Browse Items (63 total)
- Tags: Family/psychology
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Achieving Child-Centred Care for Children and Young People with Life-Limiting and Life-Threatening Conditions-A Qualitative Interview Study
Tags: Adolescent, Child, Child Care, End of Life Care, Paediatrics, Palliative Care, Qualitative Research, 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Children, Coombes L, Downing J, Ellis-Smith C, European Journal of Pediatrics, Family/psychology, Farsides B, Fraser LK, Harding R, Harðardóttir D, Humans, Murtagh FEM, Normality, November 2022 List, Parents/psychology, Roach A, Scott H, Social Support, Symptom Assessment
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2020, Adolescent, American Journal of Critical Care, Aniciete DY, Attitude Of Health Personnel, August 2021 List, Brown M, Charleston E, Child, Ciolino JD, Clayman ML, Communication, Decision Making, Emotions, Family/psychology, Fragen P, Infant, Intensive Care Units Pediatric/organization & administration/standards, Jones V A, Malakooti M, Michelson KN, Parents/psychology, Patient Discharge, Persell SD, Pilot Projects, Preschool Child, Professional-family Relations, Rychlik K, Socioeconomic Factors, Sorce LR, Spadino P, White D
Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care
Tags: 2020, Advance Care Planning, April 2021 List, Bradford NK, Child, Communication, Danby S, Delphi Technique, Ekberg S, Family/psychology, Herbert A, Humans, Johns K, Paediatrics, Palliative Care, Palliative Medicine, Pediatrics, Professional-family Relations, prompt list, Reminder Systems/instrumentation, Sansone H, Stakeholder Participation, Tarrant G, Yates P
The Role of Palliative Care in Caring for the Families of Patients With COVID-19
Tags: 2020, American Journal Of Hospice And Palliative Care, Bakar M, Betacoronavirus, Capano E, Child, Child Care, Communication, Coronavirus Infections/*therapy, COVID-19, Decision-making, Distress, Family, Family/psychology, Humans, McIntyre B, Palliative Care/methods, Pandemics, Pastoral Care, Patterson M, Pneumonia, September 2020 List, Social Work, Support, Viral/*therapy, Walsh C J
Palliative care for the family carrying a fetus with a life-limiting diagnosis
Tags: 2007, Attitude To Death, Backlog, Chromosomes, Decision Making, Family/psychology, Female, Fetal Diseases/diagnosis, Human, Humans, Journal Article, Leuthner SR, Munson D, Pair 18/genetics, Palliative Care/methods, Pediatric Clinics of North America, Pregnancy, Prenatal Care, Prenatal Diagnosis, Social Support, Trisomy
A communication strategy and brochure for relatives of patients dying in the ICU
Tags: 2007, 80 And Over, Adrie C, Aged, Anxiety/epidemiology, Azoulay E, Backlog, Barnes NK, Barnoud D, Bereavement, Bleichner G, Bruel C, Chevret S, Choukroun G, Communication, Curtis JR, Darmon M, Depression/epidemiology, Family/psychology, Female, Fieux F, Galliot R, Garrouste-Orgeas M, Georges H, Goldgran-Toledano D, Humans, ICU Decision Making, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Lautrette A, Loubert G, Male, Megarbane B, Middle Aged, Pamphlets, Pochard F, Post-Traumatic/epidemiology/prevention & control, Professional-family Relations, Reignier J, Saidi F, Schlemmer B, Souweine B, Stress Disorders, Terminally Ill/psychology, The New England Journal Of Medicine, Vincent F, Visitors to Patients/psychology
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care
Tags: 2008, Attitude Of Health Personnel, Backlog, Family/psychology, Focus Groups, Forbat L, Health Services Accessibility, Health Services Needs And Demand, Hospice Care/organization & administration/standards, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & administration/standards, Palliative Medicine, Qualitative Research, Research/organization & administration, Respite Care, Scotland, Terminal Care/organization & administration/psychology/standards
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study
Tags: 2005, Adult, Age Factors, Aged, Anxiety/epidemiology/psychology, Azoulay E, Backlog, Bollaert PE, Cheval C, Coloigner M, Darmon M, Death, Depression/epidemiology/psychology, Family/psychology, Fassier T, French FAMIREA study group, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Journal of Critical Care, Merouani A, Middle Aged, Moulront S, Patient Discharge, Pigne E, Pingat J, Pochard F, Prevalence, Prospective Studies, Risk Factors, Schlemmer B, Severity Of Illness Index, Zahar JR
Constructions of Mexican American family grief after the death of a child: an exploratory study
Key factors affecting dying children and their families
Tags: 2005, Adolescent, Backlog, Baker JN, Bereavement, Child, Communication, Decision Making, Family/psychology, Hinds PS, Humans, Journal Article, Journal of Palliative Medicine, Palliative Care/standards, Professional-family Relations, Psychological/etiology, Quality Of Health Care, Schum L, Stress, Terminal Care/standards, Wolfe J
Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis
Tags: 2006, Adaptation, Adolescent, Adolescent Transitions, Backlog, Body Image, Bryant FB, Child, Coakley RM, Conflict (Psychology), Educational Status, Family/psychology, Female, Holmbeck GN, Humans, Individuation, Intelligence, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Models, Motivation, Parents/psychology, Prospective Studies, Psychological, Psychological/complications, Self Concept, Sick Role, Social Adjustment, Social Behavior, Spinal Dysraphism/psychology, statistical, Stress
Medical adherence and childhood chronic illness: family daily management skills and emotional climate as emerging contributors
Coping with interpersonal stress: role of big five traits
Tags: 2005, Adaptation, Backlog, Couples Therapy/methods, DeLongis A, Factor Analysis, Family/psychology, Humans, Interpersonal Relations, Journal Article, Journal Of Personality, Lee-Baggley D, Marriage/psychology, Non-U.S. Gov't, Personality, Preece M, Prospective Studies, Psychological, Psychological/psychology, Research Support, statistical, Stress
Adolescent development in interpersonal and societal contexts
Tags: 2006, Adolescent, Adolescent Behavior/psychology, Adolescent Transitions, Annual Review Of Psychology, Backlog, Campione-Barr N, Family/psychology, Female, Humans, Intergenerational Relations, Interpersonal Relations, Journal Article, Love, Male, Metzger A, Parent-child Relations, Peer Group, Sibling Relations, Smetana JG, Social Behavior, Social Environment
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement
Tags: 2006, Adult, Backlog, Bereavement, Bloch S, Caregivers/psychology, Depressive Disorder/therapy, Family Health, Family Relations, Family Therapy/methods, Family/psychology, Female, Follow-up Studies, Grief, Humans, Journal Article, Kissane DW, Longitudinal Studies, Male, McKenzie DP, McKenzie M, Middle Aged, Moskowitz C, O'Neill I, Palliative Care, Personality Inventory, Psychological/therapy, Social Adjustment, SSHRC CURA, Stress, Terminal Care, The American Journal Of Psychiatry, Treatment Outcome
The search for social safety and comfort in families raising children with complex chronic conditions
Tags: 2005, Adaptation, Adult, Backlog, Bradley JF, Child, Chronic Disease/nursing/psychology, Developmental Disabilities/nursing/psychology, Family Nursing, Family/psychology, Female, Humans, Interpersonal Relations, Journal Article, Journal Of Family Nursing, Leisure Activities, Male, Parent caregivers, Preschool, Psychological, Rehm RS, Social Adjustment, United States
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Tags: 2006, Adaptation, Adult, Backlog, Bmc Medical Research Methodology, Caregivers/psychology/statistics & numerical data, Cerebral Palsy, Child, Cross-sectional Studies, Disabled Children, Family/psychology, Female, Health Status, Humans, Journal Article, Linear Models, Logistic Models, Male, Ontario, Psychological, Questionnaires, Raina P, Rosenbaum P, Russell DJ, Self Concept, Social Support, Socioeconomic Factors, Telemeres, Walter SD, Zhu B
Pediatric palliative and end-of-life care: the role of social work in pediatric oncology
Tags: 2005, Backlog, Communication, Family/psychology, Humans, Interdisciplinary Communication, Jones BL, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Medical Oncology, Pain/drug Therapy, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Pediatrics, Professional Role, Social Work/organization & administration, Terminal Care/organization & Administration
Resource utilization and outcome in gravely ill intensive care unit patients with predicted in-hospital mortality rates of 95% or higher by APACHE III scores: the relationship with physician and family expectations
Tags: 2005, 80 And Over, Adolescent, Adult, Aged, APACHE, Backlog, Bechtle PS, Berge KH, Cohort Studies, Critical Illness/mortality/therapy, Family/psychology, Female, Health Resources/utilization, Hospital Mortality, Humans, Intensive Care, Jewell SM, Journal Article, Lanier WL, Maiers DR, Male, Mayo Clinic Proceedings, Medical Records, Middle Aged, Minnesota, Outcome Assessment (health Care), Physicians/psychology, Professional-family Relations, Schreiner DP, Schroeder DR, Stevens SR
Emotion work in the palliative nursing care of children and young people
Tags: 2006, Adaptation, Adolescent, Adolescent Psychology, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Burnout, Child, Child Psychology, Emotions, Empathy, Family/psychology, Health Services Needs And Demand, Holistic Health, Humans, International Journal of Palliative Nursing, Job Satisfaction, Journal Article, Maunder EZ, Nurse-patient Relations, Nurse's Role/psychology, Organizational Culture, Palliative Care/organization & administration/psychology, PedPal Lit, Professional/prevention & control/psychology, Psychological, Quality Of Life, Self Concept, Social Support, Work/psychology
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends
Reducing family members' anxiety and uncertainty in illness around transfer from intensive care: an intervention study
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Analysis of Variance, Anxiety/prevention & control, Australia, Backlog, Courtney M, Family/psychology, Female, Humans, ICU Decision Making, Intensive and Critical Care Nursing, Intensive Care Units, Intervention, Interventions, Journal Article, Male, Middle Aged, Mitchell ML, Pamphlets, Patient Transfer, Social Support
What works for therapists conducting family meetings: treatment integrity in family-focused grief therapy during palliative care and bereavement
Tags: 2004, Adult, Australia/epidemiology, Backlog, Bereavement, Chan EK, Family Therapy/methods/statistics & numerical data, Family/psychology, Female, Grief, Health Care/methods/standards, Health Surveys, Hospice Care/methods/psychology/statistics & numerical data, Humans, Journal Article, Journal of Pain and Symptom Management, Kissane DW, Love A, Male, McKenzie M, Middle Aged, Neoplasms/mortality/psychology, O'Neill I, Palliative Care/psychology/statistics & numerical data, Professional Competence/statistics & numerical data, Quality Assurance, SSHRC CURA, Treatment Outcome
Maternal and paternal stress in families with school-aged children with disabilities
Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care
Tags: 2003, anxiety, Backlog, Communication, Courtney M, Coyer F, Critical Illness/psychology, Emotions, Family/psychology, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Mitchell ML, Nursing & Health Sciences, Patient Transfer, Professional-family Relations, Questionnaires, Stress (Psychology), Uncertainty
Family beliefs regarding the nutritional care of a terminally ill relative: a qualitative study
Tags: 18th Century, 2003, Adolescent, Adult, Attitudes, Backlog, Canada, Degner LF, Family/psychology, Female, Harlos MS, Health Knowledge, History, Humans, Interviews, Journal Article, Journal of Palliative Medicine, Male, McClement SE, Middle Aged, Neoplasms/psychology/therapy, Non-U.S. Gov't, Nutritional Support, Palliative Care, Practice, Research Support, Terminally Ill/psychology
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction
Tags: 2004, Backlog, Communication, Consumer Satisfaction, Critical Care, Critical Care Medicine, Cross-sectional Studies, Curtis JR, Elliott TB, Engelberg RA, Family/psychology, Female, Hospital Mortality, Humans, Intensive Care Units, Journal Article, Male, McDonagh JR, Middle Aged, Patrick DL, Questionnaires, Rubenfeld GD, Shannon SE, Terminal Care/psychology, Treece PD, Washington
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Tags: 2004, Adrie C, Adult, Aged, Annane D, anxiety, Attitude Of Health Personnel, Attitude To Health, Azoulay E, Backlog, Bleichner G, Bornstain C, Bouffard Y, Chevret S, Cohen Y, Consumer Satisfaction, Critical Care Medicine, Decision Making, Depression, Family/psychology, FAMIREA Study Group, Feissel M, Female, France, Goldgran-Toledano D, Guitton C, Hayon J, Humans, ICU Decision Making, Iglesias E, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Laplace C, Lebert C, LeGall JR, Logistic Models, Male, Middle Aged, Multivariate Analysis, Pingat J, Pochard F, Poisson C, Prospective Studies, Renault A, Sanchez O, Schlemmer B, Selcer D, Timsit JF
Forgoing life support across borders: who decides and why?
Tags: 2004, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Frader JE, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/ethics/psychology, Journal Article, Organizational, Passive/ethics/psychology, Patient Participation/psychology, Pediatric, Pediatric Critical Care Medicine
Palliative care: rapid redesign to support systemwide quality improvement
Tags: 2002, Backlog, Catholicism, Family/psychology, Hospice Care/standards, Hospital Restructuring, Hospitals, Humans, Institutional Management Teams, Journal Article, Journal For Healthcare Quality, Leadership, Length Of Stay, Midwestern United States, Multi-Institutional Systems/organization & administration, Multi-Institutional Systems/standards, Outcome Assessment (health Care), Palliative Care/organization & Administration, Palliative Care/standards, Patient Satisfaction, Practice Guidelines As Topic, Program Development, Quinn C, Religious/organization & administration, Religious/standards, Thomas MB, Total Quality Management/organization & administration
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
Nature of conflict in the care of pediatric intensive care patients with prolonged stay
Tags: 2003, Backlog, Brennan T, Burns JP, Case-Control Studies, Communication Barriers, Dissent And Disputes, Family/psychology, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length of Stay/trends, Male, Mello MM, Newborn, Patient Care Planning/trends, Patient Satisfaction/statistics & Numerical Data, Pediatric Nursing/trends, Pediatric/trends, Pediatrics, Physician-patient Relations, Predictive Value of Tests, Prospective Studies, Puopolo AL, Studdert DM, Truog RD, Withholding Treatment/trends
Family-centered care and the pediatrician's role
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Addressing spirituality in pediatric hospice and palliative care
Tags: 2002, Adult, Backlog, Brenner P, Child, Child Psychology, Davies B, Family/psychology, Holistic Health, Human, Journal Article, Journal Of Palliative Care, Needs Assessment, Nursing Assessment, Orloff S, Palliative Care/methods/psychology/standards, Pastoral Care/methods/standards, Pediatrics/methods, Practice Guidelines, Religion and Medicine, Religion and Psychology, Spirituality, Sumner L, Worden W