Browse Items (236 total)
- Tags: 2004
An analogue assessment of repetitive hand behaviours in girls and young women with Rett syndrome
Systematic review of melatonin treatment in children with neurodevelopmental disabilities and sleep impairment
Tags: 2004, Antioxidants/therapeutic use, Appleton R E, Brain/physiopathology, Child, Developmental Disabilities/drug therapy/epidemiology/physiopathology, Developmental Medicine and Child Neurology, Humans, melatonin, Melatonin/therapeutic use, pharmacologic intervention, Phillips L, Rett syndrome, sleep disturbance/disorders, Sleep Wake Disorders/epidemiology, Wakefulness/physiology
Sleep disordered breathing in spinal muscular atrophy
Tags: 2004, breathing difficulties, Child, Cyclic AMP, Disease Progression, disordered breathing, Dohna-Schwake C, Female, Humans, Male, Mellies U, Muscle, Neuromuscular Disorders, non-invasive positive pressure ventilation, physical intervention, Response Element-Binding Protein, Skeletal/pa [Pathology] Muscle, SMA1, Stehling F V T
Improving functional skills and physical fitness in children with Rett syndrome
Tags: 2004, Activities of Daily Living/psychology, Child, daily conductive educational program, Education of Intellectually Disabled, Exercise/psychology, Feasibility Studies, Female, Humans, Isakov E, Journal Of Intellectual Disability Research, Lotan M, Merrick J, Motor Skills, Physical Fitness, psychological intervention, Rett syndrome, Rett Syndrome/psychology/rehabilitation, Social Behavior, Statistics as Topic, tone and motor problems, Treatment Outcome
Effect of baclofen on emesis and 24-hour esophageal pH in neurologically impaired children with gastroesophageal reflux disease
Efficacy and safety of endoscopic dilation of esophageal strictures in epidermolysis bullosa
Tags: 2004, Adolescent, Adult, Anderson S H C, Article, Balloon dilatation, barium, Body Weight, Chappiti U, contrast enhancement, Doig L, Dysphagia, Eady R A J, endoscopic balloon dilatation, endoscopic therapy, epidermolysis bullosa, epidermolysis bullosa/th [Therapy], esophagus dilatation, esophagus stricture/th [Therapy], feeding difficulties, Female, Follow Up, Gastrointestinal Endoscopy, Human, Major Clinical Study, Male, Meenan J, Morbidity, Nutritional Status, Prinja H, Priority Journal, Propofol, School Child, scoring system, surgical intervention, Thompson R P H, Treatment Outcome, Williams K N
Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness
The comprehensive care team: a controlled trial of outpatient palliative medicine consultation
Tags: 2004, Advance Care Planning/statistics & Numerical Data, Aged, Archives Of Internal Medicine, Backlog, California, Chronic Obstructive/complications/psychology/therapy, Dibble SL, Female, Heart Failure/complications/psychology/therapy, Hospital/organization & administration/utilization, Humans, Journal Article, Male, McPhee SJ, Neoplasms/complications/psychology/therapy, Office Visits/statistics & numerical data, Outcome And Process Assessment (health Care), Outpatient Clinics, Palliative Care/organization & Administration, Pantilat SZ, Patient Care Team, Primary Health Care/organization & administration/utilization, Pulmonary Disease, Quality Of Life, Questionnaires, Rabow MW
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful?
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Bereavement, Caregivers/psychology, Communication, Death, Death and Euthanasia, Emanuel EJ, Emanuel LL, Empirical Approach, Fairclough DL, Female, Humans, Interviews, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Prospective Studies, Psychological/etiology/psychology, Research Support, Speech, Stress, Terminal Care, Terminally Ill/psychology, United States, Wolfe P
Modulation of cortical-limbic pathways in major depression: treatment-specific effects of cognitive behavior therapy
Tags: 2004, Adult, Ambulatory Care, Antidepressive Agents, Archives Of General Psychiatry, Backlog, Bieling P, Blood Glucose/metabolism, Brain Mapping, Cerebral Cortex/physiopathology/radionuclide imaging, Cognitive Therapy, Comparative Study, Depressive Disorder, Emission-Computed, Energy Metabolism/physiology, Female, Fluorodeoxyglucose F18/diagnostic use, Follow-up Studies, Frontal Lobe/physiopathology/radionuclide imaging, Garson C, Goldapple K, Humans, Journal Article, Kennedy S, Lau M, Limbic System/physiopathology/radionuclide imaging, Major/physiopathology/radionuclide imaging/therapy, Male, Mayberg H, Middle Aged, Nerve Net/physiopathology/radionuclide imaging, Neural Pathways/physiopathology/radionuclide imaging, Non-U.S. Gov't, Outcome And Process Assessment (health Care), Paroxetine/therapeutic use, Personality Inventory, Prefrontal Cortex/physiopathology/radionuclide imaging, Research Support, Second-Generation/therapeutic use, Segal Z, Sensitivity and Specificity, Tomography
Caring for the child with cancer at the close of life: "there are people who make it, and I'm hoping I'm one of them"
Anticonvulsant drugs for migraine prophylaxis
Gastrostomy feeding versus oral feeding alone for children with cerebral palsy
Peroxisome biogenesis disorders with prolonged survival: phenotypic expression in a cohort of 31 patients
Tags: 2004, Admiraal RJ, Adolescent, Adult, American Journal Of Medical Genetics.Part A, Backlog, Barth PG, Child, Cohort Studies, de Klerk JB, Developmental Disabilities/pathology, Duran M, Eye Diseases/pathology, Face/abnormalities, Female, Follow-up Studies, Gootjes J, Growth Disorders/pathology, Humans, Infant, Journal Article, Kidney/pathology, Liver/pathology, Male, Membrane Proteins/genetics, Mutation, Peroxisomal Disorders/genetics/mortality/pathology, Phenotype, Poll-The BT, Preschool, Q3 Scoping Review Results, Seizures/pathology, Spleen/pathology, Survival Rate, Time Factors, Wanders RJ, Waterham HR, Wenniger-Prick LJ
The effect of spinal cord stimulation in patients with chronic reflex sympathetic dystrophy: two years' follow-up of the randomized controlled trial
Children, cancer, and nutrition--A dynamic triangle in review
Tags: 2004, Backlog, Barr RD, Cancer, Child, Child welfare, Developing Countries, Health Status, Humans, Incidence, Infant, Journal Article, Malnutrition/epidemiology/physiopathology, Neoplasms/complications/therapy, Newborn, Non-U.S. Gov't, Nutrition Assessment, Nutritional Failure, Nutritional Status, Nutritional Support, Pencharz P, Preschool, Prognosis, Research Support, Sala A, Survival Analysis
Posttraumatic growth in chinese cancer survivors
Tags: 2004, Backlog, Chan C, Ho R, Ho S, Journal Article, Psycho-Oncology
Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Leigh's syndrome
Tags: 2004, Autopsy, Backlog, Basal Ganglia/pathology, Behari M, Biopsy, Disease Progression, Fatal Outcome, Female, Gupta V, Humans, Immunohistochemistry, Indian Journal Of Pediatrics, Infant, Journal Article, Leigh Disease/diagnosis/physiopathology/therapy, Magnetic Resonance Imaging, Mannan AA, Needle, Q3 Scoping Review Results, Ralte AM, Risk Assessment, Sarkar C, Severity Of Illness Index, Sharma MC, Shrivastava P
Simple changes can improve conduct of end-of-life care in the intensive care unit.
Tags: 2004, Aged, Analgesics/tu [Therapeutic Use], Attitude Of Health Personnel, Backlog, Canadian Journal Of Anaesthesia, Cardiopulmonary Resuscitation, Cause Of Death, Diazepam/tu [Therapeutic Use], DNAR, DNAR Outcomes, Female, Hall RI, Humans, Hypnotics and Sedatives/tu [Therapeutic Use], Intensive Care Units, Intervention Studies, Journal Article, Life Support Care, Male, Middle Aged, Murray D, Nurses/px [Psychology], Palliative Care, Pastoral Care, Patient Admission, Physicians/px [Psychology], Resuscitation Orders, Retrospective Studies, Rocker GM, Withholding Treatment
Effective strategies to prepare infants and families for home tracheostomy care
Tags: 2004, Adult, Advances in Neonatal Care, an overview of the impact of the tracheostomy on normal development, and granulation tissue formation are discussed. Humidification is critical for the infant with a tracheostomy and humidification delivery methods are discussed. Further, Backlog, bleeding, Family Health Education, Fiske E, Home Nursing/education Humans Infant, infection, Journal Article, mucus plugging, Neonatal Nursing Tracheostomy/education/instrumentation/, Nursing, PedPal Lit, such as swallowing and language development, suctioning
Use of the parenting stress index in mothers of preterm infants
Tags: 2004, Adult Female Humans Infant, Advances in Neonatal Care, Backlog, Depaul D, future research should examine missing items more closely., however, Journal Article, Newborn Infant, Non-P.H.S. Stress, PedPal Lit, Premature, Psychological/diagnosis, psychology Male Mother-Child Relations Mothers/, psychology Parenting/, psychology Questionnaires/, Renaud MT, standards Reproducibility of Results Research Support, Thomas KA, U.S. Gov't
Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants
Tags: 2004, Advances in Neonatal Care, Backlog, Diagnosis, Differential Directories Gastroesophageal Reflux, Henry SM, Journal Article, Newborn Infant, Nursing, PedPal Lit, physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy, physiopathology, Premature, therapy Health Education Humans Infant Infant
Recognizing the clinical features of Trisomy 13 syndrome
Tags: 2004, Abnormalities, Adams D, Advances in Neonatal Care, Backlog, Clark DA, Furdon SA, Human, Journal Article, Multiple/genetics/pathology Chromosome Aberrations/embryology Chromosome Disorders/diagnosis/genetics/pathology Chromosomes, Newborn Magnetic Resonance Imaging Pregnancy Prenatal Diagnosis Prognosis Prosencephalon/pathology Syndrome Trisomy/diagnosis/genetics/pathology, Pair 13/genetics Female Holoprosencephaly/diagnosis/etiology/pathology Humans Infant, PedPal Lit, Rios A
End-of-life care in the pediatric intensive care unit: research review and recommendations
Tags: 2004, Adult, Analgesia/ethics/standards, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Bereavement, Burns JP, Child, Conscious Sedation/ethics/standards, Critical Care Clinics, Decision Making, Evidence-based Medicine, Forecasting, Health Care/organization & administration, Health Knowledge, Humans, ICU Decision Making, Infant, Infant Mortality, Intensive Care Units, Intensive Care/ethics/organization & administration/psychology, Journal Article, Parents/psychology, Pediatric/ethics/organization & administration, Practice, Practice Guidelines, Quality Assurance, Resuscitation/ethics/standards, Rushton CH, Terminal Care/ethics/organization & administration/psychology, United States/epidemiology, Withholding Treatment/ethics/standards
For purposes of research, palliative care patients should not be considered a vulnerable population
Tags: 2004, Backlog, Berry SR, Biomedical and Behavioral Research, Biomedical Research/ethics, Clinical Oncology, Death and Euthanasia, Ethics, Guidelines As Topic, Humans, Journal Article, Medical, Multi-site Ethics, Neoplasms/therapy, Palliative Care/ethics/trends, Patient Advocacy, Prejudice, Terminology as Topic, Vulnerable Populations
Adolescents in transition of adult care: why the concern?
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Betz CL, Congenital/nursing/rehabilitation/therapy, Continuity Of Patient Care/organization & Administration, Health, Heart Defects, Humans, Insurance, Journal Article, Needs Assessment, Patient Care Planning/organization & administration, Planning Techniques, Self Care, The Nursing Clinics Of North America, United States
Long-term follow-up, neurological outcome and survival rate in 28 Nordic patients with glutaric aciduria type 1
Tags: 2004, Adolescent, Adult, Amino Acid Metabolism, Backlog, Child, Christensen E, European Journal of Paediatric Neurology, Female, Finland/epidemiology, Follow-up Studies, Glutarates/urine, Glutaryl-CoA Dehydrogenase, Hagberg G, Holme E, Humans, Inborn Errors/complications/diagnosis/mortality, Infant, Journal Article, Kyllerman M, Lonnquist T, Male, Nervous System Diseases/etiology, Newborn, Oxidoreductases Acting on CH-CH Group Donors/deficiency, Preschool, Prognosis, Q3 Scoping Review Results, Rotwelt T, Scandinavia/epidemiology, Skjeldal O, Skov L, Survival Rate, Time Factors, von Dobeln U
Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts
Tags: 2004, Adult, Backlog, Cotter KL, Delphi Technique, Eshelman D, Foster BM, Health Policy, Health Policy (amsterdam, Netherlands), Health Services Research, Hudson MM, Humans, Journal Article, Loftis L, Mertens AC, Neoplasms, Non-U.S. Gov't, Oeffinger KC, Quality Of Health Care, Research Support, Sozio M, Survivors, United States, Zebrack BJ
Cardiac transplantation: a temporary solution for Friedreich's ataxia-induced dilated cardiomyopathy
Tags: 2004, Adult, Backlog, Cardiomyopathy, Chandavimol M, Dilated/etiology/surgery, Friedreich Ataxia/complications, Heart transplantation, Humans, Journal Article, Male, Sedlak TL, Straatman L, The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation, Time Factors
Reducing family members' anxiety and uncertainty in illness around transfer from intensive care: an intervention study
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Analysis of Variance, Anxiety/prevention & control, Australia, Backlog, Courtney M, Family/psychology, Female, Humans, ICU Decision Making, Intensive and Critical Care Nursing, Intensive Care Units, Intervention, Interventions, Journal Article, Male, Middle Aged, Mitchell ML, Pamphlets, Patient Transfer, Social Support
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD