Browse Items (26 total)
- Tags: Data Analysis Software
Pediatric palliative care for metabolic diseases: 20-year epidemiological survey of outpatients at a Brazilian quaternary hospital
Tags: 2024, Article, Barbosa SMDM, Bueno C, Child, Cohort Analysis, Controlled Study, Data Analysis Software, disease surveillance, do Nascimento AG, energy deficiency type metabolic disorders, Female, Follow Up, Freitas E, Henrique AC, Human, Journal Of Inherited Metabolic Disease, July List 2024, Kok F, Long Term Care, Major Clinical Study, Male, Metabolic Diseases, metabolic disorder/di [Diagnosis], metabolic disorder/ep [Epidemiology], Metabolism, Outpatient, Palliative Care, Palliative Therapy, PASW statistics 25.0 software, Pathology, pathophysiology, patient monitoring, pediatric patient, Pediatrics, Polastrini RTV, Prevalence, Pugliese C, Retrospective Study, sphingolipidosis, Spolador GM, Zoboli I
Work-related quality of life in professionals involved in pediatric palliative care: a repeated cross-sectional comparative effectiveness study
Tags: 2024, Adult, Attitude Of Health Personnel, Bergstrasser E, Chi Square Test, Comparative Studies, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Feuz U, Funding Source, Gerber AK, Health Personnel, Hospitals Pediatric, Human, July List 2024, Male, Middle Age, Mitterer S, Multidisciplinary Care Team, Palliative Care, Palliative Care and Social Practice, Pearson's Correlation Coefficient, Pediatric Care, Psychosocial Factors, Quality Of Life, Quality of Working Life, Questionnaires, Regression, Repeated Measures, Shiftwork, Simon M, Sociodemographic Factors, structural equation modeling, Summated Rating Scaling, Support Psychosocial, Switzerland, T-Tests, Von der Weid N, work environment, Work Experiences, workload, Zimmermann K
Health anxiety by proxy - through the eyes of the parents
Tags: 2024, Academic Medical Centers, Adolescence, Adult, anxiety, attitude to illness, Child, Child Health, Data Analysis Software, Defense Mechanisms, Denmark, Evaluation, Family Conflict, Family Relations, Fear, Female, Funding Source, Hulgaard D R, Human, Hypochondriasis, Ingeman K, Journal Of Child Health Care, Male, May List 2024, Middle Age, Parent-child Relations, Parental Attitudes, Parents, Phenomenological Research, Professional-family Relations, Psychological Distress, Psychosocial Factors, Qualitative Studies, Rask C U, scales, Secondary Analysis, Semi-Structured Interview, Worry
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Intersectoral collaboration in home-based end-of-life pediatric cancer care: A qualitative multiple-case study integrating families' and professionals' experiences
Tags: 2023, 2023 SE3 - Oncology, Abitz M, Adolescence, Bidstrup PE, cancer patients, Case Studies, Child, Collaboration, Content Analysis, Data Analysis Software, Denmark, Descriptive Research, Descriptive Statistics, Female, Hammer NM, Hansson H, Home Health Care, Human, In Infancy and Childhood, Larsen HB, Male, Olsen M, Oncologic Care, Palliative Care, Palliative Medicine, Pedersen LH, Pediatric Care, Qualitative Studies, Schmiegelow K, Semi-Structured Interview, Sjøgren P
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
Telehealth Needs and Concerns of Stakeholders in Pediatric Palliative Home Care
Tags: 2023, Adult, Children, Data Analysis Software, Deckers MJ, Descriptive Statistics, Family Attitudes, Female, Fisch-Jessen M, Funding Source, Hauch H, Health Services Needs And Demand, Heilmann ML, Home Health Care, Human, Kruempelmann S, Male, Middle Age, Moeller H, Nagel L, Nathrath M, November List 2023, Palliative Care, Patient Attitudes, Pediatric Care, Pilot Studies, Qualitative Studies, Quality Of Health Care, Quantitative Studies, Semi-Structured Interview, Telehealth, Telemedicine, Vaillant V, Voelker T, Zimmermann J
It Was a Shared Duty': Bereaved Fathers' Perspectives, Experiences and Practices in Relation to their Partner's Lactation after Infant Death
Tags: 2022, April List 2023, Australia, Bereavement, Breastfeeding Review, Carroll K, Copland S, Data Analysis Software, Descriptive Statistics, Donor Milk, Exploratory Research, Health Policy, Human, Infant, Infant Death, Intensive Care Units Neonatal, Interpersonal Relations, Lactates, lactation, Lactic Acid, Life Experiences, Male, Milk Human, Noble-Carr D, Open-Ended Questionnaires, Palliative Care, Paternal Attitudes, Paternal Role, Perinatal Death, Phenomenological Research, Psychosocial Factors, Purposive Sample, Qualitative Studies, Semi-Structured Interview, Thematic Analysis, Waldby C
Uncertainty and Perinatal Post?Traumatic Stress Disorder in the Neonatal Intensive Care Unit
Tags: 2022, After Care, April List 2023, Brown RL, Coefficient Alpha, Comparative Studies, Data Analysis Software, Descriptive Statistics, Female, Hospitalization, Human, Hypothesis, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Johnson TS, Lagatta J, Leuthner J, Male, Malin KJ, Malnory M, Mental Disorders, Palliative Care, Parent-Infant Relations, Parents, Patient Discharge, Perinatal Care, Prospective Studies, Psychologists, Psychosocial Factors, Questionnaires, reliability and validity, Research in Nursing and Health, Rholl E, scales, Stress Disorders Post-Traumatic, Summated Rating Scaling, Uncertainty, White?Traut R
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
Tags: 2020, Adolescence, Blackmer AB, Central Nervous System Agents -- Therapeutic Use, Child, Child Preschool, Comorbidity, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Fairclough DL, Feinstein JA, Female, Feudtner C, Funding Source, Gregoire LA, Health Resource Utilization, Holstein J, Human, Infant, JAMA Network Open, Kempe A, Male, March 2021 List, Nervous System Diseases -- Epidemiology -- In Adolescence, Nervous System Diseases -- Epidemiology -- In Infancy and Childhood, Nervous System Diseases -- Symptoms, Peripheral Nervous System Agents -- Therapeutic Use, Polypharmacy, Record Review, Samay S, scales, Severity of Illness, Valuck RJ
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Şener Taplak A, Thematic Analysis, Time Factors
Mothers of angels: (re)living the death of the child as a coping strategy
Tags: 2020, Adult, Anna Nery School Journal of Nursing / Escola Anna Nery Revista de Enfermagem, Attitude To Death, Child, Coping, Data Analysis Software, de Azevedo Mazza V, Death -- In Infancy and Childhood, Descriptive Research, Exploratory Research, Focus Groups, Gramazio Soares L, Hardiness, Human, Kuchla É, March 2020 List, Mother-child Relations, Mothers -- Psychosocial Factors, Padilha Mattei A, Qualitative Studies, Raimondo Ferraz M I, Thematic Analysis
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A
The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth
Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C
Who should discuss goals of care during acute deteriorations in patients with life threatening illnesses? A survey of clinicians from diverse pediatric specialties
Tags: 2019, Advanced Cancer, brain disease, Cancer Patient, cancer resistance, Child, Clinician, conference abstract, Controlled Study, Cote A J, Data Analysis Software, Decision Making, Deterioration, disease exacerbation, E-mail, Emergency Ward, Female, Gaucher N, Human, Human Tissue, Hypoplastic Left Heart Syndrome, Leukemia, Likert scale, Major Clinical Study, Male, nonparametric test, October 2019 List, Paediatrics and Child Health (Canada), Palliative Therapy, Payot A, Pediatrician, Perception, respiratory distress, Spinal Muscular Atrophy, vignette
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
Children Enrolled in Hospice Care Under Commercial Insurance: A Comparison of Different Age Groups
Tags: 2019, Academic Medical Centers -- Pennsylvania, Adolescence, Age Factors, American Journal of Hospice & Palliative Medicine, Analysis of Variance, Chi Square Test, Child, Child Preschool, Chronic Disease -- Classification -- In Infancy and Childhood, Cohrs A C, Comparative Studies, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Funding Source, Geographic Factors, Health Care Costs, Health Resource Utilization, Hospice Care -- Economics -- In Infancy and Childhood, Hospice Patients -- Psychosocial Factors, Human, Infant, Insurance Health, Keim-Malpass J, Length Of Stay, Leslie D L, Lindley Lisa C, Male, March 2019 List, Pearson's Correlation Coefficient, Pediatric Care, Pennsylvania, Prospective Studies, Retrospective Design, Sex Factors
Access to Pediatric Palliative Care in the Neonatal Intensive Care Unit by Minorities and Rural-Dwellers in the Deep South: Patterns of Care from 2009-2017 (S816)
Tags: 2019, African American, Alabama, Bakitas M, Boss R, Buckingham S, Caucasian, Child, conference abstract, Controlled Study, Currie E, Data Analysis Software, Dionne-Odom J, Ejem D, Female, Hospice, Hospitalization, hospitalized infant, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, March 2019 List, McKillip K, Medicaid, Medical Record Review, Mississippi, Mortality, Neonatal Intensive Care Unit, Palliative Therapy, Perna S, Prematurity, Resuscitation, Retrospective Study, Statistics, time of death, travel, Wolfe J
The timing and circumstances of the implementation of pediatric palliative care in Hungarian pediatric oncology
Tags: 2018, Adult, ambivalence, Article, Cancer Palliative Therapy, Child Death, Childhood Cancer, Cohort Analysis, constructive feedback, Data Analysis Software, Doctor Patient Relation, Eniko F, European Journal of Pediatrics, Exploratory Research, Family, Female, Hauser P, Hegedus K, Human, Hungarian (citizen), Hungary, Male, Nyiro J, Oncologist, Oncology 2018 List, Parent, Priority Journal, Psychologist, Structured Interview, Terminal Care, time to treatment, Zorgo S
Influence of Palliative Care on Medical Treatment of Pediatric Patients with Complex Chronic Diseases at Cook Children's Medical Center
Tags: 2018, Chi Square Test, Child, Chronic Disease -- Therapy -- In Infancy and Childhood, Data Analysis Software, Descriptive Statistics, Drug Administration, Electronic Health Records, Hamby T, Hoeft A, Hospitalization, Hospitals Pediatric -- Texas, Human, January 2019 List, Journal of Palliative Medicine, Lawrence K, Length Of Stay, Medical Orders, Palliative Care -- Utilization, Patient Care, Seddighzadeh RP, Texas, Wilcoxon Rank Sum Test
Meeting the needs of young adults with life-limiting conditions: A UK survey of current provision and future challenges for hospices
Tags: 2018, Adult, Bray L, Content Analysis, Convenience Sample, Cross Sectional Studies, Data Analysis Software, Descriptive Research, Descriptive Statistics, Downing J, Health Services Needs And Demand, Hospice Care, Human, Jack Barbara A, Journal Of Advanced Nursing, Kirkcaldy AJ, Knighting K, Mitchell TK, O'Brien MR, Pilkington M, September 2018 List, Terminally Ill Patients -- In Adulthood, Thematic Analysis, United Kingdom, Young Adult
Self-concept of siblings of children with cancer
Tags: 2001, Backlog, Child, Childhood Neoplasms -- Psychosocial Factors, Data Analysis Software, Descriptive Research, Exploratory Research, Female, Human, Issues In Comprehensive Pediatric Nursing, Journal Article, Male, Murray Js, psychosocial, Purposive Sample, Questionnaires, Self Concept -- Evaluation, Self Concept -- In Infancy and Childhood, sibling bereavement, Siblings -- Psychosocial Factors, Southwestern United States, Support, T-Tests
Utilization of palliative care in pediatric oncology: An interprofessional evaluation of knowledge, beliefs, perceived barriers, and involvement of services
Tags: 2017, Adolescent, Bell C, Child, Childhood Cancer, Controlled Study, Data Analysis Software, Diagnosis, Diver J, Doctor Patient Relation, E-mail, Family, Female, Hematology, Human, Male, Nurse, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, Prince-Paul M, Professional Standard, Toly V