Browse Items (311 total)
- Tags: Aged
THE DEVELOPMENT OF A CHILDREN'S HOSPICE PERINATAL SERVICE TO IMPROVE PERINATAL PALLIATIVE CARE - 10 YEARS ON
Tags: 2024, Aged, Archives of Disease in Childhood, Awareness, Bereavement, catchment area, Child, conference abstract, Diagnosis, extended family, Hospice, Hospice Care, Human, Multidisciplinary team, newborn period, October List 2024, Palliative Therapy, Patient Referral, positive feedback, Trisomy 18, Williams K
DO CHILDREN AND YOUNG PEOPLE WITH LIFELIMITING CONDITIONS RECEIVE TIMELY PALLIATIVE CARE INPUT AND ADVANCE CARE PLANNING?
Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death
Learning to Trust Yourself: Decision-Making Skills Among Parents of Children With Medical Complexity
Tags: 2024, Adams S, Adolescent, Adult, Aged, Article, August List 2024, Buchanan F, Caregiver, Chakravarti V, Child, Decision Making, Dewan T, Female, Finlay M, Human, Interview, Journal of Pain and Symptom Management, Learning, Mahant S, Male, McGuire KM, Nelson KE, Nicholas D, Palliative Therapy, Parent, Patient Referral, Qualitative Research, Semi Structured Interview, Skill, Widger K
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort Study
Tags: 2024, Aczon M, Adult, Aged, Avesar M, Child, Clinical Feature, Cohort Analysis, Cohort Studies, conference abstract, Critical Care Medicine, Death, Drug Therapy, extubation, Fainberg N, family counseling, Female, Hsu S, Human, Intensive Care Unit, July List 2024, Laksana E, Ledbetter D, machine learning, Major Clinical Study, Male, McCrory M, Morrow K, O'Brien C, operating room, organ donor, Pediatric Intensive Care Unit, predictive value, Pringle C, Randomized Controlled Trial, Retrospective Study, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, vital sign, Wetzel R, Winter M, Zhou A
A Review of pediatric Palliative Care Program in a Regional Hospital in ong Kong
Tags: 2021, Adolescent, Aged, Bereavement Support, BMJ Paediatrics Open, Child, Chromosome Aberration, Clinical Article, community support, conference abstract, congenital disorder, Congenital Malformation, do not resuscitate order, Drug Therapy, Emergency Ward, endocrinologist, Female, Follow Up, Gastrostomy, Hong Kong, Human, Intensive Care Unit, Intensivist, July List 2024, Kwong CH, Lee TYH, Li CH, limited mobility, Male, Man SS, Medical Record Review, Metabolic Disorder, Morbidity, Neonatal Intensive Care Unit, Neonatologist, Neurologic Disease, neurologist, Noninvasive Ventilation, nose feeding, Oncologist, Pain, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, pediatric ward, Pediatrician, perinatal morbidity, Quality Of Life, Therapy, Tracheostomy
Racial and Ethnic Disparities in End-of-Life Care of Children Undergoing Terminal Extubation in ICU
Tags: 2024, Adult, Age Distribution, Aged, airway pressure, Benzodiazepine, Burkiewicz K, Caucasian, Child, conference abstract, Critical Care Medicine, electronic medical record, ethnic difference, Ethnic Group, Ethnicity, extubation, Female, Hispanic, Human, hypertensive factor, Intensive Care, Intensive Care Unit, July List 2024, Major Clinical Study, Male, Morphine, Only Child, Pediatric Intensive Care Unit, positive end expiratory pressure ventilation, positive pressure ventilation, racial disparity, Secondary Analysis, Terminal Care, Tripathi S, ventilator, Winter M
Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Tags: 2024, Adolescent, Adult, Advance Care Planning, Aged, anxiety, Aoun S, Article, Beck Anxiety Inventory, Brodie N, care behavior, Caregiver, Caregiver Burden, Child, Clark H, Controlled Study, Detwiler K, Diagnosis, Distress Syndrome, Female, Follow Up, Fraser JL, Functional Assessment of Chronic Illness Therapy, Guerrera MF, Health Care Utilization, household income, Human, intention to treat analysis, July List 2024, Lyon ME, Major Clinical Study, Male, Needs Assessment, Pediatrics, Pilot Study, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, Single Blind Procedure, Therapy, Thompkins JD, Torres C, Trujillo Rivera EA, Younge T
The impact of specialized pediatric palliative care on advance care planning and healthcare utilization in children and young adults: a retrospective analysis of medical records of in-hospital deaths
Tags: 2024, Adult, Advance Care Planning, Aged, Article, Artificial Ventilation, BMC Palliative Care, Child, Cohort Analysis, Controlled Study, data warehouse, Female, Health Care Cost, Health Care Delivery, Health Care Utilization, Human, Infant, July List 2024, Kim CH, Kim MS, Lee J, Lee JW, Major Clinical Study, Male, Medical Record, Medical Records, Neuromuscular Disease, Newborn, Opiate, Palliative Care, Palliative Therapy, Quality Of Life, Resuscitation, Retrospective Study, South Korea, Terminal Care, Young Adult
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease
The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
Palliative care for infants with life-limiting conditions: Integrative review
Tags: 2023, Advance Care Planning, Aged, biological marker, BMJ Supportive and Palliative Care, Chronic Disease, Consultation, Content Analysis, English (language), February List 2024, Gill FJ, health practitioner, Human, Infant, Interpersonal Communication, Iten R, Medical Specialist, Nurse, O'Connor M, Palliative Therapy, Primary Health Care, quality improvement study, Review, Terminal Care, Therapy
Real World Presentation and Treatment Outcomes with a Predominant Induction Chemotherapy Based Approach in Nasopharyngeal Carcinoma: A Sixteen Year Report from a Teaching Hospital in India
Tags: 2023, 2023 SE5 - Low Resource Setting, adjuvant therapy, Adolescent, Adult, Aged, albumin/ec [Endogenous Compound], Anemia, antiemetic agent, Article, Bahadur S, Bhasker S, Biswas A, bone metastasis, Cancer Investigation, Cancer Recurrence, Cancer Staging, capecitabine/dt [Drug Therapy], carboplatin/cb [Drug Combination], carboplatin/dt [Drug Therapy], cervical lymph node, chemoradiotherapy, Child, cisplatin/ae [Adverse Drug Reaction], cisplatin/cb [Drug Combination], cisplatin/dt [Drug Therapy], cisplatin/to [Drug Toxicity], cobalt therapy, Cohort Analysis, cranial nerve paralysis, cyclophosphamide/cb [Drug Combination], cyclophosphamide/dt [Drug Therapy], date of death, Diarrhea, diplopia, distant metastasis, docetaxel/cb [Drug Combination], docetaxel/dt [Drug Therapy], dysphasia, epirubicin/cb [Drug Combination], epirubicin/dt [Drug Therapy], exophthalmos, febrile neutropenia, Female, fluorouracil/cb [Drug Combination], fluorouracil/dt [Drug Therapy], Follow Up, gemcitabine/dt [Drug Therapy], Gogi R, Headache, hearing impairment, Histopathology, Hospitalization, Human, hypothyroidism, India, induction chemotherapy, Intensity Modulated Radiation Therapy, Kumar R, liver metastasis, lung metastasis, Major Clinical Study, Male, Mohanti BK, mucosa inflammation, multiple cycle treatment, nasopharynx carcinoma/dt [Drug Therapy], nasopharynx carcinoma/rt [Radiotherapy], nasopharynx carcinoma/su [Surgery], neck dissection, neck swelling, Neutropenia, nose obstruction, overall response rate, Overall Survival, paclitaxel/cb [Drug Combination], paclitaxel/dt [Drug Therapy], palliative chemotherapy, peripheral neuropathy, Pramanik R, primary tumor/rt [Radiotherapy], progression free survival, Radiotherapy Dosage, Retrospective Study, Salvage Therapy, Sharma A, Sikka K, Singh AC, Smoking, Spinal cord, survival prediction, teaching hospital, Thakar A, thrombocytopenia, Thulkar S, toxicity/si [Side Effect], treatment interruption, Treatment Outcome, trismus, Vomiting, xerostomia
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
Gender Differences in Depressive Symptoms Following Child Death in Later
Tags: 2023, Adaptation Psychological, Adult, Age Factors, Aged, Bereavement, Child, Comparative Studies, Depression, Evaluation, Father-child Relations, Fathers, Female, Funding Source, Human, In Adulthood, In Middle Age, In Old Age, Journals of Gerontology Series B: Psychological Sciences & Social, Male, Mellencamp KA, Middle Age, Mortality, Mother-child Relations, Mothers, November List 2034, Only Child, Parent-child Relations, Prognosis, Psychosocial Factors, Recovery, Risk Factors, Sex Factors, Trends, United States, VULNERABILITY
Incremental cost analysis of pediatric hospice care in rural and urban Appalachia
Characteristics of Critically Ill Infants at the End of Life in the Neonatal Intensive Care Unit
Tags: 2023, Aged, Baughcum AE, Child, Cistone N, Critical Illness, Death, Female, Fortney CA, Garcia D, Gerhardt CA, Humans, Humphrey L, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Journal of Palliative Medicine, July List 2023, Keim MC, Male, Moscato EL, Nelin LD, Palliative Care, Retrospective Studies, Winning AM
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China
Tags: 2022, acceptance, Adult, Aged, Analgesia, Article, Attitude, Barriers, Black BP, CARE, China, Chinese, Clinical, controlled, Death, decision, Education, emotional, Facilitators, Female, Frontiers in Pediatrics, guidance, Human, intensive, Kain VJ, Major, making, Male, middle, Multicenter, Neonatal, Newborn, Nurse, Nurses, October 2022 List, Palliative, Scale, script, simplified, Skill, Social, Song Y, study, Therapy, Unit, vocational, Well-being, Zhong Y
Prospective, phenotype-driven selection of critically ill neonates for rapid exome sequencing is associated with high diagnostic yield
Tags: 2020, Aged, Agrawal PB, Beggs AH, Bodamer O, Copenheaver D, Critical Illness, exome sequencing, Exome/genetics, Genetic Testing, Genetics in Medicine, Genetti CA, Gold NB, Gubbels CS, Humans, Infant, Infant Newborn, Intensive Care Unit, June 2021 List, Juusola J, Madden JA, Neonates, Parad RB, Phenotype, Prospective Studies, Roumiantsev S, Stoler J, VanNoy GE, Whole Exome Sequencing, Wojcik MH, Yang S, Yu TW
Crying out in pain-A systematic review into the validity of vocalization as an indicator for pain
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
The 'good death' in pediatric oncology
Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult
Palliative care utilization in hospitalized children with cancer
Tags: 2020, Aged, Article, brain cancer, cancer model, Cheng B T, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Female, Hospital Admission, hospital cost, Hospital Mortality, Hospitalization, Hospitalized Child, Human, Human Tissue, Length Of Stay, Major Clinical Study, Male, mortality risk, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, Physician, Public Health, Resource Allocation, Wangmo T
Responsiveness of the motor function measure in neuromuscular diseases
Tags: 2012, Adolescent, Adult, Aged, Archives Of Physical Medicine And Rehabilitation, Berard C, Child, Disability Evaluation, Ecochard R, Female, Fermanian J, Girardot F, Humans, Iwaz J, Male, MFM, Middle Aged, Mobility Limitation, motor function measure, Motor Skills, Muscular Dystrophy Duchenne/physiopathology/rehabilitation, Neuromuscular Diseases/physiopathology/rehabilitation, Payan C, Perception, Physical Therapy Modalities, Prospective Studies, Q3 conditions, scale development, SMA1, tone and motor problems, tool development, Vuillerot C, Young Adult
The Behavior Problems Inventory-Short Form for individuals with intellectual disabilities: part I: development and provisional clinical reference data
Tags: 2012, Adolescent, Adult, Aged, Aged 80 and over, Aggression/psychology, Attention Deficit and Disruptive Behavior, behavioral problems, Child, Child Preschool, Didden R, Disorders/diagnosis/epidemiology/psychology, Dumont E L, Female, Hastings R, Humans, Intellectual Disability/diagnosis/epidemiology/psychology, Journal Of Intellectual Disability Research, Kroes D B, Male, Matson J L, Middle Aged, Multivariate Analysis, Personality Inventory/standards/statistics & numerical data, Prevalence, Reference Values, Rojahn J, Rowe E W, scale development, Self-Injurious Behavior/diagnosis/epidemiology/psychology, Sensitivity and Specificity, Sharber A C, Stereotypic Movement Disorder/diagnosis/epidemiology/psychology, tool development, unspecified ID, Young Adult
Development, behaviour and seizures in 300 cases of tuberous sclerosis
Tags: 1993, Adolescent, Adult, Aged, Aggression, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications/diagnosis, Family, Female, Humans, Hunt A, hyperactive behavior, Infant, Journal Of Intellectual Disability Research, Learning Disorders/complications, Male, Middle Aged, Psychiatric Status Rating Scales, Seizures/complications, sleep disturbance, Sleep Wake Disorders/complications, Social Behavior Disorders/complications, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications
Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G
Melatonin treatment in individuals with intellectual disability and chronic insomnia: a randomized placebo-controlled study
Tags: 2008, Adolescent, Adult, Aged, Braam W, Central Nervous System Depressants/adverse effects/therapeutic use, Child, Child Preschool, chromosome 18q deletion, Chronic Disease, Comorbidity, Curfs L, Didden R, Double-Blind Method, Female, Humans, Journal Of Intellectual Disability Research, Male, melatonin, Melatonin/adverse effects/therapeutic use, Mental Retardation/epidemiology/psychology, Middle Aged, MPS III, pharmacologic intervention, Q3 Scoping Review Results, Saliva, sleep disturbance/disorders, Sleep Initiation and Maintenance Disorders/drug therapy/epidemiology/psychology, Smits M, Time Factors, Treatment Outcome
Deep Brain Stimulation in Rare Inherited Dystonias
Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
Newborn genetic screening for spinal muscular atrophy in the UK: The views of the general population
Tags: 2018, Adolescent, Adult, Aged, Attitudes, bloodspot, Boardman FK, Ethics, Family, Female, Genetic Testing utilization, Health Knowledge, Humans, Infant, Internet, Male, Middle Aged, Molecular genetics & genomic medicine, Muscular Atrophy, Neonatal Screening methods, Neuromuscular Diseases genetics, Newborn, newborn genetic screening, November 2018 List, Practice, Risk Assessment methods, Sadler C, social implications, Spinal diagnosis genetics, Spinal Muscular Atrophy, Surveys And Questionnaires, United Kingdom epidemiology, Young PJ
A Multimodal Mindfulness Training to Address Mental Health Symptoms in Providers Who Care for and Interact With Children in Relation to End-of-Life Care
Tags: 2017, Abrams I, Adult, Aged, August 2018 List, Burnout, Clergy/px [Psychology], Depression/px [Psychology], Female, Gerhart J, Greene M, Health Personnel/px [psychology], Humans, Intensive Care Units, Levy MM, Male, McFadden Rory, Mental Health, Middle Aged, Mindfulness/mt [Methods], Neonatal, O'Mahony S, Pediatric, Professional/px [Psychology], Social Workers/px [psychology], Tamizuddin S, Terminal Care/px [psychology], The American Journal of Hospice & Palliative Care
Patients with malignant hematological disorders treated on a palliative care unit: prognostic impact of clinical factors
Tags: 2014, Adolescent, Adult, Aged, Analgesics, Annals Of Hematology, Backlog, Blood Transfusion, Buchheidt D, Databases, Disease-Free Survival, Factual, Female, Gencer D, Hematologic Neoplasms, Hemoglobins, Hochhaus A, Hofheinz R-D, Hofmann W-K, Humans, Idiopathic, Journal Article, Kripp M, Male, Middle Aged, Opioid, Palliative Care, Parenteral Nutrition, Pilz LR, Platelet Count, Prospective Studies, Purpura, Retrospective Studies, Risk Factors, Schmidt C, Serum Albumin, Survival Rate, Thrombocytopenic, Time Factors, Willer A
A cross-sectional study on prevalence of pain and breakthrough pain among an unselected group of outpatients in a tertiary cancer clinic
Tags: 2014, Adolescent, Adult, Aged, Ambulatory Care Facilities, Backlog, Breakthrough Pain, Brunelli C, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Hjermstad MJ, Humans, Journal Article, Kaasa S, Klepstad P, Male, Middle Aged, Neoplasms, Norway, Outpatients, Pain Measurement, Prevalence, Raj Sunil X, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Thronaes M, Young Adult
Predictive factors for do-not-resuscitate designation among terminally ill cancer patients receiving care from a palliative care consultation service.
Tags: 2014, Aged, Backlog, Chen JS, Chou WC, DNAR, Family/px [psychology], Female, Hsieh C-H, Hsu H-C, Huang K-G, Humans, Hung Y-S, Jaing T-H, Journal Article, Journal of Pain and Symptom Management, Kao Chen-Yi, Liau Chi-Ting, Lin Yung-Chang, Liu Chien-Ying, Liu Keng-Hao, Liver Neoplasms/di [Diagnosis], Liver Neoplasms/pp [Physiopathology], Liver Neoplasms/px [Psychology], Liver Neoplasms/th [Therapy], Male, Middle Aged, Multivariate Analysis, Neoplasms/di [Diagnosis], Neoplasms/pp [Physiopathology], Neoplasms/px [psychology], Neoplasms/th [therapy], Palliative Care, Prognosis, Referral And Consultation, Resuscitation Orders, Resuscitation Orders/px [Psychology], Retrospective Studies, Sex Factors, Shen W-C, Su Po-Jung, Taiwan, Tang Shu-Chuan, Terminally Ill, Terminally Ill/px [Psychology], Time Factors, Wang Hung-Ming, Wu Jin-Hou