Browse Items · Pediatric Palliative Care Library

Outpatient Pediatric Palliative Care Development: Guidance on Building Sustainable Programs

Context: As pediatric palliative care (PPC) expands within institutions and nationally, little guidance is available on building outpatient programs. Objective(s): We asked outpatient PPC (OPPC) program leaders in the United States about clinic…

Assessing Pediatric Resident Needs in Grief and Bereavement Education

Context: Pediatric residents care for dying children during training. Few educational efforts focus on helping trainees better understand their own grief process and the supports available to them and their patients' families. Objectives: This work…

Trauma-informed qualitative research: Some methodological and practical considerations

Mental health nurses who engage in research are likely to undertake research on sensitive topics, related to experiences of illness, care delivery and treatment. With recognition of the high prevalence of trauma in the lives of people who interact…

Tags: 2021, 2024 SE2 - Parent Perspectives, Delivery of Health Care, Humans, International Journal of Mental Health Nursing, Leadership, mental health nursing, Mental Health Services, Methodology, Psychiatric Nursing, Qualitative, Qualitative Research, Sophie I, Trauma, trauma informed

An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings

Objective To describe the development and implementation of a 1-year 'Hybrid' Pediatric Palliative Care (PPC) Fellowship, which includes both clinical and online learning to train paediatricians as specialists and leaders in paediatric palliative…

Development of a Global Palliative Care Program

Background and Aims: Disparities in access to pediatric palliative care (PPC) and pain management remain an under-addressed global health issue, especially in low- and middle-income countries (LMICs). Although integration of palliative care (PC) is…

Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care

BACKGROUND: Occupancy is commonly used to measure bed management in hospices. However, the increasing complexity of children and young people and growing dependence on technology mean that this is no longer effective. AIM: To develop a dependency…

Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU

The use of a palliative care guideline in infants remains controversial in the NICU community. Triggers are only intermittently utilized within the NICU setting. Most NICUs implement strategies for near-death care, but few have guidelines for those…

Tags: 2018, April 2020 List, Awareness, conference abstract, Controlled Study, Human, Infant, Leadership, Medical Record Review, Needs Assessment, Nguyen L T, Nurse, Palliative Therapy, Patient Referral, Pediatrics, Physician, Practice Guideline, Satisfaction, Spear M L

The integration of palliative care in Dr Congo "a Model of Sustainability": A field study

Background and context: In DR Congo, many cancer patients in the terminal phase of their condition have minimal access to palliative care. There is a combined effect of poverty, the deteriorationofthe health system and the absenceof a well-defined…

Attempting to Define Clinical Productivity Metrics among Pediatric Palliative Care Services at Academic Children's Hospitals

Introduction: Pediatric palliative care (PPC) programs have grown in size and number at academic children's hospitals in the United States for the past 20 years. Little is known about the relationships between program workforce staffing, billing and…

Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project

Background: Families caring for a child with a life limiting condition not only provide 24 hour complex care but also must care for siblings and cope with everyday tasks. Research suggests families could benefit from 'domestic support' (Fraser et al,…

Nursing Unit Environment Associated with Provision of Language Services in Pediatric Hospices

Background Provision of language services in pediatric hospice enables nurses to communicate effectively with patients who have limited English proficiency. Language barriers contribute to ethnic disparities in health care. While language service use…

Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives

This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in…

Tags: 2005, Backlog, Blacker S, Christ GH, Cooperative Behavior, Humans, Interdisciplinary Communication, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Leadership, Organizational Innovation, Palliative Care/organization & Administration, Social Work/organization & administration, Terminal Care/organization & Administration

Do we have the power to create our own future as oncology nurses?

2005

Tags: 2005, Backlog, Canadian Oncology Nursing Journal, Female, Humans, Journal Article, Leadership, Male, Nurse's Role, Nursing, Nursing/psychology, Oncologic Nursing, Power (psychology), Sex Factors, Societies, Steele R, Students

Palliative care: rapid redesign to support systemwide quality improvement

Large-scale change techniques and rapid redesign methodologies were used to improve the quality of care delivered to patients at the end of life in a large, multihospital healthcare delivery system. By bringing key stakeholders from across the system…

Weaving for the future: using rulers and roses

2001

Tags: 2001, Administration, Backlog, Biomedical, Canadian Oncology Nursing Journal, Davies B, Evidence-based Medicine, Forecasting, Humans, Journal Article, Leadership, Models, Nurse's Role, Nursing, Nursing Process, Nursing Research/organization &, Oncologic Nursing/education/organization &, Organizational Objectives, Technology Assessment

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