Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families

Title

Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families

Creator

Malcolm C; Hain R; Gibson F; Adams S; Anderson G; Forbat L

Publisher

Acta Paediatrica

Date

2012

Subject

Child; Female; Humans; Male; Young Adult; Interviews as Topic; Prospective Studies; Disease Progression; Medical Records; Family Health; adolescent; Preschool; Charting the Territory; Psychological; Stress; Mucopolysaccharidoses/diagnosis/psychology/therapy; Mucopolysaccharidosis I/diagnosis/therapy; Mucopolysaccharidosis III/diagnosis/therapy; Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

URL Address

http://doi.org/10.1111/j.1651-2227.2012.02680.x

Citation

Malcolm C; Hain R; Gibson F; Adams S; Anderson G; Forbat L, “Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families,” Pediatric Palliative Care Library, accessed April 25, 2024, https://pedpalascnetlibrary.omeka.net/items/show/11451.