Browse Items · Pediatric Palliative Care Library

First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic review

Background: First Nations Peoples endure disproportionate rates of stillbirth compared with non-First Nations Peoples. Previous interventions have aimed at reducing stillbirth in First Nations Peoples and providing better bereavement care without…

Professional bereavement photography for perinatal loss: A mixed-methods study

Abstract This study addresses research gaps regarding the impact of professional bereavement photography for perinatal loss. Utilizing a mixed-methods research design, 504 parents completed an online survey measuring their attitudes toward…

The Power and Potential of Photography as a Therapeutic Modality for Children with Life-Impacting Illnesses

Objectives: Art is being increasingly appreciated for its healing capacity in pediatric medicine. However, while mediums like music and painting have already been widely integrated into children's health institutions across the nation, photography is…

Tags: 2023, Art, Child, Families, Henrich K, Henrich M, Journal Of Palliative Care, Only Child, Pediatrics, photographs, Photography, September List 2040, Therapy

Neonatal Palliative Care Practices: An Indian Perspective

Background: Neonatal palliative care (NPC) aims to prevent and relieve the suffering of neonates who are not going to recover. Although an integral part of neonatal care, it remains in nascent stages in many parts of the world. Aim(s): To describe…

Taking Memory Making to the Next Level with the Use of Resin

Background Memory making is the process of creating mementos of a child with a life-limiting condition, who may be at or near end of life, providing a tangible and visual connection to the child who has died. Acorns memory making work already…

Using Photo-Elicitation Interviews With Families of Children and Adolescents With Chronic Illness

BACKGROUND: Despite the increasing number of studies using photo-elicitation for data collection in qualitative research, there is a need to further explore its use among families of children and adolescents living with chronic illness. OBJECTIVE(S):…

Tags: 2021, Adolescent, Child, Chronic Disease, Family Attitudes, Garcia-Vivar C, July 2021 List, Leite ACAB, Nascimento LC, Nursing Research, Pediatrics, photo-elicitation interviews, Photography

Being a Parent: Findings from a Grounded Theory of Memory-Making in Neonatal End-Of-Life Care

PURPOSE: Neonatal palliative care guidelines increasingly recommend that parents be encouraged to provide care for their dying baby and to spend time with the before and after death. However, little is currently known about how parents perceive such…

Tags: 2021, Bereavement, Harms L, Infant, Journal of Pediatric Nursing, May 2021 List, Memory-making, Newborn, Nicholson P, Parent, Photography, Thornton R

Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos

Today every aspect of our life is published and shared online, including grief. The virtual cemeteries and social networks' use could be considered as a new modern mortuary ritual. Starting from the keyword stillbirth, 50 videos published on YouTube…

Tags: 2021, April 2021 List, Bacqué MF, Burial Practices, Descriptive Statistics, Human, Laurenti Dimanche AC, Mothers -- Psychosocial Factors, music, Omega: Journal Of Death & Dying, Perinatal Death, Photography, Qualitative Studies, Religion and Religions, Sani L, social media, User-Computer Interface, videorecording

Stillbirth memento photography

Research into stillbirth memento photography shows the practice to be welcomed by the bereaved. The visual attributes and content of stillbirth memento photographs are yet to be rigorously analysed however, representing a significant gap in current…

Tags: 2020, Bereavement, Death studies, graphic design, health communications, Humans, January 2021 List, Journal of Visual Communication in Medicine, obstetrics, Parents/psychology, Photography, Photography/methods/standards, Stillbirth, Stillbirth/psychology, Tovey R, Turner S

Creating evidence: Findings from a grounded theory of memory-making in neonatal bereavement care in Australia

PURPOSE: Perinatal and neonatal palliative care guidelines recommend the provision of photographs and other mementos as an element of care for parents bereaved by neonatal loss. However, little is known about parents' perceptions of such bereavement…

Tags: 2020, Bereavement, Harms L, Infant, Journal of Pediatric Nursing, June 2020 List, Memory-making, Newborn, Nicholson P, Parent, Photography, Thornton R

Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats

Program Goals: Appropriate use of electronic media in a pediatric palliative care setting enhances a family's experience of care given to their child over time and assists in the grieving process. Here we explore multiple uses of electronic media in…

Tags: 2018, Awareness, Brother, California, Child, conference abstract, Documentation, Face, February 2020 List, Female, Fisher J M, Grief, hearing, Heat, hot water, Human, literature, Male, Memory, motion, Palliative Therapy, Pediatrics, Photography, Physician, Pyatt S, Sound, Teacher, Teaching, touch, videorecording, Voice

The Experience of Pediatric Palliative Caregiving: A Qualitative Analysis From the Photographs of Meaning Program

The Photographs of Meaning Program for pediatric palliative caregivers (POM-PPCG) is an innovative, meaning-based intervention utilizing photovoice and social media components. In 2017, 9 pediatric palliative caregivers participated in this…

Professional Bereavement Photography in the Setting of Perinatal Loss: A Qualitative Analysis

Perinatal loss, including fetal and infant death, is a devastating experience for parents, resulting in long-term adverse physical and psychosocial outcomes. However, little is known about what services might best support grieving parents. We aimed…

Tags: 2019, and/or, August 2019 List, Authorship, Bereavement, Bogetz J F, conflicts of interest with respect to the research, Global Pediatric Health, Grief, Kufeld M, Perinatal Loss, Photography, Publication Of This Article., Qualitative Research, Ramirez F D, Yee L M

The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention

Background: Research indicates that informal caregiving can have intense physical and mental impact on the individual. Relative to caregivers of adults, pediatric palliative caregivers appear less in literature despite experiencing greater mental,…

Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites

Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn

OBJECTIVE: To summarize and synthesize extant literature on memory making in bereavement care for parents who experience the death of a newborn and to identify opportunities for future research. DATA SOURCES: We conducted a systematic search of four…

Tags: 2019, Bereavement, Grief, Harms L, Infant, Journal of Obstetric, Gynecologic, & Neonatal Nursing, June 2019 List, memento, Memory, Nicholson P, Parents, Photography, Thornton R

Little lights: Hospital bereavement photography program

Description: Purpose: The Little Lights program is a novel, collaborative, nursing-led bereavement photography service created as a solution to the challenge of providing consistent high-quality bereavement photography for families and their dying…

Self-portraits of families with young adult cancer survivors: using photovoice

Photovoice is a participatory research methodology in which individuals photograph their everyday realities. The present study used photovoice to understand the impact of cancer on a sample of six young adult survivors of childhood cancer (YACS) and…

Hospital care for parents after perinatal death

OBJECTIVE: To systematically review parent experiences with hospital care after perinatal death. DATA SOURCES: An evaluation of more than 1,100 articles from 1966 to 2006 was performed to identify studies of fetal death in the second or third…

Ocular findings in Norwegian patients with ataxia-telangiectasia: a 5 year prospective cohort study

PURPOSE: To describe the outcome of ophthalmologic examination of 10 Norwegian children with ataxia-telangiectasia (AT) followed through 5 years. METHODS: Ten Norwegian patients with AT aged 2-22 years (three females, seven males) were examined. The…

Photovoice: a review of the literature in health and public health

Although a growing number of projects have been implemented using the community-based participatory research method known as photovoice, no known systematic review of the literature on this approach has been conducted to date. This review draws on…

Tags: 2010, Backlog, Catalani C, Community Health Services, Community-Based Participatory Research, Consumer Participation, Health Education, Health Education & Behavior, Health Policy, Health Promotion, Humans, Journal Article, Minkler M, Outcome And Process Assessment (health Care), Photography, Public Health

Browse Items (23 total)