Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings

Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings

Sloan JA; Scott-Findlay S; Nemecek A; Blood P; Trylinski C; Whittaker H; El Sayed S; Clinch J; Khoo K

Canadian Oncology Nursing Journal

2004

Female; Humans; Male; Aged; Middle Aged; Survival Analysis; Cancer Care Facilities; Medical Oncology; Quality of Health Care; Proportional Hazards Models; Registries; Non-U.S. Gov't; Research Support; Databases; Delivery of Health Care/organization & administration; Patient Admission/statistics & numerical data; Length of Stay/statistics & numerical data; Health Services Research/methods; Data Collection/methods; Factual/utilization; Manitoba/epidemiology; Medical Record Linkage/methods; Neoplasms/diagnosis/mortality/therapy

This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.

2004

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