Browse Items (268 total)
- Tags: Infant, Newborn
Experiences of paediatric terminal oncology patients and their parents in palliative care: A qualitative systematic review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Aged, Caregiver, Child, Childhood Cancer, English (language), Gender, Health Care Personnel, Human, Infant, Journal of Pediatric Nursing, Male, Newborn, Oncology, oncology nurse, Palliative Therapy, Parent, Review, Sambhi SK, School Child, Shorey S, Systematic Review, Tan WL, Terminal Cancer
Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Ananth PJ, Child, de Oliveira S, electronic health record, Female, Health Care Quality, Human, Infant, JCO Clinical Cancer Informatics, Lindsay ME, Lindvall C, Male, Mortality, natural language processing, Neoplasm, Newborn, Palliative Therapy, Preschool Child, Procedures, Sciacca K, Terminal Care, Therapy
Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adverse Drug Reaction, Arba L, Basile I, Child, Colombo S, Consolo L, electronic health record, Female, groups by age, Health Care Personnel, Human, Infant, Interpersonal Communication, Journal Of Palliative Care, Lusignani M, Male, Newborn, Oncology, Palliative Therapy, Pancheri ML, patient-reported outcome, Psycinfo, Qualitative Research, Quantitative Study, Rampichini F, Review, Rusconi D, Scoping review, special situation for pharmacovigilance, Systematic Review, Terminal Care, Therapy, Web of Science
Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea
Tags: 2023, 2025 SE1 - Oncology, Article, Bereavement, Caregiver, Child, Choi S, Clinical Article, congenital disorder, Controlled Study, emotional support, Female, Human, Hwang HL, Infant, Interview, Journal of Hospice and Palliative Nursing, Kim S, Leukemia, Male, Min H, Newborn, Oh SJ, Palliative Therapy, Parent, Phenomenology, School Child, South Korea
Palliative Care Outcomes for Critically ill Children After Rapid Whole Genome Sequencing
Tags: 2024, acutely ill patient, Adolescent, Article, Beauchamp Walters J, Boulil Z, Child, Consultation, Controlled Study, Coufal NG, Critically Ill Patient, Diagnosis, Dimmock D, Doshi A, emergency visit, extubation, Female, Human, Infant, Intensive Care, Intubation, Journal of Intensive Care Medicine, Kaplan Meier method, Kingsmore S, Lee E, Major Clinical Study, Male, March List 2025, Medical Record Review, molecular diagnosis, molecular diagnostics, Newborn, outcome assessment, Palliative Therapy, pediatric intensive care nursing, Pediatric Intensive Care Unit, Perofsky K, Personalized medicine, Poisson regression, Retrospective Study, Therapy, whole genome sequencing
Prevalence of pain in the last 2 weeks of life in hospitalized pediatric patients
Tags: 2024, Adolescent, Adult, Analgesia, Article, Bastidas-Legarda S, Child, Data Analysis Software, Female, Flores-Munoz MA, Gutierrez-Cortes C, Hernandez-Ramirez E, Hospital Patient, Hospitalization, Human, Infant, longitudinal study, Major Clinical Study, Male, March List 2025, Medical Practice, Newborn, Observational Study, Pain Assessment, Pain Intensity, Pain/ep [Epidemiology], Palliative Therapy, pediatric patient, Prevalence, Quality Of Life, Questionnaire, Retrospective Study, Revista Medica del Hospital General de Mexico, SPSS version 21, terminally Ill Patient
Utilization of a prenatal palliative care consultation pathway for congenital heart disease
Tags: 2024, Cardiology In The Young, conference abstract, congenital disorder, Congenital Heart Disease, Consultation, Diagnosis, Distress Syndrome, Emotional Stress, February List 2025, Fetus, Gandhi R, heart disease, Human, Infant, Mikal M, Newborn, Palliative Therapy, Patient Referral, Retrospective Study, Spiritual Care, Walsh S
DO CHILDREN AND YOUNG PEOPLE WITH LIFELIMITING CONDITIONS RECEIVE TIMELY PALLIATIVE CARE INPUT AND ADVANCE CARE PLANNING?
Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death
Nurses' Perspectives Regarding Challenges of Providing Perinatal/Neonatal End-of-Life Care in a Regional Hospital: An Exploratory Qualitative Study
Tags: 2024, Akkoc B, Article, Clinical Article, Clinical Practice, family support, Female, Human, Infant, Interview, Kurt A, Male, Newborn, Nurse, October List 2024, Palliative Therapy, Perinatal Care, Perinatal Death, Qualitative Research, staff training, Terminal Care, Thematic Analysis, Western Journal of Nursing Research
PERINATAL PALLIATIVE CARE REQUIREMENTS IN THE WEST MIDLANDS: A SERVICE EVALUATION PROJECT
Tags: 2024, Archives of Disease in Childhood, Battersby C, brain malformation, Brown S, conference abstract, Diagnosis, Female, Fetus, Foster E, Harnden F, heart disease, Human, Infant, long term survival, Mackie F, Major Clinical Study, Maternal care, Mott C, multiple malformation syndrome, Neonatal Intensive Care Unit, nervous system malformation, Newborn, Newborn Care, Newborn Intensive Care, October List 2024, Palliative Therapy, Patient Referral, pharmaceutical care, Prenatal Care, Prognosis, Rajaraman N, routinely collected health data, Therapy, Van Hasselt TJ
THE WEST MIDLANDS PERINATAL PALLIATIVE CARE SERVICE AUDIT ON REFERRALS, DIAGNOSES AND PROGNOSES OF BABIES WITH SEVERE CONDITIONS
Tags: 2024, Adolescent, anencephalus, Archives of Disease in Childhood, bone dysplasia, Child, Clinical Audit, conference abstract, Congenital Heart Disease, congenital heart malformation, Diagnosis, diagnosis related group, Female, Fetus, heart disease, heart injury, Human, Infant, Major Clinical Study, Mott CE, national health service, Newborn, October List 2024, Palliative Therapy, Patient Referral, Prognosis, Surgery, survival time, systemic disease, Therapy, Trisomy 13, Trisomy 18
Finding a New Normal: Maternal Experiences Transitioning to Home From the Neonatal Intensive Care Unit Caring for Technology-Dependent Infants
Place of death among children from 0 to 17 years of age: A population-based study from Sweden
Tags: 2024, Acta Paediatrica, Adolescent, Age, Article, at home mortality, August List 2024, Child, Death, Female, groups by age, Home Care, Hospital Mortality, hospital visit, Human, Incidence, Infant, Larsdotter C, Major Clinical Study, Male, Newborn, Nilsson S, Nyblom S, Ohlen J, Ozanne A, place of birth, Place Of Death, Retrospective Study, Stenmarker M, Sweden
End-of-Life Care for Newborn Infants: A Multicenter Real-Life Prospective Study
Tags: 2024, Article, August List 2024, Avila AS, Cardigni G, Congenital Malformation, Contrera PJ, Cross-sectional Study, Delivery Room, developed country, Diagnosis, Drug Withdrawal, Female, Fernandez AL, Fernandez Riera P, Human, Infant, Male, Mariani GL, middle income country, Multicenter Study, Neonatal Intensive Care Unit, Neonatology, Newborn, Newborn Death, Newborn Intensive Care, Perinatal Death, Portela MC, Prematurity, Prospective Study, Quality Of Life, Terminal Care, Urquizu Handal MI, Vain NE, Virasoro MDLA
Structured Framework for Multidisciplinary Parent Counseling and Medical Interventions for Fetuses and Infants with Trisomy 13 or Trisomy 18
Tags: 2024, American Journal of Perinatology, Artificial Ventilation, August List 2024, Continuous Positive Airway Pressure, Decision Making, diaphragm hernia, Dukhovny S, Early Intervention, Echocardiography, endotracheal intubation, enteric feeding, feeding disorder, Fetus, fetus distress, Gievers L, Health Care Personnel, Human, Infant, Intensive Care Unit, Kim AJH, Madriago EJ, Marshall M, mood disorder, Morbidity, Mortality, mortality risk, multiple organ failure, nasogastric tube, neural tube defect, Newborn, noninvasive positive pressure ventilation, Palliative Therapy, parent counseling, Practice Guideline, Qualitative Analysis, Resuscitation, Review, Ronai C, Seizure, Sepsis, Sleep Apnea Syndromes, Tate T, Taub S, Tracheostomy, trisomy 13/di [Diagnosis], trisomy 13/ep [Epidemiology], trisomy 18/di [Diagnosis], trisomy 18/ep [Epidemiology], ultrasound
Palliative Care in the Pediatric Intensive Care Unit
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Tags: 2024, acquired immune deficiency syndrome, Adult, Advance Care Planning, American Journal of Perinatology, Article, August List 2024, bleeding, Brain Damage, Caregiver, Central Nervous System, cerebrospinal fluid drainage system, Child, climate change, Clinical Decision Making, Cross-sectional Study, Cummings C, Death, DeCourcey DD, End Of Life, Follow Up, Gestational Age, Health Care Personnel, Human, Human Immunodeficiency Virus, Infant, infection, Kidney Failure, Lin M, Medical Care, multiple organ failure, Neonatal Intensive Care Unit, Newborn, Quality Of Life, respiratory failure, Sayeed S, Social Support, Terminal Care, Tracheostomy, Vitcov G, Williams D, Wolfe J
Medication Management Through Collaborative Practice for Children With Medical Complexity: A Prospective Case Series
Tags: 2024, Adolescent, Adult, Adverse Drug Reaction, adverse drug reactions, Article, Asthma, Blood Pressure, Bodenstab HM, bradycardia, cerebral blindness, Cerebral Palsy, Child, children with disability, Chronic Disease, Clinical Practice, collaborative practice, Congenital Malformation, Cost Control, Current Procedural Terminology, diazepam, diphenhydramine, drug information, Drug Therapy, drug-related side effects, Dysphagia, economics, Emergency Ward, Epilepsy, Female, health care facility, hospital readmission, Human, Hypotension, Infant, ipratropium bromide, Journal of Pediatric Pharmacology and Therapeutics, July List 2024, Length Of Stay, Long-Term Care, Major Clinical Study, Male, medication management, Medication therapy management, metoclopramide, Multiple Chronic Conditions, Nervous System, Neurology, Newborn, Paracetamol, Parrish RH, pediatric long term care facility, Pharmaceutical, pharmacist, Quinn J, salbutamol, Wo E
The impact of specialized pediatric palliative care on advance care planning and healthcare utilization in children and young adults: a retrospective analysis of medical records of in-hospital deaths
Tags: 2024, Adult, Advance Care Planning, Aged, Article, Artificial Ventilation, BMC Palliative Care, Child, Cohort Analysis, Controlled Study, data warehouse, Female, Health Care Cost, Health Care Delivery, Health Care Utilization, Human, Infant, July List 2024, Kim CH, Kim MS, Lee J, Lee JW, Major Clinical Study, Male, Medical Record, Medical Records, Neuromuscular Disease, Newborn, Opiate, Palliative Care, Palliative Therapy, Quality Of Life, Resuscitation, Retrospective Study, South Korea, Terminal Care, Young Adult
Meaningful Display of Legacy Items Among Families Experiencing a Perinatal, Neonatal, or Infant Death
Tags: 2024, Bereavement, Cause Of Death, Child, Child Death, conference abstract, Controlled Study, Conversation, Family, Family Interaction, Female, fetus death, Gestational Age, Grief, Human, Infant, Interview, Journal of Pain and Symptom Management, June List 2024, Kaushik R, Mental Health, Newborn, Palliative Therapy, palmar dermatoglyphics, Pregnancy, Rodriguez M, Second Trimester Pregnancy, Smith V, third trimester pregnancy, University Hospital, Vandermeer R
National characteristics of emergency care for children with neurologic complex chronic conditions
Tags: 2024, Adolescent, Adult, Article, Caglar D, Carlin K, Child, Childhood Disease, Childhood Mortality, Chronic Disease, Clinical Feature, Clinical Outcome, Controlled Study, Critical Illness, Cross-sectional Study, Current Procedural Terminology, Emergencies, Emergency Care, Emergency Health Service, Emergency Medical Services, endotracheal intubation, Female, Hospital Admission, hospital charge, Human, Infant, Jafari K, Klein EJ, Major Clinical Study, Male, May List 2024, Medicaid, Medicare, Morbidity, multivariate logistic regression analysis, Neurologic Disease, Newborn, Only Child, Retrospective Study, Simon TD, Tracheostomy, Western Journal of Emergency Medicine, Young Adult
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU: A Descriptive Phenomenological Study
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
Neonatal serious illness: operational definition
Tags: 2023, Article, BMJ Supportive & Palliative Care, Cause Of Death, Cohort Analysis, Controlled Study, Conversation, Female, Guttmann K, Hospital care, Human, Infant, Infant Newborn, Major Clinical Study, Male, Newborn, October List 2041, Palliative Therapy, Pediatrics, Prognosis, rank sum test, Retrospective Study, Silverman R, Terminal Care, Weintraub AS
Neonatal organ donation: Retrospective audit into potential donation in a single neonatal unit
Tags: 2023, Ali F, Article, August List 2023, Brain Injury, Cause Of Death, Chant K, Conversation, cooling, Documentation, eligibility, England, Gallagher K, Human, Human Tissue, Infant, Infant, Newborn, Neonatal Intensive Care Unit, Newborn, Newborn Death, Newborn Intensive Care, Nurse, Nursing In Critical Care, organ donor, Patient Referral, Scales A, Sellwood M, Surgery, Terminal Care, Transplantation
Ethics at the end of life in the newborn intensive care unit: Conversations and decisions
Tags: 2023, active euthanasia, Artificial Ventilation, Bioethics, Controlled Study, Conversation, Critically Ill Patient, Decision Making, Ethics, Gillam L, Human, Hydration, hypoxic ischemic encephalopathy, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Mercurio MR, Neonatal Intensive Care Unit, Neonatologist, Newborn, Nutrition, Resuscitation, Review, Seminars in Fetal and Neonatal Medicine, Treatment Withdrawal
Paediatric palliative care in the NICU: A new era of integration
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Neonatal Palliative Care: Assessing the Nurses Educational Needs for Terminally Ill Patients
Ethics Roundtable: How Much is Too Much?
Tags: 2023, American Journal of Hospice and Palliative Medicine, Carmi syndrome, Carter B, DiBartolomeo M, end-of-life, epidermolysis bullosa, Ethics, February List 2023, Gastric Outlet Obstruction, Hays J, Humans, Infant, Life-limiting Condition, Newborn, Palliative Care, Premature Ectodermal Dysplasia Pylorus/abnormalities, Theodoro MF
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Tags: 2022, Analysis, and, Article, Beltran SJ, CARE, Experience, Family, Female, for, guideline, Hamel M N, Human, Infant, intensive, Items, Male, meta, Meta-analyses, Neonatal, Newborn, October 2022 List, Palliative, Parent, Perception, Practice, Preferred, Psychological, Quality, Reporting, Review, Reviews, Satisfaction, systematic, The American Journal of Hospice & Palliative Care, Therapy, Unit, Units
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, 2022 Special Edition 1 - Parent Perspectives, Female, Fetal Mortality, George T, Hospice, Infant, Journal of Palliative Medicine, Kamrath HJ, Mothers, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Perinatal, Perinatal Care organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Experience of Perinatal Death From the Father's Perspective
Perinatal palliative care
Tags: 2022, Anales de Pediatría (English Edition), Bereavement, Boix H, Cernada M, Child, Couce ML, Espinosa Fernández MG, González-Pacheco N, Infant, Life-limiting Condition, Life-threatening Condition, March 2022 List, Martín-Ancel A, Neonatal Death, Newborn, Palliative Care, Pérez-Muñuzuri A, Perinatal Care, Perinatal Palliative Care, Pregnancy, Quality Of Life, Sánchez-Redondo MD
Something must happen before first breath
Being a Parent: Findings from a Grounded Theory of Memory-Making in Neonatal End-Of-Life Care
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker