Browse Items · Pediatric Palliative Care Library

Integration of Pediatric Palliative Care Into Cardiac Intensive Care: A Champion-Based Model

Integration of pediatric palliative care (PPC) into management of children with serious illness and their families is endorsed as the standard of care. Despite this, timely referral to and integration of PPC into the traditionally cure-oriented…

Interdisciplinary Perspectives on the Value of Massage Therapy in a Pediatric Hospice

Canuck Place Children's Hospice in Vancouver, Canada, has been hosting a massage therapy practicum within the hospice since 2011. The practicum is delivered by upper-level massage therapy students who are supervised by a registered massage therapist…

Parents' experiences of services for their child with a life-limiting neurodevelopmental disability

This study explored parents' experiences of services for children with life-limiting neurodevelopmental disabilities (LLNDD) using mixed methods. The study included a quantitative survey (n = 63) and qualitative interviews (n = 12), with a focus on…

Tags: 2019, Article, Child, Children's Health Care., Courtney E, Female, Funding, Guerin S, Human, Interview, July 2019 List, Kiernan G, Major Clinical Study, Male, McQuillan R, nervous system malformation, quantitative analysis, Ryan K, Staff

Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care (FR452)

Objectives: *Discuss bereaved parent and staff perspectives regarding limitations for end-of-life care for children who die in intensive care units.*Explain the process of co-creation sessions, and identify opportunity concepts for improving end of…

Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?

Background/Objectives: Palliative and supportive care needs of children with cancer and their families are unique and require special attention. Development of appropriate services sensitive to the needs of families and based on observed evidence has…

Memory-Making in Neonatal End-of-Life Care

Background: The loss of a child in the first hours or days of life is a profoundly distressing event for parents. Provision of appropriate psycho-social care for bereaved parents is critical. Current perinatal and neonatal palliative care guidelines…

Tags: 2018, conference abstract, Controlled Study, Death, February 2019 List, Grounded Theory, Harms L, health practitioner, Human, Infant, Interview, Journal of Pain and Symptom Management, Memory, Neonatal Intensive Care Unit, Newborn, Nicholson P, Staff, Terminal Care, Thornton R

Bereavement follow-up: Listening and learning

Aims & Objectives: Providing family focussed care through lessons learned from bereavement follow-up. Methods RMCH is a tertiary PICU in UK with 750 admissions annually. Families of all patients who die in PICU are offered bereavement follow-up at…

Changing times-PICU and palliative care

Aims & Objectives: To identify patients admitted to PICU who might benefit from palliative care using the Spectrum of Children's Palliative Care Needs. Methods Prospective study between July 2016-December2017. Cases admitted to the PICU were assessed…

Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project

Background: Families caring for a child with a life limiting condition not only provide 24 hour complex care but also must care for siblings and cope with everyday tasks. Research suggests families could benefit from 'domestic support' (Fraser et al,…

Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis

Background: Despite the number of interprofessional team members caring for children at the end of life, little evidence exists on how institutions can support their staff in providing care in these situations. Objective: We sought to evaluate which…

Development of symptom assessment service at a children's hospice

Background and aims High symptom burden has been recognised in children with life-limiting conditions (LLC) and symptom assessment and management is a core component of children's palliative care (CPC). A previous audit highlighted a high prevalence…

Moral distress, trauma and burnout in staff in relation to changes in picu outcomes, challenging cases and media involvement in disagreements about end-of-life care

Background Technological advances have decreased PICU mortality but increased the number of children surviving with disability or technologically-dependent. Death in PICU most frequently follows withdrawal of life-sustaining therapy (LST),…

Death and bereavement in a paediatric intensive care unit: parental perceptions of staff support

OBJECTIVES: To determine which staff behaviours and interventions were helpful to a family who had a child die in the intensive care unit (ICU) and which behaviours could be improved. METHODS: Families whose child died six to 18 months earlier were…

Tags: 2003, Backlog, Bereavement, Death, Grief, Intensive Care, Journal Article, Macnab AJ, Northway T, Paediatrics & Child Health, Parents, Ryall K, Scott D, Staff, Straw G, Support

Bringing Home To The Hospital: Development Of The Reflection Room And Provider Perspectives

Background: Alternative locations for children near end of life (EOL) are lacking in the United States with deaths largely occurring within intensive care units (ICUs). The reflection room (RR) was implemented as a relevant space for providing this…

Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)

Background: Geography and population distribution present challenges to the care of children with life-limiting conditions (LLC) within Australia. Children and young people have unique needs in relation to the provision of palliative care within…

Integrating Palliative Care Into School Communities

Background: Historically, the social aspects of death, dying and bereavement have been given insufficient attention by palliative care services; this has had an adverse effect on how patients and their families experience end-of-life and bereavement.…

Succession Planning In Children's Palliative Care Services

The children's palliative care sector requires a specific set of knowledge and skills in its workforce. Maintaining high levels of competence and leadership can be challenging if staff move out of the sector, retire or several key people leave.…

Browse Items (17 total)