Browse Items (409 total)
- Tags: 2018
Rights of the Dying Child: The Nurses' Perception
Tags: 2018, Adult, Article, Awareness, Benini F, Brugnaro L, Child, Cross-sectional Study, Dying, Female, health care planning, Human, Human Rights, Italy, Journal of Palliative Medicine, Lazzarin P, Likert scale, Major Clinical Study, Male, Marinelli E, May List 2024, Multicenter Study, nurse attitude, Only Child, Orzalesi M, Patient Right, Pediatric Hospital, Pediatrics, postgraduate education, Quality Of Life, Questionnaire, ward, work experience
When paediatricians and families can't agree
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Ethical, Cultural, Social, and Individual Considerations Prior to Transition to Limitation or Withdrawal of Life-Sustaining Therapies
Tags: 2018, Balit CR, Carnevale FA, Child, Child Parent Relation, Critical Illness/th [therapy], Decision Making, Ethics, Female, Human, Kirsch RE, Larcher V, Latour JM, Male, March List 2024, Patient Participation, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, social media, Terminal Care, transcultural care, Treatment Withdrawal
Discussing Death as a Possible Outcome of PICU Care
Tags: 2018, Attitude To Death, Child, Critical Illness, Death, Decision Making, doctor patient relationship, Family, Female, Gilleland JC, Human, Interpersonal Communication, Male, March List 2024, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Psychology, Risk Assessment, Terminal Care, Uncertainty
Fathers' experiences of their child's life-limiting condition: An attachment narrative perspective.
Tags: *Chronic Disease/px [Psychology], *Father-Child Relations, *Fathers/px [Psychology], *Object Attachment, 2018, 2023 SE4 - Parent Perspectives, Adolescent, Adult, Bailey-Pearce, Oliver, Child, Clinical Child Psychology And Psychiatry, Dallos, Rudi, Davis, George, Female, Humans, Male, Middle Aged, Qualitative Research, Stedmon, Jacqui
Shutting the World Out': An Interpretative Phenomenological Analysis Exploring the Paternal Experience of Parenting a Young Adult with a Developmental Disability.
Tags: *Adult Children, *Developmental Disabilities, *Fathers/px [Psychology], *Parenting/px [Psychology], 2018, 2023 SE4 - Parent Perspectives, Adult, Eatough, Virginia, Humans, Journal Of Applied Research In Intellectual Disabilities, Male, Middle Aged, Qualitative Research, Thackeray, Lisa A, Young Adult
Siblings’ voices: A prospective investigation of experiences with a dying child
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Children's perspectives on the benefits and burdens of research participation
Tags: 2018, 2023 SE1 - Parent Perspectives, Adolescent, AJOB empirical bioethics, Attitude, Barned C, benefits burdens, Canada, Child, Child Health, Children, Chronic Disease, Delivery of Health Care, Dobson J, Emotions, Ethics, Female, health care systems, Humans, Inflammatory Bowel Diseases, Informed Consent By Minors/psychology, Learning, Mack D, Male, Motivation, O'Doherty KC, Patient Participation, psychology Qualitative Research, Research, Research Subjects, Stintzi A
Evaluation of Comfort and Confidence of Neonatal Clinicians in Providing Palliative Care
Tags: 2018, Adult, Age Factors, April 2020 List, Chang Y C, Clinical Competence, confidence and comfort, Cross-sectional Studies, Educational Status, Female, Humans, Journal of Palliative Medicine, Lee H Y, Liang H F, Liu H F, Male, Marital Status, Neonatal Palliative Care, neonatal professional, Neonatology, Palliative Care, Peng N H, Self Concept, Social Support, Surveys And Questionnaires, Taiwan, Wang T M
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Improving the frequency of symptom assessment in pediatric palliative care patients
Tags: 2018, April 2020 List, Awareness, Child, clinical evaluation, Comfort, conference abstract, E-mail, electronic medical record, Hospital Patient, Human, human cell, information technology, Mark M S, McKenna L, Outpatient, Palliative Therapy, Pediatrics, Quality Of Life, root cause analysis, stem cell, Symptom Assessment, Thienprayoon R, Total Quality Management
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
Palliative care in an underserved community: Striving and thriving
Tags: 2018, Alladin A R, April 2020 List, Awareness, Bereavement Support, bone marrow, Cancer Patient, Cantwell G P, Caribbean, Child, Childhood Cancer, conference abstract, Congenital Malformation, coordination compound, Ethnic Group, Europe, Female, Heart, Hispanic, Hospice, Hospital Patient, Human, Japan, Juanico K, kidney, liver, Major Clinical Study, Male, Medicaid, Memory, Middle East, Music Therapy, Nares M, Neonatal Intensive Care Unit, Newborn, nursing education, Pain, Palliative Therapy, Pastoral Care, Pediatrics, Perception, Posthumous Care, Resident, Sibling, Social Work, Terminal Care, terminally Ill Patient, Webster-Carrion A
Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period
Tags: 2018, Baumann-Kohler M, Brune T, Cancer, Hubner-Mohler B, Irnich M, Janßen G, Jorch N, Kiener R, Kremens B, Kuhlen M, Langler A, Lassay L, Niehues T, Oncology 2019 List, Oommen P T, Palliative Care, Palliative Medicine, Paulussen M, Pediatrics, Poppelmann M, Prokop A, Quality Of Health Care, Rose M, Schmidt P, Schneider D T, Schundeln M, Sinha K, Symptom Assessment, Szybalski K, Thorer H, Wager J, Weber C, Wieland R, Wolfe J, Zernikow B
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Impact of parental socioeconomic factors on childhood cancer mortality: a population-based registry study
Tags: 2018, Acta Oncologica, Adolescent, Child, Female, Finland/epidemiology, Humans, Income, Infant, Madanat-Harjuoja L, Male, Malila N, Mortality, Neoplasms/*mortality/therapy, Oncology 2019 List, Parents, Pitkaniemi J, Preschool, Rantanen M, Registries, Socioeconomic Factors, Taskinen M, Tolkkinen A, Young Adult
Evaluation of a staff well-being program in a pediatric oncology, hematology, and palliative care services group
Needs analysis and development of a staff well-being program in a pediatric oncology, hematology, and palliative care services group
Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children
Tags: 2018, Acheson E, Adaptation, Adolescent, burden of treatment, Central Nervous System Neoplasms/therapy, Child, Death, Elger B S, European Journal of Cancer Care (Engl), Family, Female, Hengartner H, Hospitalization, Humans, Infant, inpatient stays, Kuhne T, Length Of Stay, leukaemia, Leukemia/therapy, Male, Medical Records, Neoplasms/*therapy, Newborn, Oncology 2019 List, Paediatric oncology, Place Of Death, Preschool, Psychological, Rakic M, Retrospective Studies, Rischewski J, Rost M, Switzerland, Terminal Care, Wangmo T
A simple system for symptom assessment in pediatric palliative care patients with cancer: A preliminary report
Tags: 2018, Anorexia, Bruera E, Caregiver, Charone M, Child, conference abstract, Controlled Study, Dibaj S, Fatigue, Female, Health Care Quality, Human, insomnia, Irritability, Journal of Clinical Oncology. Conference, Liu D, Loss Of Appetite, Madden K, Major Clinical Study, Male, Malignant Neoplasm, Mills S, nervousness, Oncology 2019 List, Pain, Palliative Therapy, Symptom Assessment, Williams J L
Predictors of Location of Death for Children with Cancer Enrolled on a Palliative Care Service
Tags: 2018, article., Baker J N, Blazin L J, Death, DeMarsh S, End Of Life, Female, Gushue C A, Humans, Jerkins J, Johnson L M, Kaye E C, Levine D R, Location Of Death, Lu Z, Male, Morrison R R, Neoplasms/*mortality, Oncologist, Oncology 2019 List, Palliative Care, Palliative Care/*methods, palliative oncology, Pediatric Oncology, Snaman J M, Sykes A
Existential experience of children with cancer under palliative care
Tags: 2018, Batista P S S, Child, Costa S, Existentialism, Female, Franca J, Humans, Lopes M E L, Male, Neoplasms/co [complications], Neoplasms/px [psychology], Nobrega M, nursing theory, Oliveira R C, Oncology 2019 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Palliative Care/st [standards], Qualitative Research, Revista Brasileira de Enfermagem
Palliative care initiation in pediatric oncology patients: A systematic review
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents
Tags: 2018, Advanced Cancer, Avoine-Blondin J, Child, conference abstract, Daoust L, Duval M, Fasse L, Human, Humbert N, Interdisciplinary Communication, Journal of Pain and Symptom Management, Lopez C, Oncology, Oncology 2019 List, Palliative Therapy, physical well-being, pleasure, Qualitative Research, quality of life assessment, Semi Structured Interview, Sultan S, Thematic Analysis
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
The practice of mutual protection in the care of children with palliative care needs: A multiple qualitative case study approach from Jordan
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A
Peer-designed parents' bereavement panel: Exposing first-year medical students to pediatric end-of-life care
Tags: 2018, Bereavement, care behavior, Child, Clinical Article, Comfort, conference abstract, Controlled Study, Curriculum, February 2020 List, Female, Human, Human Experiment, Jones A, Learning, Likert scale, Male, Medical School, medical student, pediatric oncologist, Pediatrics, preclinical study, Rolfes M, Starr S, Sunde K, Terminal Care
Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats
Tags: 2018, Awareness, Brother, California, Child, conference abstract, Documentation, Face, February 2020 List, Female, Fisher J M, Grief, hearing, Heat, hot water, Human, literature, Male, Memory, motion, Palliative Therapy, Pediatrics, Photography, Physician, Pyatt S, Sound, Teacher, Teaching, touch, videorecording, Voice
Evaluation of residents' level of comfort with palliative care concepts before and after
Increasing accurate palliative care consultation in the NICU
Tags: 2018, Caregiver, Child, conference abstract, Controlled Study, February 2020 List, Human, Humphrey L, International Classification of Diseases, Length Of Stay, mortality risk, Newborn, Nurse Practitioner, outcome assessment, Palliative Therapy, Patient Referral, Pediatrics, Satisfaction, Schlegel A, staff training, Total Quality Management
Communicating death and dying through simulation: A project with pediatric residents
Tags: 2018, Acute Disease, Child, Clergy, Comfort, Communication Skill, conference abstract, Conversation, Curriculum, Emergency Treatment, February 2020 List, Greening H G, Havalad V, Human, Kobler K, Likert scale, Pain, Palliative Therapy, Pediatrics, residency education, Resident, Simulation, Teaching, Terminal Care
PICU and palliative care partnership to standardize family meetings and decrease ICU readmission rates
Tags: 2018, Child, conference abstract, Controlled Study, Documentation, February 2020 List, Frizzola M, Hayman J, Health Care System, hospital readmission, Human, Intensive Care, invasive procedure, Length Of Stay, Levy C, Miller E, Nurse Practitioner, Palliative Therapy, Pediatrics, protocol compliance, Satisfaction, Total Quality Management
Pediatric palliative care-child life beyond the hospital
Tags: 2018, Bereavement, Case C, ceremony, Child, Child Parent Relation, childhood, conference abstract, Controlled Study, Coping Behavior, Education, Emergency Care, February 2020 List, Fisher J M, health care need, Home Visit, Human, Memory, Palliative Therapy, Pediatrics, psychosocial care, Respite Care, Sibling, Skill, Voice
Gait, Balance, and Coordination Impairments in Niemann Pick Disease, Type C1
Tags: 2 hydroxypropyl beta cyclodextrin, 2018, 94035-02-6 (2 hydroxypropyl beta cyclodextrin), Adolescent, Adult, Alter K, Article, balance impairment, body equilibrium, case control study, characteristics, Child, Clinical Article, clinical evaluation, Comparative Study, coordination disorder, disease severity assessment, Farhat N, Female, gait disorder, Human, Human Development, intervention study, Journal of Child Neurology, Keener L A, Male, molecular stability, motion analysis system, Neurologic Examination, Niemann Pick disease, NIH NPC Neurologic Severity Scale, NPC, outcome assessment, performance, Porter F, Preschool Child, Priority Journal, Research, Retrospective Study, Sansare A, School Child, scoring system, spatiotemporal analysis, stabilography, Stanley C, tone and motor problems, Trajectory, Upper limb, vts 270, Young Adult, Zampieri C