Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families
Title
Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families
Creator
Malcolm C; Hain R; Gibson F; Adams S; Anderson G; Forbat L
Identifier
Publisher
Acta Paediatrica
Date
2012
Subject
Child; Female; Humans; Male; Young Adult; Interviews as Topic; Prospective Studies; Disease Progression; Medical Records; Family Health; adolescent; Preschool; Charting the Territory; Psychological; Stress; Mucopolysaccharidoses/diagnosis/psychology/therapy; Mucopolysaccharidosis I/diagnosis/therapy; Mucopolysaccharidosis III/diagnosis/therapy; Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
Journal Article
Citation List Month
Backlog
URL Address
Citation
Malcolm C; Hain R; Gibson F; Adams S; Anderson G; Forbat L, “Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families,” Pediatric Palliative Care Library, accessed February 11, 2025, https://pedpalascnetlibrary.omeka.net/items/show/11451.