Browse Items · Pediatric Palliative Care Library

Family-Centered Culture Care: Touched by an Angel

An Asian Indian Hindu family chose no intervention and hospice care for their newborn with hypoplastic right heart syndrome as an ethical option, and the newborn expired after five days. Professional nursing integrates values-based practice and…

Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework

AbstractThere is a critical need to establish a space to engage in careful deliberation amid exciting, important, necessary, and groundbreaking technological and clinical advances in pediatric medicine. Extracorporeal membrane oxygenation (ECMO) is…

Tags: 2023, Aultman JM, Ba A, Caregiver, Child, Empathy, extracorporeal oxygenation, February List 2024, Friebert S, Grossoehme DH, Human, Journal of Clinical Ethics, Nofziger RA, Palliative Therapy, Patient, Raimer PL

Consulting parents bereaved by childhood cancer: A qualitative study to improve bereavement services

Twelve Australian parents bereaved by childhood cancer were interviewed

Tags: 2023, 2023 SE3 - Oncology, Bereavement, Childhood Neoplasms, Communication, Death studies, Empathy, Human, Interviews, Loxton I, Oxlad M, Parents, Patient Care, Perry A, Psychosocial Factors, Qualitative Studies, Referral And Consultation, Thematic Analysis

Searching for human connection to transcend symbolisms in pediatric palliative care

OBJECTIVES: to present a theoretical model for the interactional context of health professionals and families of children and adolescents under palliative care. METHODS: qualitative study based on the theoretical frameworks of Grounded Theory and…

Tags: 2023, Adolescent, Bonelli MA, Child, Empathy, Ferreira EAL, Franco LF, Health Personnel, Humanism, Humanities, Humans, Moreira-Dias PL, Palliative Care, Palliative Care/methods, Qualitative Research, Revista Brasileira de Enfermagem, September List 2046, Symbolism, Wernet M

Empathy Expression in Interpreted and Noninterpreted Care Conferences of Seriously Ill Children

BACKGROUND AND OBJECTIVES: Clinician empathy is associated with improved

Tags: 2023, August List 2042, Bogetz J, Bradford MC, Child, Cohort Studies, Communication, Emotions, Empathy, Female, Fields B, Humans, Male, Mercer A, Olszewski AE, Pediatrics, Prospective Studies, Rosenberg AR, Scott M, Trowbridge A, Williams K

Palliative care education in an Australian undergraduate pharmacy curriculum: an exploratory descriptive study

Improving communication with parents: the Neonatal Intensive Care Unit Empathy Workshop

OBJECTIVE: To implement an "Empathy Workshop" focused on improving Neonatal Intensive Care Unit (NICU) health care provider communication skills. METHODS: Staff-led, small group "Empathy Workshops" were conducted over a 2 year period. NICU parents…

Tags: 2020, Child, Communication, Ellington M, Empathy, Health Personnel, Journal Of Perinatology, Kasat K, Neonatal Intensive Care Units, Newborn Infant, October 2021 List, Parents, Stoffels G

A Framework for Pediatric Intensivists Providing Compassionate Extubation at Home

For families facing end-of-life decisions for their critically ill children, compassionate extubation at home is a valuable service that pediatric intensivists can provide. Compassionate extubation at home is resource intensive and can be…

Tags: 2021, airway extubation, Bass AL, Bingham SB, Child, Death, Empathy, Intensive Care Units Pediatric, Jarrah RJ, July 2021 List, Nageswaran S, Pediatric Critical Care Medicine, Woodruff AG

A demanding act of love: Barriers and challenges in communication and decision-making for infants at the limits of viability

Introduction: The birth of an extreme preterm infant often comes unexpectedly. Decisions, then, must often be made quickly and under circumstances that can be emotionally stressful for parents or morally burdensome for health care professionals. In…

Tags: 2017, Abraham A, Child, conference abstract, Decision Making, Delivery Room, Empathy, Hendriks M J, Honesty, Human, Infant, June 2019 List, Parental Attitude, Patient Care, Prematurity, responsibility, Semi Structured Interview, Swiss Medical Weekly, University Hospital

Interactive Processes in Grief and Couples' Adjustment After the Death of a Child

The death of a child is an individual process of grief but also a context of significant relational processes, which have been only rarely considered in research. The aim of this study was to examine the interactive processes within bereaved parents.…

Tags: 2019, Albuquerque S, Bereavement, Emotions, Empathy, Ferreira L C, Grief, Grounded Theory, Human, Infant Death -- Psychosocial Factors, Interpersonal Relations, Journal Of Family Issues, May 2019 List, Narciso I, Parents -- Psychosocial Factors, Pereira M, Semi-Structured Interview, Support Psychosocial

Empathy and the Public Perception of Stillbirth and Memory Sharing: An Australian Case

Objective: Stillbirth devastates families and leaves them struggling to grieve the death of their baby in a society that expects grief symptoms to decrease over time. Previous research has suggested that increased memory sharing opportunities can…

Tags: 2018, Empathy, empathy attitudes action model, Frontiers in Psychology, Keeble CJ, Loi NM, memory sharing, November 2018 List, public perception, Stillbirth, Thorsteinsson EB

Making Meaning After the Death of a Child

Two bereaved mothers recount how they made meaning after the deaths of their children, recounting how opportunities to tell their stories in medical settings enabled them to construct narratives that promoted resilience and a sense of control.…

Two Futures: Financial and Practical Realities for Parents of Living With a Life Limited Child

Today more and more children are living with complex health care needs, many of these children are living with life limiting and/or threatening conditions, some are medically fragile. To live a childhood these children must live in communities and…

Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology

The nature and content of the conversations between the healthcare team and the parents concerning withholding or withdrawing of life-sustaining interventions for neonates vary greatly. These depend upon the status of the infant; for some neonates,…

Referring a patient and family to high-quality palliative care at the close of life: "We met a new personality... with this level of compassion and empathy"

Palliative care services are increasingly available to primary care physicians for both expert consultations and services to seriously ill patients. The United States now has more than 1400 hospital-based palliative care teams and more than 4700…

Tags: 2009, Backlog, Connor SR, Empathy, Family Relations, Hospices, Humans, Journal Article, Journal Of The American Medical Association, Male, Middle Aged, Neoplasms, Palliative Care/standards, Patient Care Team, Primary Health Care, Quality Of Health Care, Referral And Consultation, Social Support, Teno JM

Compassion fatigue in pediatric palliative care providers

The experience of compassion fatigue is an expected and common response to the professional task of routinely caring for children at the end of life. Symptoms of compassion fatigue often mimic trauma reactions. Implementing strategies that span…

Tags: 2007, Backlog, Child, Empathy, Fatigue/epidemiology/psychology, Health Personnel/psychology/statistics & numerical data, Humans, Journal Article, Palliative Care/statistics & Numerical Data, Pediatric Clinics of North America, Pediatrics/statistics & numerical data, Rourke MT

Withdrawal of mechanical ventilation in pediatric and neonatal intensive care units

Withdrawing life-sustaining technologies requires all of the resources and concepts that the field of palliative care has to offer. By learning some fundamental principles of medical management at the time of withdrawal and by mastering a few…

Compassionate silence in the patient-clinician encounter: a contemplative approach

In trying to improve clinician communication skills, we have often heard clinicians at every level admonished to "use silence," as if refraining from talking will improve dialogue. Yet we have also noticed that this "just do it," behavior-focused…

Tags: 2009, Back AL, Backlog, Bauer-Wu SM, Communication, Empathy, Halifax J, Humans, Journal Article, Journal of Palliative Medicine, Physician-patient Relations, Professional-family Relations, Rushton CH, Truth Disclosure

Emotion work in the palliative nursing care of children and young people

The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept…

Creation of a neonatal end-of-life palliative care protocol

OBJECTIVE: To create a protocol delineating the needs of patients, families, and staff necessary to provide a pain-free, dignified, family-, and staff-supported death for newborns who cannot benefit from intensive, life-extending, technological…

Communication between physician, patient, and family in the pediatric intensive care unit

Siblings of a child with cancer

A total of 21 healthy siblings were interviewed about their experiences when a brother or sister is diagnosed with cancer. Information about the illness, opinions about who should inform siblings, social support, specific worries and worst memories…

The interactional context of problem-, emotion-, and relationship-focused coping: the role of the big five personality factors

This study examined the role that personality and situational factors play in three forms of coping responses: problem-, emotion- and relationship-focused. Coping responses were strongly associated with whether the situation involved a primarily…

Tags: 1996, Adaptation, Backlog, Defense Mechanisms, DeLongis A, Emotions, Empathy, Humans, Individuality, Interpersonal Relations, Journal Article, Journal Of Personality, Non-U.S. Gov't, O'Brien TB, Personality, Problem Solving, Psychological, Research Support, Social Environment

Into the water--the clinical clerkships

Tags: 2011, Backlog, Chatterjee N, Clinical Clerkship/methods, Curriculum, Empathy, Humans, Journal Article, Massachusetts, Medical, Medical/psychology, Mentors, Physician-patient Relations, Schools, Students, Teaching/methods, The New England Journal Of Medicine, Treadway K

Perception of empathy in the therapeutic encounter: Effects on the common cold

To evaluate the effects of patient-practitioner interaction on the severity and duration of the common cold.

[Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care]

INTRODUCTION: Adequate communication by medical personnel is especially important at certain points during the treatment of childhood cancer patients. AIM: To investigate the timing and manner of communication with parents concerning the introduction…

Discussing Serious News

AIM: The ability to communicate serious news to patients and families in a caring and compassionate way is a critical skill for physicians. This study explores the impact of a novel communication skills workshop that included bereaved parents in role…

Browse Items (30 total)