Browse Items (367 total)

Tags: 2005, 80 and over Cause of Death/trends Child Child, Adolescent Adult Aged Aged, Archives Of Internal Medicine, Attitudes, Backlog, Bilsen J, Bosshard G, Faisst K, Journal Article, Miccinesi G, Nilstun T, Non-U.S. Gov't Retrospective StudiesTerminally Ill Treatment Refusal/statistics & numerical data, Norup M, PedPal Lit, Practice Humans Infant Life Support Care, Preschool Comparative StudyDecision Making Europe/epidemiology Female Health Knowledge, statistics & numerical data Male Middle Aged Physician's Practice Patterns, statistics & numerical data Physician-Patient Relations Questionnaires Refusal to Treat, statistics & numerical data Registries, statistics & numerical data Research Support, van Delden JJ, van der Heide A

Tags: 2005, 21% by the alleviation of pain or symptoms with a possible life-shortening effect, Adolescent Child Child, Archives Of Pediatrics & Adolescent Medicine, Arts WF, Assisted/statistics & numerical data Terminal Care/, Backlog, Decision Making Euthanasia/, Journal Article, Non-U.S. Gov't Retrospective Studies Suicide, Onwuteaka-Philipsen BD, Passive/statistics & numerical data Female Hospitals, Pediatric Humans Infant Interviews Male Netherlands/epidemiology Pediatrics/, PedPal Lit, Pieters R, Preschool Death Certificates, Rietjens JA, statistics & numerical data Euthanasia, statistics & numerical data Physician-Patient Relations Professional-Family Relations Questionnaires Research Support, van der Heide A, van der Maas PJ, van der Voort E, van der Wal G, Vrakking AM

Tags: 2005, Adolescent Analgesics Child Child, Archives Of Pediatrics & Adolescent Medicine, Backlog, Burns JP, Journal Article, Mitchell C, Newborn Morals Neuromuscular Blockade Pediatrics/ethics Terminal Care/ethics/legislation & jurisprudence United States, PedPal Lit, Preschool ConsensusDecision Making Euthanasia/ethics/legislation & jurisprudence Humans Infant Infant

Tags: 2005, Active Humans Hypnotics and Sedatives/administration & dosage Myoclonus/therapy Pain, and emotional issues they raise., and health care workers can all benefit from talking about the complex medical, as well as to the medical and nursing staff, Backlog, clinicians must understand and document which actions are consistent with an intention to relieve symptoms rather than to hasten death. The patient or family should agree with plans for palliative sedation. The attending physician needs to explain to them, Conscious Sedation Euthanasia, developed myoclonus. After other approaches proved ineffective, ethical, Extramural Research Support, Family, Intractable/therapyPalliative Care Physician-Patient Relations Research Support, JAMA, Journal Article, Lo B, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Terminal Care Unconsciousness%X Despite skilled palliative care, palliative sedation was an option of last resort. The doctrine of double effect, PedPal Lit, permits physicians to provide high doses of opioids and sedatives to relieve suffering, provided that the intention is not to cause the patient's death and that certain other conditions are met. Such high doses are permissible even if the risk of hastening death is foreseen. Because intention plays a key role in this doctrine, receiving high doses of opioids administered to relieve pain, Rubenfeld G, some dying patients experience distressing symptoms that cannot be adequately relieved. A patient with metastatic breast cancer, the details of care and the justification for palliative sedation. Because cases involving palliative sedation are emotionally stressful, the patient, the traditional justification for palliative sedation, U.S. Gov't

Tags: 2005, Advance Directives Colonic Neoplasms/secondary/therapy, Backlog, Communication, Decision Making Humans Interprofessional Relations Liver Neoplasms/secondary/therapy Male Middle Aged Palliative Care Pancreatic Neoplasms/pathology/therapy, Extramural Research Support, JAMA, Journal Article, N.I.H., Non-P.H.S. Research Support, Non-U.S. Gov't Research Support, P.H.S.Terminal Care, PedPal Lit, Physician-Patient Relations Research Support, Tulsky JA, U.S. Gov't

Tags: 2005, Backlog, Cochrane Database of Systematic Reviews, Journal Article, Marson A, Mohamed K, PedPal Lit, Posner E

Tags: 2005, Backlog, Cochrane Database of Systematic Reviews, Irlam J, Journal Article, PedPal Lit, Rollins N, Siegfried N, Visser M

Tags: 2005, 383 participants) were included. None of the paediatric studies could be included in meta-analysis. In adults, Adult Child Chronic Disease Cough/complications/, analysis on use of H(2) antagonist, Backlog, Chang AB, Cochrane Database of Systematic Reviews, Connor FL, Gaffney J, Garske LA, Journal Article, Lasserson TJ, motility agents and conservative treatment for GORD were not possible (fr(TRUNCATED), PedPal Lit, therapy Gastroesophageal Reflux/complications/, therapy Humans Randomized Controlled Trials

Tags: 15 patients had stable disease, 2 (n=3), 2 (n=9), 2005, 22 (n=1 patient), 3 (n=1), 4 (n=2(TRUNCATED), 4 (n=6), 7 (n=1 patient), 7 were not evaluable for response because of concurrent radiotherapy, Adolescent Adult Antineoplastic Agents, although they did not have progressive disease (PD) after receiving 1 (n=10), and 1 patient had a major response. Twenty-one patients had PD after 1 (n=3, and myelosuppressive effects were readily managed. Hospitalizations were limited to three patients with bacteremia. Twenty-three patients had a change in therapy, Backlog, Cancer, Cheung NK, diarrheal, Intravenous Male Nervous System Neoplasms/drug therapy Neuroblastoma/drug therapyPalliative Care Quality of Life Research Support, Journal Article, Kramer K, Kushner BH, Modak S, Non-U.S. Gov't Research Support, or 24 (n=1) courses. The most common reasons for changing treatment were to intensify retrieval therapy or to pursue immunotherapy. Of those 23 patients, P.H.S. Retrospective Studies Treatment Outcome, PedPal Lit, Phytogenic/administration & dosage/adverse effects Camptothecin/administration & dosage/adverse effects/analogs & derivatives Child Child, Preschool Female Humans Infusions, U.S. Gov't

Tags: 2006, 80 and over Cause of Death Child Child, Adolescent Adult Age Factors Aged Aged, Backlog, Cancer, Feuer EJ, Journal Article, Miller BA, Newborn Male Middle Aged Neoplasms/ethnology/mortality Risk Assessment SEER Program/statistics & numerical data Sex Factors, PedPal Lit, PreschoolContinental Population Groups/statistics & numerical data Cross-Sectional StudiesEthnic Groups/statistics & numerical data Female Humans Infant Infant, Scoppa SM

Tags: 2005, Backlog, Bussieres JF, Journal Article, Kish S, Laurier C, Lebel D, Martel D, Moghrabi A, Pediatric Blood & Cancer, PedPal Lit, Theoret Y

Tags: 2006, Backlog, Baker F, Journal Article, Kim Y, PedPal Lit, Psycho-Oncology, Spillers RL, Wellisch DK

Tags: 2005, Adolescent Adult Age Factors Child Child Development Child Welfare Female Humans Male Neoplasms/psychologyParent-Child Relations PsychometricsQuality of Life Reproducibility of Results Research Support, and comparison of group means. In addition, Backlog, Chang PC, intraclass correlation (ICC), Journal Article, parent-proxy of QOL for adolescents provides significantly different information than self-report and proxy data of QOL for adolescents should be used with caution., parents can provide valid information about their QOL. However, PedPal Lit, Psycho-Oncology, QOLCC) were completed by 141 patients (82 children and 59 adolescents) and 141 of their parents. Three different statistical approaches were employed to evaluate convergence of self-report and proxy-report: product-moment correction coefficient, scatter bias was used to examine the degree of differences across the range of measurement. Our findings indicate that neither Pearson product correlation, Yeh CH

Tags: 2005, Acute/diagnosis/drug therapy/psychology Male Parent-Child Relations Research Support, Adaptation, Backlog, Clarke SA, Davies H, Eiser C, Glaser A, Jenney M, Journal Article, Lymphocytic, mean age = 7.33 years) newly diagnosed with acute lymphoblastic leukaemia (ALL) were interviewed about (i) the child's reactions and behaviour following diagnosis, parents differ in their views about what to tell the child. In this study 55 parents of children (36 boys and 19 girls, parents' perceptions of childhood cancer affect the way they communicate with their child. These findings may be used to inform training packages in order to facilitate improved communicatio n amongst health professionals., PedPal Lit, Psycho-Oncology, Psychological Affect Antineoplastic Agents/administration & dosage Child Child BehaviorCommunication Female Health Education Humans Interview, Psychological Leukemia, Truth Disclosure

Tags: 2005, Adduci A, Adolescent Adolescent Behavior Age Factors Age of Onset Brain Neoplasms/complications/psychology Child Child Behavior Disorders/etiology Child, and all the patients received a standardized battery of age-matched cognitive and psychological tests.According to our findings, Backlog, Castelli E, Clerici CA, differentiate these disorders according to age of assessment, Fossati-Bellani F, Galbiati S, Gandola L, identify correlations between the two types of impairments and define possible associations between these impairments and clinical variables.The study involved 76 patients diagnosed with brain tumor before age 18 years. Three age groups were formed, Journal Article, Liscio M, Massimino M, PedPal Lit, Poggi G, Preschool Cognition Disorders/etiology Female Humans Infant Infant, Psycho-Oncology, Sommovigo M, Spreafico F, the recommendation to diversify psychological interventions and rehabilitation plans according to the patients' age.

Tags: 2005, Adult Anxiety/, and clinical levels of depression and anxiety in 48 families where the patient had been recently diagnosed. Over the three phases, Backlog, because of the FRI's poor specificity, Clarke V, Depression/psychology, diagnosis/etiology/psychology, diagnosis/etiology/psychology Breast Neoplasms/, Edwards B, Family Relations Female Humans Longitudinal Studies Male, further follow-up of those families that are identified as being at some risk of a poor psychological outcome should be undertaken before referral to a mental health professional is warranted., Journal Article, Mass Screening Prostatic Neoplasms/, PedPal Lit, Psycho-Oncology, psychology Child Colorectal Neoplasms/, psychology Psychometrics Research Support, suggested that the FRI identified too many false positive s, the FRI identified all families at risk of family dysfunction, the higher sensitivity of the FRI makes it preferable to the FAD-GF as a screening measure for families at risk of a poor psychological outcome in the oncology setting. However

Tags: 2006, Adolescent Adult Camping/psychology/statistics & numerical data Child Female Follow-Up Studies Humans Male Memory Neoplasms/epidemiology/psychology Prospective Studies PsychologySibling Relations Suicide, Attempted/statistics & numerical data, Backlog, Belin TR, Crater B, Journal Article, PedPal Lit, Psycho-Oncology, Weinstein K, Wellisch DK, Wiley FM

Tags: 2006, Adult Follow-Up StudiesGastrostomy Humans Laryngeal Masks Male Muscular Dystrophy, Backlog, Birnkrant DJ, Duchenne/therapy Positive-Pressure Respiration/methods Retrospective Studies Severity of Illness Index, Ferguson RD, Gordon GJ, Journal Article, Martin JE, Pediatric Pulmonology, PedPal Lit

Tags: 2005, AdultAge Factors Child Decision Making/ethicsEthics, Backlog, but inexact, gauge of that capacity. The inexactitude of age as a surrogate of capacity is a con tributing factor to the problem posed in this series of articles. Therefore, Health Care Anal, it is when a person has lost their ability for making those choices that the question of age as a contributing factor in ethical decision making is raised. The question therefore becomes one of capacity more then age, Journal Article, level, Medical Humans Mental Competency/psychology Moral Development Motivation Personal Autonomy Philosophy, Medical%X The question of age as a factor in ethical decision-making takes two forms. The first form considers age as a factor at the societal, or policy, PedPal Lit, Pretzlaff RK, to define the relative contribution of age to the capacity for ethical decision-making this article will focus not on the loss of that ability, with age as a useful

Tags: 2005, Adolescent Analysis of Variance Child Hong Kong Humans, Backlog, Chow SM, Cummins RA, Journal Article, Lo SK, Non-U.S. Gov't, PedPal Lit, Quality of Life Research, Quality of Life Research Support, Self Assessment (Psychology)

Tags: 2005, Adolescent Asthma/physiopathology/psychology Child Chronic Disease Diabetes Mellitus/physiopathology/psychology Family Humans Parents/psychology Peer GroupQuality of Life Questionnaires Research Support, Backlog, Baghurst PA, Couper JJ, French DJ, Journal Article, Kennedy D, Martin J, Non-U.S. Gov't Schools, PedPal Lit, Quality of Life Research, Reynolds KE, Sawyer MG, Staugas R

Tags: 'Independence', 'Physical', 'Social Exclusion') with acceptable internal consistency., 'Social Inclusion', 13-16 years) with different chronic health conditions (asthma, 2005, Adolescent Child Chronic Disease/psychology Disabled Children/psychology Europe Health Status Humans Pilot Projects Quality of Life/psychologyQuestionnaires Research Support, and cystic fibrosis) as well as their families were included. Data were analysed according to predefined psychometric and content criteria. Psychometric an alyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication', and implement European instruments for the assessment of HRQOL of children and adolescents with disabilities and their families. The current paper describes the development and pilot testing of a chronic generic HRQOL measure. Using literature searches, Arthritis, atopic dermatitis, Backlog, Bullinger M, Cerebral Palsy, Diabetes, Emotion, Epilepsy, expert consulting and focus groups with children/adolescents and their families, items of the instruments were developed and translated into the respective languages. A pilot test with 360 children and adolescents was conducted. Children and adolescents (8-12, Journal Article, Non-U.S. Gov'tSickness Impact Profile%X Health-related quality of life (HRQOL) assessment in children and adolescents with chronic health conditions is increasingly considered as a relevant topic. The aim of the EU-funded DISABKIDS project is to develop, PedPal Lit, Petersen C, Power M, Quality of Life Research, Schmidt S, test

Tags: 'general health perception' (GH), 'social functioning' (SF) and 'mental health' (MH). Their SF-36 domain scores, 'vitality' (VT), 2005, Adolescent Adult Caregivers/psychology Child Child, and are at a greater risk for depression. These results suggest that the current system for treating leukemic diseases of children in Japan should also include close monitoring of mothers' mental health, and compared their scores to those of 240 mothers of children without leukemia matched to the children with leukemia. MAIN RESULTS: Of the eight unadjusted domain scores of the SF-36, and provision of appropriate treatment and psycho-social support., approximately 20 points (1 standard deviation (SD), Backlog, Eboshida A, five were significantly low among mothers of children with leukemia compared to mothers of children without leukemia: 'role-physical functioning' (RP), Fukuhara S, GH, Journal Article, Mizoue T, Newborn JapanLeukemia/nursing Male Mother-Child Relations Mothers/psychology Quality of Life/psychology Questionnaires Research Support, Non-U.S. Gov't, p < 0.0001) and 30 points (1.5 SD, p < 0.0001) lower than that of mothers of children without leukemia. CONCLUSION: Mothers of children with leukemia requiring hospital care have poor HRQOL, particularly with regard to mental health and social functioning, PedPal Lit, Preschool Comparative StudyCost of Illness Female Health Status Humans Infant Infant, Quality of Life Research, range 0-14) with leukemia diagnosed between 1999 and 2000, RE and MH. The MH and SF scores in mothers of children with leukemia requiring hospital care w ere, respectively, SF, Sokejima S, VT, when adjusted for demographic and clinical factors were also significantly low in RP, Yamazaki S

Tags: 2005, Backlog, Cohort 2 (AUS)-150 VLBW 3-years old from Australia, Feeny D, Furlong W, Hagan R, Hoult L, Journal Article, PedPal Lit, Quality of Life Research, Rosenbaum P, Saigal S, Stoskopf B

Tags: 2005, Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support, Backlog, Burghen E, Cox CL, domains specific and sensitive to both disease and treatment, Extramural Research Support, Hinds P, Journal Article, Lensing S, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates, pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease, PedPal Lit, Pui CH, Quality of Life Research, Rai SN, Symptoms, the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined, U.S. Gov't

Tags: 2005, Anemia, Backlog, Barakat LP, Journal Article, Lutz M, Ohene-Frempong K, PedPal Lit, Preschool HumansPatient ComplianceQuality of Life United States, Quality of Life Research, Sickle Cell/physiopathology/therapy Child Child, Smith-Whitley K

Tags: 2005, Adult Brazil ChildCulture Female Humans Male Neoplasms/ethnology/physiopathology/therapy Psychometrics/instrumentationQuality of Life Quality-Adjusted Life YearsQuestionnaires Research Support, and review of the back-translat ions by original developers of the HUI. The final questionnaires were tested by surveying a sample of convenience of 50 patients recruited at the Centro de Tratamento e Pesquisa-Hospital do Cancer in Sao Paulo, back-translation by two independent translators of the forward translation, Backlog, Barr RD, Brazil. RESULTS: Fifty patients were enrolled in the study. No assessor, consensus between translators on a forward translation, De Camargo B, Furlong W, Horsman J, Journal Article, Lopes LF, patient or nurse or physician, PedPal Lit, preference-based systems for describing health status and HRQL. Developed in Canada, Quality of Life Research, Seber A, Shimoda S, Sickness Impact Profile Survivors/psychology Translating, understandabl(TRUNCATED)

Tags: 2005, Backlog, Barlow SE, Greenfield S, Journal Article, Kaplan SH, Levy SL, Mayer DK, Parsons SK, PedPal Lit, Quality of Life Research, Shih MC, Supran SE

Tags: 2005, Adolescent Antiretroviral Therapy, Backlog, Byrne MW, Highly Active/psychology ChildChild Welfare Child, Honig J, Journal Article, P.H.S.Sickness Impact Profile, PedPal Lit, Preschool Disease Transmission, Quality of Life Research, U.S. Gov't, Vertical Female HIV Infections/drug therapy/physiopathology/psychology Humans Male Psychometrics/instrumentationQuality of Life Questionnaires Research Support

Tags: 2005, Adolescent Bioethics Child Health Care Costs Humans Neoplasms/, and the family. The way in which the care is delivered, and the place in which that care is given are not carved into a simple protocol. Quality of life is an important concept that is often overlooked. Educational initiatives for patients, Backlog, complications Pain/, Current Pain and Headache Reports, etiology, Families, Friedman DL, health-care providers, Hilden JM, Journal Article, methods Reimbursement Mechanisms Terminal Care%X Although the majority of children with cancer are cured of their illness, PedPal Lit, Powaski K, the child, the services provided, therapy Palliative Care/economics/ethics/

Tags: 2005, Anales De Pediatria (barcelona), Backlog, ChildHealth Services Administration HumansIntensive Care Units, Journal Article, Palomeque RA, Pediatric Palliative Care/methods Postoperative Period Spain, PedPal Lit

Tags: 2005, Acute Pain, Backlog, Journal Article, Malviya S, Merkel S, PedPal Lit, Tait AR, Voepel-Lewis T

Tags: 2006, Advances in Neonatal Care, Backlog, Brooks A, Gale G, Humans Infant, Journal Article, neonatal intensive care, Neonatal/methods Models, Newborn Intensive Care Units, PedPal Lit, TheoreticalPalliative Care Program Development

Tags: 2006, Advances in Neonatal Care, Backlog, Buus-Frank ME, Fetal Viability Humans Infant Mortality Infant, Journal Article, Neonatal/ethics/psychologyPalliative Care/ethics/psychology, Neonatal/ethicsIntensive Care, Newborn Intensive Care Units, PedPal Lit

Tags: 2006, Adolescent Adult Brachiocephalic Trunk/injuries/pathology/physiopathology Fatal Outcome Female Humans Incidence Male Muscular Dystrophy, Backlog, Brain & Development, Duchenne/complications Patient Selection Postoperative Complications/etiology/physiopathology/prevention & control Postoperative Hemorrhage/etiology Preoperative Care/standards Research Support, Fujimura H, Journal Article, Matsumura T, Non-U.S. Gov't Respiratory Insufficiency/etiology/surgery Respiratory Tract Fistula/etiology/pathology/physiopathology Tomography, Nozaki S, PedPal Lit, Saito T, Sawabata N, Shinno S, X-Ray Computed/standards Trachea/injuries/radiography/surgery Tracheostomy/adverse effects/mortality

Tags: 2005, Attitude of Health Personnel Attitude to Death Attitude to Health Bereavement Child Child, Backlog, Copnell B, Critical Care Nursing Clinics Of North America, Hospital/psychology Pediatric Nursing/organization & administration Professional-Family Relations Social Support Terminal Care/organization & administration/psychology Total Quality Management, Hospitalized/psychology Critical Care/organization & administration/psychology Decision Making, Journal Article, Organizational Empathy Family/psychology Forecasting Health Services Needs and Demand Humans Nurse's Role/psychology Nurse-Patient Relations Nursing Research Nursing Staff, PedPal Lit

Tags: 2006, Backlog, Child And Adolescent Psychiatric Clinics Of North America, Duncan J, Hilden JM, Intervention, Interventions, Joselow M, Journal Article, PedPal Lit

Tags: 2005, Anand KJ, Backlog, Clinical Therapeutics, Johnston CC, Journal Article, Lehr VT, Oberlander T, PedPal Lit, Taddio A, Walco GA

Tags: 2005, Adolescent Adult Child Child, Backlog, Benitz W, Brown M, Case C, Contro N, Current Problems in Pediatric and Adolescent Health Care, Frankel L, Good J, Jones L, Journal Article, Komejan J, Modderman-Marshall J, Non-U.S. Gov't United States, PedPal Lit, Preschool Cultural DiversityFood Humans Infant Interdisciplinary CommunicationLove Needs Assessment Palliative Care/organization & administrationPediatricsPlay and Playthings Research Support, Reichard W, Sentivany-Collins S, Sourkes B, Sunde C

Tags: 2005, Adolescent Cancer Care Facilities/utilization Child Child Health Services/utilization Comparative Study Delivery of Health Care Humans Neoplasms/epidemiology/therapy Ontario/epidemiology Research Support, and can be improved., Backlog, Barr RD, Disease, European Journal Of Cancer, Greenberg ML, Journal Article, Klein-Geltink J, Morrison HI, PedPal Lit, Shaw AK, the demographic