Browse Items (16 total)
- Tags: Tracheostomy
"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation
Tags: 2023, Boss RD, Henderson CM, Jabre NA, Journal of Palliative Medicine, March List 2023, Mechanical, Mercer AH, Miles A, pediatric decision making, Pediatric Palliative Care, pediatric quality of life, Qualitative Research, Raisanen JC, Shepard J, Shipman KJ, Tracheostomy, Ventilators, Vo HH, Wilfond BS
Shared decision making for children with chronic respiratory failure-It takes a village and a process
A description of children dependent on long term ventilation via tracheostomy and their hospital resource use
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Tags: 2020, Adult, Ambulatory Care/economics, Amin R, Canada, Caregivers/economics, Child, Child Preschool, Coyte PC, Female, Guerriere D, Health Care Costs, Health Expenditures, healthcare costs, healthcare utilization, Home Care Services/economics, home mechanical ventilation, Humans, Katz SL, long-term mechanical ventilation, Longitudinal Studies, Male, March 2021 List, McKim DA, Middle Aged, Nonoyama ML, Patient Acceptance of Health Care, Pediatric Pulmonology, Pediatrics, Prospective Studies, Quality Of Life, Respiration Artificial/economics, Rose L, Tracheostomy, ventilator assisted individual, Wasilewski M, Zagorski B
Development and validation of a novel informational booklet for pediatric long-term ventilation decision support
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Respiratory complications of mucopolysaccharide storage disorders
Tags: 1988, adenoidectomy, Adolescent, Adult, Airway Obstruction/et [Etiology], Anesthesia General/ae [Adverse Effects], beta adrenergic blockers, breathing difficulties, calcium antagonists, Cardiovascular Diseases/et [Etiology], Child, Child Preschool, digoxin, diuretics, Female, Humans, Infant, Intubation Intratracheal/ae [Adverse Effects], Lung Diseases/et [Etiology], Lung Diseases/pp [Physiopathology], Male, Medicine, MLII, MLIII, MPSI, MPSII, MPSVI, Mucopolysaccharidoses/co [Complications], Mucopolysaccharidoses/mo [Mortality], Mucopolysaccharidoses/pp [Physiopathology], pharmacologic interventions, Pyeritz R E, respiratory problems, Respiratory Tract Diseases/et [Etiology], Respiratory Tract Diseases/pp [Physiopathology], Respiratory Tract Diseases/ra [Radiography], Retrospective Studies, Semenza G L, Sleep Apnea Syndromes/et [Etiology], Spinal Diseases/et [Etiology], Spinal Diseases/ra [Radiography], surgical interventions, theophylline, Tonsillectomy, Tracheostomy
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity
Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult
Low prevalence of palliative care and ethics consultations for children with chronic critical illness
Tags: 2018, Acta Paediatrica, International Journal of Paediatrics, Article, Artificial Ventilation, Boss RD, childhood disease th [Therapy], Chronic Disease, Consultation, Critical Illness, Donohue PK, Ethics, Falck A, Goloff N, Hospital Admission, Human, Hutton N, Intensive Care Unit, Length Of Stay, Miles A, November 2018 List, Palliative Therapy, Prevalence, Priority Journal, Shapiro M, Tracheostomy, Weiss EM
Bringing social context into the conversation about pediatric long-term ventilation
Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS
Outcomes of Children With Severe Bronchopulmonary Dysplasia Who Were Ventilator Dependent at Home
Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review
Palliative care and pediatric surgery
Tags: 2011, Backlog, Child, Critical Illness, Gastrostomy, Humans, Intratracheal, Intubation, Jackson GP, Journal Article, Palliative Care, Patient Care Team, Physician-patient Relations, Pleurodesis, Professional-family Relations, Prognosis, Quality Of Life, Resuscitation Orders, Shelton J, Terminal Care, The Surgical Clinics Of North America, Tracheostomy
Palliative Care
Tags: 103-90-2 (paracetamol), 1095-90-5 (methadone), 125-56-4 (methadone), 12794-10-4 (benzodiazepine), 137-58-6 (lidocaine), 2017, 23142-53-2 (methadone), 24847-67-4 (lidocaine), 297-88-1 (methadone), 437-38-7 (fentanyl), 53663-61-9 (opiate), 56934-02-2 (lidocaine), 60142-96-3 (gabapentin), 73-78-9 (lidocaine), 76-99-3 (methadone), 8002-76-4 (opiate), 8008-60-4 (opiate), Acute Stress Disorder, Alcohol Consumption, Anticonvulsive Agent, Appetite, Benzodiazepine, Brill P, Connelly E, Corticosteroid, Distress Syndrome, Dyspnea, Fentanyl, Gabapentin, Hair Loss, Health Care Personnel, Health Care System, Hospital, Howk T, Human, Intensive Care Unit, Lidocaine, Major Depression, Medical Staff, Methadone, Mortality, Nausea And Vomiting, Neoplasm, November 2017 List, Obesity, Opiate, Palliative Therapy, Paracetamol, Paralysis, Patient Care Planning, Pediatric Oncology, Pillai R, Postovsky S, Priority Journal, Prostaglandin/ec [endogenous Compound], Quality Of Life, Tracheostomy, Wasilewski-Masker K, Wrammert KC