Browse Items · Pediatric Palliative Care Library

Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care

BACKGROUND: Occupancy is commonly used to measure bed management in hospices. However, the increasing complexity of children and young people and growing dependence on technology mean that this is no longer effective. AIM: To develop a dependency…

When and Why Do Neonatal and Pediatric Critical Care Physicians Consult Palliative Care?

BACKGROUND: Parents of children admitted to neonatal and pediatric intensive care units (ICUs) are at increased risk of experiencing acute and post-traumatic stress disorder. The integration of palliative care may improve child and family outcomes,…

Improving end-of-life care for children

2007

Tags: 2007, Backlog, Child, Health Services Needs And Demand, Hospice Care, Humans, Infant, Intensive Care Units, Journal Article, Lancet, Palliative Care/organization & Administration, Pediatric/utilization, Preschool

Family support in pediatric palliative care: how are families impacted by their children's illnesses?

CONTEXT: Palliative care programs have the opportunity to intercede and provide supportive care to parents whose families have been impacted by their children's illnesses. By understanding how families are impacted, programs can refine their service…

Prioritization of future research topics for children's hospice care by its key stakeholders: a Delphi study

The Delphi process, widely used in health research to seek consensus on key issues amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers and linked professionals to identify and prioritize future research…

Pediatric palliative care: feedback from the pediatric intensivist community

With the emergence of a more formalized field of pediatric palliative care (PPC), it is important for individuals and organizations involved in PPC to gather input from patients with life-threatening/life-limiting conditions, their families, and…

Place and provision of palliative care for children with progressive cancer: a study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group

PURPOSE: The purpose of this study was to describe and show effectiveness of the outreach team model of palliative care (PC) in allowing home death for children with incurable cancer. PATIENTS AND METHODS: Over 7 months, 185 children from 22 United…

Home and hospital

Social workers play key roles on interdisciplinary hospice teams and in hospitals on oncology or palliative care teams. Though palliative care settings include both home hospice and hospital-based consultation services, the different environments and…

Tags: 2007, Backlog, Cooperative Behavior, Environment, Home Care Services/organization & administration, Hospice And Palliative Care: How The Environment Impacts The Social Work Role, Hospice Care/organization & administration, Hospital Administration, Humans, Interprofessional Relations, Journal Article, Lawson R, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Social Work/organization & administration

Palliative care and paediatric respiratory medicine

Progressive respiratory failure is a common modality of death in children with a terminal illness. The management of respiratory failure, and in particular symptoms of dyspnoea and musculoskeletal chest pain in children receiving palliative care,…

Tags: 2006, Backlog, Child, Collins JJ, Fitzgerald DA, Humans, Journal Article, Paediatric Respiratory Reviews, Palliative Care/organization & Administration, Respiratory Tract Diseases/complications/psychology/therapy, Terminal Care/organization & Administration

The benefits of a hospital-based inpatient palliative care consultation service: preliminary outcome data

This report describes the multiple complementary analytic methods used to create a composite evaluation of the benefits of a hospital-based inpatient palliative care consultation service at Montefiore Medical Center in its preliminary phase. We…

The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life

PURPOSE: This paper presents the components of a pediatric palliative care demonstration program implemented in Seattle during the period 1999-2001. It reports findings from the evaluation of quality of life and family satisfaction among enrolled…

Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives

This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in…

Tags: 2005, Backlog, Blacker S, Christ GH, Cooperative Behavior, Humans, Interdisciplinary Communication, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Leadership, Organizational Innovation, Palliative Care/organization & Administration, Social Work/organization & administration, Terminal Care/organization & Administration

Pediatric palliative and end-of-life care: the role of social work in pediatric oncology

Pediatric oncology social workers are often engaged in the psychosocial care of dying children and their families. Despite their participation on the interdisciplinary team, the role for social work in pediatric palliative and end-of-life care has…

Tags: 2005, Backlog, Communication, Family/psychology, Humans, Interdisciplinary Communication, Jones BL, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Medical Oncology, Pain/drug Therapy, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Pediatrics, Professional Role, Social Work/organization & administration, Terminal Care/organization & Administration

The evolution of pediatric palliative medicine and its integration with anesthesia

2006

Tags: 2006, Anesthesia, Backlog, Child, Humans, International Anesthesiology Clinics, Journal Article, Palliative Care/organization & Administration, Pediatric Nursing/organization & administration, Pediatrics, PedPal Lit, Program Evaluation, Weidner NJ

Developing the Liverpool Care Pathway for the dying child

In most western societies the death of a child is a rare occurrence. When it does occur, it typically takes place after a period of intensive and often prolonged treatment. In light of the relative infrequency of these events in clinical practice,…

Providing pediatric palliative care through a pediatric supportive care team

2006

Tags: 2006, Backlog, Child, Guidelines, Humans, Journal Article, Locke L, Paediatric Nursing, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Pediatric Nursing/organization & administration, PedPal Lit, Social Support, United States

The comprehensive care team: a controlled trial of outpatient palliative medicine consultation

BACKGROUND: Little is known about the use of palliative care for outpatients who continue to pursue treatment of their underlying disease or whether outpatient palliative medicine consultation teams improve clinical outcomes. METHODS: We conducted a…

The status of pediatric palliative care in Europe

2002

Tags: 2002, Backlog, Dangel T, Europe, Humans, Journal Article, Journal of Pain and Symptom Management, Palliative Care/organization & Administration, Pediatrics/organization & Administration

Home management of the dying NICU patient

Intensive aggressive medical therapy does not always result in cure. For some neonates it is a futile exercise that may prolong a short life of suffering. In this article, we will discuss the babies for whom aggressive therapy may not be appropriate,…

Palliative care: rapid redesign to support systemwide quality improvement

Large-scale change techniques and rapid redesign methodologies were used to improve the quality of care delivered to patients at the end of life in a large, multihospital healthcare delivery system. By bringing key stakeholders from across the system…

Hospital care for children and young adults in the last year of life: a population-based study

BACKGROUND: To help design population-based pediatric palliative care services, we sought to describe the hospital care received in the last year of life by children and young adults who died. We also determined the proportion with complex chronic…

Differences in understanding of specialist palliative care amongst service providers and commissioners in South London

This paper describes a study that sought to identify service providers' and commissioners' understanding of specialist palliative care within the context of changing service provision in one area of South London. Using a formative evaluation…

Paediatric palliative home care with Internet-based video-phones: lessons learnt

We have designed and tested an Internet-based video-phone suitable for use in the homes of families in need of paediatric palliative care services. The equipment uses an ordinary telephone line and includes a PC, Web camera and modem housed in a…

Tags: 2004, Armfield N, Backlog, Bensink M, Child, Child Health Services/organization & administration, home care services, Hospital-Based/organization & administration, Humans, Internet, Irving H, Journal Article, Journal Of Telemedicine And Telecare, Palliative Care/organization & Administration, PPC Book Chapter 2011 (Kim Widger), Queensland, Remote Consultation/organization & administration, Russell TG, Wootton R

The development of an interdisciplinary outpatient clinic in specialist palliative care

The interdisciplinary team approach is essential in the assessment and management of the palliative care of patients and their families. An innovative approach has been developed to allow the interdisciplinary team to see patients and their families…

Paediatric respite care: A literature review from New Zealand

This paper reviews relevant international and New Zealand literature, policy documents and reports on respite provision for children who are dying and their families. The literature describes why respite care for children is necessary, and evaluates…

Tags: 2002, Adolescent, Backlog, Child, Family Health, Health Planning, Horsburgh M, Huckle T, Human, Journal Article, New Zealand, Palliative Care/organization & Administration, Palliative Medicine, Quality of Health Care/standards, Respite Care/organization & administration, Terminal Care/organization & Administration, Trenholme A

Dimensions of the role of the social worker in palliative care

There has been very little research focusing on the role of the social worker in a specialist palliative care service. A qualitative research methodology was used which sought to capture the essence of that role, as perceived by those carrying it…

Tags: 2000, Anxiety/rehabilitation, Attitudes, Backlog, Great Britain, Health Knowledge, Humans, Journal Article, Judgment, Palliative Care/organization & Administration, Palliative Medicine, Practice, Professional Practice, Professional-family Relations, Questionnaires, Sheldon FM, Social Work/organization & administration

End-of-life population study methods

2001

Tags: 2001, Backlog, Boyd CJ, Burge FI, Canada, Canadian Journal Of Public Health, Community Health Planning/statistics & numerical data, Human, Johnston GM, Journal Article, MacIntyre M, Neoplasms/epidemiology, Nova Scotia/epidemiology, Palliative Care/organization & Administration, Population Surveillance/methods, Registries, Terminal Care/organization & Administration, Vital Statistics

Transition to adult services for children and young people with palliative care needs: a systematic review

OBJECTIVE: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN: Systematic review. SETTING: Child and adult services and interface between healthcare providers. PATIENTS:…

Pediatric palliative care patients: a prospective multicenter cohort study

OBJECTIVE: To describe demographic and clinical characteristics and outcomes of patients who received hospital-based pediatric palliative care (PPC) consultations. DESIGN, SETTING, AND PATIENTS: Prospective observational cohort study of all patients…

Research priorities in pediatric palliative care: a delphi study

Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. Objectives: The goal…

Understanding Death With Limited Experience In Life: Dying Children's And Adolescents' Understanding Of Their Own Terminal Illness And Death

PURPOSE OF REVIEW: An up-to-date summary of the literature on children's and adolescents' understanding of their own terminal illness and death. RECENT FINDINGS: Clinicians still find it difficult to speak with pediatric patients about death even…

Advance Care Planning: Outpatient Antenatal Palliative Care Consultation

Kukora and colleagues report on their single centre study of antenatal palliative care consultation (APCC) and reveal that this practice—though applied in a limited number of cases—contributed to a greater use of postnatal palliative/comfort care…

Tags: 2017, Adult, Advance Care Planning/organization & Administration, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Female, Humans, Infant Newborn, March 2017 List, Outpatients, Palliative Care/organization & Administration, Pregnancy, Prenatal Care/organization & Administration, Referral And Consultation

Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.

BACKGROUND:
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…

Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.

OBJECTIVE:
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…

Development Of A Logic Model To Support A Network Approach In Delivering 24/7 Children’s Palliative Care: Part One.

BACKGROUND:
This is the second of a two-part article that discusses a research project that aimed to develop and evaluate a 24/7 symptom-management service for children with palliative care needs and a nursing logic model to enable a novel service…

Tags: 2016, 24/7, April 2016 List, Children's Palliative Care, End Of Life, Funding Palliative Care, International Journal of Palliative Nursing, Logic Model, Lynn D, Maynard L, Out Of Hours, Palliative Care/organization & Administration, Research, Symptom Management

Browse Items (35 total)