Browse Items (9 total)
- Tags: Caregiver Support
Beyond treatment: Understanding family experiences in pediatric palliative care
Tags: 2024, Adolescent, Adult, Andres de Alvaro M, anxiety, Article, Burnout, care behavior, Caregiver, Caregiver Support, Child, Convenience Sample, CPAP device, Del Villar GP, Drug Therapy, Family, Garcia ML, Gene Expression, Health Care Personnel, Home Care, Human, Interpersonal Communication, Interview, lens (optics), Male, March List 2025, Mood, Palliative And Supportive Care, Palliative Therapy, Patient Care, Quality Of Life, Ramos PD, Semi Structured Interview, Tamayo-Morales O, Therapy
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study
Tags: 2024, Adult, Advance Care Planning, Aris-Meijer JL, Article, Caregiver Support, Child, Children, Clinical Article, Clinical Decision Making, Cross-sectional Study, Family Centered Care, Female, Follow Up, Health Care Personnel, health care planning, Hofman SC, Hospitalization, Human, illness trajectory, Interpersonal Communication, Joren CY, Kars MC, Kremer LCM, Likert scale, Male, mobile application, Mortality, November List 2024, Palliative Therapy, Perception, person centered care, Questionnaire, Rippen-Wagner H, Schuiling-Otten MA, Semi Structured Interview, shared decision making, Slingerland-Blom R, Terminal Care, Thematic Analysis, van der Velden C, Verhagen AAE
Deepening Clinician Understanding of Family Caregivers' Lived Experiences Caring for Medically Complex Children
Tags: 2024, Adult, Bogetz J, care behavior, Caregiver, Caregiver Support, Child, Child Death, Clinician, conference abstract, ethnography, Female, Grief, Human, Human Experiment, Interpersonal Communication, Journal of Pain and Symptom Management, June List 2024, Male, McCarthy S, Palliative Therapy, Participant Observation, Personal Experience, Porter AS, rejuvenation, Self Report, Snaman JM
Reimagining Respite: An Interactive Session Aimed at Improving Pediatric Respite Care Through Idea Exchange
Understanding and Optimizing Rest and Rejuvenation for Family Caregivers of Children with Medical Complexity
Tags: 2024, Adult, Caregiver, Caregiver Support, Child, Clinician, conceptual model, conference abstract, Content Analysis, Controlled Study, coronavirus disease 2019, Family, Fatigue, Female, Follow Up, household, Human, Interview, Journal of Pain and Symptom Management, June List 2024, Palliative Therapy, Participant Observation, Porter AS, Qualitative Analysis, rejuvenation, Respite Care, rest, Semi Structured Interview, task shifting, ubiquinol cytochrome c reductase
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
"It Is a Whole Different Life from the Life I Used to Live": Assessing Parents' Support Needs in Paediatric Palliative Care
Tags: 2022, Adult, Aoun SM, Article, Australia, Caregiver Support, Children, clinical monitoring, Controlled Study, Cuddeford L, Deleuil R, Emotion, emotional support, empowerment, family support, Feasibility Study, Female, Gill FJ, Hospice Care, Human, July List 2023, Lyon ME, Male, Momber S, Palliative Care, Palliative Therapy, Parent, pediatric patient, Phillips MB, psychosocial care, Public Health, Qualitative Research, Stegmann R, Terminal Care, tertiary care center, Thematic Analysis, Volunteer
Parent-Reported Experience Measures of Care for Children with Serious Illnesses: A Scoping Review
Tags: Child, Child Care, Chronic Disease, Systematic Review, Terminal Care, 2022, Ang FJL, Caregiver Support, Childhood Disease, Emergency Care, empowerment, Finkelstein EA, Gandhi M, Health Care Delivery, Health Care Quality, Hospice Care, Hospital care, Hospitalized Child, Human, Long Term Care, Neonatal Intensive Care Unit, November 2022 List, Palliative Therapy, Parental Attitude, patient-reported outcome, Pediatric Critical Care Medicine, Personal Experience, Review, shared decision making
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites