Browse Items (317 total)

Tags: 2014, 2024 SE2 - Parent Perspectives, Adult, Aged, American Journal of Orthopsychiatry, Cadell S, Caregivers/psychology, Child, Children with Disabilities/psychology, Davies E, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit Quosai T, Steele R, Straatman L, Young Adult

Tags: 2024, 2025 SE1 - Oncology, Adolescent, Aged, Caregiver, Child, Childhood Cancer, English (language), Gender, Health Care Personnel, Human, Infant, Journal of Pediatric Nursing, Male, Newborn, Oncology, oncology nurse, Palliative Therapy, Parent, Review, Sambhi SK, School Child, Shorey S, Systematic Review, Tan WL, Terminal Cancer

Tags: 2024, 2025 SE1 - Oncology, Adult, Aged, Alabama, Article, at home mortality, Bhatia S, Cancer, Central Nervous System Tumor, Child, Cohort Analysis, Content Analysis, Currie E, Davis ES, Drug Therapy, Family Decision Making, Female, Hospital Mortality, Human, Interview, Johnston EE, Kumar R, Lawhon V, Likert scale, Male, Malignant Neoplasm, Martinez I, open access, Palliative Therapy, Parent, Parental Death, Patient Comfort, Place Of Death, Religion, Rosenberg AR, Semi Structured Interview, Sibling, Snaman JM, special situation for pharmacovigilance, Tefera RB, Terminal Care

Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Age Factors, Aged, Cohort Studies, Female, Fujikawa K, Furuya M, Goto H, Gyoda Y, home care services, Humans, Iida A, Kawauchi J, Kosugi Y, Kumagai Y, Male, Middle Aged, Murakami A, Neoplasms, Neoplasms/th [therapy], Palliative Care, Palliative Care/mt [methods], Retrospective Studies, Sakuma E, Supportive Care In Cancer, Takagi K, Terminal Care/mt [methods], Watanabe A, Watanabe H, Watanabe J, Young Adult

Tags: 2024, Adult, Aged, Archer E, Article, Bereavement, Bereavement Support, Caregiver, Child, Child Death, Clinical Article, Drouin K, Female, Grief, Hayes A, Hildenbrand AK, Human, Journal of Palliative Medicine, Male, March List 2025, meaning-making, Middle Aged, Miller EG, Palliative Therapy, Parent, Quality Of Life, support group, Therapy

Tags: 2024, Adolescent, Adult, Aged, Ates G, Child, Child Preschool, Cuhls H, February List 2025, Female, Germany, Grief, Hesse M, Humans, Male, Middle Aged, Parents, Parents/px [psychology], Supportive Care In Cancer, Surveys And Questionnaires, Terminally Ill, Terminally Ill/px [Psychology]

Tags: 2024, Aged, Archives of Disease in Childhood, Awareness, Bereavement, catchment area, Child, conference abstract, Diagnosis, extended family, Hospice, Hospice Care, Human, Multidisciplinary team, newborn period, October List 2024, Palliative Therapy, Patient Referral, positive feedback, Trisomy 18, Williams K

Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death

Tags: 2024, Adams S, Adolescent, Adult, Aged, Article, August List 2024, Buchanan F, Caregiver, Chakravarti V, Child, Decision Making, Dewan T, Female, Finlay M, Human, Interview, Journal of Pain and Symptom Management, Learning, Mahant S, Male, McGuire KM, Nelson KE, Nicholas D, Palliative Therapy, Parent, Patient Referral, Qualitative Research, Semi Structured Interview, Skill, Widger K

Tags: 2024, Aczon M, Adult, Aged, Avesar M, Child, Clinical Feature, Cohort Analysis, Cohort Studies, conference abstract, Critical Care Medicine, Death, Drug Therapy, extubation, Fainberg N, family counseling, Female, Hsu S, Human, Intensive Care Unit, July List 2024, Laksana E, Ledbetter D, machine learning, Major Clinical Study, Male, McCrory M, Morrow K, O'Brien C, operating room, organ donor, Pediatric Intensive Care Unit, predictive value, Pringle C, Randomized Controlled Trial, Retrospective Study, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, vital sign, Wetzel R, Winter M, Zhou A

Tags: 2021, Adolescent, Aged, Bereavement Support, BMJ Paediatrics Open, Child, Chromosome Aberration, Clinical Article, community support, conference abstract, congenital disorder, Congenital Malformation, do not resuscitate order, Drug Therapy, Emergency Ward, endocrinologist, Female, Follow Up, Gastrostomy, Hong Kong, Human, Intensive Care Unit, Intensivist, July List 2024, Kwong CH, Lee TYH, Li CH, limited mobility, Male, Man SS, Medical Record Review, Metabolic Disorder, Morbidity, Neonatal Intensive Care Unit, Neonatologist, Neurologic Disease, neurologist, Noninvasive Ventilation, nose feeding, Oncologist, Pain, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, pediatric ward, Pediatrician, perinatal morbidity, Quality Of Life, Therapy, Tracheostomy

Tags: 2024, Adult, Age Distribution, Aged, airway pressure, Benzodiazepine, Burkiewicz K, Caucasian, Child, conference abstract, Critical Care Medicine, electronic medical record, ethnic difference, Ethnic Group, Ethnicity, extubation, Female, Hispanic, Human, hypertensive factor, Intensive Care, Intensive Care Unit, July List 2024, Major Clinical Study, Male, Morphine, Only Child, Pediatric Intensive Care Unit, positive end expiratory pressure ventilation, positive pressure ventilation, racial disparity, Secondary Analysis, Terminal Care, Tripathi S, ventilator, Winter M

Tags: 2024, Adolescent, Adult, Advance Care Planning, Aged, anxiety, Aoun S, Article, Beck Anxiety Inventory, Brodie N, care behavior, Caregiver, Caregiver Burden, Child, Clark H, Controlled Study, Detwiler K, Diagnosis, Distress Syndrome, Female, Follow Up, Fraser JL, Functional Assessment of Chronic Illness Therapy, Guerrera MF, Health Care Utilization, household income, Human, intention to treat analysis, July List 2024, Lyon ME, Major Clinical Study, Male, Needs Assessment, Pediatrics, Pilot Study, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, Single Blind Procedure, Therapy, Thompkins JD, Torres C, Trujillo Rivera EA, Younge T

Tags: 2024, Adult, Advance Care Planning, Aged, Article, Artificial Ventilation, BMC Palliative Care, Child, Cohort Analysis, Controlled Study, data warehouse, Female, Health Care Cost, Health Care Delivery, Health Care Utilization, Human, Infant, July List 2024, Kim CH, Kim MS, Lee J, Lee JW, Major Clinical Study, Male, Medical Record, Medical Records, Neuromuscular Disease, Newborn, Opiate, Palliative Care, Palliative Therapy, Quality Of Life, Resuscitation, Retrospective Study, South Korea, Terminal Care, Young Adult

Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy

Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal

Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease

Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K

Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J

Tags: 2023, Advance Care Planning, Aged, biological marker, BMJ Supportive and Palliative Care, Chronic Disease, Consultation, Content Analysis, English (language), February List 2024, Gill FJ, health practitioner, Human, Infant, Interpersonal Communication, Iten R, Medical Specialist, Nurse, O'Connor M, Palliative Therapy, Primary Health Care, quality improvement study, Review, Terminal Care, Therapy

Tags: 2023, 2023 SE5 - Low Resource Setting, adjuvant therapy, Adolescent, Adult, Aged, albumin/ec [Endogenous Compound], Anemia, antiemetic agent, Article, Bahadur S, Bhasker S, Biswas A, bone metastasis, Cancer Investigation, Cancer Recurrence, Cancer Staging, capecitabine/dt [Drug Therapy], carboplatin/cb [Drug Combination], carboplatin/dt [Drug Therapy], cervical lymph node, chemoradiotherapy, Child, cisplatin/ae [Adverse Drug Reaction], cisplatin/cb [Drug Combination], cisplatin/dt [Drug Therapy], cisplatin/to [Drug Toxicity], cobalt therapy, Cohort Analysis, cranial nerve paralysis, cyclophosphamide/cb [Drug Combination], cyclophosphamide/dt [Drug Therapy], date of death, Diarrhea, diplopia, distant metastasis, docetaxel/cb [Drug Combination], docetaxel/dt [Drug Therapy], dysphasia, epirubicin/cb [Drug Combination], epirubicin/dt [Drug Therapy], exophthalmos, febrile neutropenia, Female, fluorouracil/cb [Drug Combination], fluorouracil/dt [Drug Therapy], Follow Up, gemcitabine/dt [Drug Therapy], Gogi R, Headache, hearing impairment, Histopathology, Hospitalization, Human, hypothyroidism, India, induction chemotherapy, Intensity Modulated Radiation Therapy, Kumar R, liver metastasis, lung metastasis, Major Clinical Study, Male, Mohanti BK, mucosa inflammation, multiple cycle treatment, nasopharynx carcinoma/dt [Drug Therapy], nasopharynx carcinoma/rt [Radiotherapy], nasopharynx carcinoma/su [Surgery], neck dissection, neck swelling, Neutropenia, nose obstruction, overall response rate, Overall Survival, paclitaxel/cb [Drug Combination], paclitaxel/dt [Drug Therapy], palliative chemotherapy, peripheral neuropathy, Pramanik R, primary tumor/rt [Radiotherapy], progression free survival, Radiotherapy Dosage, Retrospective Study, Salvage Therapy, Sharma A, Sikka K, Singh AC, Smoking, Spinal cord, survival prediction, teaching hospital, Thakar A, thrombocytopenia, Thulkar S, toxicity/si [Side Effect], treatment interruption, Treatment Outcome, trismus, Vomiting, xerostomia

Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting

Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological

Tags: 2023, Adaptation Psychological, Adult, Age Factors, Aged, Bereavement, Child, Comparative Studies, Depression, Evaluation, Father-child Relations, Fathers, Female, Funding Source, Human, In Adulthood, In Middle Age, In Old Age, Journals of Gerontology Series B: Psychological Sciences & Social, Male, Mellencamp KA, Middle Age, Mortality, Mother-child Relations, Mothers, November List 2034, Only Child, Parent-child Relations, Prognosis, Psychosocial Factors, Recovery, Risk Factors, Sex Factors, Trends, United States, VULNERABILITY

Tags: 2023, Aged, Appalachian Region, August List 2048, Child, Costs And Cost Analysis, Cozad MJ, Hospice Care, Hospices, Humans, Keim-Malpass J, Lindley LC, Medicare, Patient Protection and Affordable Care Act, Svynarenko R, The Journal of Rural Health, United States

Tags: 2023, Aged, Baughcum AE, Child, Cistone N, Critical Illness, Death, Female, Fortney CA, Garcia D, Gerhardt CA, Humans, Humphrey L, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Journal of Palliative Medicine, July List 2023, Keim MC, Male, Moscato EL, Nelin LD, Palliative Care, Retrospective Studies, Winning AM

Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult

Tags: 2022, acceptance, Adult, Aged, Analgesia, Article, Attitude, Barriers, Black BP, CARE, China, Chinese, Clinical, controlled, Death, decision, Education, emotional, Facilitators, Female, Frontiers in Pediatrics, guidance, Human, intensive, Kain VJ, Major, making, Male, middle, Multicenter, Neonatal, Newborn, Nurse, Nurses, October 2022 List, Palliative, Scale, script, simplified, Skill, Social, Song Y, study, Therapy, Unit, vocational, Well-being, Zhong Y

Tags: 2020, Aged, Agrawal PB, Beggs AH, Bodamer O, Copenheaver D, Critical Illness, exome sequencing, Exome/genetics, Genetic Testing, Genetics in Medicine, Genetti CA, Gold NB, Gubbels CS, Humans, Infant, Infant Newborn, Intensive Care Unit, June 2021 List, Juusola J, Madden JA, Neonates, Parad RB, Phenotype, Prospective Studies, Roumiantsev S, Stoler J, VanNoy GE, Whole Exome Sequencing, Wojcik MH, Yang S, Yu TW

Tags: 2020, Achterberg WP, Aged, Aged 80 and over, April 2021 List, Child, Crying, de Vries R, European Journal Of Pain, Helmer LML, Humans, Lautenbacher S, Lobbezoo F, Pain Measurement, Pain/diagnosis, Sampson EL, Weijenberg RAF

Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker

Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C

Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult

Tags: 2020, Aged, Article, brain cancer, cancer model, Cheng B T, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Female, Hospital Admission, hospital cost, Hospital Mortality, Hospitalization, Hospitalized Child, Human, Human Tissue, Length Of Stay, Major Clinical Study, Male, mortality risk, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, Physician, Public Health, Resource Allocation, Wangmo T

Tags: 2012, Adolescent, Adult, Aged, Archives Of Physical Medicine And Rehabilitation, Berard C, Child, Disability Evaluation, Ecochard R, Female, Fermanian J, Girardot F, Humans, Iwaz J, Male, MFM, Middle Aged, Mobility Limitation, motor function measure, Motor Skills, Muscular Dystrophy Duchenne/physiopathology/rehabilitation, Neuromuscular Diseases/physiopathology/rehabilitation, Payan C, Perception, Physical Therapy Modalities, Prospective Studies, Q3 conditions, scale development, SMA1, tone and motor problems, tool development, Vuillerot C, Young Adult

Tags: 2012, Adolescent, Adult, Aged, Aged 80 and over, Aggression/psychology, Attention Deficit and Disruptive Behavior, behavioral problems, Child, Child Preschool, Didden R, Disorders/diagnosis/epidemiology/psychology, Dumont E L, Female, Hastings R, Humans, Intellectual Disability/diagnosis/epidemiology/psychology, Journal Of Intellectual Disability Research, Kroes D B, Male, Matson J L, Middle Aged, Multivariate Analysis, Personality Inventory/standards/statistics & numerical data, Prevalence, Reference Values, Rojahn J, Rowe E W, scale development, Self-Injurious Behavior/diagnosis/epidemiology/psychology, Sensitivity and Specificity, Sharber A C, Stereotypic Movement Disorder/diagnosis/epidemiology/psychology, tool development, unspecified ID, Young Adult

Tags: 1993, Adolescent, Adult, Aged, Aggression, behavioral problems, characteristics, Child, Child Preschool, Developmental Disabilities/complications/diagnosis, Family, Female, Humans, Hunt A, hyperactive behavior, Infant, Journal Of Intellectual Disability Research, Learning Disorders/complications, Male, Middle Aged, Psychiatric Status Rating Scales, Seizures/complications, sleep disturbance, Sleep Wake Disorders/complications, Social Behavior Disorders/complications, Trajectory, Tuberous Sclerosis, Tuberous Sclerosis/complications

Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G

Tags: 2008, Adolescent, Adult, Aged, Braam W, Central Nervous System Depressants/adverse effects/therapeutic use, Child, Child Preschool, chromosome 18q deletion, Chronic Disease, Comorbidity, Curfs L, Didden R, Double-Blind Method, Female, Humans, Journal Of Intellectual Disability Research, Male, melatonin, Melatonin/adverse effects/therapeutic use, Mental Retardation/epidemiology/psychology, Middle Aged, MPS III, pharmacologic intervention, Q3 Scoping Review Results, Saliva, sleep disturbance/disorders, Sleep Initiation and Maintenance Disorders/drug therapy/epidemiology/psychology, Smits M, Time Factors, Treatment Outcome

Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]