Browse Items (51 total)
- Tags: Caregiver
The Photographs of Meaning Program for Pediatric Palliative Caregivers and Its Impact on Meaning, Well-Being, and Perceived Social Support
The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review
Parental Posttraumatic Growth After Pediatric Hematopoietic Stem Cell Transplant
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Pediatric oncology nursing research in low- and middle-income countries
Tags: 2020, Afungchwi G M, Alqudimat M R, alternative medicine, Burkitt lymphoma, cancer incidence, Cancer Survival, Caregiver, Caregiver Burden, caregiver burnout, Challinor J M, Cytotoxicity, Day S W, Developing World 2020 List, economic status, Fatigue, geographic distribution, gross national income, Health Care Personnel, high income country, Human, immune status, Impact of Events Scale, Infant Mortality, Kaposi sarcoma, lifestyle, low income country, malnutrition, Methodology, middle income country, nurse training, Nursing Care, Nursing Practice, nursing science, Nutrition, Pain, Palliative Therapy, Pediatric Oncology, pediatric oncology nursing, PostTraumatic Stress Disorder, Priority Journal, Quality Of Life, risk factor, Sepsis, Southeast Asian, Southern Europe, Stress, traditional medicine, treatment response
Expectations and knowledge of cannabidiol therapy for childhood epilepsy — A German caregiver survey
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: A cross-sectional study of caregiver-reported outcomes
Engaging Fathers in Pediatric Palliative Care Research
Tags: 2020, Article, Barrera M, Beaune L, Belletrutti M, Blumberg J, Caregiver, Child, Child Health, Controlled Study, Father, Health Care Personnel, Human, Ing S, Interview, Journal of social work in end of life & palliative care., Male, March 2020 List, Nicholas D, Palliative Therapy, Pediatrics, Perception, Qualitative Research, Rapoport A, Wellbeing
Legacy Artwork in Pediatric Oncology: The Impact on Bereaved Caregivers' Psychological Functioning and Grief
Tags: 2019, Adolescent, Adult, Article, Barnett M, Bereavement, Brief Symptom Inventory, Caregiver, Child, Childhood Cancer, Clinical Article, Complicated Grief, Controlled Study, Female, Grief, Health Care Personnel, Human, Infant, Journal of Palliative Medicine, Madan-Swain A, Male, mental function, Oncology 2019 List, Perception, prolonged grief, Questionnaire, Reynolds N C, Schaefer M R, Spencer S K, support group, time of death
A simple system for symptom assessment in pediatric palliative care patients with cancer: A preliminary report
Tags: 2018, Anorexia, Bruera E, Caregiver, Charone M, Child, conference abstract, Controlled Study, Dibaj S, Fatigue, Female, Health Care Quality, Human, insomnia, Irritability, Journal of Clinical Oncology. Conference, Liu D, Loss Of Appetite, Madden K, Major Clinical Study, Male, Malignant Neoplasm, Mills S, nervousness, Oncology 2019 List, Pain, Palliative Therapy, Symptom Assessment, Williams J L
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines
Tags: 2019, Awareness, behavior change, Cajucom L A N, care behavior, Caregiver, Child, Childhood Cancer, conference abstract, Controlled Study, Counseling, Developing World 2019 List, financial management, Fuentes R K T, Garcia P G, Health Care Delivery, Health Care Personnel, health care planning, Human, Interview, JNCCN Journal of the National Comprehensive Cancer Network, long term survival, Manago R K B, Needs Assessment, Nutrition, Oruga M D P, Palliative Therapy, Philippines, psychosocial care, Ramos R C, Ridulme Q R, travel, Vinas M J G
Perceptible end-of-life signs in PICU, a prospective study
Tags: 2019, Annals of Intensive Care, Artificial Ventilation, bradycardia, Brain Death, Caregiver, Cause Of Death, Child, Chronic Disease, Clinical Article, conference abstract, cyanosis, Drug Withdrawal, edema, February 2020 List, Human, Hypotension, Le Bourgeois F, Male, Naudin J, Neurologic Disease, pallor, Pediatric Intensive Care Unit, petechia, Pierron C, Poncelet G, Prospective Study, respiratory failure, skin color, Sommet J, time of death
Increasing accurate palliative care consultation in the NICU
Tags: 2018, Caregiver, Child, conference abstract, Controlled Study, February 2020 List, Human, Humphrey L, International Classification of Diseases, Length Of Stay, mortality risk, Newborn, Nurse Practitioner, outcome assessment, Palliative Therapy, Patient Referral, Pediatrics, Satisfaction, Schlegel A, staff training, Total Quality Management
Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: A qualitative interview study
Dysphagia in Rett Syndrome: A Descriptive Study
Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory
Autonomic breathing abnormalities in Rett syndrome: Caregiver perspectives in an international database study
Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
The Experience of Pediatric Palliative Caregiving: A Qualitative Analysis From the Photographs of Meaning Program
Tags: 2019, Article, Beaupin LK, care behavior, Caregiver, Child, Curriculum, December 2019 List, Depner RM, Female, Grant PC, Human, Human Experiment, Levy K, Male, meaning making, Narrative, Pailler ME, Palliative Therapy, Pediatrics, Photography, Qualitative Analysis, Qualitative Research, social media, Tenzek KE, The American Journal of Hospice & Palliative Care
The experiences of bereaved family caregivers with advance care planning for children with medical complexity
Tags: 2019, Advance Care Planning, Amin R, Caregiver, Child, Clinical Article, Cohen E, conference abstract, Consultation, Content Analysis, Conversation, Death, Female, genetic transcription, Health Care Personnel, Hellman J, Human, Human Tissue, Informed Consent, Lord S, Male, Moore C, Netten K, October 2019 List, Orkin J, Paediatrics and Child Health (Canada), Perception, Personal Experience, Rappaport A, Semi Structured Interview
Use of time in people with a life-limiting illness: A longitudinal cohort feasibility pilot study
Tags: 2019, accelerometry, acceptability, Adult, Article, Australia, burden, Caregiver, Child, Clinical Article, Cohort Analysis, cohort study, Controlled Study, Currow D C, European Quality of Life 5 Dimensions Questionnaire, Feasibility, Feasibility Study, Female, Human, Jones T A, Karnofsky Performance Status, Male, multimedia, numeric rating scale, October 2019 List, Olds T S, Outpatient, Palliative Care, Palliative Medicine, Palliative Therapy, Pilot Study, Quality Of Life, Recall, time-use, Williams M T
The agony of the child with complexity: Exploring the psychological impact on parents caring for children with complex healthcare needs
Tags: 2019, Archives of Disease in Childhood, Bradbury M, Caregiver, Child, conference abstract, Crothers E, Depression, disease exacerbation, Female, health care need, Human, Ireland, Lewis S, Male, medical leave, Medline, Mental Stress, meta analysis, Murphy A M, North America, O'Gorman C, October 2019 List, Parental Stress, Prevention, Psychological Well-being, publication, Qualitative Research, Sample Size, Social Isolation, Social Support, Systematic Review
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric study
Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease
Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care
Tags: 2019, Adolescence, Adolescent, Adult, Article, Attitude To Health, August 2019 List, Brown D E, Caregiver, Carney S D, Clinical Article, Communication, Cystic Fibrosis, Dellon E P, Female, Hailey C E, Health Care Personnel, Health Education, Helms S W, Human, lung fibrosis, Male, Palliative Care, Palliative Therapy, Parent, Patient Education, Pediatric Pulmonology, Perception, Prieur M G, Priority Journal, Qualitative Analysis, Schmidt H J, Semi Structured Interview, Shay R
"You can only give warmth to your baby when it's too late": Parental bonding with their extremely preterm and dying child
Tags: 2017, Abraham A, biological product, Caregiver, Child, conference abstract, Controlled Study, Death, Delivery Room, Heat, Hendriks M J, Human, Infant, June 2019 List, Neonatal Intensive Care Unit, parenthood, Prematurity, Semi Structured Interview, Swiss Medical Weekly, Uncertainty, University Hospital
Researching children's perspectives in pediatric palliative care: A systematic review and meta-summary of qualitative research
Tags: 2019, Adolescent, Adult, Article, Artioli G, Busani E, Caldarelli V, Caregiver, Child, children's voice, Cinahl, Di Marco V, Female, Ghirotto L, Human, Language, Life, Male, May 2019 List, Medline, Meta-summary, Neoplasm, Pain, Palliative & Supportive Care, Palliative Therapy, Pediatric Palliative Care, pediatric patient, Psycinfo, publication, Qualitative Research, Salvati M, Systematic Review, Voice
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Care with love: Parents' experiences in caring their child with cancer under palliative care
Tags: 2018, Allenidekania A, Caregiver, Child, Clinical Article, conference abstract, daily life activity, Data Analysis, Fatigue, Fear, Female, Human, Interview, jealousy, Male, Malignant Neoplasm, Nafratilova M, Nurse, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, Phenomenology, primary medical care, Sibling, Uncertainty, Wanda D
Development and delivery of a one-stop multidisciplinary clinic to provide comprehensive palliative and supportive care for children with cancer
Tags: 2018, Ambulatory Care, Anis H, antibiotic agent, Arora R, Bagai P, Cancer Patient, Caregiver, Child, Chuki T, conference abstract, Crack L, dietitian, doctor nurse relation, Drug Therapy, Education, Female, financial management, Holistic Care, Hospital Patient, Human, Major Clinical Study, Male, Malignant Neoplasm, Multidisciplinary team, nutritional counseling, Oncology 2018 List, Outpatient, Pain, Palliative Therapy, patient coding, Pediatric Blood and Cancer, physiotherapist, Physiotherapy, Psychologist, Social Support, Taluja A, Terminal Care, wound
The Impact of Music Therapy in Paediatric Palliative Care in Residential Hospice
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Tags: 2018, Article, Bally JMG, Basic Needs, Caregiver, Child, Consensus, Delphi Study, Diagnosis, Family Nursing, Feasibility Study, February 2019 List, Female, Hodgson-Viden H, Holtslander L, Human, Human Experiment, Journal for specialists in pediatric nursing : JSPN, Major Clinical Study, Male, Mpofu C, Nurse, Peacock S, Pediatrics, Physician, Self Care, Smith NR, Social Worker, Spurr S, theoretical study, Zimmer M
Spirituality among parents of children with cancer at AUBMC
Tags: 2016, cancer center, Cancer Nursing, Caregiver, Child, Childhood Cancer, Clinical Article, conference abstract, Developing World 2018 List, Doumit MA, Fear, Female, genetic transcription, Health Care Personnel, Human, Lebanon, Majdalani M, Male, Palliative Therapy, Powerlessness, Rahi A, Religion, Saab R, Semi Structured Interview, social needs, Spiritual Care
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Tags: 2018, Adult, Advance Care Planning, Awareness, Basile M, Caregiver, Chen E, Child, clinical assessment, conference abstract, Controlled Study, December 2018 List, Dellon EP, depression assessment, Education, Faro A, Female, Georgiopoulos A, Goggin JL, Goss CH, Hempstead SE, Hobler M R, Hospice, Human, Kavalieratos D, Kruskal Wallis test, lung, Major Clinical Study, Male, Pain Assessment, Palliative Therapy, Pediatric Pulmonology, Perception, Prognosis, Skill
Mindful Movement: Tai Chi, Gentle Yoga, and Qi Gong for Hospitalized Pediatric Palliative Care Patients and Family Members
Tags: 2018, adverse outcome, Caregiver, Child, Hospital Patient, Human, Intensive Care Unit, Journal of Palliative Medicine, Letter, mindfulness, movement therapy, November 2018 List, occupational therapist, Palliative Therapy, Parry SM, pediatric patient, qigong, Quality Of Life, Staenberg B, Tai Chi, Weaver MS, Yoga
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH