Browse Items · Pediatric Palliative Care Library

Evaluation of service user-led workshops in children's palliative care education

Children's nurses report feeling unprepared when caring for children with life-limiting conditions and their families, while the value of including service users in the provision of nursing education is increasingly recognised. This small-scale…

Tags: 2023, Bereavement, Beringer A, Child Health, Clinical, Education, End Of Life Care, Grief, Kembrey J, Nursing Children and Young People, Palliative Care, Pavey J, post-registration education, Pre-registration education, Professional, September List 2048

Disposition Decisions in Cases of Medical Complexity and Health Inequity

The question of optimal disposition for children with complex medical and social circumstances has long challenged the well-intentioned clinician. The coronavirus disease 2019 pandemic created unique difficulties for patients, families, and health…

Tags: 2022, Adult, Anspacher M, Child, Clinical, COVID-19, Ethics, Health, Humans, Inequities, Lantos JD, Madrigal V, October 2022 List, Palliative Care, Pandemics, Pediatrics, Shapiro J P

"Between Wings of Hope and Fear": Muslim Parents' Experiences with the American Health Care System

Background and Objectives: Historically marginalized religious and cultural groups are at risk for lower quality of care than majority groups. No study to date specifically queries Muslim experiences with the American health care system (AHCS). We…

Tags: 2022, Analysis, Article, barrier, CARE, Child, Clinical, Communication, content, Evaluation, Fear, Female, Genetic, Health, Human, Interview, Journal of Palliative Medicine, Kamal AH, Kolmar A, Male, marginalized, married, Muslim, October 2022 List, Patients, Pediatrics, person, Population, Qualitative, Research, sample, semi, size, States, Steinhauser KE, structured, system, thematic, transcription, United, wing

Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China

Neonatal nurses in mainland China encounter various challenges when it comes to delivering palliative care to neonates. The aim of this study was to determine the barriers and facilitators of neonatal nurses' attitudes to palliative care for neonates…

Tags: 2022, acceptance, Adult, Aged, Analgesia, Article, Attitude, Barriers, Black BP, CARE, China, Chinese, Clinical, controlled, Death, decision, Education, emotional, Facilitators, Female, Frontiers in Pediatrics, guidance, Human, intensive, Kain VJ, Major, making, Male, middle, Multicenter, Neonatal, Newborn, Nurse, Nurses, October 2022 List, Palliative, Scale, script, simplified, Skill, Social, Song Y, study, Therapy, Unit, vocational, Well-being, Zhong Y

The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses

BACKGROUND: This study is aimed to perform the translation and cultural adaptation of the Neonatal Palliative Care Attitude Scale (NiPCAS) and evaluation of its psychometric properties with Portuguese neonatal nurses. METHOD(S): The research started…

Tags: 2022, alpha, Analysis, Article, Attitude, Barbosa J, CARE, Clinical, coefficient, confirmatory, consistency, controlled, convergent, Cronbach, degree, discriminant, Education, end-of-life, error, experiment, Face, factor, Female, Figueira AR, Fradique E, Freedom, Human, intensive, internal, Major, Male, mean, Neonatal, Newborn, Nurse, Nursing, October 2022 List, Of, Palliative, Palliative & Supportive Care, quantitative, Rebotim AM, Reliability, Roldao MG, root, Santos Curado MA, Scale, Software, Sousa F P, squared, study, supportive, terminal, Therapy, Unit, VALIDATION, Validity

How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care

Purpose Intensive care is a stressful environment in which team-family conflicts commonly occur. If managed poorly, conflicts can have negative effects on all parties involved. Previous studies mainly investigated these conflicts and their management…

Provider Perceptions for Withdrawing Life Sustaining Therapies at a Large Pediatric Hospital

Context: More than 74% of pediatric deaths occur in an intensive care unit (ICU), with 40% occurring after withdrawal of life-sustaining therapies (WOLST). No needs assessment has described provider needs or suggestions for improving the WOLST…

Tags: 2022, Analysis, Article, CARE, Carpenter AT, Casas JA, Child, Clinical, Coleman RD, coronary, Crawford CA, data, Drug, erratum, experiment, Female, guideline, Health, Hospital, Human, intensive, Journal of Pain and Symptom Management., Life, Major, Male, Neonatal, Palliative, Pediatric, Perception, Practice, Qualitative, Quality, quantitative, Sawyer K E, September 2022 List, Software, study, sustaining, Therapy, Treatment, Tume SC, Unit, Withdrawal

Inequalities in Access to Bereavement Support Before and During COVID-19: Findings from Voluntary and Community Sector Bereavement Services in the UK

Background/aims: The COVID-19 pandemic has resulted in global mass bereavement; in the UK alone there have been 140,000 deaths to date, with a disproportionate impact on Black, Asian or minoritized ethnic (BME) communities. Voluntary and community…

Tags: 2022, abstract, and, Attention, Bereavement, Byrne A, Child, Clinical, Conference, controlled, coronavirus, disadvantaged, Disease, ethnic, Female, Gender, Goss S, group, Harrop E, Hospice, Human, Longo M, Major, Male, Medeiros Mirra R, media, minority, Nelson A, Organization, Palliative, Palliative Medicine, Pandemic, Penny A, Population, Seddon K, Selman L, September 2022 List, Social, study, Support, Sutton E, Therapy, Wakefield D, welfare

A Qualitative Study Into Parents' Experiences With Loss During Their Child's End-Of-Life: Enduring and Intrusions of Grief

Background/aims: Parents of children receiving palliative care experience incremental losses and feelings of grief. During the end-of-life (EOL), the dynamics of being confronted with the growing threat of losing their child while fulfilling…

Tags: 2022, Boelen PA, Child, Child-parent relation, Clinical, De Jonge RR, Fahner JC, Grootenhuis MA, Houben M L, Kars MC, Kochen E M, Palliative Medicine, Semi-Structured Interview, September 2022 List, Social Support, Tataranno ML, Teunissen SC, thinking impairment/dm [Disease Management]

Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research

Background/aims: Patient and public involvement (PPI) is essential to design and deliver meaningful research, but evidence on how to involve children and young people (CYP) in palliative care studies is limited. We aim to develop strategies to engage…

Nurses' experiences of managing vulnerability when working with seriously ill children

BACKGROUND: Nurses who work with very unwell or dying children may experience intense sorrow and distress in response to loss, which can take an emotional toll on them, potentially affecting care provision. AIM: This study aimed to explore the…

Tags: 2022, attitudes to death, Child Health, Clinical, Donohue G, End Of Life Care, Grief, Higgins A, March 2022 List, Nugent A, nurses’ wellbeing, Nursing Children and Young People, Professional, professional issues

Viral gene therapy for paediatric neurological diseases: progress to clinical reality

In the era of genomic medicine, diagnoses of rare paediatric neurological diseases are increasing. Many are untreatable and life-limiting, leading to an exceptional increase in gene therapy development. It is estimated that 20 gene therapy products…

Tags: 2021, Chu WS, Clinical, Developmental Medicine & Child Neurology, June 2021 List, Life-limiting, neurological diseases, Ng J, Paediatric, Privolizzi R, Tijani M, viral gene therapy

Use of subcutaneous fluids in palliative care with children: a case study

Quality of life is a major consideration in children's palliative care, particularly at the end of life. Optimal symptom management is crucial in maintaining quality of life, with the aim being to ensure the child is as comfortable as possible.…

Implementing music therapy in a Norwegian neonatal intensive care unit

BACKGROUND: Neonatal intensive care unit (NICU) music therapy is an emerging discipline. There is a growing evidence base supporting its use, with an emphasis on the immediate and short-term positive effects on infants' physiological responses and…

National Children's Hospitals Bereavement Network standards for supporting families following the death of a child

In England, a child death review process must be undertaken when a child dies, regardless of the cause of death. Scotland and Wales have their own version of the child death review process, while it is the author's understanding that Northern Ireland…

Tags: 2020, Bereavement, Bereavement Support, Child Health, Clinical, Death, Edwards F, End-of-life Care, Grief, November 2020 List, Nursing Children and Young People, Parents

Why Are There So Few Ethics Consults in Children's Hospitals?

In most children's hospitals, there are very few ethics consultations, even though there are many ethically complex cases. We hypothesize that the reason for this may be that hospitals develop different mechanisms to address ethical issues and that…

A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making.

Patient race/ethnicity affects health care utilization, provider trust, and treatment choice. It is uncertain how these influences affect pediatric care. We performed a systematic review (PubMed, Scopus, Web of Science, PsycINFO, Cochrane, and…

Benefits of Early Referral to Pediatric Palliative Care for a Child With a Rare Disease

The article outlines the benefits of palliative care supporting the child and family with attention to individualized symptom management, improved communication, and support making difficult decisions. Topics mentioned include the research program…

Medical ethics in pediatric critical care

Ethically charged situations are common in pediatric critical care. Most situations can be managed with minimal controversy within the medical team or between the team and patients/families. Familiarity with institutional resources, such as hospital…

The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan

The purposes of research were to describe the neonatal clinicians' personal views and attitudes on neonatal ethical decision-making, to identify factors that might affect these attitudes and to compare the attitudes between neonatal physicians and…

Content specificity of attention bias to threat in anxiety disorders: A meta-analysis

Despite the established evidence for threat-related attention bias in anxiety, the mechanisms underlying this bias remain unclear. One important unresolved question is whether disorder-congruent threats capture attention to a greater extent than do…

Quantitative Evaluation of the Clinical Efficacy of Attention Bias Modification Treatment for Anxiety Disorders

Attention bias modification treatment (ABMT) is a novel treatment for anxiety disorders. Although a number of other meta-analytic reviews exist, the purpose of the present meta-analysis is to examine issues unaddressed in prior reviews. Specifically,…

Appropriate use of artificial nutrition and hydration--fundamental principles and recommendations

2005

Tags: 2005, Advance Directives, Backlog, Caplan A, Casarett D, Clinical, Ethics, Humans, Journal Article, Kapo J, Life Support Care/ethics, Nutritional Support/adverse effects/ethics, Palliative Care, Patient Rights, The New England Journal Of Medicine, Third-Party Consent, United States, Withholding Treatment/ethics

Ethical problems in pediatric critical care: consent

Informed consent constitutes one of the important considerations included in the myriad ethical dilemmas in the pediatric intensive care unit. Traditionally, the law has viewed children as incompetent to make medical decisions, and society has…

Termination of nutrition and hydration in a child with vegetative state

A child in a vegetative state may present difficult decisions for physicians and families regarding the course of treatment. We report a case of a child who entered a prolonged vegetative state following status epilepticus. The child's parents…

Work, knowledge and argument in specialist consultations: incorporating tacit knowledge into system design and development

To understand how video telephone technology could support consultations between pathologists and surgeons, this study looked at what constitutes 'work' in clinical consultations. Using several methods (participant observation, video and interviews),…

Tags: 1993, Backlog, Clinical, Communication, Hospital, Humans, Interprofessional Relations, Journal Article, Medical & Biological Engineering & Computing, Medical Staff, Non-U.S. Gov't, Nyce JM, Pathology, Research Support, Surgery, Timpka T

Review of ethics in paediatric anaesthesia: intensive care issues

This is the third of a series of three articles examining the recent changes in the law in relation to ethics and the practice of paediatric anaesthesia. The review covers, in a practical question and answer format, the topics of consent, research,…

Tags: 2001, Anesthesiology/legislation & jurisprudence, Backlog, Brain Death/diagnosis, Child, Clinical, Edgar J, Ethics, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Morton NS, Pace NA, Paediatric Anaesthesia, Pediatric/legislation & jurisprudence, Third-Party Consent, Tissue Donors/legislation & jurisprudence, Withholding Treatment

Browse Items (27 total)