Browse Items (11 total)
- Tags: responsibility
The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases
Tags: 2024, Adolescence, Aggression, Agitation, antiemetic agent/pv [Special Situation for Pharmacovigilance], anxiety disorder, apathy, appetite stimulant/pv [Special Situation for Pharmacovigilance], Augustine EF, automutilation, Behavior Therapy, body weight gain, Brown HB, Caregiver Burden, Child Psychiatry, Childhood Mortality, choreoathetosis/dt [Drug Therapy], cognitive defect/si [Side Effect], collaborative care team, Comorbidity, degenerative disease/dm [Disease Management], degenerative disease/dt [Drug Therapy], Dementia, disease exacerbation, Dysphagia, Editorial, Expectation, extrapyramidal symptom, February List 2025, feeding disorder, feeding tube, first-line treatment, gabapentin/dt [Drug Therapy], gabapentin/pv [Special Situation for Pharmacovigilance], Hauptman AJ, high risk behavior, Human, Huntington chorea/dm [Disease Management], iatrogenic disease/si [Side Effect], Interpersonal Communication, Irritability, Journal Of The American Academy Of Child And Adolescent Psychiatry, juvenile neuronal ceroid lipofuscinosis/dm [Disease Management], Lafora disease, Live Birth, Medication therapy management, mental health care, mirtazapine/pv [Special Situation for Pharmacovigilance], mood disorder, motor dysfunction, neuroleptic agent/ae [Adverse Drug Reaction], neurologic disease/dm [Disease Management], neuropsychiatry, obsession, onset age, Palliative Therapy, parenting education, parkinsonism, Patient Care, Patient Comfort, pediatric patient, perseveration, Polypharmacy, Prevalence, Prognosis, psychiatric neuropalliative care, psychoeducation, psychosis, Quality Of Life, quetiapine/dt [Drug Therapy], quetiapine/pv [Special Situation for Pharmacovigilance], responsibility, risperidone/dt [Drug Therapy], risperidone/pv [Special Situation for Pharmacovigilance], Seizure, sensory dysfunction, Side Effect, sleep disorder, Spasticity, Symptom, symptom burden, tardive dyskinesia/si [Side Effect], Tay Sachs disease, trazodone/dt [Drug Therapy], trazodone/pv [Special Situation for Pharmacovigilance], visual impairment, Young Adult
The impact, perceptions and needs of parents of children with epidermolysis bullosa
Tags: 2024, Aldous C, Article, Awareness, Blackbeard D, Chateau AV, Child, Communication Skill, Dlova N, epidermolysis bullosa, epistemology, ethnography, Experience, Health Care Access, Health Care Cost, Health Care Disparity, Health Care System, health Insurance, Human, Internet, Interview, Medical Practice, Palliative Therapy, Perception, Personal Experience, pregnant woman, Qualitative Research, Quality Of Life, responsibility, Semi Structured Interview, September List 2024, Shaw CM, social aspect, South African Family Practice, Systematic Review, Yoga
"The medicine is the easy part": Pediatric physicians' emotional labor in end-of-life care
Tags: 2023, Article, buffer, Burnout, Child, Clinical Article, Drawing, emotional support, Female, Gengler AM, Human, Interview, Male, Medical Education, October List 2042, Pediatrician, Physician, responsibility, seashore, SSM - Qualitative Research in Health, Terminal Care, University Hospital, Wellbeing, work environment
A team around the child' professionals' experiences of unmet needs, access and expectations in children's palliative care services, a phenomenological study in the UK
Tags: 2023, anxiety, Article, care behavior, Child, Constantinou G, Cook EJ, Expectation, genetic transcription, Human, Journal Of Child Health Care, May List 2023, Only Child, Palliative Care, palliative nursing, Pediatrics, Phenomenology, Randhawa G, Respite Care, responsibility, Semi Structured Interview, Tolliday E
How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care
Tags: 2022, Adult, Akkermans A, Article, CARE, Cherpanath TGV, Child, Clinical, Conflict, Conversation, critically, de Vos MA, decision, Emotion, Family, Female, Genetic, Health, Human, ill, intensive, Intensive Care Medicine, literacy, making, Male, Management, Morality, Newborn, Patient, Qualitative, Research, responsibility, Schultz MJ, September 2022 List, Smets EMA, Spijkers AS, transcription, Uncertainty, Unit, van de Loo M, van Heerde M, van Kaam AH, van Woensel JBM, Willems DL
What impedes timely pediatric palliative care consults? A preliminary report
Utilizing a collaborative learning activity to sensitize interprofessional students to palliative care scopes of practice with adolescent and young adults
Tags: 2019, Adult, Article, collaborative learning, Education, graduate student, Health Care Personnel, Human, Interprofessional Relations, Interview, Jones B, Journal Of Interprofessional Care, Linton B, Lippe M, Malignant Neoplasm, Oncology, Oncology 2019 List, Palliative Care, Palliative Therapy, Professional, Professional Role, public relations, responsibility, Scope Of Practice, vulnerable population, Young Adult
Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation
Tags: 2019, Adolescence, Adolescent, Adult, Albrecht U V, Anthropometry, Article, Breathing, Child, chronic lung disease, Clinical Article, Controlled Study, Cystic Fibrosis, Disability, Dittrich A M, Dopfer C, February 2020 List, Female, Fuge J, Hansen G, Human, JMIR mHealth and uHealth, Junge S, Life Expectancy, life satisfaction, lung function, Male, mobile application, mobile phone, Nolte H, Pieper K, Quality Of Life, Questionnaire, responsibility, Ringshausen F C, Rudolf I, Sauer-Heilborn A, Self Care, Tummler B, von Jan U, Young Adult
A demanding act of love: Barriers and challenges in communication and decision-making for infants at the limits of viability
Medical assistance in dying: A paediatric perspective
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Tags: 2018, Attention, Castor C, Child, Childhood Cancer, Clinical Article, conference abstract, December 2018 List, Expectation, Family Life, Father, Female, genetic transcription, Hansson H, Home Care, Human, Interview, Kristensson HI, Landgren K, lion, Male, Mother, Nonhuman, Pediatric Blood and Cancer, Personal Experience, responsibility, Sibling, Sweden, welfare, Wellbeing