Browse Items (346 total)
- Tags: Quality Of Life
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
The Use of Cannabinoids in Pediatric Palliative Care-A Retrospective Single-Center Analysis
Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J
Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal
Social work practice in perinatal palliative care: an overview
Tags: 2024, Adult, April List 2024, Article, Bereavement, care behavior, collaborative care team, Female, Health Care Access, Human, Knowledge, Male, Palliative Care, Palliative Therapy, Quality Of Life, Santiago-Warner S, Social Justice, Social Work, Social Work in Health Care, Social Work Practice, Social Worker
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Thirty-day mortality as a metric for palliative radiotherapy in pediatric patients
Tags: 2023, Adult, Article, biological marker, Child, Current Opinion in Supportive and Palliative Care, Female, Human, Johnstone PAS, Keit E, Male, March List 2024, Metronidazole, Mortality, Nanda R, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, Quality Of Life, Radiotherapy, terminally Ill Patient
Pediatric palliative care utilization by decedent children: A nationwide population-based study, 2002-2017
Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M
Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives
Tags: 2023, Adolescent, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Cross-sectional Study, Disease Management, Drug Therapy, European Journal of Pediatrics, February List 2024, Female, Guillen M, Human, Limonero JT, Male, nonparametric test, Palliative Therapy, Parent, Perception, psychologic assessment, Quality Of Life, sociodemographics, special situation for pharmacovigilance, Toro-Perez D, Vilarrubi SN, Voice
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
Tags: 2023, abdominal pain, Adolescent, Analgesia, Analgesics Opioid, Anthropology Cultural, Caes L, Child, Child Parent Relation, Chronic Pain, Cochrane Database of Systematic Reviews, Complex Regional Pain Syndrome, cultural anthropology, Disease Severity, endometriosis, ethnography, Family, Family Life, February List 2024, Fibromyalgia, Forbat L, France E, Headache, Health Care Personnel, Health Service, Human, Humans, inflammatory bowel disease, Jordan A, juvenile rheumatoid arthritis, migraine, musculoskeletal pain, narcotic analgesic agent, Noyes J, outcome assessment, Pain Assessment, Pain Severity, patient-reported outcome, pediatric patient, Peer Group, Personal Experience, Prognosis, Quality Of Life, racism, Review, Sibling, Silveira Bianchim M, Social Care, Social Isolation, Social Support, Social Work, Systematic Review, Thomson K, Turley R, Uny I, Wellbeing
Implementation of evidence-based psychosocial care in six pediatric oncology units across Pakistan
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin America
Tags: 2023, 2023 SE5 - Low Resource Setting, Agulnik A, Baker JN, Bustamante M, Child, Devidas M, Dussel V, Ehrlich B, Female, Friedrich P, Garcia Quintero X, Gillipelli SR, Gomez Garcia W, Graetz D, Humans, JAMA Network Open, Kaye EC, Latin America, McNeil MJ, Metzger M, Neoplasms/therapy, Only Child, Palliative Care, Physicians, Quality Of Life, Sabato Danon CV, Wang H
Assessing the Need for Pediatric Palliative Care in the Six Arab Gulf Cooperation Council Countries
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Use of paclitaxel to successfully treat children, adolescents, and young adults with Kaposi sarcoma in southwestern Tanzania
Tags: 2021, 2023 SE5 - Low Resource Setting, Adinani H, Adolescent, Adult, antiretroviral therapy, antiretrovirus agent/dt [Drug Therapy], Article, Bacha J, bleomycin/cb [Drug Combination], bleomycin/dt [Drug Therapy], bleomycin/iv [Intravenous Drug Administration], Campbell L, cancer combination chemotherapy, Cancer Palliative Therapy, Cancer Recurrence, Cancer Survival, Child, Children, Cohort Analysis, dexamethasone/dt [Drug Therapy], doxorubicin/cb [Drug Combination], doxorubicin/dt [Drug Therapy], drug contraindication, El-Mallawany NK, Female, Follow Up, Human, Human immunodeficiency virus infection/dt [Drug Therapy], Kaposi sarcoma/dt [Drug Therapy], lack of drug effect, long term survival, Major Clinical Study, Male, Mehta P, multiple cycle treatment, Paclitaxel, paclitaxel/dt [Drug Therapy], Quality Of Life, Retrospective Study, Slone J, Tanzania, treatment duration, Treatment Outcome, Treatment Planning, trend study, vincristine/cb [Drug Combination], vincristine/dt [Drug Therapy], vincristine/iv [Intravenous Drug Administration], virus load, Young Adult
Impact of an outpatient palliative care consultation and symptom clusters in terminal patients at a tertiary care center in Pakistan
Tags: 2023, 2023 SE5 - Low Resource Setting, Ahmed IM, BMC Palliative Care, Female, Hashmi S, Humans, Infant, Jabeen I, Male, Neoplasms, Neoplasms/co [complications], Neoplasms/ep [Epidemiology], Neoplasms/th [therapy], Outpatients, Pakistan, Palliative Care, Qamar U, Quality Of Life, Rafaqat W, Rajwani S, Referral And Consultation, Syed AR, Symptom Assessment, Syndrome, Tertiary Care Centers, Waqar MA
"It Seems Like a Bad Thing": US South Asian Youths' Perspectives About the Use of Hospice Care
Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, American Journal Of Hospice And Palliative Care, Article, Clinical Article, Consensus, Controlled Study, Education, Female, Hospice Care, Hospices, Human, Indian, inheritance, juvenile, Khosla N, Palliative Therapy, Place Of Death, Qualitative Research, Quality Of Life, South Asian, Thematic Analysis, university student, vulnerable population
Differences in palliative opportunities across diagnosis groups in children with cancer.
Tags: 2023, 2023 SE3 - Oncology, Adolescent, Allen KE, Brock KE, Castellino SM, Child, Child Preschool, Clinical Trials Phase I as Topic, DeGroote NP, Ebelhar J, Humans, Infant, Infant Newborn, Labudde E, Leukemia, Lymphoma, Massie AM, Neoplasms/therapy, Only Child, Palliative Care, Pediatric Blood and Cancer, Quality Of Life, Recurrence, Retrospective Studies, Terminal Care/psychology, Wasilewski-Masker K
Palliative Care for Childhood Cancer
Tags: 2022, 2023 SE3 - Oncology, Advanced Cancer, Cancer Palliative Therapy, Cancer Patient, Cause Of Death, Child, Child Health Care, childhood cancer/th [Therapy], Children, collaborative care team, daily life activity, Disease Burden, Editorial, evidence based practice, Family, Health Care Access, health care need, Health Care Personnel, health care planning, Health Care Quality, Hematopoietic stem cell transplantation, Home Care, Hope, Hospital care, Human, illness trajectory, Medical Education, Michiels EM, Nausea, Netherlands, Nurse, Pain, Palliative Care, patient worry, personalized cancer therapy, Physician, Practice Guideline, Quality Of Life, Vomiting
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting
Existential experiences and perceptions of death among children with terminal cancer: An interpretative qualitative study
Protective and risk factors in the grieving process among cancer-bereaved
Paediatric Palliative Care in a Reference Centre of Inherited Metabolic Diseases
Tags: 2023, Article, Child, Cohort Analysis, daily life activity, Demography, disorders of mitochondrial functions, disorders of peroxisomal functions, Endocrine, metabolic & immune disorders drug targets, Female, Ferreira AC, Gastrostomy, Home Visit, Hospital Admission, Human, lysosome, Major Clinical Study, Male, Metabolic Diseases, Metabolic Disorder, Neurologic Disease, Noninvasive Ventilation, November List 2028, Outpatient, Paiva M, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, peroxisome, Quality Of Life, Santos S, Saraiva BM, School Child, Surgery, systemic disease
Development and Evaluation of a Child Neurology Resident Curriculum for Communication Around Serious Illness
Tags: 2023, Article, Barry M, Child, Clinical Article, Communication Skill, Curriculum, Disability, Ethics, evaluation study, Feldman A, Human, Human Experiment, Journal of Child Neurology, Kaul P, Martin JA, Messer R, Neurology, October List 2045, Only Child, Palliative Therapy, Physician, Press CA, Quality Of Life, residency education, Resident, Sampey F, Silveira L, Training
Pediatric Palliative Care: Insights into Assessment Tools andReview Instruments
Evaluation Of Temporal Health System Factors Influencing Parallel Palliative Care Referral For Children With Complex Cardiorespiratory Diagnosis And Treatment
Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing
Role of palliative care in centers performing maternal-fetal interventions
The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study
Tags: 2023, Aujoulat I, Belgium, Brichard B, Cesarean Section, Children, children’s palliative outcome scale (CPOS-2), Cross-sectional Studies, Degryse JM, Fonteyne C, Friedel M, Life-limiting Conditions, Outcomes, paediatric palliative care, Parents, patient-centred outcome measures, Quality Of Life, Renard M, September List 2037
Ameliorating Caregiver Burden in the Pediatric Palliative Population Utilizing a Psychophysiological Intervention
Tags: 2023, American Journal Of Hospice And Palliative Care, Anxiety/therapy, Beattie A, Caregiver Burden, Caregivers, Child, Cost Of Illness, diaphragmatic breathing, home care services, Humans, Informal caregivers, Palliative Care, Pediatrics, Quality Of Life, Respite Care, Restaino MR, rolestrain, September List 2024, Stress
Care Provider Behaviors That Shape Parent Identity as a "Good Parent" to Their Seriously Ill Child
Tags: 2021, Article, August List 2041, care behavior, Child, Child Parent Relation, Demographics, encouragement, Europe, Female, Health Belief, Hinds PS, Hospice, Hospital Admission, Human, Interpersonal Communication, legal guardian, Lord B, Male, Medical Decision Making, Neumann ML, Nurse, Palliative Medicine Reports, Palliative Therapy, Parent, Patient Comfort, Physician, Priority Journal, Quality Of Life, reassurance, United States, Voice, Weaver MS, Wiener L
"They were here, and they still matter": A qualitative study of bereaved parents legacy experiences and perceptions
Tags: 2023, Adult, Albanese E, Altruism, Article, August List 2035, Bereavement, Boles JC, Caregiver, Child, epistemology, genetic transcription, Grief, Human, Jones MT, Language, Palliative Medicine, Palliative Therapy, Perception, Phenomenology, Qualitative Research, Quality Of Life, ritual, Semi Structured Interview, Sibling, United States, Young Adult
Goals of Care Among Parents of Children Receiving Palliative Care
Tags: 2023, Article, August List 2032, Beight LJ, Bogetz JF, Boyden JY, Child, Chronic Disease, Cohort Analysis, Comfort, Controlled Study, Demographics, Feudtner C, Friebert SE, Hall M, Hill DL, Hinds PS, Human, JAMA Pediatrics, Johnston EE, Kang TI, life extension, Major Clinical Study, Male, Nye RT, Palliative Care, Palliative Therapy, Patient Care Planning, Quality Of Life, Wolfe J
Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation
Tags: 2023, Adolescent, Article, Artificial Ventilation, August List 2025, Boss RD, Child, Cohort Analysis, Content Analysis, Counseling, Decision Making, Ding Y, Female, Henderson CM, home ventilation, Human, Intensive Care Unit, Jabre NA, Lanier CL, Length Of Stay, Male, McDermott A, Mercer A, Palliative Therapy, PEC Innovation, pediatric patient, Pilot Study, Quality Of Life, Question Prompt List, respiratory failure, Semi Structured Interview, Shepard J, Tracheostomy, Ventilators, Mechanical, Vo HH, Wilfond BS
Siblings of children with life‐limiting conditions: Psychological adjustment and sibling relationships
Tags: 2017, 2026 SE2 - Parent Perspectives, behavior problems, Behaviour Problems, Child: Care, Health and Development, Childhood Development, Emotional Adjustment, Fullerton JM, Hain R, Hastings RP, Impact On Siblings, Life‐limiting, Quality Of Life, Sibling Relations, Terminally Ill Patients, Totsika V
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
Current State of Palliative Medical Care for Children at the Regional Level on the Example of the Minsk Region
Tags: 2021, Article, assisted ventilation, Belarus, Child, Halasheuskaya A, Health Belief, Home Care, Hope, Human, June 2022 List, Kashliak O, Lazarchik I, Long Term Care, Only Child, Paediatrics Eastern Europe, Palliative Therapy, Pediatrics, Quality Of Life, relative, Tikhonovets M, Uncertainty, Zaitsev D