Browse Items (50 total)
- Tags: Interviews As Topic
Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition
Tags: 2024, 2024 SE2 - Parent Perspectives, Adaptation Psychological, Adolescent, Adult, Caregiver, Caregivers/psychology, Child, Child Preschool, Female, Humans, Hurley F, Infant, Interviews As Topic, Journal Of Child Health Care, Kiernan G, Male, Middle Aged, Palliative Care, Parenting/psychology, Parents, Parents/psychology, Price J, Qualitative Research
The Spiritual Dimension of Parents' Experiences Caring for a Seriously Ill Child: An Interview Study
Tags: 2024, 2024 SE2 - Parent Perspectives, Adaptation Psychological, Adolescent, Adult, Brouwer MA, Child, Child Preschool, Engel M, existential care, family care, Female, Humans, Infant, Infant Newborn, Interviews As Topic, Journal of Pain and Symptom Management, Kars MC, Leget C, Male, Middle Aged, Palliative Care, Palliative Care/psychology, Parents/psychology, Pediatrics, Qualitative Research, Spiritual Care, Spirituality, Teunissen SCCM, Young Adult
Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Baker JN, Cancer, Child, Child Preschool, Collins G, Communication, Disclosure, Education, Female, Humans, Interviews As Topic, Kaye EC, Mack JW, Male, Neoplasms/psychology, Oncologists/psychology, Parents/psychology, Pediatric, Physician-patient Relations, Professional-family Relations, Prognosis, Prospective Studies, Qualitative Research, Quality, Self Disclosure, Supportive Care In Cancer, Truth Disclosure, Zalud K
Nurses' perceptions of compassionate care in pediatric oncology: a qualitative interview study
Tags: 2024, 2025 SE1 - Oncology, Adult, Attitude Of Health Personnel, BMC Health Services Research, Child, compassionate care, Empathy, Female, Ghaljeh M, Humans, Interviews As Topic, Male, Mardani-Hamooleh M, Middle Aged, Neoplasms/psychology/nursing/therapy, Nurse-patient Relations, Nursing Care, Oncology Nursing, Pediatric Nursing, Pediatric Oncology, Pezaro S, Qualitative Research, Terminal Care/psychology
Mothering a Child With Complexity and Rarity: A Narrative Inquiry Exploring Prader-Willi Syndrome.
Tags: 2024, Adolescent, Adult, Caine V, Child, Child Preschool, Currie G, Estefan A, February List 2025, Female, Humans, Hyperphagia/px [Psychology], Interviews As Topic, Male, Mother-child Relations, Mother-Child Relations/px [Psychology], Mothers, Mothers/px [Psychology], Narration, prader-willi syndrome, Prader-Willi Syndrome/px [Psychology], Qualitative Health Research, Qualitative Research
Fathers' experiences in the neonatal intensive care unit: a search for control.
Tags: *Fathers/px [Psychology], *Intensive Care Units, Neonatal, *Internal-External Control, 2008, 2023 SE4 - Parent Perspectives, Albersheim, Susan, Arockiasamy, Vincent, Communication, Critical Illness, Father-child Relations, Holsti, Liisa, Humans, Infant, Newborn, Infant, Premature, Intensive Care Units, Neonatal/og [Organization & Administration], Interviews As Topic, Male, Pediatrics, Professional-family Relations, Qualitative Research, Religion, Stress, Psychological
I actually felt like I was a researcher myself.' On involving children in the analysis of qualitative paediatric research in the Netherlands
Tags: 2020, 2023 SE1 - Parent Perspectives, Adolescent, Biomedical Research, Bmj Open, Child, children involvement, Female, Humans, Interviews As Topic, Luchtenberg ML, Maeckelberghe ELM, Male, Netherlands, Paediatrics, Patient Participation, Pediatrics/methods, Qualitative Research, Research Subjects, Verhagen AE
Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Advance Care Planning, Amin R, Beatty M, Bereavement, Caregivers, Child, Cohen E, Hellmann J, Infant, Interviews As Topic, JAMA Network Open, Lord S, Male, Moore C, multimorbidity, Netten K, Orkin J, Parents, Preschool Child, Rapoport A, Terminal Care
Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, Adolescent, Attitude To Health, Child, Chronic Disease, Continuity Of Patient Care, Freund KM, Health Knowledge, Attitudes, Practice, Health Services Accessibility, Hospital Pediatrics, Infant, Interviews As Topic, Krcmar R, Leary JC, LeClair AM, Male, Newborn Infant, Parents, patient readmission, Preschool Child, Qualitative Research, Yoon GH
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Tags: 2019, Adult, Australian Critical Care, Bereavement, Butler A E, Child, child and family wishes, Copnell B, Critical Illness -- Singapore, Death, Female, Grounded Theory, Hall H, Health Personnel Attitude, Hospital Mortality, Hospitalized, Humans, Intensive care unit-paediatric, Intensive Care Units Pediatric, Interviews As Topic, June 2020 List, Male, Nurse, Parents, Parents/*psychology, Pediatric, Professional-family Relations, Victoria
Development of student competencies for palliative care
Tags: 2019, Adolescent, Adult, Baccalaureate, Carreno S P, Carrillo G M, Clinical Competence, Colombia, Diaz L C, Education, February 2020 List, Female, Gomez O J, Hospice and Palliative Care Nursing/ed [Education], Humans, International Journal of Palliative Nursing, Interviews As Topic, Male, Nursing, Students, Surveys And Questionnaires, Young Adult
"They Say I Should not Think About It:": A Qualitative Study Exploring the Experience of Infant Loss for Bereaved Mothers in Kumasi, Ghana
Tags: 2018, Adaptation Psychological, Adult, Bereavement, Death and Dying, Developing World 2018 List, Female, Ghana, Gold K J, Grief, Humans, Infant, Infant Newborn, infant loss, Infant Mortality, Interviews As Topic, low-resource country, Male, Medically Underserved Area, Meyer AC, Mothers/ Psychology, Omega (Westport), Opoku C, Perinatal Death, Qualitative Research, Young Adult
When and Why Do Neonatal and Pediatric Critical Care Physicians Consult Palliative Care?
Tags: 2018, American Journal Of Hospice And Palliative Care, Bourget E, Care coordination, Communication, Complex Chronic Conditions, Critical Care, Critical Care/organization & Administration, Doorenbos AZ, Family, Female, Hays R, Health Care Quality, Humans, Intensive Care Units, Interviews As Topic, Length Of Stay, Lindhorst T, Male, Neonatal/organization & administration, November 2018 List, O'Connor MR, Palliative Care, Palliative Care/organization & Administration, Patient Care Planning/organization & administration, Pediatric Intensive Care Unit, Pediatric/organization & Administration, Pediatricians/psychology, Professional Family Relations, Qualitative Research, Richards CA, Starks H
Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Tags: 2017, Belghiti E, Brunet L, Decision Making/es [Ethics], Fournier V, France, Health Personnel/es [Ethics], Health Personnel/px [psychology], Humans, Infant, Intensive Care Units, Interviews As Topic, Medicine, Health Care & Philosophy, Morals, Neonatal/es [Ethics], Newborn, October 2018 List, Parents/px [psychology], September 2018 List, Spranzi M, Withholding Treatment/es [ethics]
Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity
Tags: 2017, Academic Pediatrics, Attitude Of Health Personnel, Barnert ES, Chan V, Child, Child Health Services/organization & administration, Chung P J, Coller R J, Disabled Children/psychology, Female, Health Personnel/psychology, Humans, Interviews As Topic, July 2018 List, Klitzner TS, Male, Needs Assessment, Nelson BB, Padilla C, Patient-centered Care, Population Health, Preschool, Szilagyi M, Thompson LR, Treatment Outcome
Death of One Twin during the Perinatal Period: An Interpretative Phenomenological Analysis
Tags: 2017, April 2018 List, Bereavement, congenital abnormality, Corcoran P, Female, Humans, Infant, Interviews As Topic, Journal of Palliative Medicine, Male, Meaney S, Newborn, O'Donoghue K, Palliative Care, Parents, Parents/ Psychology, Perinatal Death, Pregnancy, Qualitative, Qualitative Research, Twins
Suffering indicators in terminally ill children from the parental perspective
Tags: 2013, Adaptation, Adult, Attitude To Death, Backlog, Campos-Calderón C, Child, Cruz-Quintana F, European Journal Of Oncology Nursing: The Official Journal Of European Oncology Nursing Society, Female, García-Caro MP, Humans, Interviews As Topic, Journal Article, Male, Montoya-Juárez R, Neoplasms, Parent-child Relations, Parents, Psychological, Qualitative Research, Quality Of Life, Sánchez-García R, Schmidt-Rio-Valle J, Sorroche-Navarro C, Spain, Stress, Terminal Care, Terminally Ill
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L
Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families
Tags: 2015, Adolescent, Backlog, Brown E, Chambers L, Chesworth B, Child, Child Health Services, Children’s participation, Coad J, Disabled Children, Family, Focus Groups, Hacking S, Health Services Needs And Demand, Health Services Research, Humans, Hunt A, Interviews As Topic, Journal Article, Journal Of Child Health Care, Palliative Care, Quality Of Care, Referral And Consultation, Staniszewska S
Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Tags: 2007, Adult, Backlog, Child, Goverde W, Hermans-Peters M, Humans, Interviews As Topic, Journal Article, Journal Of Inherited Metabolic Disease, Kemps H, Longitudinal Studies, Mitochondrial Diseases/diagnosis/psychology, Noorda G, Parent-child Relations, Parents/education, Patient Selection, Pilot Projects, Questionnaires, Reproducibility of Results, Research Design, Schoonhoven L, Smeitink JA, van Achterberg T
End of living: maintaining a lifeworld during terminal illness
Tags: 2009, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adult, Aged, Attitude To Death, Backlog, Female, Folkman S, Goodman S, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Neoplasms/psychology, New York City, Psychology & Health, Questionnaires, San Francisco, Terminally Ill/psychology, Wrubel J
Mind the child: using interactive technology to improve child involvement in decision making about life-limiting illness.
Tags: 2010, Advance Care Planning/es [Ethics], Advance Directives/es [Ethics], Attitude To Death, Backlog, Barfield RC, Brandon D, Child, Communication, Computer-Assisted, Decision Making, DNAR, Docherty S, Harris N, Humans, Interviews As Topic, Journal Article, Patient Participation/mt [Methods], Patient Participation/td [Trends], Personal Autonomy, Qualitative Research, Schmidt M, Terminal Care, Terminal Care/es [ethics], Terminal Care/td [trends], The American Journal Of Bioethics, Thompson J
Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit
Tags: 2008, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Child, Communication, Dean JM, Death, Eggly S, Female, Hospital Mortality, Hospitals, Human Development Collaborative Pediatric Critical Care Research Network, Humans, Intensive Care Units, Interviews As Topic, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health, Newth CJ, Nicholson C, Parents/psychology, Pediatric, Pediatric Critical Care Medicine, Physician's Role, Pollack M, Preschool, Professional-family Relations, Prognosis, Truth Disclosure, United States, Willson DF, Zimmerman J
Exploring parents' environmental needs at the time of a child's death in the pediatric intensive care unit
Transition in chronic illness: Who is going where?
Tags: 2008, Adolescent, Adolescent Medicine, Adolescent Transitions, Backlog, Brodie L, Child, Chronic Disease/epidemiology/therapy, Continuity Of Patient Care/organization & Administration, Delivery of Health Care/organization & administration, Hospitals, Humans, Interviews As Topic, Journal Article, Journal of Paediatrics and Child Health, New South Wales/epidemiology, Pediatric, Steinbeck KS, Towns SJ
Missed opportunities-adolescents with a chronic condition (insulin-dependent diabetes mellitus) describe their cigarette-smoking trajectories and consider health risks
Tags: 2007, Acta Paediatrica, Adolescent, Adolescent Behavior/psychology, Adolescent Transitions, Adult, Attitude To Health, Backlog, Chronic Disease, Diabetes Mellitus, Female, Humans, Interviews As Topic, Journal Article, Kelly KB, Male, Parents, Peer Group, Regber S, Smoking Cessation/psychology, Smoking/adverse effects/prevention & control/psychology, Tobacco Use Disorder/psychology, Type 1/psychology
Paradoxes in advance care planning: the complex relationship of oncology patients, their physicians, and advance medical directives.
Tags: 2010, 80 And Over, Adult, Advance Care Planning, Advance Directives, Aged, Backlog, DNAR, Dow LA, Family, Female, Humans, Interviews As Topic, Journal Article, Journal Of Clinical Oncology, Kuhn L, Lamont EB, Lyckholm L, Male, Matsuyama RK, Medical Oncology, Middle Aged, Neoplasms/px [psychology], Palliative Care, Patient Preference, Physician-patient Relations, Physicians, Ramakrishnan V, Smith TJ, Terminal Care, Young Adult
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
The economic burden of home care for children with HIV and other chronic illnesses
Tags: 2005, Acree M, American Journal Of Public Health, Backlog, California, Caregivers/economics, Child, Chronic Disease/economics, Cost Of Illness, Disabled Children, Female, Ferrando SJ, Folkman S, Harmatz P, Health Care Costs, Heyman MB, HIV Infections/economics/nursing, Home Care Services/economics, Home Nursing/economics, Humans, Interviews As Topic, Journal Article, Male, Moskowitz JT, New York City, San Francisco, Wilson L
Siblings' needs and issues when a brother or sister dies of cancer.
Tags: 2005, Adolescent, Adolescent AdultAttitude to Death Child FemaleGrief Humans Interviews MaleNeoplasms/psychology Qualitative Research Research Support, Adult, Attitude To Death, Backlog, Child, Female, Grief, Hellstrom AL, Humans, IM, Interviews As Topic, Journal Article, Journal Of Pediatric Oncology Nursing, Male, N, Neoplasms, Nolbris M, Non-U.S. Gov'tSibling Relations Siblings/psychology, PedPal Lit, Qualitative Research, sibling bereavement, Sibling Relations, Siblings
Patterns of functional decline at the end of life
Tags: 2003, Activities of Daily Living, Aged, Backlog, Cohort Studies, Death, Epidemiologic Methods, Female, Foley DJ, Frail Elderly, Guralnik JM, Humans, Interviews As Topic, JAMA, Journal Article, Lipson S, Lunney JR, Lynn J, Male, Multiple Organ Failure/physiopathology, Neoplasms/physiopathology, Sudden, Terminally Ill
Oregon physicians' responses to requests for assisted suicide: a qualitative study.
Tags: 2004, Assisted/es [Ethics], Assisted/lj [Legislation & Jurisprudence], Assisted/px [Psychology], Attitude Of Health Personnel, Backlog, Dobscha SK, Female, Ganzini L, Heintz RT, Humans, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Male, Oregon, Physician Assisted Dying PAD, Physician-patient Relations, Physicians/px [Psychology], Press Nancy, Qualitative Research, Right to Die/lj [Legislation & Jurisprudence], Suicide
Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Psychology, Adolescent Transitions, Adult, Age Factors, Attitude To Health, Backlog, Chronic Disease/psychology/therapy, Continuity Of Patient Care, Female, Great Britain, Humans, Interviews As Topic, Journal Article, Journal Of Child Health Care, Male, Patient Transfer, Professional-patient Relations, Qualitative Research, Soanes C, Social Support, Timmons S
Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views
Tags: 2001, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Boyle MP, Continuity Of Patient Care, Cystic Fibrosis/therapy, Farukhi Z, Female, Health Care Surveys, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Nosky ML, Patient Satisfaction/statistics & Numerical Data, Pediatric Pulmonology, Questionnaires
Subjective health complaints in adolescence--reliability and validity of survey methods
Spiritual aspects of loss at the time of a partner's death from AIDS
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors