Browse Items (1086 total)
- Tags: Adolescent
Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition
Tags: 2024, 2024 SE2 - Parent Perspectives, Adaptation Psychological, Adolescent, Adult, Caregiver, Caregivers/psychology, Child, Child Preschool, Female, Humans, Hurley F, Infant, Interviews As Topic, Journal Of Child Health Care, Kiernan G, Male, Middle Aged, Palliative Care, Parenting/psychology, Parents, Parents/psychology, Price J, Qualitative Research
The Spiritual Dimension of Parents' Experiences Caring for a Seriously Ill Child: An Interview Study
Tags: 2024, 2024 SE2 - Parent Perspectives, Adaptation Psychological, Adolescent, Adult, Brouwer MA, Child, Child Preschool, Engel M, existential care, family care, Female, Humans, Infant, Infant Newborn, Interviews As Topic, Journal of Pain and Symptom Management, Kars MC, Leget C, Male, Middle Aged, Palliative Care, Palliative Care/psychology, Parents/psychology, Pediatrics, Qualitative Research, Spiritual Care, Spirituality, Teunissen SCCM, Young Adult
Children's and adolescents' perspectives on living with advanced cancer: A meta-synthesis of qualitative research
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Ali R, An E, Article, Awareness, Child, Disease Management, Emotional Stress, ethnography, Female, Human, Johnson A, Major Clinical Study, Male, Only Child, Palliative Therapy, Qualitative Research, Quality Of Life, Quality of Life Research, Widger K, Wilson C
Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Baker JN, Cancer, Child, Child Preschool, Collins G, Communication, Disclosure, Education, Female, Humans, Interviews As Topic, Kaye EC, Mack JW, Male, Neoplasms/psychology, Oncologists/psychology, Parents/psychology, Pediatric, Physician-patient Relations, Professional-family Relations, Prognosis, Prospective Studies, Qualitative Research, Quality, Self Disclosure, Supportive Care In Cancer, Truth Disclosure, Zalud K
Experiences of paediatric terminal oncology patients and their parents in palliative care: A qualitative systematic review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Aged, Caregiver, Child, Childhood Cancer, English (language), Gender, Health Care Personnel, Human, Infant, Journal of Pediatric Nursing, Male, Newborn, Oncology, oncology nurse, Palliative Therapy, Parent, Review, Sambhi SK, School Child, Shorey S, Systematic Review, Tan WL, Terminal Cancer
Is it early enough? The authentic meaning of the pediatric palliative approach between early and late referral in pediatric oncology: a case study
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advance Care Planning, Affinita MC, anxiety, Article, Artificial Ventilation, Avagnina I, Benini F, Brain Metastasis, Child, Childhood Cancer, Clinical Article, cognitive behavioral therapy, colonoscopy, community hospital, computed tomographic angiography, doctor patient relationship, Dysphagia, Dyspnea, facial nerve paralysis, Female, Follow Up, Frontiers in Oncology, Headache, Health Promotion, hearing impairment, hematothorax, hemoptysis, Hospitalization, Human, Intensive Care Unit, Life Expectancy, Morphine, nerve paralysis, neurofibromatosis type 1, nuclear magnetic resonance imaging, Oncology, oncology ward, Palliative Therapy, Patient Referral, Quality Of Life, Questionnaire, refugee, Rhabdomyosarcoma, Santini A, Terminal Care, thorax pain, tracheobronchial toilet, Verbal Communication, visual field, Zanin A
Utilizing the Metaverse to Provide Innovative Psychosocial Support for Pediatric, Adolescent, and Young Adult Patients with Rare Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, anxiety, Article, avatar, Cancer Localization, Cancer Patient, Cancers, Demographics, Ewing sarcoma/di [Diagnosis], Fujiwara T, Hasei J, Health Care, Human, Ikuta K, Ishida H, Iwata S, Katayama H, Kunisada T, leukemia/di [Diagnosis], Likert scale, Maeda N, Male, Malignant Neoplasm, Nagano A, Nakahara R, Nakata E, Ochi M, Okamura M, Oncologist, osteosarcoma/di [Diagnosis], Ozaki T, Palliative Therapy, Participation, Patient Care, Psychological care, rural area, soft tissue tumor, Stigma, Yoshida S
Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Ananth PJ, Child, de Oliveira S, electronic health record, Female, Health Care Quality, Human, Infant, JCO Clinical Cancer Informatics, Lindsay ME, Lindvall C, Male, Mortality, natural language processing, Neoplasm, Newborn, Palliative Therapy, Preschool Child, Procedures, Sciacca K, Terminal Care, Therapy
Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adverse Drug Reaction, Arba L, Basile I, Child, Colombo S, Consolo L, electronic health record, Female, groups by age, Health Care Personnel, Human, Infant, Interpersonal Communication, Journal Of Palliative Care, Lusignani M, Male, Newborn, Oncology, Palliative Therapy, Pancheri ML, patient-reported outcome, Psycinfo, Qualitative Research, Quantitative Study, Rampichini F, Review, Rusconi D, Scoping review, special situation for pharmacovigilance, Systematic Review, Terminal Care, Therapy, Web of Science
Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trial
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Anxiety/epidemiology, Avery M, Becker D, Bona K, Cancer, Child, Child Preschool, children with advanced cancer, Depression/epidemiology, Dussel V, Eche-Ugwu IJ, Family Characteristics, Female, Feudtner C, Freedman JL, household material hardship (HMH), housing, Humans, Kang TI, Male, Middle Aged, Neoplasms/psychology/epidemiology, Orellana L, Palliative Care, parent depression, parent state anxiety, Parents/psychology, Poverty, Psychological Distress, Rosenberg AR, Stress Psychological/epidemiology, Ullrich CK, Waldman ED, Wolfe J
Parental Attitudes Towards Palliative Care in Pediatric Oncology: Insights from Bereaved Families
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Article, Awareness, Bereavement, Caregiver, Child, Child Death, Childhood Cancer, Davis ES, do not resuscitate order, Drug Therapy, Family, Female, Hospice Care, Human, Infant, Johnston EE, Journal of Pain and Symptom Management, Major Clinical Study, Male, Martinez I, Oncology, Palliative Therapy, Parental Attitude, Patient Referral, Place Of Death, School Child, special situation for pharmacovigilance, sudden death, Towry L, United States, Walsh KM, Wimberly CE
Characteristics of adolescent and young adult patients with cancer receiving home-based palliative care: A retrospective study at a single center
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Age Factors, Aged, Cohort Studies, Female, Fujikawa K, Furuya M, Goto H, Gyoda Y, home care services, Humans, Iida A, Kawauchi J, Kosugi Y, Kumagai Y, Male, Middle Aged, Murakami A, Neoplasms, Neoplasms/th [therapy], Palliative Care, Palliative Care/mt [methods], Retrospective Studies, Sakuma E, Supportive Care In Cancer, Takagi K, Terminal Care/mt [methods], Watanabe A, Watanabe H, Watanabe J, Young Adult
Hand Castings of Children With Terminal Illnesses From Cancer Can Provide Comfort to Grieving Families
Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Aggression, Article, Chronic Disease, Decision Making, Drug Therapy, extended family, Female, Gerhardt CA, Hill K, Himelhoch A, Human, Humphrey L, Interview, Kenney AE, Male, Nahata L, Olsavsky AL, Olshefski R, Palliative And Supportive Care, Qualitative Analysis, Schaefer M, shared decision making, Skeens MA, Sutherland-Foggio M, symptom burden
What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature
Tags: 2023, 2025 SE1 - Oncology, administrative health data, Adolescent, Adult, Analgesia, Anticipation, Body Image, cancer center, Cancer Chemotherapy, Cancer Diagnosis, Cancer Palliative Therapy, Cancer Patient, Cancer Prognosis, cancer radiotherapy, Cancer Therapy, Checklist, Childhood Cancer, Chinese Version of the Medical Coping Mode Questionnaire, clinical assessment, clinical evaluation, Condren C, Coping, Data Base, data extraction, Demographics, Depression, Depression Anxiety and Stress Scale-21, developmental stage, Disease Burden, Disease Severity, Distress Syndrome, Dying, Edmonton Classification System of Cancer Pain, emotional support, Fatigue, Female, financial management, Follow Up, Gender Identity, Guerin S, Health Care, Health Personnel Attitude, Hematologic Malignancy, Hospital Anxiety and Depression Scale, Human, illness trajectory, Journal Of Adolescent And Young Adult Oncology, Looney K, Male, malignant neoplasm/rt [Radiotherapy], Mental Health, mood change, Neylon K, occupation, Oncology, Patient Autonomy, Patient Referral, patient-reported outcome, Pediatric Quality of Life Inventory, Personal Experience, Population, Prevalence, program appropriateness, Prospective Study, Psycho-Oncology, psychological aspect, psychosocial care, Psychosocial Intervention, Qualitative Analysis, Qualitative Research, quantitative analysis, Questionnaire, Review, Self Report, Semi Structured Interview, sexual health, Short Form 12, Side Effect, social needs, Social Support, Social Support Rating Scale, Social Worker, solid tumor, Study Design, Symptom, Systematic Review, Terminal Care, Thematic Analysis, unmet medical need, Western Australia, workshop, Young Adult
"Just let me go"; When suicidal ideation and goals of care collide in adolescent cancer at the end of life
Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure Advance QoL
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Child, Current Oncology, Duval M, Felipe J, Female, Humans, Male, Marquis MA, measure, Michon B, Neoplasms/psychology, Olivier-D'Avignon M, Palliative Care, Patient Reported Outcome Measures, Pediatric Cancer, Perreault S, Quality Of Life, Quality Of Life/psychology, Robichaud LA, Self Report, Sultan S, Surveys And Questionnaires, Tyo-Gomez M
A Pilot of a Telehealth-Hospice Transition Intervention for Children and Young Adults with Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Brock KE, Caregivers, Child, Child Preschool, DeGroote NP, Feasibility Studies, Female, Harris E, Hospice Care, Hospice Care/mt [Methods], Humans, Infant, Infant Newborn, Journal of Pain and Symptom Management, Kavalieratos D, Klosky JL, Lange A, Male, Neoplasms, Neoplasms/th [therapy], Patient Satisfaction, Pilot Projects, Prospective Studies, Telemedicine, Wasilewski-Masker K, Wolfe J, Young Adult
Access to legacy-oriented interventions at end of life for pediatric oncology patients: A decedent cohort review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Article, Bereavement, cadaver, Cantrell K, Child, Childhood Cancer, Cohort Analysis, Daniels S, Drug Therapy, Female, Franqui-Rios ND, Gaitskill E, Health Care Personnel, Hispanic, Human, Kaye EC, Major Clinical Study, Male, Mothi SS, Palliative Therapy, Pediatric Blood and Cancer, Retrospective Study, special situation for pharmacovigilance, Terminal Care, Therapy
Bereaved parents’ perceptions of their cancer-ill child’s last month with or without palliative care - a nationwide study
Development and Validation of a Ready-to-Talk Measure for Use in Adolescents and Young Adults Living With Advanced Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advanced Cancer, Article, Awareness, Bell CJ, Cancer Nursing, Clinician, Cognition, conceptual model, content validity, Controlled Study, Conversation, Deatrick JA, Dickens DS, Female, Hinds PS, Human, Interview, Kavanaugh KL, Major Clinical Study, Male, Palliative Therapy, Reliability, shared decision making, Sibling, Spruit JL, Terminal Care, Validity, Weaver MS, Young Adult
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes
Tags: 2023, 2025 SE1 - Oncology, Adolescent, Advance Care Planning, Article, Benchmarking, Bogetz JF, Child, Chromosome Disorder, Clinician, Consultation, Diagnosis, Distress Syndrome, Dyspnea, Fatigue, Friedrichsdorf SJ, Hospital Pediatrics, Hospitalization, Human, Length Of Stay, Male, O'Riordan DL, Pain, Palliative Therapy, Pantilat SZ, Patient Referral, Postier AC, psychosocial care, Purser L, Root MC, solid tumor, Total Quality Management, Treatment Outcome
Use of Cancer-Directed therapy at the end of life among adolescents and young adults
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Adverse Drug Reaction, Altschuler A, Article, California, cancer center, Cannizzaro N, Casperson M, Cernik C, Chao CR, Cohort Analysis, Cooper RM, drug combination, drug comparison, Drug Therapy, electronic health record, Ethnicity, Female, Fisher L, Human, Journal of the National Cancer Institute, Kushi LH, Lakin JR, Laurent CA, Mack JW, Major Clinical Study, Male, Malignant Neoplasm, Munneke J, Retrospective Study, Schwartz CM, Side Effect, special situation for pharmacovigilance, Therapy, Uno H, Wiener L, Xu L, Young Adult
Brazilian Physicians' Attitudes and Feelings Towards Palliative Care in Pediatrics
Tags: 2024, 2025 SE2 - LRS, Acta Bioethica, Adolescent, Article, Attitude, Child, Chile, Cross-sectional Study, de Assis LCL, Female, Health Care Quality, Human, Meirelles BG, Nunes RML, Palliative Therapy, pediatric patient, Pediatrics, phylogenetic tree, Physician, Physician Attitude, Questionnaire, Rocha AA, Sadness, special situation for pharmacovigilance
Clinical and socio-demographic profile of children receiving pediatric palliative care in a tertiary hospital of a metropolitan city in India
Tags: 2024, 2025 SE2 - LRS, Adolescent, Article, Bisen P, Child, Child Preschool, Childhood Disease, Chronic Disease, Chronic Disease/th [Therapy], Confusion, Constipation, Controlled Study, Deodhar J, Diagnosis, Disability, Dysphagia, European Journal of Pediatrics, Fatigue, Female, fever, Holistic Care, Human, Humans, immunopathology, India/ep [Epidemiology], Infant, Infant Newborn, Major Clinical Study, Male, Malik S, Muckaden MA, Neuromuscular Disease, Observational Study, Palliative Care, Palliative Care/sn [Statistics & Numerical Data], Palliative Therapy, pediatric patient, Rathi S, Retrospective Studies, Sample Size, Seizure, Socioeconomic Factors, Talawadekar P, terminal disease, tertiary care center, Tertiary Care Centers, Tertiary Care Centers/sn [Statistics & Numerical Data], Therapy, Wade P
Cross-sectional study of the perceived well-being of children in palliative care
Tags: 2025, Adolescent, Adult, Anales de Pediatría, anxiety, Article, Bolance C, Camprodon-Rosanas E, catastrophizing, Child, Cognition, Cross-sectional Study, Depression, emotion regulation, Female, Guillen M, Human, Limonero JT, Major Clinical Study, Male, March List 2025, multiple linear regression analysis, Navarro Vilarrubi S, Palliative Therapy, problem behavior, psychologic assessment, Psychological care, rumination, special situation for pharmacovigilance, Toro-Perez D, Visual Analog Scale, Wellbeing
PACOPED QL: Development and evaluation of the quality-of-life scale for children with life-Threatening illnesses
Tags: 2025, Adolescent, Child, Child Preschool, Chronic Disease, Cross-sectional Studies, Cross-sectional Study, devices, Female, Human, Humans, Male, March List 2025, PACOPED QL, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Pediatric Palliative Care, Pediatrics, Pilot Projects, Pilot Study, Preschool Child, Procedures, Psychology, Psychometrics, psychometry, Quality Of Life, Questionnaire, Reliability, Reproducibility, Reproducibility of Results, Riera-Negre L, Rosselló MR, Surveys And Questionnaires, Validity, Varona J, Verger S
Biography Writing in the Pediatric Palliative Care Context: Review and Feasibility Data
Palliative Care Outcomes for Critically ill Children After Rapid Whole Genome Sequencing
Tags: 2024, acutely ill patient, Adolescent, Article, Beauchamp Walters J, Boulil Z, Child, Consultation, Controlled Study, Coufal NG, Critically Ill Patient, Diagnosis, Dimmock D, Doshi A, emergency visit, extubation, Female, Human, Infant, Intensive Care, Intubation, Journal of Intensive Care Medicine, Kaplan Meier method, Kingsmore S, Lee E, Major Clinical Study, Male, March List 2025, Medical Record Review, molecular diagnosis, molecular diagnostics, Newborn, outcome assessment, Palliative Therapy, pediatric intensive care nursing, Pediatric Intensive Care Unit, Perofsky K, Personalized medicine, Poisson regression, Retrospective Study, Therapy, whole genome sequencing
Complications and benefits of enteral feeding in children with progressive neurological disease in a palliative care service: a retrospective study
"Who Has the Relationship?": Caring for a Shared Population of Children with Medical Complexity
Tags: 2024, Adolescent, Adult, Article, Best Practice, care behavior, Caregiver, Child, DiDomizio PG, Drug Therapy, Female, Friedrich A, Human, Interview, Johnson M, Journal of Palliative Medicine, Male, March List 2025, Multicenter Study, Nurse Practitioner, Palliative Therapy, Pediatric Hospital, Pediatrics, Physician, Qualitative Analysis, Qualitative Research, Semi Structured Interview, Thematic Analysis, United States, University Hospital
Beyond treatment: Understanding family experiences in pediatric palliative care
Tags: 2024, Adolescent, Adult, Andres de Alvaro M, anxiety, Article, Burnout, care behavior, Caregiver, Caregiver Support, Child, Convenience Sample, CPAP device, Del Villar GP, Drug Therapy, Family, Garcia ML, Gene Expression, Health Care Personnel, Home Care, Human, Interpersonal Communication, Interview, lens (optics), Male, March List 2025, Mood, Palliative And Supportive Care, Palliative Therapy, Patient Care, Quality Of Life, Ramos PD, Semi Structured Interview, Tamayo-Morales O, Therapy
Advancing Advance Care Planning: Evaluating a Revised Version of Voicing My CHOiCES
Tags: 2024, Adolescent, Adult, Advance Care Planning, Article, Bedoya S, Child, Ciampa D, Female, Frediani J, Gordon M, Human, identifiable information, Journal of Palliative Medicine, Kasper K, Male, March List 2025, Moynihan L, Pao M, Quality Of Life, Ruble K, Structured Interview, Wiener L, Young Adult, Zabokrtsky K
Prevalence of pain in the last 2 weeks of life in hospitalized pediatric patients
Tags: 2024, Adolescent, Adult, Analgesia, Article, Bastidas-Legarda S, Child, Data Analysis Software, Female, Flores-Munoz MA, Gutierrez-Cortes C, Hernandez-Ramirez E, Hospital Patient, Hospitalization, Human, Infant, longitudinal study, Major Clinical Study, Male, March List 2025, Medical Practice, Newborn, Observational Study, Pain Assessment, Pain Intensity, Pain/ep [Epidemiology], Palliative Therapy, pediatric patient, Prevalence, Quality Of Life, Questionnaire, Retrospective Study, Revista Medica del Hospital General de Mexico, SPSS version 21, terminally Ill Patient
Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Tags: 2024, Adolescent, Adult, Alvey J, Ames SG, Child, Delaney RK, Delgado-Corcoran C, Developmental Medicine and Child Neurology, Disabled Children, Disabled Persons, February List 2025, Female, Houtrow AJ, Humans, Male, Middle Aged, Murphy N, Parents, Parents/px [psychology], Poverty, Qualitative Research, racism, Social Discrimination, Trust, United States, Watt MH
DMD-YOUNG: paediatric palliative care for children with a slowly progressive neuromuscular disorder in transition to adulthood
Tags: 2024, Adolescent, ADULTHOOD, Annexstad E, Child, conference abstract, Controlled Study, Coping, Coping Strategy Questionnaire, Duchenne Muscular Dystrophy, Employment, empowerment, February List 2025, housing, Human, Knowledge, Life Expectancy, Male, Medical Information, muscle function, Neuromuscular Disease, Neuromuscular Disorders, Nordstrom M, Norway, Palliative Therapy, Quality Of Life, Ramberg C, Rosenberger A, Social Behavior, social life, social network
Intrathecal baclofen therapy as treatment for spasticity and dystonia: Review of cases in a pediatric palliative care unit
Tags: 2024, Adolescent, Alba RM, baclofen, Baclofen/ad [Administration & Dosage], Baclofen/tu [Therapeutic Use], Cerebral Palsy/dt [Drug Therapy], Child, Child Preschool, de Noriega EI, Dystonia, dystonia/dt [Drug Therapy], Errasti VI, February List 2025, Female, Humans, Infant, Injections Spinal, Male, Muscle Relaxants Central, Muscle Relaxants Central/ad [Administration & Dosage], Muscle Relaxants Central/tu [Therapeutic Use], Muscle Spasticity, Muscle Spasticity/dt [Drug Therapy], Neurologia, Palliative Care, Pantothenate Kinase-Associated Neurodegeneration/dt [Drug Therapy], Perez MMA, Puertas MV, Retrospective Studies
Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers
Tags: 2024, Adolescent, Adult, Article, Caregiver, Child, Clinical Article, cognitive behavioral therapy, Content Analysis, content validity, Disease Severity, Dyspnea, Emotion, emotional appraisal, enzyme replacement, Fatigue, February List 2025, Female, glycogen storage disease type 2, Hahn A, Hennermann JB, Home Care, Huemer M, Human, inborn error of metabolism, Lagler FB, Landolt MA, Life Expectancy, Male, MAXQDA software, Moslinger D, Multicenter Study, Muscle Weakness, musculoskeletal pain, Orphanet Journal Of Rare Diseases, Pain, Pain Intensity, Palliative Therapy, Perception, Pfrimmer C, psychosocial care, Qualitative Analysis, Qualitative Research, Quality Of Life, Questionnaire, Rohrbach M, School Child, Semi Structured Interview, Severity Of Illness Index, social exclusion, Social Support, sore throat, Truninger MI, Vomiting, Werner H, Young Adult
The usage of family audiobooks as a legacy for grieving children - an exploratory quantitative analysis among terminally ill parents and close persons
Demographic and clinical profile of children with congenital heart diseases receiving palliative care
Tags: 2024, Adolescent, Adult, Advance Care Planning, anxiety, Bodhanwala M, Cardiology In The Young, Child, Clinical Article, Cognition, conference abstract, Congenital Heart Disease, Consultation, Controlled Study, Dinand V, Dixit P, February List 2025, Human, intervention study, Jain S, Khanna S, Male, Medical Decision Making, Mishra J, oxygen concentrator, Palliative Therapy, Panda B, Patient Referral, Pediatric Quality of Life Inventory, Prabhu SS, Prognosis, Quality Of Life, Reoperation, Sumitra V, Surgery, Terminal Care