2019, accelerometry, acceptability, Adult, Article, Australia, burden, Caregiver, Child, Clinical Article, Cohort Analysis, cohort study, Controlled Study, Currow D C, European Quality of Life 5 Dimensions Questionnaire, Feasibility, Feasibility Study, Female, Human, Jones T A, Karnofsky Performance Status, Male, multimedia, numeric rating scale, October 2019 List, Olds T S, Outpatient, Palliative Care, Palliative Medicine, Palliative Therapy, Pilot Study, Quality Of Life, Recall, time-use, Williams M T
Challenges in Pediatric Advance Care Discussions Between Health Care Professionals and Parents of Children with a Life-Limiting Condition: A Qualitative Pilot Study
Tags: 2018, Advance Care Planning, Borasio GD, Child, Clinical Article, conference abstract, Conversation, Daxer M, Death, February 2019 List, Female, Fuehrer M, Germany, Hein K, Heitkamp N, Human, Journal of Pain and Symptom Management, Jox R, Knochel K, Male, Monz A, Morality, Palliative Therapy, Pilot Study, Semi Structured Interview, shared decision making
Barriers and facilitators to the implementation of a paediatric palliative care team
Tags: 2018, April 2018 List, Article, Awareness, BMC Palliative Care, Child, concrete, Expectation, Female, Grootenhuis MA, Health Care Personnel, Human, Human Experiment, Kars MC, Major Clinical Study, Male, Only Child, Palliative Care, Palliative Therapy, Patient Satisfaction, Pediatrics, Pilot Projects, Pilot Study, Schepers SA, Schouten-Van Meeteren AYN, tertiary health care, van Delden JJM, Verberne LM
Advanced care planning in cystic fibrosis
Tags: 2017, 7782-44-7 (oxygen), Altstein L, Bach K, chest tube, Child, Clinical Article, Comfort, Cystic Fibrosis, durable power of attorney, Female, Forced Expiratory Volume, Friedman D, Georgiopoulos A, hemoptysis, Hospitalization, Human, Islam S, January 2018 List, Lifespan, Linnemann RW, living will, Male, Moskowitz SM, Outpatient, oxygen, Palliative Therapy, Pediatric Pulmonology, Pilot Study, pneumothorax, Practice Guideline, School Child, St John A, thinking, Yonker LM
Assessing the quality of bereavement care after perinatal death: development and piloting of a questionnaire to assess parents' experiences
Training Pediatric Fellows In Palliative Care: A Comparison Of Simulation-based Training And Didactic Education
Tags: 2017, Brock K, Cardiology, Child, Clinical Trial, Cohen H, Comfort, Communication Skill, Controlled Clinical Trial, Controlled Study, Curriculum, Family, Female, Good J, Halamek L, Hematology, Human, Human Versus Animal Comparison, Male, Medical Education, Neonatology, Nonhuman, October 2017 List, Oncology, Palliative Therapy, Pediatric Blood and Cancer, Physician, Pilot Study, Resuscitation, Simulation, Single Blind Procedure, Sourkes B
Community-based Pediatric Palliative Care For Health Related Quality Of Life, Hospital Utilization And Costs Lessons Learned From A Pilot Study
Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care…
Tags: 2016, August 2016 List, BMC Palliative Care, Chronic Disease, Cost-effectiveness, Generic Core Scales, Health Care Sciences & Services, Health Policy & Services, Health Related Quality Of Life, Home, Hospital Utilization, Illness, Impact, J Goldhagen, Medical Complexity, Pediatric Palliative Care, Pedsql(tm), Pilot Study, Reliability, United States, Validity, Vulnerable Children