Browse Items (36 total)
- Tags: Distress Syndrome
What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature
Tags: 2023, 2025 SE1 - Oncology, administrative health data, Adolescent, Adult, Analgesia, Anticipation, Body Image, cancer center, Cancer Chemotherapy, Cancer Diagnosis, Cancer Palliative Therapy, Cancer Patient, Cancer Prognosis, cancer radiotherapy, Cancer Therapy, Checklist, Childhood Cancer, Chinese Version of the Medical Coping Mode Questionnaire, clinical assessment, clinical evaluation, Condren C, Coping, Data Base, data extraction, Demographics, Depression, Depression Anxiety and Stress Scale-21, developmental stage, Disease Burden, Disease Severity, Distress Syndrome, Dying, Edmonton Classification System of Cancer Pain, emotional support, Fatigue, Female, financial management, Follow Up, Gender Identity, Guerin S, Health Care, Health Personnel Attitude, Hematologic Malignancy, Hospital Anxiety and Depression Scale, Human, illness trajectory, Journal Of Adolescent And Young Adult Oncology, Looney K, Male, malignant neoplasm/rt [Radiotherapy], Mental Health, mood change, Neylon K, occupation, Oncology, Patient Autonomy, Patient Referral, patient-reported outcome, Pediatric Quality of Life Inventory, Personal Experience, Population, Prevalence, program appropriateness, Prospective Study, Psycho-Oncology, psychological aspect, psychosocial care, Psychosocial Intervention, Qualitative Analysis, Qualitative Research, quantitative analysis, Questionnaire, Review, Self Report, Semi Structured Interview, sexual health, Short Form 12, Side Effect, social needs, Social Support, Social Support Rating Scale, Social Worker, solid tumor, Study Design, Symptom, Systematic Review, Terminal Care, Thematic Analysis, unmet medical need, Western Australia, workshop, Young Adult
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes
Tags: 2023, 2025 SE1 - Oncology, Adolescent, Advance Care Planning, Article, Benchmarking, Bogetz JF, Child, Chromosome Disorder, Clinician, Consultation, Diagnosis, Distress Syndrome, Dyspnea, Fatigue, Friedrichsdorf SJ, Hospital Pediatrics, Hospitalization, Human, Length Of Stay, Male, O'Riordan DL, Pain, Palliative Therapy, Pantilat SZ, Patient Referral, Postier AC, psychosocial care, Purser L, Root MC, solid tumor, Total Quality Management, Treatment Outcome
Utilization of a prenatal palliative care consultation pathway for congenital heart disease
Tags: 2024, Cardiology In The Young, conference abstract, congenital disorder, Congenital Heart Disease, Consultation, Diagnosis, Distress Syndrome, Emotional Stress, February List 2025, Fetus, Gandhi R, heart disease, Human, Infant, Mikal M, Newborn, Palliative Therapy, Patient Referral, Retrospective Study, Spiritual Care, Walsh S
Everyday Ethics or Deference to Expertise: Experiences of Pediatric Palliative Care Teams with Ethics Consultancy
Tags: 2024, Article, Certification, Child, Child Health Care, Clinician, Controlled Study, Decision Making, Distress Syndrome, Education, Ethics, Foxwell AM, Hospice, Human, Interpersonal Communication, Journal of Palliative Medicine, Male, Palliative Therapy, Physician, September List 2024, Ulrich CM, United States, Walter JK, Weaver MS
Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Tags: 2024, Adolescent, Adult, Advance Care Planning, Aged, anxiety, Aoun S, Article, Beck Anxiety Inventory, Brodie N, care behavior, Caregiver, Caregiver Burden, Child, Clark H, Controlled Study, Detwiler K, Diagnosis, Distress Syndrome, Female, Follow Up, Fraser JL, Functional Assessment of Chronic Illness Therapy, Guerrera MF, Health Care Utilization, household income, Human, intention to treat analysis, July List 2024, Lyon ME, Major Clinical Study, Male, Needs Assessment, Pediatrics, Pilot Study, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, Single Blind Procedure, Therapy, Thompkins JD, Torres C, Trujillo Rivera EA, Younge T
"Somebody Hug the Interpreter": Enhancing Pediatric Palliative Care Partnership with Medical Interpreters
Tags: 2024, Child, Clinical Practice, Clinician, collaborative care team, conference abstract, Distress Syndrome, diversity equity and inclusion, Frechette EM, health disparity, health literacy, hospital planning, Human, Journal of Pain and Symptom Management, June List 2024, medical interpreter, Palliative Therapy, Patient Care, Personal Experience, Porter AS, professionalism, Snaman JM, Speech, structural racism, Teamwork, video interview, videorecording, Wise AF
Not Just Small Adults: The Birth and Early Years of a Pediatric Hospice Program
Tags: 2024, Adolescent, Adult, case manager, Child, conference abstract, Distress Syndrome, Female, Hospice, Hospice Care, Human, Infant, Journal of Pain and Symptom Management, June List 2024, MacDonell-Yilmaz RE, Male, obstetric delivery, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, professionalism, Ritzau J, special situation for pharmacovigilance, Teamwork, Terminal Care, terminally Ill Patient, United States
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
Has Pediatric Palliative Care Become Too Deferential? A Challenge To and For the Field
Tags: 2024, Advance Care Planning, Caregiver, Child, conference abstract, Controlled Study, Coping, Distress Syndrome, Drug Administration, Family Centered Care, Fatigue, Health Care Personnel, Human, Humphrey LH, Jacobowski N, Journal of Pain and Symptom Management, June List 2024, Medical Specialist, Palliative Therapy, professionalism, psychiatrist, psychological defense, Psychologist, Self Report, shared decision making, Teamwork, Truba NP, vignette
The Alluring, Enduring, and Troubling Concept of a "Good Death" in Pediatric Palliative Care
Tags: 2024, Adult, Awareness, Bereavement, Broden EG, Child, Child Death, Clinician, conference abstract, Decision Making, Distress Syndrome, Ethical dilemma, Grief, Human, Journal of Pain and Symptom Management, June List 2024, McCarthy S, Palliative Therapy, Personal Experience, Pilot Study, Religion, Snaman JM, Terminal Care
A Prospective Pilot Study of Longitudinal Parent Anxiety Screening: Implications for Data-Driven Palliative Care
Tags: 2024, Adult, anxiety, Bemis H, Caregiver, Caucasian, Child, conference abstract, Controlled Study, Decision Making, Diagnosis, Distress Syndrome, Female, Hispanic, Human, Journal of Pain and Symptom Management, June List 2024, Klein M, Lotstein D, Major Clinical Study, Male, Palliative Therapy, Parent, Patient Referral, patient triage, Pilot Study, Practice Guideline, preliminary data, Ritter MD, Screening, Self Report, Spaniard, supportive care need, Treatment Outcome
Exploring the Palliative Care Needs of Children in Refugee Settlements in Uganda
Tags: 2023, 2023 SE5 - Low Resource Setting, Adult, Bagasha P, Child, Chronic Disease, conference abstract, Data Analysis, Distress Syndrome, Downing J, Grant L, Howarth K, Human, Ikong H, Leng M, Maku S, McGeough K, mentor, Nabirye L, Nalutaaya F, Namukwaya E, Needs Assessment, Only Child, Opia V, Oziti G, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, refugee camp, Santiago T, Smith C, Thermometer, uganda, Venkatesh C
Factors associated with mental health service use among families bereaved by pediatric cancer
Tags: 2022, 2023 SE3 - Oncology, Akard TF, Article, Barrera M, Bereavement, Child, Child Behavior Checklist, Compas BE, Controlled Study, Cooperation, Demography, Distress Syndrome, Education, Educational Status, Fairclough DL, Father, Female, Gerhardt CA, Gilmer MJ, Health Care Personnel, Hill KN, Home Visit, Human, Major Clinical Study, Male, Malignant Neoplasm, mental health service, Mental Health Services, Mother, Multicenter Study, Olsavsky A, Palliative And Supportive Care, Palliative Therapy, race, Randomized Controlled Trial, self help, Self Report, Sibling, support group, Vannatta K
Redirecting Care: Compassionate Management of the Sick or Preterm Neonate at the End of Life
Tags: 2022, August List 2052, Children, compassionate care, Distress Syndrome, doctor patient relationship, emotionality, family relation, family support, Hain R, Health Care Personnel, Human, Infant, Newborn, intersectoral collaboration, Newborn Care, Newborn Death, Pain, Palliative Therapy, parent counseling, parental behavior, Patient Care, Personal Experience, Philosophy, Psychological care, Review, Terminal Care, Wyatt J
Impact of Palliative Care Integration on End-of-Life Outcomes in Pediatric Hematopoietic Cell Transplant
Tags: 2023, anxiety, Appetite, Baker JN, bleeding, bodily secretions, Child, conference abstract, Controlled Study, coughing, Cuviello A, Data Analysis, Demographics, Diarrhea, Distress Syndrome, do not resuscitate order, Documentation, Dyspnea, edema, Fatigue, Female, fever, hematopoietic cell, Hospice, Human, human cell, Intubation, Irritability, July List 2023, Levine DR, Lifespan, Major Clinical Study, Male, Medical Record Review, Nausea And Vomiting, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Retrospective Study, Surgery, Survival, Terminal Care, Transplantation, Transplantation and Cellular Therapy
Early Integration of Pediatric Palliative Care in Pediatric Hematopoietic Stem Cell Transplant Patients
Tags: 2023, Callard E, Child, conference abstract, Consultation, Controlled Study, Distress Syndrome, evidence based practice center, Female, Fisher J, Hematopoietic Stem Cell, Hematopoietic Stem Cells, Human, human cell, July List 2023, Kent L, Learning, Major Clinical Study, Male, Medical Record Review, Morbidity, Mortality, Palliative Care, Palliative Therapy, Pinner LA, Pyke-Grimm K, Retrospective Study, Risk Assessment, Satisfaction, staff training, Stem Cell Transplantation, Transplantation, Transplantation and Cellular Therapy, Williams M
Learning Disability Nurses in Palliative Care - A Narrative on Diversifying the Workforce and the Caseload
Tags: 2022, Adult, ADULTHOOD, Attention, Autism, BMJ Supportive and Palliative Care, Child, Cognitive Defect, Cohort Analysis, conference abstract, Distress Syndrome, Employment, Epilepsy, Female, geriatric disorder, Hospice, Human, Learning, learning disorder, Learning Disorders, malignant cardiac tumor, March List 2023, Marsden S, Narrative, Neurodisability, Nurse, Palliative Care, Palliative Therapy, Skill, Terminal Care, Treatment Failure, workforce
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Tags: 2022, Article, August 2022 List, Broden EG, Cancer Patient, Child, Chronic Disease, Comfort, Controlled Study, Curley MAQ, Distress Syndrome, Hinds PS, Human, Infant, Intensive Care, Interview, Journal of Hospice and Palliative Nursing, Major Clinical Study, Male, Malignant Neoplasm, Memory, Narrative, Nursing, Pain, Pediatric Intensive Care Unit, Perception, quantitative analysis, Sedation, Terminal Care, Werner-Lin AV
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program
Tags: 2020, Adolescent, Advanced Cancer, Almulla H A, Alzawad Z, anxiety, Article, Child, Child Parent Relation, Controlled Study, Depression, Disease Course, Distress Syndrome, Feasibility Study, Griffith K A, Hospice, Human, Journal of Palliative Medicine, Lewis F M, Loggers E T, Metastasis, Nurse, Oncology 2020 List, Palacios R, Palliative Therapy, Phillips F, Preschool Child, program impact, psychological adjustment, Self Concept, Shands M E, Skill, Telephone, Tercyak K P, tumor-related gene, Zahlis E H
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker
Palliative Care in the Pediatric Emergency Department: Findings From a Qualitative Study
Tags: 2019, Annals of Emergency Medicine., Article, Child, clinical evaluation, Controlled Study, Cote A J, Critically Ill Patient, Distress Syndrome, Emergency Ward, Female, Gaucher N, genetic transcription, Human, Intensive Care, July 2019 List, Major Clinical Study, Male, Palliative Therapy, Patient Care, Payot A, pediatric emergency medicine, Qualitative Research, Software, Thematic Analysis, theoretical study
Pediatric End-of-life Simulation: Preparing the Future Nurse to Care for the Needs of the Child and Family
The Relationship Between Household Income and Patient-Reported Symptom Distress and Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study
Tags: 2018, Advanced Cancer, Al-Sayegh H, Article, Bona K, Cancer, Cancer Patient, Child, Cohort Analysis, Distress Syndrome, Dussel V, Female, Feudtner C, highest income group, household income, Human, Ilowite MF, Kang TI, lowest income group, Ma C, Major Clinical Study, Male, Oncology 2018 List, outcome assessment, Pain, Palliative Therapy, patient-reported outcome, Poverty, Prevalence, Quality Of Life, Rosenberg AR, Secondary Analysis, Wolfe J
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Involvement of nurses in end-of-life discussions for severely disabled children
Tags: 2018, April 2018 List, Article, Child, Clinical Article, de Vos MA, Disabled Children, Distress Syndrome, Ewals F, Female, Handicapped Child, Human, Human Experiment, Intellectual Impairment, Journal of Intellectual Disability Research., Male, Morality, Nurse, Only Child, Qualitative Research, Quality Of Life, Retrospective Study, Semi Structured Interview, van Goudoever JB, Willems DI, Zaal-Schuller IH
Enhancing resilience in hospitalized children and adolescents
Tags: 2017, anxiety, biofeedback, California, Child, clinical psychology, Comorbidity, Complication, Distress Syndrome, Female, Hospitalization, Hospitalized Child, Human, Ihle EC, Journal Of The American Academy Of Child And Adolescent Psychiatry, Male, March 2018 List, Mental Health, music, Pain, Palliative Therapy, Pet Therapy, PostTraumatic Stress Disorder, psychiatrist, psychosocial care, Socialization, Wellbeing
Challenges to code status discussions for pediatric patients
Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Tags: 2017, Adult, Article, Burnout, Correlation Analysis, Cross-sectional Study, Demography, Distress Syndrome, Dryden-Palmer KD, Female, Gibbons C, health practitioner, Hospital care, Human, Intensive Care, January 2018 List, Larson CP, linear regression analysis, Major Clinical Study, Male, Maslach Burnout Inventory Depersonalization Subscale, Middle Aged, Mishel Parent Perception of Uncertainty Scale, Morality, Neonatal Intensive Care Unit, Nurse, outcome assessment, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Priority Journal, Prognosis, Questionnaire, Rating Scale, Revised Moral Distress Scale, Terminal Care, tertiary care center, Uncertainty, Work, Young Adult
Preferences of advanced cancer patients for communication on anticancer treatment cessation and the transition to palliative care
Tags: 2017, Advanced Cancer, Cancer Localization, Cancer Patient, Cancer Therapy, Child, Diagnosis, Distress Syndrome, Doctor Patient Relation, Female, Fujimori M, Human, Kinoshita H, Life Expectancy, Major Clinical Study, Male, Matsushima E, Medical Record, Multiple Regression, Oncology 2017 List, Palliative Therapy, Paternalism, Psycho-Oncology, Symptom, Uchitomi Y, Umezawa S
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Tags: 2017, Bindels PJE, Cancer Epidemiology, Child, Controlled Study, Cross-sectional Study, Darlington ASE, Death, Distress Syndrome, Doctor Patient Relation, Fatigue, General Practitioner, Human, Human Versus Animal Comparison, Journal of Pain and Symptom Management, Major Clinical Study, Michiels EMC, Nonhuman, Oncology 2017 List, Pain, Palliative Therapy, Panic, Pieters R, Pluijm SMF, Powerlessness, Questionnaire, Sadness, Symptom, Thermometer, van den Heuvel-Eibrink MM, van der Geest IMM, van der Heide A
"His ears are so soft!" Animal-assisted interventions in oncology settings: Implications for oncology social work practice
Tags: 2016, 50-56-6 (oxytocin), 51-61-6 (dopamine), 54577-94-5 (oxytocin), 60118-07-2 (endorphin), 62-31-7 (dopamine), Adult, Animal Experiment, Animal Model, anxiety, Bach C, Blood Pressure, Cancer Patient, Cancer Therapy, Cerebrovascular Accident, Clinical Practice, Distress Syndrome, Dog, Dopamine, Ear, Endogenous Compound, Endorphin, Family Study, Female, Gene Expression, Happiness, Heart Rate, Hospice, Hospital Patient, Human, Human Versus Animal Comparison, Infusion, Journal Of Psychosocial Oncology, Male, Narrative, Nonhuman, Oncology, Oncology 2017 List, Oxytocin, Pain, Palliative Therapy, Pet Therapy, Program Development, Recreation, Skill, Social Support, Social Work Practice, Storytelling, Symptom, Total Quality Management, Trust, Volunteer, Waiting Room
Palliative Care
Tags: 103-90-2 (paracetamol), 1095-90-5 (methadone), 125-56-4 (methadone), 12794-10-4 (benzodiazepine), 137-58-6 (lidocaine), 2017, 23142-53-2 (methadone), 24847-67-4 (lidocaine), 297-88-1 (methadone), 437-38-7 (fentanyl), 53663-61-9 (opiate), 56934-02-2 (lidocaine), 60142-96-3 (gabapentin), 73-78-9 (lidocaine), 76-99-3 (methadone), 8002-76-4 (opiate), 8008-60-4 (opiate), Acute Stress Disorder, Alcohol Consumption, Anticonvulsive Agent, Appetite, Benzodiazepine, Brill P, Connelly E, Corticosteroid, Distress Syndrome, Dyspnea, Fentanyl, Gabapentin, Hair Loss, Health Care Personnel, Health Care System, Hospital, Howk T, Human, Intensive Care Unit, Lidocaine, Major Depression, Medical Staff, Methadone, Mortality, Nausea And Vomiting, Neoplasm, November 2017 List, Obesity, Opiate, Palliative Therapy, Paracetamol, Paralysis, Patient Care Planning, Pediatric Oncology, Pillai R, Postovsky S, Priority Journal, Prostaglandin/ec [endogenous Compound], Quality Of Life, Tracheostomy, Wasilewski-Masker K, Wrammert KC