Pediatric advance care planning.

Title

Pediatric advance care planning.

Creator

Hammes BJ; Klevan J; Kempf M; Williams MS

Publisher

Journal Of Palliative Medicine

Date

2005

Subject

Child; Female; Humans; infant; Male; Interviews as Topic; Wisconsin; Preschool; PedPal Lit; infant; Newborn; DNAR; Parents/psychology; DNAR Outcomes; Pediatrics; Advance Care Planning/og [Organization & Administration]; Parents/px [Psychology]; 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process; 9 are deceased; Advance Care Planning/organization & administration; including preserving their child's quality of life and avoiding unnecessary suffering.; individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult; the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child; while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely

Description

OBJECTIVE: This study describes the process and population involved in pediatric advance care planning at one Midwest medical center. The outcomes and the parents' perceptions of this planning are also discussed., METHODS: Pediatric patients with advance directives were identified from ethics consultations records. Information about the type of advance directive, the patient's medical condition and care received was obtained from the medical records. Parents of the children were then contacted and interviewed in regard to the advance care planning process done for their child. The interviews were audiotaped and transcribed. Transcribed interviews were reviewed and themes were identified., RESULTS: Seventeen children from 16 families were included in the study. Almost all of the patients had progressive disorders other than cancer. Of the 17 children, 9 are deceased, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, while 1 was not. Thirteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, individuals in the community raised concerns about the child's advance directive., CONCLUSIONS: Even though the topic of their child's death is difficult, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, including preserving their child's quality of life and avoiding unnecessary suffering.
2005

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Citation

Hammes BJ; Klevan J; Kempf M; Williams MS, “Pediatric advance care planning.,” Pediatric Palliative Care Library, accessed July 24, 2024, https://pedpalascnetlibrary.omeka.net/items/show/13584.