Browse Items (27 total)
- Tags: Palliative Care/psychology
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Tags: 2022, August 2022 List, Bereavement, BMC Palliative Care, Bokemeyer C, Bronsema A, Cancer, Child, Children, Escherich G, Fin-ped ii, Grief, Humans, Neoplasms/psychology, Oechsle K, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Rutkowski S, Support services, Supportive care needs, Theißen T, Ullrich A, Wikert J
Adding Life to Their Years: The Current State of Pediatric Palliative Care in CKD
Tags: 2021, Adult, Child, chronic kidney disease, dialysis, end stage kidney disease, geriatric and palliative nephrology, Hospice And Palliative Care Nursing, House TR, Humans, kidney supportive care, Kidney360, May 2022 List, Nephrology, Palliative Care/psychology, Pediatric Nephrology, Pediatric Palliative Care, Quality Of Life, Renal Insufficiency Chronic/therapy, Wightman A
Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care
Tags: 2022, Alleviation, April 2022 List, BMC Palliative Care, Child, concept, Früh EA, Health care professionals, Holmen H, Hospice And Palliative Care Nursing, Humans, Kvarme LG, Lee A, Life Limiting, Lorentsen VB, Misvær N, Paediatric, Palliative Care, Palliative Care/psychology, Pediatric, Ppc, Qualitative Research, Quality Of Life, Riiser K, Social Support, Steindal SA, Terminal Care, Winger A
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
The lived experience of physicians dealing with patient death.
Tags: 2014, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, BMJ Supportive & Palliative Care, Clinical encounter, Communication, Emotions, Female, Humans, Journal Article, Male, Middle Aged, Palliative Care/psychology, Physician-patient Relations, Psychological care, Terminal Care, Terminal Care/psychology, Whitehead PR
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Tags: 2007, Adaptation, Adult, Attitude To Death, Backlog, Caregivers/psychology, Child, Chronic Disease/psychology, Clinical Child Psychology And Psychiatry, father experience, Father-child Relations, Fathers/psychology, Female, Gender Identity, Grief, Home Nursing/psychology, Humans, Interview, Journal Article, Life Change Events, Male, Marriage/psychology, Palliative Care/psychology, Professional-family Relations, Psychological, Raval H, Social Support, Terminal Care/psychology, Ware J
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
Tags: 2006, Adolescent, Backlog, Burns JP, Child, Communication, Decision Making, Humans, Infant, Intensive Care Units, Journal Article, Meyer EC, Newborn, Non-U.S. Gov't, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Pediatric, Pediatrics, PedPal Lit, Preschool, Professional-family Relations, Questionnaires, Research Support, Ritholz MD, Terminal Care/psychology, Truog RD
At the crossroads: making the transition to hospice
Tags: 2004, Adult, Aged, Backlog, Bradley E, Caregivers/psychology, Cherlin E, Connecticut, Curry L, Decision Making, Family Relations, Female, Hospice Care/psychology, Humans, Interpersonal Relations, Johnson-Hurzeler R, Journal Article, Male, McCorkle R, Middle Aged, Narration, Neoplasms/nursing, Non-P.H.S., Non-U.S. Gov't, Palliative & Supportive Care, Palliative Care/psychology, Parent-child Relations, Questionnaires, Research Support, Schulman-Green D, U.S. Gov't
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
Exploring documentation of end-of-life care of children with cancer
Helping a child to live whilst dying
Tags: 1980, Attitude Of Health Personnel, Attitude To Death, Backlog, Brachial Plexus, Case Report, Chapman JA, Child, Child Psychology, Female, Goodall J, Grief, Hospital Units/standards, Hospitalized/psychology, Human, Journal Article, Lancet, Neoplasm Metastasis, Pain/drug Therapy, Palliative Care/psychology, Parents/psychology, Sarcoma/drug therapy/radiotherapy, Terminal Care/psychology
Comfort care for terminally ill patients. The appropriate use of nutrition and hydration
Tags: 1994, 80 And Over, Aged, Backlog, Death and Euthanasia, Empirical Approach, Female, Fluid Therapy, Groth-Juncker A, Hall WJ, Humans, Hunger, JAMA, Journal Article, Male, McCann RM, Middle Aged, New York, Nursing Homes/standards, Nutrition, NY), Palliative Care/psychology, Parenteral Nutrition, Prospective Studies, Psychological, Quality Of Life, Risk Assessment, St. John's Home (Rochester, Stress, Terminal Care/methods/psychology/standards, Thirst, Withholding Treatment, Xerostomia/therapy
Satisfaction with palliative care: what should we be aware of?
Tags: 1998, Backlog, Fakhoury WK, Humans, International Journal Of Nursing Studies, Journal Article, Outcome Assessment (Health Care)/organization & administration, Palliative Care/psychology, Palliative Care/standards, Patient Satisfaction, Prospective Studies, Quality Of Health Care, Research Design, Retrospective Studies
Facilitating day-to-day decision making in palliative care
Tags: 2000, 80 And Over, Adult, Aged, Backlog, Bottorff JL, Cancer Nursing, Davies B, Decision Making, Female, Garossino C, Humans, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Nurse-patient Relations, Nursing Process, Oncologic Nursing, Palliative Care/psychology, Porterfield P, Questionnaires, Research Support, Shaw M, Steele R
The need for palliative care for patients with non-cancer diseases: a review of the evidence
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Tags: 2015, Abortion, Adult, Aged, Alvarez-del-Rio A, Attitude Of Health Personnel, Attitude To Death, Decision Making, Euthanasia, Female, Fetal Diseases, Grether P, Humans, Induced/psychology, Infant, Lisker R, Loria A, Male, Mexico, Middle Aged, Newborn, Nurses/psychology, Palliative Care/psychology, Passive/psychology, Perinatal Care, Perinatal Death, Physicians/psychology, Pregnancy, Religion, Salud Publica De Mexico, Social Workers/psychology, Terminal Care/psychology, Young Adult
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult
Understanding Death With Limited Experience In Life: Dying Children's And Adolescents' Understanding Of Their Own Terminal Illness And Death
Tags: 2015, Adolescent, Attitude To Death, Bates Alan T, Child, Communication, Current Opinion in Supportive and Palliative Care, Fear, Humans, Kearney Julia A, May 2017 List, Palliative Care/organization & Administration, Palliative Care/psychology, Professional-family Relations, Prognosis, Terminal Care/organization & Administration, Terminal Care/psychology, Terminally Ill/legislation & jurisprudence, Terminally Ill/psychology, Time Factors
On The Child's Own Initiative: Parents Communicate With Their Dying Child About Death
Tags: 2015, Adolescent, Adult, Attitude To Death, Behavioral Research, Child, Child Behavior, Child Care/psychology, Child Preschool, Death studies, Female, Henter JI, Humans, Infant, Jalmsell L, Kontio T, Kreicbergs U, Male, March 2016 List, Neoplasms/psychology, Neoplasms/therapy, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Qualitative Research, Stein M, Sweden, Terminally Ill/psychology
More Than Medication: Perinatal Palliative Care
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Decision Making/ethics, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal, Maternal-fetal Relations/psychology, November 2016 List, Palliative Care/ethics, Palliative Care/legislation & Jurisprudence, Palliative Care/psychology, Parental Consent/ethics, Parental Consent/legislation & Jurisprudence, Parental Consent/psychology, Patient Rights/ethics, Patient Rights/legislation & Jurisprudence, Perinatal Care/ethics, Perinatal Care/legislation & Jurisprudence, Perinatal Care/standards, Personhood, Professional-family Relations, Resuscitation Orders/ethics, Resuscitation Orders/legislation & Jurisprudence, Resuscitation Orders/psychology
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
Predictors Of Intention To Refer To Pediatric Palliative Or Hospice Care
Tags: 2016, Adult, Age Factors, American Journal of Hospice and Palliative Medicine, Andersen, Attitude Of Health Personnel, Attitude To Death, August 2016 List, Behavioral Model, Continental Population Groups, Female, Health Service Use, Hospice, Hospice Care/psychology, Hospitals Pediatric/statistics & Numerical Data, Humans, Intensive Care Units Neonatal/statistics & Numerical Data, Intention, Male, Middle Aged, N E Conner, N Uddin, Nurse, Nurses Pediatric/psychology, Palliative Care, Palliative Care/psychology, Pediatrics, Referral, Referral And Consultation/statistics & Numerical Data, Regression Analysis, Sex Factors