Browse Items (16 total)
- Tags: Registries
Family experience in a regional participant contact registry for research on intellectual disability
Tags: 2014, 2023 SE1 - Parent Perspectives, Adolescent, Adult Child, Child, Conners FA, Family, Female, Hamilton JC, Humans, Infant, Intellectual and Developmental Disabilities, Intellectual Disability, Male, Middle Aged, Patient Selection, Phillips BA, Preschool, Registries, Research, Rhodes JD, Surveys And Questionnaires, Young Adult
Impact of parental socioeconomic factors on childhood cancer mortality: a population-based registry study
Tags: 2018, Acta Oncologica, Adolescent, Child, Female, Finland/epidemiology, Humans, Income, Infant, Madanat-Harjuoja L, Male, Malila N, Mortality, Neoplasms/*mortality/therapy, Oncology 2019 List, Parents, Pitkaniemi J, Preschool, Rantanen M, Registries, Socioeconomic Factors, Taskinen M, Tolkkinen A, Young Adult
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Childhood and adolescent cancer statistics, 2014
Tags: 2014, Adolescent, American Cancer Society, Backlog, Ca: A Cancer Journal For Clinicians, Centers for Disease Control and Prevention (U.S.), Child, DeSantis C, Female, Humans, Incidence, Infant, Jemal A, Journal Article, Kohler B, Male, National Cancer Institute (U.S.), Neoplasms, Newborn, Preschool, Registries, Risk Factors, Robbins A, SEER Program, Survival Analysis, United States, Ward E, Young Adult
The prevalence of and survival in Mucopolysaccharidosis I: Hurler, Hurler-Scheie and Scheie syndromes in the UK
Tags: 2008, Adolescent, Adult, Backlog, Child, Connock MJ, Demography, England/epidemiology, Humans, Journal Article, Kaplan-Meier Estimate, Lavery C, Medical, Moore D, Mucopolysaccharidosis I/epidemiology/mortality/physiopathology, Orphanet Journal Of Rare Diseases, Phenotype, Prevalence, Registries, Societies, Wales/epidemiology, Wraith E
Hospitalization for mental illness among parents after the death of a child.
Tags: 2005, Adult, Backlog, Bereavement, Child, Comparative Study, Death, Female, Follow-up Studies, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Journal Article, Laursen TM, Li J, Life Change Events, Longitudinal Studies, Male, Mental Disorders/epidemiology, Middle Aged, Mood Disorders/epidemiology, Mortensen PB, Non-U.S. Gov't, Olsen J, Parents/psychology, Precht DH, Preschool, Psychiatric, Registries, Regression Analysis, Research Support, Risk, Schizophrenia/epidemiology, Sex Factors, Substance-Related Disorders/epidemiology, The New England Journal Of Medicine
The impact of parental status on the risk of completed suicide.
Tags: 2003, Adolescent, Adult, Aged, Archives Of General Psychiatry, Backlog, Bereavement, Cause Of Death, Child, Denmark/epidemiology, Family Characteristics, Female, Grief, Humans, Infant, Journal Article, Longitudinal Studies, Male, Middle Aged, Mortensen PB, Parents/psychology, Preschool, Qin P, Registries, Risk Factors, Socioeconomic Factors, Suicide/prevention & control/psychology/statistics & numerical data
Mortality in parents after death of a child in Denmark: A nationwide follow-up study.
Tags: 2003, Adolescent, Adult, Backlog, Bereavement, Cause Of Death, Child, Death, Denmark/epidemiology, Female, Follow-up Studies, Health Status, Humans, Incidence, Infant, Journal Article, Lancet, Li J, Life Change Events, Longitudinal Studies, Male, Mortality, Mortensen PB, Olsen J, Parents/psychology, Population Surveillance, Precht DH, Preschool, Proportional Hazards Models, Registries, Risk Factors, Sex Distribution, SSHRC CURA, Time Factors
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Natural history of nonketotic hyperglycinemia in 65 patients
Tags: 2004, Adolescent, Age of Onset, AIM, Anticonvulsants/tu [Therapeutic Use], Apnea/et [Etiology], Apnea/th [Therapy], Applegarth D, Artificial, Backlog, Child, Corpus Callosum/ab [Abnormalities], Disease Progression, Female, Glycine/bl [Blood], Glycine/cf [Cerebrospinal Fluid], Hamosh A, Health Surveys, Hoover-Fong JE, Humans, Hydrocephalus/ep [Epidemiology], Hydrocephalus/et [Etiology], Hyperglycinemia, IM, Infant, Journal Article, Juvenile/dt [Drug Therapy], Juvenile/ep [Epidemiology], Juvenile/et [Etiology], Male, Myoclonic Epilepsy, Neurology, Newborn, Nonketotic/co [Complications], Nonketotic/ep [Epidemiology], Nonketotic/me [Metabolism], Nonketotic/mo [Mortality], Nystagmus, Pathologic/ep [Epidemiology], Pathologic/et [Etiology], Pregnancy, Pregnancy Complications/ep [Epidemiology], Preschool, Psychomotor Disorders/ep [Epidemiology], Psychomotor Disorders/et [Etiology], Questionnaires, Registries, Respiration, Retrospective Studies, Seizures/dt [Drug Therapy], Seizures/ep [Epidemiology], Seizures/et [Etiology], Sex Factors, Shah S, Survival Analysis, Toone J, Van Hove JL
Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings
Tags: 2004, Aged, Backlog, Blood P, Canadian Oncology Nursing Journal, Cancer Care Facilities, Clinch J, Data Collection/methods, Databases, Delivery of Health Care/organization & administration, El Sayed S, Factual/utilization, Female, Health Services Research/methods, Humans, Journal Article, Khoo K, Length Of Stay/statistics & Numerical Data, Male, Manitoba/epidemiology, Medical Oncology, Medical Record Linkage/methods, Middle Aged, Nemecek A, Neoplasms/diagnosis/mortality/therapy, Non-U.S. Gov't, Patient Admission/statistics & numerical data, Proportional Hazards Models, Quality Of Health Care, Registries, Research Support, Scott-Findlay S, Sloan JA, Survival Analysis, Trylinski C, Whittaker H
Contextual influences on school provision of health services
Tags: 2000, Adolescent, Adolescent Transitions, Adult, Backlog, Billy JO, Brener ND, Collins JL, Female, Georgia, Grady WR, Health Education/organization & administration, Health Services Accessibility, Health Services Needs And Demand/organization & Administration, Humans, Journal Article, Kann L, Logistic Models, Male, Outcome Assessment (health Care), Predictive Value of Tests, Program Development, Program Evaluation, Registries, School Health Services/organization & administration, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Wenzlow AT
End-of-life population study methods
Tags: 2001, Backlog, Boyd CJ, Burge FI, Canada, Canadian Journal Of Public Health, Community Health Planning/statistics & numerical data, Human, Johnston GM, Journal Article, MacIntyre M, Neoplasms/epidemiology, Nova Scotia/epidemiology, Palliative Care/organization & Administration, Population Surveillance/methods, Registries, Terminal Care/organization & Administration, Vital Statistics
The forgotten griever: a nationwide follow-up study of mortality subsequent to the death of a sibling
Tags: 2012, Adolescent, Adult, Age Factors, Aged, American Journal Of Epidemiology, Backlog, Bereavement, Cause Of Death, Female, Follow-up Studies, Humans, Journal Article, Kawachi I, Male, Middle Aged, Mortality, Proportional Hazards Models, Registries, Rostila Mikael, Saarela J, Sex Factors, sibling bereavement, Siblings, Sweden, Young Adult
Association of Mortality With the Death of a Sibling in Childhood.
Tags: 2017, Adolescent, Age Factors, Bereavement, Cause Of Death, Child, Child, Preschool, Cnattingius S, December 2017 List, Denmark/epidemiology, Family Health/ Statistics & Numerical Data, Female, Follow-up Studies, Fu B, Humans, JAMA Pediatrics, Li J, Liew Z, Life Change Events, Male, Mortality, Olsen J, Parner ET, Qin G, Registries, Risk Factors, Sex Factors, Siblings, Sweden/epidemiology, Time Factors, Vestergaard M, Yu Y, Zhao N