Browse Items (13 total)

Tags: 2005, Active Humans Hypnotics and Sedatives/administration & dosage Myoclonus/therapy Pain, and emotional issues they raise., and health care workers can all benefit from talking about the complex medical, as well as to the medical and nursing staff, Backlog, clinicians must understand and document which actions are consistent with an intention to relieve symptoms rather than to hasten death. The patient or family should agree with plans for palliative sedation. The attending physician needs to explain to them, Conscious Sedation Euthanasia, developed myoclonus. After other approaches proved ineffective, ethical, Extramural Research Support, Family, Intractable/therapyPalliative Care Physician-Patient Relations Research Support, JAMA, Journal Article, Lo B, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Terminal Care Unconsciousness%X Despite skilled palliative care, palliative sedation was an option of last resort. The doctrine of double effect, PedPal Lit, permits physicians to provide high doses of opioids and sedatives to relieve suffering, provided that the intention is not to cause the patient's death and that certain other conditions are met. Such high doses are permissible even if the risk of hastening death is foreseen. Because intention plays a key role in this doctrine, receiving high doses of opioids administered to relieve pain, Rubenfeld G, some dying patients experience distressing symptoms that cannot be adequately relieved. A patient with metastatic breast cancer, the details of care and the justification for palliative sedation. Because cases involving palliative sedation are emotionally stressful, the patient, the traditional justification for palliative sedation, U.S. Gov't

Tags: 2005, Advance Directives Colonic Neoplasms/secondary/therapy, Backlog, Communication, Decision Making Humans Interprofessional Relations Liver Neoplasms/secondary/therapy Male Middle Aged Palliative Care Pancreatic Neoplasms/pathology/therapy, Extramural Research Support, JAMA, Journal Article, N.I.H., Non-P.H.S. Research Support, Non-U.S. Gov't Research Support, P.H.S.Terminal Care, PedPal Lit, Physician-Patient Relations Research Support, Tulsky JA, U.S. Gov't

Tags: 15 patients had stable disease, 2 (n=3), 2 (n=9), 2005, 22 (n=1 patient), 3 (n=1), 4 (n=2(TRUNCATED), 4 (n=6), 7 (n=1 patient), 7 were not evaluable for response because of concurrent radiotherapy, Adolescent Adult Antineoplastic Agents, although they did not have progressive disease (PD) after receiving 1 (n=10), and 1 patient had a major response. Twenty-one patients had PD after 1 (n=3, and myelosuppressive effects were readily managed. Hospitalizations were limited to three patients with bacteremia. Twenty-three patients had a change in therapy, Backlog, Cancer, Cheung NK, diarrheal, Intravenous Male Nervous System Neoplasms/drug therapy Neuroblastoma/drug therapyPalliative Care Quality of Life Research Support, Journal Article, Kramer K, Kushner BH, Modak S, Non-U.S. Gov't Research Support, or 24 (n=1) courses. The most common reasons for changing treatment were to intensify retrieval therapy or to pursue immunotherapy. Of those 23 patients, P.H.S. Retrospective Studies Treatment Outcome, PedPal Lit, Phytogenic/administration & dosage/adverse effects Camptothecin/administration & dosage/adverse effects/analogs & derivatives Child Child, Preschool Female Humans Infusions, U.S. Gov't

Tags: 2005, Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support, Backlog, Burghen E, Cox CL, domains specific and sensitive to both disease and treatment, Extramural Research Support, Hinds P, Journal Article, Lensing S, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates, pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease, PedPal Lit, Pui CH, Quality of Life Research, Rai SN, Symptoms, the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined, U.S. Gov't

Tags: 2005, Abdominal Neoplasms/complications Abdominal Pain/etiology/prevention & control Analgesics, Anghelescu DL, Backlog, Dissociative/administration & dosage Child, Extramural Research Support, Journal Article, Journal of Pain and Symptom Management, N.I.H., Non-U.S. Gov't Research Support, Oakes L, Opioid/administration & dosage Anesthetics, P.H.S. Terminal Care/methods Treatment Outcome, PedPal Lit, Preschool Drug Administration Schedule Drug Combinations Drug Tolerance Female Humans Ketamine/administration & dosage Neuroblastoma/complications Palliative Care/methods Research Support, U.S. Gov't

Tags: 2005, Adolescent Adolescent Psychology Attitude of Health Personnel Attitude to Death Attitude to Health Child Child Psychology Clinical Nursing Research/, Attitudes, Backlog, Extramural Research Support, Hinds PS, Journal Article, Lafond DA, Multi-site Ethics, N.I.H., Non-U.S. Gov't Research Support, Nursing Models, Nuss SL, organization & administration Communication Cooperative Behavior Decision Making Forecasting Health Knowledge, P.H.S. Terminal Care/organization & administration, PedPal Lit, Practice Health Priorities Humans Models, Psychological Neoplasms/nursing/psychology Oncologic Nursing/organization & administration Parents/psychology Pediatric Nursing/organization & administration Practice Guidelines Research Design Research Support, Seminars In Oncology Nursing, U.S. Gov't

Tags: 2005, affect management, age-matched peers. Families were rated on overall family functioning and on six dimensions of the MICS: task accomplishment, and behavioral control. Moreover, and role allocation. RESULTS: Ratings for families of a child with CF were significantly lower than they were for comparison families on overall family functioning and on four of the six MICS dimensions: communication, as well as child-centered, Backlog, behavior control, Child Cystic Fibrosis/psychology Family/psychologyFeeding Behavior Female HumansInterpersonal Relations Male Observation Research Support, Communication, interpersonal involvement, interventions to help families manage challenges presented during the family meal., Janicke DM, Journal Article, Journal of Pediatric Psychology, Mitchell MJ, Non-U.S. Gov't Research Support, P.H.S.Social Environment Time Factors%X OBJECTIVE: To examine, PedPal Lit, Stark LJ, the family system is negatively affected during mealtime. Dietary interventions need to address family-centered, U.S. Gov't, using direct observation methodology

Tags: 2005, access to adequate numbers of participants, and access to longitudinal cohorts. Barriers include cost, and ultimately prevent these effects by better diagnostic classification and targeted treatment. This focus should ultimately lead to translation of intervention research findings to standard of care in the larger childhood cancer community., Armstrong FD, Backlog, Child Humans Medical Oncology/methods Neoplasms/therapyPatient Care Team Psychology/methodsResearch Research Support, competition for limited resources, Journal Article, Journal of Pediatric Psychology, lessen the impact of late effects of treatment, multicenter clinical-trial cooperative groups offer opportunities for psychological research that may be impossible at local institutions. Benefits include collaboration with other disciplines, Non-U.S. Gov't Research Support, P.H.S.%X OBJECTIVE: To review benefits and barriers to psychological research on childhood cancer in multidisciplinary, PedPal Lit, Reaman GH, shared research infrastructure, standardization and quality control, U.S. Gov't

Tags: 2006, Adaptation, Adolescent Psychology Adult Attitude to Health Autobiography Body Image, Backlog, Beale IL, Communication Female Helping Behavior Humans Information Dissemination Internet/, Interpersonal Relations Life Change Events Male Narration Neoplasms/, Journal Article, Journal Of Pediatric Oncology Nursing, Non-P.H.S.Self Concept Social Support, Non-U.S. Gov't Research Support, PedPal Lit, Psychological Adolescent Adolescent Behavior/psychology, psychology Nursing Methodology Research Peer Group Research Support, Suzuki LK, U.S. Gov't, utilization

Tags: 2005, Adaptation, Backlog, Bradley JF, but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions, Extramural Research Support, Journal Article, N.I.H., Non-U.S. Gov't Research Support, P.H.S. Schools, parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards ., PedPal Lit, Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support, Psychological Caregivers/psychology ChildChild Rearing Child, Qualitative Health Research, Rehm RS, severely affecting how families organized and managed their daily lives, U.S. Gov't, with the result that families did not fit currently established attributes of normalization. Instead

Tags: 2005, Activities of Daily Living/psychology Brain Diseases/congenital/psychology Caregivers/psychology Child Behavior/psychology Child, American Journal Of Occupational Therapy, and child engagement. RESULTS: There were no significant differences between groups for the average caregiver and child ratings. However, and child gender. Ten expert clinicians used videotapes to rate behaviors of caregivers and their 30-month-old children engaging in dressing and snack activities. Correlations between ratings of three qualities were examined: caregiver directiveness, Backlog, Beeghly M, caregiver engagement, correlations between caregiver directiveness and caregiver engagement ranged across the three groups from greatest to least biological risk (i.e., correlations between the caregiver qualities of directiveness and engagement and child engagement were r= .62 and -.69, Coster W, Ethnicity, Journal Article, Kadlec MB, maternal education, Newborn Infant, Non-P.H.S. Research Support, Non-U.S. Gov't Research Support, P.H.S. Videotape Recording, PedPal Lit, Premature/psychology Infant, Preschool Comparative Study Data Collection/methods Educational Status Female Humans Infant, r= .63, representing three levels of child biological risk, respectively. In contrast, respectively). In the full- term group, Tickle-Degnen L, U.S. Gov't, Very Low Birth Weight/psychologyInterpersonal Relations Male Pregnancy Research Support, were matched on birth history, white matter disorde(TRUNCATED)

Tags: 2004, Adolescent, Adolescent Psychology Cancer Care Facilities Child, Backlog, Baker E, Child Psychology Female Humans Interviews Male Neoplasms/physiopathology/, Coleman B, Fletcher A, Gattuso JS, Hinds PS, Jackson T, Jacobs-Levine A, Journal Article, June D, Lensing S, methods Quality of Life/, Non-U.S. Gov't Research Support, P.H.S. Self Assessment (Psychology), PedPal Lit, psychology Questionnaires Research Support, psychology/therapy Pediatrics Pilot Projects Psychometrics/instrumentation/, Pui CH, Quality of Life Research, Rai SN, Sickness Impact Profile Tennessee, the domain most frequently missing was the meaning of being ill domain. Here we present a new definition of the quality of life of pediatric oncology patients that is based on six domains, this definition may ensure the completeness and sensitivity of these important instruments., U.S. Gov't

Tags: 2004, Adult Attitude to Health Caregivers/psychology Child Child, and also helps to inform interventions to improve family-centered care in the PICU., and protecting. Parents' reports suggest that the best nursing behaviors are those that facilitate and complement critical aspects of the parent al role, Backlog, caring, Harbaugh BL, Hospital/psychology Parents/psychology Pediatric Nursing/standardsProfessional-Family Relations Quality of Health Care Research Support, Issues Compr Pediatr Nurs, Journal Article, Kirschbaum M, namely showing affection, Newborn Intensive Care Units, Non-U.S. Gov't Research Support, P.H.S.Social Perception, Pediatric/standards Male Midwestern United States Nursing Staff, PedPal Lit, Preschool Female Humans Infant Infant, thus reinforcing family integrity during a time of turmoil and uncertainty. Incorporating this knowledge into practice contributes to nurses' understanding of PICU hospitalization as a family event, Tomlinson PS, U.S. Gov't, watching