Browse Items (13 total)
- Tags: Emotion
Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
Tags: 2023, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Controlled Study, Cross-sectional Study, Demography, Emotion, emotional well-being, Female, Guillen M, health practitioner, Human, Limonero JT, Male, May List 2023, Navarro Vilarrubi S, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Perception, Pilot Projects, Pilot Study, psychologic assessment, School Child, Toro-Perez D, vision, Visual Analog Scale, Wellbeing
How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care
Tags: 2022, Adult, Akkermans A, Article, CARE, Cherpanath TGV, Child, Clinical, Conflict, Conversation, critically, de Vos MA, decision, Emotion, Family, Female, Genetic, Health, Human, ill, intensive, Intensive Care Medicine, literacy, making, Male, Management, Morality, Newborn, Patient, Qualitative, Research, responsibility, Schultz MJ, September 2022 List, Smets EMA, Spijkers AS, transcription, Uncertainty, Unit, van de Loo M, van Heerde M, van Kaam AH, van Woensel JBM, Willems DL
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
Preliminary Study of Neurodevelopmental Outcomes and Parenting Stress in Pediatric Mitochondrial Disease
Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory
Pediatric advance care discussions between health care professionals and parents of children with a life-limiting disease: A qualitative interview study
Tags: 2018, August 2018 List, Borasio GD, Child, Clinical Article, conference abstract, Conversation, Data Analysis, Daxer M, Emotion, Female, Fuhrer M, Germany, Health Care Personnel, Hein K, Heitkamp N, Human, Jox R, Knochel K, Male, Medical Information, Monz A, Palliative Medicine, Palliative Therapy, Perception, Semi Structured Interview, writing
Teamwork and conflicts in paediatric end-of-life care
Tags: 2018, Acta Paediatrica, Conflict, conflict management, Coping Behavior, Editorial, Emotion, Health Care Personnel, Human, March 2018 List, Medical Decision Making, Nurse, Parental Attitude, Pediatrics, Physician, physiotherapist, Priority Journal, Psychologist, Teamwork, Terminal Care, Verhagen AAE
Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective
Tags: 'Independence', 'Physical', 'Social Exclusion') with acceptable internal consistency., 'Social Inclusion', 13-16 years) with different chronic health conditions (asthma, 2005, Adolescent Child Chronic Disease/psychology Disabled Children/psychology Europe Health Status Humans Pilot Projects Quality of Life/psychologyQuestionnaires Research Support, and cystic fibrosis) as well as their families were included. Data were analysed according to predefined psychometric and content criteria. Psychometric an alyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication', and implement European instruments for the assessment of HRQOL of children and adolescents with disabilities and their families. The current paper describes the development and pilot testing of a chronic generic HRQOL measure. Using literature searches, Arthritis, atopic dermatitis, Backlog, Bullinger M, Cerebral Palsy, Diabetes, Emotion, Epilepsy, expert consulting and focus groups with children/adolescents and their families, items of the instruments were developed and translated into the respective languages. A pilot test with 360 children and adolescents was conducted. Children and adolescents (8-12, Journal Article, Non-U.S. Gov'tSickness Impact Profile%X Health-related quality of life (HRQOL) assessment in children and adolescents with chronic health conditions is increasingly considered as a relevant topic. The aim of the EU-funded DISABKIDS project is to develop, PedPal Lit, Petersen C, Power M, Quality of Life Research, Schmidt S, test
Taking a narrative approach to grief research: Finding meaning in stories
Tags: 2002, Backlog, Child, Death, Death studies, Emotion, Gilbert KR, Grief, Interviews, Journal Article, Meaning, Narrative, Qualitative Research, Research, Role, Time
A grief ignored: Narratives of pregnancy loss from a male perspective
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Discussing Serious News
Tags: 2017, Adult, Bereavement, December 2017 List, Doctor Patient Relation, Education, Emotion, Empathy, Female, Flint H, Hospital, Hossain M, Human, Interpersonal Communication, Klein M, Male, Medical Education, Meyer M, Palliative Therapy, Parent, Pediatrics, Procedures, Psychology, The American Journal of Hospice & Palliative Care
Palliative Care After Neonatal Intensive Care: Contributions Of Leonetti Law And Remaining Challenges
Tags: 2017, April 2017 List, Archives de Pediatrie, Artificial Feeding, Astruc D, Brain Damage, Climate, Clinical Practice, Clinical Study, Cojean N, Decision Making, Dillenseger L, Drug Withdrawal, Dying, Emotion, Escande B, Ethics, Health Promotion, Human, Human Dignity, Hydration, Kuhn P, Life Sustaining Treatment, Medical Decision Making, Medical Ethics, Medical Practice, Neonatology, Newborn, Newborn Intensive Care, Palliative Therapy, Patient Right, Perinatal Care, Perinatal Nursing, Quality Of Life, Short Survey, Survival, Terminal Care, Treatment Withdrawal, Zores C