Browse Items (32 total)
- Tags: Parents/px [psychology]
Hand Castings of Children With Terminal Illnesses From Cancer Can Provide Comfort to Grieving Families
Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Tags: 2024, Adolescent, Adult, Alvey J, Ames SG, Child, Delaney RK, Delgado-Corcoran C, Developmental Medicine and Child Neurology, Disabled Children, Disabled Persons, February List 2025, Female, Houtrow AJ, Humans, Male, Middle Aged, Murphy N, Parents, Parents/px [psychology], Poverty, Qualitative Research, racism, Social Discrimination, Trust, United States, Watt MH
The usage of family audiobooks as a legacy for grieving children - an exploratory quantitative analysis among terminally ill parents and close persons
Of course you crash' Parenting a young child with neurodevelopmental difficulties.
Tags: 2024, Adaptation Psychological, Adult, Child Preschool, Emotions, Faldt A, Fangstrom K, February List 2025, Female, Humans, Male, neurodevelopmental disorders, Neurodevelopmental Disorders/px [Psychology], Parent-child Relations, Parenting, Parenting/px [Psychology], Parents, Parents/px [psychology], Qualitative Research, Research in Developmental Disabilities, Social Support, Stress Psychological/px [psychology]
Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation.
Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis
Paediatric end-of-life care at home
Tags: 2023, August List 2037, Bjergegaard M, Bording I, Brix L, Buchreitz J, Child, Death, home care services, Hospice Care, Humans, International Journal of Palliative Nursing, Jespersen BA, Larsen SHK, Mouritzen BT, Neergaard MA, Palliative Care/px [psychology], Parents/px [psychology], Terminal Care, Terminal Care/px [psychology]
Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions
Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement
Tags: 2023, anxiety, Bereavement, BMC Palliative Care, Cambonie G, Combes C, de Balanda KB, Depression, Desage C, Female, Gavotto A, Humans, Infant, Infant Newborn, July List 2023, Lemaitre A, Parents/px [psychology], Perception, Perinatal Death, Prospective Studies, Terminal Care, Terminal Care/px [psychology], Thaller P
Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program
Tags: 2018, Adult, Byrne M, Daho M, Female, Foe G, Humans, Infant, Intensive Care, Journal Of Perinatology, Male, Neonatal/og [Organization & Administration], New York, Newborn, November 2019 List, Palliative Care/mt [methods], Parents/px [psychology], Parravicini E, Patient Care Team/og [Organization & Administration], Patient Comfort/st [Standards], Practice Guidelines As Topic, Prospective Studies, Qualitative Research, Steinwurtzel R, Surveys And Questionnaires, Young Adult
Pain in Nonverbal Children with Medical Complexity: A Two-Year Retrospective Study
Tags: 2018, Adolescent, Child, Child Behavior, Female, Humans, Intellectual Disability, July 2019 List, Longitudinal Studies, Male, Mauskar S, Morrill D, New England, Nursing Assessment, Pain Measurement/mt [Methods], Pain/di [diagnosis], Pain/pp [Physiopathology], Parents/px [psychology], Quinn B L, Retrospective Studies, Solodiuk J C, Surveys And Questionnaires, The American journal of nursing
Individualised advance care planning in children with life-limiting conditions
Tags: 2018, Advance Care Planning/og [Organization & Administration], Advance Care Planning/st [Standards], April 2019 List, Archives of Disease in Childhood, Attitude To Health, Child, Child Health Services/og [organization & Administration], Child Health Services/st [Standards], de Kruiff CC, Evidence-Based Medicine/mt [Methods], Female, Humans, Kremer L C M, Loeffen EAH, Male, Netherlands, Palliative Care/og [Organization & Administration], Palliative Care/px [psychology], Palliative Care/st [standards], Parents/px [psychology], Patient Satisfaction/sn [Statistics & Numerical Data], Pediatric Palliative Care-Individualized Care Plan Working Group, Pilot Projects, Practice Guidelines As Topic, Quality Of Health Care, Schuiling-Otten MA, Tissing WJE, Verhagen AA
Research Priorities in Pediatric Palliative Care
Tags: 2015, Anghelescu D, April 2019 List, Attitude Of Health Personnel, Baker JN, Carter B, Cunningham MJ, Delphi Technique, Feudtner C, Friebert S, Gibson DV, Hinds PS, Humans, Johnson L, Jones B, Journal of Pediatrics, Kane J R, Levine D R, Mandrell B, Palliative Care, Parents/px [psychology], Pediatrics, Research, United States, Weaver MS, Wolfe J
'Just gripping my heart and squeezing': Naming and explaining the emotional experience of receiving bad news in the paediatric oncology setting
Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Tags: 2017, Belghiti E, Brunet L, Decision Making/es [Ethics], Fournier V, France, Health Personnel/es [Ethics], Health Personnel/px [psychology], Humans, Infant, Intensive Care Units, Interviews As Topic, Medicine, Health Care & Philosophy, Morals, Neonatal/es [Ethics], Newborn, October 2018 List, Parents/px [psychology], September 2018 List, Spranzi M, Withholding Treatment/es [ethics]
Maintaining family life balance while facing a child's imminent death-A mixed methods study
Was there a plan? End-of-life care for children with life-limiting conditions: a review of multi-service healthcare records
Tags: 2014, Adolescent, Advance Directives, advance planning, Backlog, Beringer AJ, Child, child and family wishes, Child: Care, Health and Development, Communication, Decision Making, DNAR, Documentation, End Of Life, Female, Heckford EJ, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Neoplasms/mo [mortality], Parents, Parents/px [psychology], Patient Care Planning/og [Organization & Administration], Patient Care Planning/st [Standards], Pediatrics, Physician-patient Relations, Practice Guidelines As Topic, Preschool, Quality Of Life, Resuscitation Orders, Retrospective Studies, Review, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology], Time Factors
Pediatric advance directives: parents' knowledge, experience, and preferences
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Directives, Advance Directives/px [Psychology], Attitude, Attitude To Health, Backlog, Child, Chronic Disease, Cross-sectional Studies, Decision Making, DNAR, End Of Life, Female, Health Services Needs And Demand, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Infant, Journal Article, Liberman DB, Logistic Models, Male, Nager AL, Palliative Care, Parents, Parents/px [psychology], Pediatrics, Pham PK, Preschool, Prospective Studies, Socioeconomic Factors, Special-needs Children
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Tags: 2015, Adolescent, Adult, Bradford N, Child, Communication, Critical Illness/px [psychology], Danby S, Ekberg S, Female, Health Personnel/px [psychology], Herbert A, Humans, Infant, Jbi Database Of Systematic Reviews And Implementation Reports, Male, March 2018 List, Newborn, Palliative Care/px [psychology], Parents/px [psychology], Preschool, Professional-family Relations, Qualitative Research, Yates P, Young Adult
Palliative care in neonatal neurology: robust support for infants, families and clinicians
Tags: 2015, Bidegain M, Boss RD, Clinical Decision-Making/es [Ethics], Diseases, Diseases/px [Psychology], Diseases/th [Therapy], Humans, Infant, Intensive Care Units, Journal Of Perinatology, Lemmon ME, March 2018 List, Neonatal/og [Organization & Administration], Nervous System Diseases, Nervous System Diseases/px [Psychology], Nervous System Diseases/th [Therapy], Neurology/mt [Methods], Newborn, Palliative Care, Palliative Care/es [Ethics], Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Social Support
Parental involvement in treatment decisions regarding their critically ill child: a comparative study of France and Quebec
Tags: 2007, Backlog, Canoui P, Carnevale FA, Child, Communication, Consumer Participation/px [Psychology], Consumer Satisfaction, Cremer R, Critical Illness/th [therapy], Cultural Characteristics, Doussau A, Farrell C, Female, France, Hubert P, Humans, ICU Decision Making, IM, Infant, Intensive Care Units, Journal Article, Lacroix J, Leclerc F, Male, Nurse's Role/px [Psychology], Parents/px [psychology], Paternalism, Pediatric Critical Care Medicine, Pediatric/og [Organization & Administration], Physician's Role/px [Psychology], Preschool, Professional-family Relations, Qualitative Research, Quebec, Seguin MJ
Parent resuscitation preferences for young people with severe developmental disabilities.
Tags: 2006, Adolescent, Adult, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Analysis of Variance, Attitude To Health, Backlog, Child, Choice Behavior, Consent Forms, Developmental Disabilities/co [Complications], Developmental Disabilities/complications/therapy, Developmental Disabilities/th [Therapy], DNAR, Documentation, Female, Friedman SL, Health Education/og [Organization & Administration], Health Education/organization & administration, Humans, Journal Article, Journal Of The American Medical Directors Association, Male, Massachusetts, Organizational Policy, Parents, Parents/ed [education], Parents/education/psychology, Parents/px [psychology], Preschool, Program Evaluation, Resuscitation Orders/psychology, Resuscitation Orders/px [Psychology], Retrospective Studies, Skilled Nursing Facilities/og [Organization & Administration], Skilled Nursing Facilities/organization & administration, Treatment Refusal/psychology, Treatment Refusal/px [Psychology]
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
Tags: 1999, Adolescent, Adult, Advance Directives, Artificial, Backlog, Bereavement, Child, Continuity Of Patient Care, DNAR, Female, Humans, Journal Article, Journal of Paediatrics and Child Health, Maddocks I, Male, Muscular Atrophy, Muscular Dystrophies/th [Therapy], Needs Assessment, Nuclear Family, Palliative Care/og [Organization & Administration], Parents/px [psychology], Parker D, Respiration, Social Support, South Australia, Spinal/th [Therapy], Stern LM, Terminal Care/st [standards]
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
Ethical decision making in neonatal units--the normative significance of vitality
Tags: 2001, Brinchmann BS, Decision Making, Ethics Medical, Euthanasia/px [Psychology], Female, Humans, Infant Mortality, Infant Newborn, Infant Premature, Infant Premature Diseases, Intensive Care Neonatal/st [standards], January 2018 List, Male, Medical Futility, Medicine, Health Care & Philosophy, Nortvedt P, Norway, Parents/px [psychology], Physician's Role, Qualitative Research
Consultation of Parents in Actual End-Of-Life Decision-Making in Neonates and Infants
Tags: 2006, Belgium, Bilsen J, Cools F, Critical Illness/th [therapy], Decision Making, Deconinck P, Deliens L, Deschepper R, European Journal of Pediatrics, Gestational Age, Humans, Infant, Infant Newborn, January 2018 List, Life Support Care/px [Psychology], Medical Futility/px [Psychology], Mortier F, Parents/px [psychology], Physician-patient Relations, Provoost V, Ramet J, Retrospective Studies, Surveys And Questionnaires, Terminal Care, Terminal Care/px [psychology], Vandenplas Y, Withholding Treatment
[Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care]
Tags: 2017, Article, Attitude Of Health Personnel, Cancer Mortality, Cancer Palliative Therapy, Cancer Patient, Cancer Therapy, Child, Childhood Cancer, Communication Barrier, Communication Barriers, Critical Illness/nu [nursing], Critical Illness/px [psychology], Disease Management, Dying, Empathy, Female, Hauser P, Hegedus K, Human, Humans, Interpersonal Communication, Medical Expert, Nyiro J, Oncologist, Oncology 2017 List, Orvosi Hetilap, Palliative Care/mt [methods], Palliative Care/px [psychology], Parent-child Relations, Parental Attitude, Parents/px [psychology], Pediatrician, Physician-patient Relations, Psychologist, Quality Of Health Care, Self Defense, Structured Interview, Zorgo S
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Tags: 2016, Adaptation Psychological, Adult, Bereavement, Christian BJ, Currie ER, Day S, Decision Making, Female, Hinds PS, Humans, Infant Newborn, Intensive Care Neonatal/st [standards], Intensive Care Neonatal/td [trends], Intensive Care Units Neonatal, Interviews As Topic, Journal of Pediatric Nursing, Male, Meneses K, November 2017 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Perception, Perna SJ, Professional-family Relations, Qualitative Research, Robinson C, Stress Psychological, Terminal Care/mt [methods], Terminal Care/px [psychology], United States
Palliative Care In The Nicu And Why Education Matters
Tags: 2017, Discenza D, Emotional Intelligence, Humans, Infant Newborn, Intensive Care Units Neonatal/og [organization & Administration], Neonatal Network - Journal of Neonatal Nursing, Palliative Care, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents, Parents/ed [education], Parents/px [psychology], September 2017 List, Social Support
Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Tags: 2016, Cimino AN, Decision Making, Family, Health Personnel/px [psychology], Humans, Interviews As Topic, Journal of Social Work in End-of-Life & Palliative Care, Parents/px [psychology], Pediatrics, Professional-family Relations, Rueda HA, September 2017 List, Social Workers/px [psychology], Terminal Care/es [ethics], Terminal Care/px [psychology], Terminal Care/st [standards], Thieleman KJ, Wallace C, Withholding Treatment/es [ethics]