Browse Items (104 total)
- Tags: Questionnaire
Experiences with a national team-based learning program for advance care planning in pediatric palliative care
Tags: 2024, 2025 SE1 - Oncology, Adult, Advance Care Planning, Article, BMC Palliative Care, Brounen MJ, Childhood Cancer, Controlled Study, Conversation, de Groot M, De Weerd W, Dutchman, Education Program, Engel M, Fahner JC, Female, Health Care Personnel, Hennus MP, Hermans M, Hofman SC, Human, Joosen C, Kars MC, Lalbahadoersing-Jharap S, Learning, learning program, Maebe S, Male, Michiels EMC, Middle Aged, Miedema S, Netherlands, Palliative Therapy, Patient Care Team, Pediatrics, Personal Experience, professional knowledge, Questionnaire, Raphael MF, Schieving J, self-reflection, Skill, University Hospital, van Capelle C, Work, workload, Young Adult
Is it early enough? The authentic meaning of the pediatric palliative approach between early and late referral in pediatric oncology: a case study
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advance Care Planning, Affinita MC, anxiety, Article, Artificial Ventilation, Avagnina I, Benini F, Brain Metastasis, Child, Childhood Cancer, Clinical Article, cognitive behavioral therapy, colonoscopy, community hospital, computed tomographic angiography, doctor patient relationship, Dysphagia, Dyspnea, facial nerve paralysis, Female, Follow Up, Frontiers in Oncology, Headache, Health Promotion, hearing impairment, hematothorax, hemoptysis, Hospitalization, Human, Intensive Care Unit, Life Expectancy, Morphine, nerve paralysis, neurofibromatosis type 1, nuclear magnetic resonance imaging, Oncology, oncology ward, Palliative Therapy, Patient Referral, Quality Of Life, Questionnaire, refugee, Rhabdomyosarcoma, Santini A, Terminal Care, thorax pain, tracheobronchial toilet, Verbal Communication, visual field, Zanin A
Parental perspectives on home-based palliative care in children with advanced cancer
Tags: 2023, 2025 SE1 - Oncology, Advanced Cancer, Bereavement Support, Biji MS, cancer center, Child, Childhood Cancer, conference abstract, Drug Therapy, Father, Fatigue, Female, friend, Gopakumar KG, Home Care, Human, Jithin TK, Journal Of Pediatric Hematology/oncology, Likert scale, Male, Nimitha T, Observational Study, Only Child, oral drug administration, Pain, Palliative Care, Palliative Therapy, Questionnaire, refractory disease, relapse, Rizwana KN, social media, Therapy
What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature
Tags: 2023, 2025 SE1 - Oncology, administrative health data, Adolescent, Adult, Analgesia, Anticipation, Body Image, cancer center, Cancer Chemotherapy, Cancer Diagnosis, Cancer Palliative Therapy, Cancer Patient, Cancer Prognosis, cancer radiotherapy, Cancer Therapy, Checklist, Childhood Cancer, Chinese Version of the Medical Coping Mode Questionnaire, clinical assessment, clinical evaluation, Condren C, Coping, Data Base, data extraction, Demographics, Depression, Depression Anxiety and Stress Scale-21, developmental stage, Disease Burden, Disease Severity, Distress Syndrome, Dying, Edmonton Classification System of Cancer Pain, emotional support, Fatigue, Female, financial management, Follow Up, Gender Identity, Guerin S, Health Care, Health Personnel Attitude, Hematologic Malignancy, Hospital Anxiety and Depression Scale, Human, illness trajectory, Journal Of Adolescent And Young Adult Oncology, Looney K, Male, malignant neoplasm/rt [Radiotherapy], Mental Health, mood change, Neylon K, occupation, Oncology, Patient Autonomy, Patient Referral, patient-reported outcome, Pediatric Quality of Life Inventory, Personal Experience, Population, Prevalence, program appropriateness, Prospective Study, Psycho-Oncology, psychological aspect, psychosocial care, Psychosocial Intervention, Qualitative Analysis, Qualitative Research, quantitative analysis, Questionnaire, Review, Self Report, Semi Structured Interview, sexual health, Short Form 12, Side Effect, social needs, Social Support, Social Support Rating Scale, Social Worker, solid tumor, Study Design, Symptom, Systematic Review, Terminal Care, Thematic Analysis, unmet medical need, Western Australia, workshop, Young Adult
Brazilian Physicians' Attitudes and Feelings Towards Palliative Care in Pediatrics
Tags: 2024, 2025 SE2 - LRS, Acta Bioethica, Adolescent, Article, Attitude, Child, Chile, Cross-sectional Study, de Assis LCL, Female, Health Care Quality, Human, Meirelles BG, Nunes RML, Palliative Therapy, pediatric patient, Pediatrics, phylogenetic tree, Physician, Physician Attitude, Questionnaire, Rocha AA, Sadness, special situation for pharmacovigilance
PACOPED QL: Development and evaluation of the quality-of-life scale for children with life-Threatening illnesses
Tags: 2025, Adolescent, Child, Child Preschool, Chronic Disease, Cross-sectional Studies, Cross-sectional Study, devices, Female, Human, Humans, Male, March List 2025, PACOPED QL, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Pediatric Palliative Care, Pediatrics, Pilot Projects, Pilot Study, Preschool Child, Procedures, Psychology, Psychometrics, psychometry, Quality Of Life, Questionnaire, Reliability, Reproducibility, Reproducibility of Results, Riera-Negre L, Rosselló MR, Surveys And Questionnaires, Validity, Varona J, Verger S
Nurses' knowledge of paediatric palliative care in a children's hospital
Tags: 2024, Adult, Attitude To Health, Child, Clinical Competence, Cross-sectional Study, de Noriega Í, Education, Female, Human, International Journal of Palliative Nursing, Male, March List 2025, Martín-Romero I, Middle Aged, Nursing Staff, palliative nursing, Palliative Therapy, Pediatric Hospital, Pediatric Nursing, Perez-Perez JT, Psychology, Questionnaire, Spain, Vázquez-Sánchez JM
The critical role of education in shaping nurses' attitudes and intentions towards neonatal palliative care: A network analysis
Tags: 2025, Adult, Behavior, China, Clinical Trial, Cross-sectional Study, Education, Female, Health Personnel Attitude, Hu Y, Huang X, Human, Kain V, Li X, Li Y, Li YX, Luo B, Male, March List 2025, Multicenter Study, Neonatal Nurse, Newborn, newborn nursing, Nurse Education Today, Palliative Therapy, Peng H, Procedures, Psychology, Questionnaire, Shi Z, Wan X, Yang R
Prevalence of pain in the last 2 weeks of life in hospitalized pediatric patients
Tags: 2024, Adolescent, Adult, Analgesia, Article, Bastidas-Legarda S, Child, Data Analysis Software, Female, Flores-Munoz MA, Gutierrez-Cortes C, Hernandez-Ramirez E, Hospital Patient, Hospitalization, Human, Infant, longitudinal study, Major Clinical Study, Male, March List 2025, Medical Practice, Newborn, Observational Study, Pain Assessment, Pain Intensity, Pain/ep [Epidemiology], Palliative Therapy, pediatric patient, Prevalence, Quality Of Life, Questionnaire, Retrospective Study, Revista Medica del Hospital General de Mexico, SPSS version 21, terminally Ill Patient
The effect of musical-animated toys and audiobooks on fear and pain in the tracheostomy care of children in the palliative care
Tags: 2024, Akay G, anxiety, Article, Artificial Ventilation, atelectasis, Attention, audiobook, Autism, behavior change, book, breathing rate, Bulut DK, Child, Clinical Trial, Controlled Study, Drug Therapy, Fear, Female, Hospitalization, Human, interrater reliability, intervention study, Kadiroglu T, Learning, Major Clinical Study, Male, March List 2025, mean corpuscular volume, Music Therapy, musical animated toy, musical instrument, Oncer A, oxygen saturation, Pain, Pain Assessment, Palliative Therapy, Patient Satisfaction, Post Hoc Analysis, procedural pain, pulse oximeter, pulse rate, Questionnaire, Revista da Associacao Medica Brasileira, sleep disorder, special situation for pharmacovigilance, systolic blood pressure, trachea stenosis, Tracheostomy, Tufekci FG, videorecording
Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers
Tags: 2024, Adolescent, Adult, Article, Caregiver, Child, Clinical Article, cognitive behavioral therapy, Content Analysis, content validity, Disease Severity, Dyspnea, Emotion, emotional appraisal, enzyme replacement, Fatigue, February List 2025, Female, glycogen storage disease type 2, Hahn A, Hennermann JB, Home Care, Huemer M, Human, inborn error of metabolism, Lagler FB, Landolt MA, Life Expectancy, Male, MAXQDA software, Moslinger D, Multicenter Study, Muscle Weakness, musculoskeletal pain, Orphanet Journal Of Rare Diseases, Pain, Pain Intensity, Palliative Therapy, Perception, Pfrimmer C, psychosocial care, Qualitative Analysis, Qualitative Research, Quality Of Life, Questionnaire, Rohrbach M, School Child, Semi Structured Interview, Severity Of Illness Index, social exclusion, Social Support, sore throat, Truninger MI, Vomiting, Werner H, Young Adult
Exploring the Role of Genetic Testing in Decisions to Redirect Care in Critically Ill Infants
Tags: 2024, American Journal Of Hospice And Palliative Care, Article, Brunelli L, Child, Clinical Article, Controlled Study, Cost Control, Critically Ill Patient, Diagnosis, electronic medical record, February List 2025, genetic screening, Human, Infant, Major Clinical Study, Mowery A, Neonatal Intensive Care Unit, Neonatology, Newborn Intensive Care, Palliative Therapy, Questionnaire, Retrospective Study, Seale J, Terminal Care, Wong B
Immersive Virtual Reality for Pain and Anxiety Management Associated with Medical Procedures in Children and Adolescents: A Systematic Review
Tags: 2024, Adolescence, anxiety, burn, Caregiver, Children, computer aided design, computer assisted tomography, Cost Effectiveness Analysis, Delirium, dizziness, Endoscopy, Faces Pain Scale, Headache, Heart Rate, Human, immunization, Likert scale, lung function test, Medical Procedures, meta analysis, metastatic colorectal cancer, November List 2024, Ortega-Donaire L, outcome assessment, Pain, Pain Intensity, Palliative Therapy, Practice Guideline, quality control, Questionnaire, Randomized Controlled Trial (topic), Rating Scale, Review, Sanchez-Caballero E, Sanz-Martos S, skin conductance, Systematic Review, Vaccination, vein puncture, virtual reality, Visual Analog Scale, wound closure
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study
Tags: 2024, Adult, Advance Care Planning, Aris-Meijer JL, Article, Caregiver Support, Child, Children, Clinical Article, Clinical Decision Making, Cross-sectional Study, Family Centered Care, Female, Follow Up, Health Care Personnel, health care planning, Hofman SC, Hospitalization, Human, illness trajectory, Interpersonal Communication, Joren CY, Kars MC, Kremer LCM, Likert scale, Male, mobile application, Mortality, November List 2024, Palliative Therapy, Perception, person centered care, Questionnaire, Rippen-Wagner H, Schuiling-Otten MA, Semi Structured Interview, shared decision making, Slingerland-Blom R, Terminal Care, Thematic Analysis, van der Velden C, Verhagen AAE
CARING FOR DYING CHILDREN: EXPERIENCES OF FAMILY CAREGIVERS OF CHILDREN RECEIVING PEDIATRIC PALLIATIVE TREATMENT
Tags: 2024, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Child, Clinical Article, conference abstract, Content Analysis, Correlation Analysis, Dying, Family, Fear, Human, Mental Health, Neuro-oncology, October List 2024, Palliative Therapy, Quality Of Life, Questionnaire, School Child, Semi Structured Interview, Tanriverdi M, Yilmaz GG
HELPING THE HELPERS - SUPPORT IN CHILD BEREAVEMENT FOR PAEDIATRIC HEALTH CARE STAFF
Tags: 2024, Archives of Disease in Childhood, Bereavement, Callow E, Child, Child Death, Child Health Care, conference abstract, Controlled Study, Conversation, Emergency Ward, Grief, Health Care Personnel, Human, Nurse, Nursing Staff, October List 2024, pediatric intensive care nursing, pediatric nurse, Pediatrician, Questionnaire, Self Care, Shefler A, Sibling, Smith N
Polypharmacy in Children with Medical Complexity: A Cross-Sectional Study in a Pediatric Palliative Care Center
Tags: 2024, Adolescent, Adult, Agosto C, Analgesia, Article, Avagnina I, Baratiri F, Benini F, Caregiver, Caregiver Burden, Child, Children, Cross-sectional Study, Divisic A, drug cost, Drug Safety, eye drops, Female, Human, Infant, Maghini I, Male, Mengato D, nose spray, Observational Study, October List 2024, off label drug use, Palliative Therapy, Pediatrics, Pharmacoeconomics, Pivato L, Polypharmacy, Prevalence, Quality Of Life, Questionnaire, Roverato B, Rusalen F, special situation for pharmacovigilance, typographical error, Venturini F, Zanin A
A PROSPECTIVE REVIEW OF PAEDIATRIC TRAINEES EXPOSURE TO PALLIATIVE CARE IN IRISH HOSPITALS
Tags: 2024, Allen J, BMJ Paediatrics Open, Capra M, Child, conference abstract, Constipation, Data Analysis Software, Devins M, Diagnosis, Dyspnea, Emotional Stress, Flinn K, Health Care Personnel, Human, McElligott F, Normal Human, October List 2024, Palliative Therapy, Questionnaire, symptomatology, Thematic Analysis
The knowledge, attitude and behavior on the palliative care among neonatal nurses: what can we do
Tags: 2024, Article, Attitude, Behavior, BMC Palliative Care, Complication, Controlled Study, Hu F, Hu J, Human, Knowledge, Major Clinical Study, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, Nursing Knowledge, palliative nursing, Palliative Therapy, Questionnaire, September List 2024, tertiary care center, Therapy, work experience, Wu L, Yan Y
Why Are we Giving up on my Brother?-The Unmet Needs of the Adolescent Facing End-of-Life Care in a Sibling
Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review
Tags: 2024, Adaptation Psychological, Adolescent, Article, Awareness, Bmc Pediatrics, Burnout, Charepe Z, Child, Child Preschool, Chronic Disease, Continuity Of Patient Care, Decision Making, Diagnostic Accuracy, family functioning, Ferreira AM, geographic distribution, health care organization, health practitioner, Health Promotion, Health Transition, healthcare, Hospitalization, Human, Humans, immunosuppressive treatment, Infant, Interpersonal Communication, investment, Loura D, Medical Education, Palliative Therapy, Parent, Parents, Patient Care, Polypharmacy, population dynamics, Preschool Child, Prevalence, psychological adjustment, Psychology, Quality Of Life, Questionnaire, Romeiro J, Scoping review, September List 2024, Sleep Quality, Terminal Care, Therapy, Transitional Care, VULNERABILITY, Young Adult
The Home-based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of psychometric properties
Barriers to initiating and implementing palliative and end-of-life care for children with life-limiting conditions: a mixed-methods study in a UK children's hospital
Tags: 2024, Adolescent, Adult, Archives of Disease in Childhood, Article, August List 2024, Bedford H, Bereavement, Brierley J, Child, Clinician, coronavirus disease 2019, Dittborn M, Female, Health Care Personnel, Human, Interview, Male, Morbidity, Palliative Therapy, Patient Compliance, Pediatrician, Peer Review, Questionnaire, Semi Structured Interview, Terminal Care, Thematic Analysis, Umezurike I, Whitelaw J
Self-Assessed Educational Needs of Chinese Pediatric Clinicians Regarding Pediatric Palliative Care: A Cross-Sectional Investigation
Parent Preferences and Experiences in Advance Care Planning in the Neonatal Intensive Care Unit
Tags: 2024, Advance Care Planning, American Journal of Perinatology, Article, August List 2024, Caregiver, Controlled Study, Cost Effectiveness Analysis, Cross-sectional Study, Cummings C, DeCourcey DD, Emotional Stress, Female, Follow Up, Health Care Cost, Hospital Anxiety and Depression Scale, Human, Infant, Intensive Care Unit, Lin M, Major Clinical Study, Neonatal Intensive Care Unit, Palliative Therapy, Patient Preference, psychiatrist, Quality Of Life, Questionnaire, Resuscitation, Sayeed S, Social Support, Terminal Care, Vitcov G, Williams D, Wolfe J
Parental Perceptions of the Impact of a Child’s Complex Chronic Condition: A Validation Study of the Impact on Family Scale
Tags: 2024, Adolescent, Adult, Alves SP, Article, August List 2024, Braz AC, Cerebral Palsy, Child, Child Health, Childhood Disease, Chronic Disease, cohesion, confirmatory factor analysis, construct validity, Disease, Educational Status, Emotional Stress, Family Life, family relation, Family Relations, Female, Fontaine AM, Graça L, Human, Humans, impact on family, Impact on Family Scale, International Journal of Environmental Research and Public Health, life satisfaction, Likert scale, Male, Middle Aged, Parent, parental care, Parents, pediatric complex chronic illness, Perception, Personal Satisfaction, Portugal, Psychology, psychometry, Questionnaire, Reproducibility, Reproducibility of Results, Satisfaction, satisfaction with life, scoring system, social cohesion, sociodemographics, Surveys And Questionnaires, test retest reliability, validation study
Knowledge, attitudes and practices of critical care unit personnel regarding pediatric palliative care: a cross-sectional study
Tags: 2024, Adolescent, Adult, Article, Attitude, BMC Palliative Care, Cesarean Section, Child, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Female, Health Care Personnel, Human, Intensive Care, Intensive Care Unit, Jin L, July List 2024, Knowledge, Lu H, Male, Nurse, Palliative Care, Palliative Therapy, Pediatric Intensive Care Unit, Personnel, Physician, pyriprole, Questionnaire
Role of Pediatric Palliative Care in German-Speaking Centers for Heart Transplantation
Tags: 2024, cardiac patient, Child, Chronic Disease, conference abstract, Consultation, Controlled Study, Ethical dilemma, Fischer M, Haas N, heart disease, Heart Failure, Heart transplantation, Hermann M, Human, May List 2024, Medical Specialist, Nurse, Palliative Care, Palliative Therapy, Quality Of Life, Questionnaire, Rabenhorst D, Speech, Terminal Care, Therapy, Thoracic and Cardiovascular Surgeon, ventricular assist device
Rights of the Dying Child: The Nurses' Perception
Tags: 2018, Adult, Article, Awareness, Benini F, Brugnaro L, Child, Cross-sectional Study, Dying, Female, health care planning, Human, Human Rights, Italy, Journal of Palliative Medicine, Lazzarin P, Likert scale, Major Clinical Study, Male, Marinelli E, May List 2024, Multicenter Study, nurse attitude, Only Child, Orzalesi M, Patient Right, Pediatric Hospital, Pediatrics, postgraduate education, Quality Of Life, Questionnaire, ward, work experience
People don't realise how much their past experiences affect them in adulthood': A qualitative study of adult siblings' experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs
Tags: 2024, Adolescent, Adult, ADULTHOOD, anxiety, Article, Brother, childhood, Depression, emotionality, family assessment, Female, Hospice, Human, hydrotherapy, Interview, Kirk S, Life Expectancy, Male, May List 2024, mental disease, Mental Health, nightmare, Palliative Medicine, Palliative Therapy, Pryjmachuk S, Psychotherapy, Qualitative Research, Quality Of Life, Questionnaire, Semi Structured Interview, Sibling, single parent, Sister, social network, Social Support, Terminal Care, Thematic Analysis
Gastrointestinal symptoms and problems in children cared by pediatric palliative care teams. Observational study
Tags: 2024, abdominal pain, Adolescent, Andes Pediatrica, Article, Bernada Scarrone MM, Child, Constipation, Consultation, Diarrhea, digestive prosthesis, digestive system hemorrhage, Dysphagia, Gastrointestinal Symptom, Gastrostomy, Human, Infant, Le Pera Garofalo V, Major Clinical Study, May List 2024, mucosa inflammation, Multicenter Study, Nausea, Observational Study, Palliative Care, Palliative Therapy, pediatric patient, Preschool Child, Prevalence, Prospective Study, Quality Of Life, Questionnaire, School Child, Vomiting
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Investigation of the impact of paediatric hospices on the quality of care of paediatric nurses
A psychological experience assessment protocol of parent caregivers in paediatric palliative care
Tags: 2023, Adult, Annals Of Medicine, Article, Caregiver, Child, Clinical Article, Coping Behavior, Coping Strategy Questionnaire, February List 2024, Human, Nogueira AJ, Palliative Therapy, Parent, Portugal, psychologic assessment, Questionnaire, Ribeiro MT, Semi Structured Interview, Social Support, Therapy, United Kingdom, VULNERABILITY
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
Unfolding parental knowledge, attitudes, and beliefs toward palliative care for children with cancer
Tags: 2023, 2023 SE3 - Oncology, Abboud MR, Article, Caregiver, Child, Childhood Cancer, Demography, Education, Educational Status, Emotion, Fares S, Female, Huijer HAS, Human, Lebanon, Major Clinical Study, Male, Multicenter Study, Noureddine S, Pain, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, quantitative analysis, Questionnaire, Rassam RS, Smith EML, Structured Interview, Wolfe J
Simulated learning for staff at a children's hospice: a quality improvement project
Tags: 2023, anxiety, Article, care behavior, Chadwick A, Child, Conversation, Education, Hospice, Hospices, Human, Learning, November List 2027, Nurse, Nursing Children and Young People, Only Child, Palliative Therapy, paramedical personnel, Price J, Questionnaire, Richardson S, Sheedy G, Simulation, Skill, Terminal Care, Total Quality Management
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
Internet Health Resources on Nocturnal Enuresis - A Readability, Quality and Accuracy Analysis
Tags: 2023, Article, Chan IHY, Child, Clinical Article, continence, Controlled Study, enuresis, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie, Female, Fung ACH, government, health care planning, Human, Internet, Kenneth W, Lee MHL, Leung L, Male, nephrologist, nocturnal enuresis, October List 2046, pediatric surgeon, Practice Guideline, Questionnaire, reading, search engine, urologist