Browse Items (1044 total)

Tags: 2024, Adolescent, Adult, Anticipatory Guidance, care behavior, Castro-Codesal M, Chest, Child, Clinical Article, conference abstract, Decision Making, Dyspnea, Female, Health Care Personnel, Human, Interview, Kingsley B, Male, Noninvasive Ventilation, November List 2024, Olmstead D, Parent, Personal Experience, Qualitative Research, special situation for pharmacovigilance, Therapy, Turnbull H

Tags: 2024, Adolescent, Adult, Alba RM, alert, antibiotic agent/dt [Drug Therapy], antibiotic agent/iv [Intravenous Drug Administration], Article, Baclofen/dt [drug Therapy], baclofen/po [Oral Drug Administration], baclofen/pv [Special Situation for Pharmacovigilance], baclofen/tl [Intrathecal Drug Administration], benzodiazepine derivative/dt [Drug Therapy], benzodiazepine derivative/po [Oral Drug Administration], benzodiazepine derivative/pv [Special Situation for Pharmacovigilance], botulinum toxin/dt [Drug Therapy], Brain Damage, catheter, Cerebral Palsy, Child, Clinical Article, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], Congenital Malformation, continuous infusion, de Noriega Echevarria I, Descriptive Research, diazepam/dt [Drug Therapy], disease classification, drug dose increase, drug dose reduction, dystonia/dt [Drug Therapy], enzyme deficiency, Errasti VI, Female, glutaric aciduria, glutaric aciduria type 1, Gross Motor Function Measure, Human, implantation, intrathecal baclofen pump/am [Adverse Device Effect], intrathecal pump, Male, medical device malfunction/co [Complication], meningitis/dt [Drug Therapy], nerve degeneration, Neurologia, November List 2024, Palliative Therapy, pantothenate kinase/ec [Endogenous Compound], Pediatrics, Perez MMA, poly malformative syndrome, Preschool Child, Puertas MV, reservoir, Retrospective Study, School Child, spasticity/dt [Drug Therapy], STATA v16.0, Syndrome, tizanidine/dt [Drug Therapy], tizanidine/po [Oral Drug Administration], tizanidine/pv [Special Situation for Pharmacovigilance], trihexyphenidyl/dt [Drug Therapy], trihexyphenidyl/po [Oral Drug Administration], trihexyphenidyl/pv [Special Situation for Pharmacovigilance], Young Adult

Tags: 2024, Adolescent, Adult, Art, Article, Awareness, care behavior, Child, Clinical Article, Coping, Coping Strategy Questionnaire, de Vries K, Diagnosis, Dunbar H, Emotional and Behavioural Difficulties, England, Female, friend, Hart T, Human, Male, November List 2024, patient worry, Perception, Personal Experience, Physiological stress, School, Sibling, Teacher, United Kingdom, Voice, Wellbeing

Tags: 2024, Adams S, Adolescent, Adult, Article, assisted ventilation, Caregiver, Checklist, Child Psychiatry, Children With Medical Complexity, chronicity, Chung C, Conversation, decision support system, Demographics, dietitian, Disability, Esser K, Family physicians, feedback system, General Practitioner, Health Care Access, Health Care Personnel, Health care transition, Health Care Utilization, Hospital, Human, Information Processing, Lee S, Major Clinical Study, McKay T, Medical Record Review, Medical Technology, Moore C, Multidisciplinary team, Multiple Chronic Conditions, November List 2024, Nurse Practitioner, Orkin J, Paediatrics And Child Health, Patient Care, pediatric patient, Pediatrician, Pediatrics, pharmaceutical care, pharmacist, Quality Improvement, Rehabilitation, School, Social Worker, standardization, Total Quality Management, Transition To Adult Care, vascular access, Wagman H

Tags: 2024, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Chronic Disease / psychology, Cook K, Disabled Children / psychology, Female, Health Services Research, Hermansen A-M, Humans, Kim L, Male, Middle Aged, Motivation, November List 2024, Parents / psychology, Qualitative Research, Siden H

Tags: 2024, Adolescent, Agosto C, Benini F, BMC Palliative Care, Child, Child Preschool, Divisic A, Female, Giacomelli L, Humans, Infant, Infant Newborn, Italy, Lazzarin P, Male, Mercante A, Mirisola V, October List 2024, Palliative Care, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Papa S, Pediatrics/mt [methods], Pediatrics/sn [statistics & Numerical Data], Referral And Consultation, Referral and Consultation/sn [Statistics & Numerical Data], Referral and Consultation/st [Standards], Retrospective Studies, Rusalen F, Schiavon M, Zanin A

Tags: 2023, Adolescent, Adult, Advance Care Planning, Age, Aguirre IA, Article, brain tumor/th [Therapy], Carmona-Nunez A, Cerebral Palsy/th [Therapy], Child, Controlled Study, Death, Demographics, Echaniz JS, Follow Up, Hospital Admission, Human, hypoxic ischemic encephalopathy/th [Therapy], Intensive Care Unit, Irazabal GM, Lopez-Bayon J, Major Clinical Study, Medical Decision Making, Medicina Paliativa, Murguiondo MI, neurologic disease/th [Therapy], October List 2024, Palliative Therapy, patient coding, pediatric patient, Pejenaute IS, Preschool Child, Retrospective Study, Sarriegui AZ, Terminal Care, Treatment Withdrawal, ward

Tags: 2024, Adaptation Psychological, Adolescent, Adult, Article, Bereavement, Camping/psychology, Child, Child Preschool, childhood, Family, Female, Guerin S, Hanlon P, Humans, Kiernan G, Male, Middle Aged, October List 2024, of interest with respect to the research authorship and/or publication of this, OMEGA - Journal of Death and Dying, Parents/psychology, Qualitative Research, Recreation Therapy, Serious Illness, therapeutic recreation

Tags: 2024, Adolescent, Balfe J, BMC Palliative Care, Child, Child Preschool, Delamere T, Fraser LK, Health Services Needs and Demand/sn [Statistics & Numerical Data], Humans, Infant, Infant Newborn, Needs Assessment/sn [Statistics & Numerical Data], October List 2024, Palliative Care, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Sheaf G, Smith S

Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death

Tags: 2024, Adolescent, Agosto C, Albanesi B, Amarri S, Article, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Benini F, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, Child, Controlled Study, De Marinis MG, De Tommasi V, De Zen L, Di Nunzio S, Diagnosis, Divisic A, Dolcini A, family support, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Health Care Personnel, Home Care, Human, Iadelica A, Infant, Italy, Journal of Palliative Medicine, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Maternal care, Mazzoni E, Mercante A, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, October List 2024, Orofino R, Palliative Therapy, Paone G, Papa S, Patient Referral, Pediatrician, Pellegatta F, Peruselli C, Piccolruaz UV, Prenatal Care, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, terminal disease, Thaler M, Therapy, Tornesello A, Uez F, Vaccher S, Vezzoli C, Young Adult, Zanin A, Ziggiotto S

Tags: 2024, access to treatment, Adolescent, Adult, Article, care behavior, Caregiver, Child, Diagnosis, Domaradzki J, Emotional Stress, family support, Female, Financial Stress, General Practitioner, Health Care System, Human, Journal of Clinical Medicine, Kaluzny L, Male, Mozrzymas R, October List 2024, Phenylketonuria, Rare Disease, Sample Size, School Child, Self Concept, Severity Of Illness Index, Walkowiak D, Walkowiak J

Tags: 2024, Adolescent, Adult, Article, Bereavement, care behavior, Caregiver, diving, Experience, Female, Geuze L, Goossensen A, Health Care Personnel, Human, Interview, Life Expectancy, Middle Aged, October List 2024, Palliative Therapy, Parent, Physician, Qualitative Research, Quality Of Life, Schrevel S, SSM - Qualitative Research in Health, Training, University Hospital, van Driesten - van Roozen P

Tags: 2024, Adolescent, Adult, Agosto C, Analgesia, Article, Avagnina I, Baratiri F, Benini F, Caregiver, Caregiver Burden, Child, Children, Cross-sectional Study, Divisic A, drug cost, Drug Safety, eye drops, Female, Human, Infant, Maghini I, Male, Mengato D, nose spray, Observational Study, October List 2024, off label drug use, Palliative Therapy, Pediatrics, Pharmacoeconomics, Pivato L, Polypharmacy, Prevalence, Quality Of Life, Questionnaire, Roverato B, Rusalen F, special situation for pharmacovigilance, typographical error, Venturini F, Zanin A

Tags: 2024, Adolescent, advanced practice provider, Article, Beveridge MS, Caregiver, Child, Consultation, Controlled Study, dialysis, Disease Management, Drug Therapy, Female, Human, Kidney360, Knowledge, Lipsitz J, Maddox K, Male, Nurse, October List 2024, Palliative Therapy, pediatric patient, Quality Of Life, special situation for pharmacovigilance, tertiary health care, Therapy

Tags: 2024, Adolescent, Archives of Disease in Childhood, Caregiver, Child, Clinical Audit, conference abstract, Controlled Study, Female, Hospice Care, Human, Infant, Intensive Care, Kayani R, Major Clinical Study, Male, Mohamed M, Neurodisability, October List 2024, Palliative Therapy, Pediatric Intensive Care Unit, Retrospective Study, special situation for pharmacovigilance, Terminal Care, Varma R

Tags: 2024, Adolescent, Adult, Article, Barton KS, Bogetz J, brain ventricle peritoneum shunt, Child, Child Parent Relation, Clinical Article, Cohort Analysis, confusion (uncertainty), Controlled Study, Disease Severity, ethnic background, Father, feeding tube, Female, Health Survey, Home Care, Hospital Admission, hospital discharge, Human, implanted vagus nerve stimulator, intrathecal baclofen pump, Journal of Palliative Medicine, legal guardian, Length Of Stay, Life Expectancy, Male, mortality risk, Neurodisability, noninvasive positive pressure ventilation, October List 2024, Oslin E, Palliative Therapy, Parental Stress, Patient Advocacy, Pediatric Hospital, Pediatric Intensive Care Unit, Personal Experience, Prospective Study, Qualitative Research, Quantitative Study, Rosenberg AR, Semi Structured Interview, Tracheostomy, Trowbridge A, United States, VULNERABILITY, Watson RS, Yi-Frazier J

Tags: 2024, Adolescent, Anales de Pediatría, anxiety, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Practice, confirmatory factor analysis, Controlled Study, convergent validity, correlation coefficient, Cronbach alpha coefficient, Cross-sectional Study, Depression, Diagnosis, emotional disorder, Factor Analysis, Female, Guillen M, Human, Limonero JT, longitudinal study, Major Clinical Study, Male, mental disease, Navarro Vilarrubi S, October List 2024, Palliative Therapy, psychologic assessment, receiver operating characteristic, Reliability, root mean squared error, Sensitivity and Specificity, social psychology, Spain, Toro-Perez D

Tags: 2024, Adolescent, anencephalus, Archives of Disease in Childhood, bone dysplasia, Child, Clinical Audit, conference abstract, Congenital Heart Disease, congenital heart malformation, Diagnosis, diagnosis related group, Female, Fetus, heart disease, heart injury, Human, Infant, Major Clinical Study, Mott CE, national health service, Newborn, October List 2024, Palliative Therapy, Patient Referral, Prognosis, Surgery, survival time, systemic disease, Therapy, Trisomy 13, Trisomy 18

Tags: 2024, Adolescent, Anticipation, Article, Brother, Clinical Article, Critical Illness, Grief, Human, Journal of Palliative Medicine, Lee LY, Multidisciplinary team, Ng GM, Palliative Therapy, Questionnaire, September List 2024, Sibling, Sinnathamby A, support group, Terminal Care

Tags: 2024, Abdelmaguid N, Adolescent, Al Saeedi A, antibiotic agent, antibiotic prophylaxis, Article, bladder catheterization, bladder irrigation, bladder stone, Cerebral Palsy, Child, chronic life-limiting disease, Clinical Effectiveness, conservative treatment, Controlled Study, cutaneous vesicostomy, cystostomy, encephalomyelitis, Female, Follow Up, Frontiers in Pediatrics, Gross Motor Function Classification System, Human, Hydrocephalus, hydronephrosis, hydroureter, hypoxic ischemic encephalopathy, Khalil IA, Long Term Care, lower urinary tract dysfunction (LUTD), lower urinary tract symptom, Major Clinical Study, Male, Meningomyelocele, Mohamed RB, Muneer E, nephrolithiasis, neurogenic bladder, neurogenic bladder dysfunction, Neuromuscular Disease, neuropathic bladder, occult spinal dysraphism, Palliative Therapy, Patient Safety, Pippi Salle JL, Polypharmacy, postoperative complication, Postoperative Period, pragmatic trial, Preschool Child, quadriplegia, recurrent infection, Retrospective Study, School Child, September List 2024, Spinal Muscular Atrophy, stenosis, stoma, urinary tract infection, Vallasciani S, vesicostomy

Tags: 2024, Accommodation, Adolescent, Adult, Article, Bereavement, Bergstrasser E, Child, Cohort Analysis, Controlled Study, Death, Employment, European Journal of Pediatrics, Father, Female, Fink G, Follow Up, Gerber AK, Hospitalization, Human, leisure, Length Of Stay, Major Clinical Study, Male, medical leave, Mitterer S, Palliative Therapy, Parent, personal income, return to work, September List 2024, Simon M, travel, Zimmermann K

Tags: 2024, Adaptation Psychological, Adolescent, Article, Awareness, Bmc Pediatrics, Burnout, Charepe Z, Child, Child Preschool, Chronic Disease, Continuity Of Patient Care, Decision Making, Diagnostic Accuracy, family functioning, Ferreira AM, geographic distribution, health care organization, health practitioner, Health Promotion, Health Transition, healthcare, Hospitalization, Human, Humans, immunosuppressive treatment, Infant, Interpersonal Communication, investment, Loura D, Medical Education, Palliative Therapy, Parent, Parents, Patient Care, Polypharmacy, population dynamics, Preschool Child, Prevalence, psychological adjustment, Psychology, Quality Of Life, Questionnaire, Romeiro J, Scoping review, September List 2024, Sleep Quality, Terminal Care, Therapy, Transitional Care, VULNERABILITY, Young Adult

Tags: 2024, Adolescent, Carter BS, Child, Children, Clinician, Complication, Consultation, Controlled Study, Ethical dilemma, Female, Health Care Personnel, Human, Interpersonal Communication, Jeong S, Knackstedt A, legal guardian, Linebarger JS, Male, Morality, Multidisciplinary team, Palliative Therapy, Pediatric Hospital, pediatric patient, Review, September List 2024

Tags: 2024, Adolescent, Adult, Advance Care Planning, Bernacki RE, Cohort Analysis, Critical Illness, DeCourcey DD, Feasibility Study, Female, Human, Human Relation, Interpersonal Communication, JAMA Network Open, Lach S, Male, Nava-Coulter B, Parent, Pediatrics, Pilot Study, Procedures, Psychology, September List 2024, Therapy, Wolfe J, Xiong N, Young Adult

Tags: 2024, Adolescent, anxiety, Bergeron F, Bogossian A, Bonanno M, Bonenfant F, Champagne E, Chenard J, Child, Chronic Disease, clinical observation, environmental change, Fortin G, Health Care Policy, Human, Journal of Palliative Medicine, Olivier-D'Avignon M, Palliative Therapy, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, Quality Of Life, Review, Roberge V, Scoping review, September List 2024, Simard C, Systematic Review, Therapy, Ummel D

Tags: 2024, Adolescent, Article, Burgio NM, Cause Of Death, Child, Clinical Pediatrics, Diagnosis, Drug Therapy, Epidemiology, Germany, health Insurance, Human, Icd-10, Jennessen S, Lifespan, Major Clinical Study, Mortality, Newborn, outpatient care, Palliative Therapy, Preschool Child, Prevalence, secondary data analysis, September List 2024, special situation for pharmacovigilance

Tags: 2024, Adolescent, Boyden JY, Broden EG, Child, Childhood Disease, Family, Family Health, Female, Health Equity, Human, James R, Journal of Pain and Symptom Management, Keller S, Male, Mooney-Doyle K, North America, Palliative Therapy, Review, Scoping review, September List 2024, Sibling, special situation for pharmacovigilance, Systematic Review, Western Europe

Tags: 2024, Adolescent, Adult, Archives of Disease in Childhood, Article, August List 2024, Bedford H, Bereavement, Brierley J, Child, Clinician, coronavirus disease 2019, Dittborn M, Female, Health Care Personnel, Human, Interview, Male, Morbidity, Palliative Therapy, Patient Compliance, Pediatrician, Peer Review, Questionnaire, Semi Structured Interview, Terminal Care, Thematic Analysis, Umezurike I, Whitelaw J

Tags: 2024, Acta Paediatrica, Adolescent, Age, Article, at home mortality, August List 2024, Child, Death, Female, groups by age, Home Care, Hospital Mortality, hospital visit, Human, Incidence, Infant, Larsdotter C, Major Clinical Study, Male, Newborn, Nilsson S, Nyblom S, Ohlen J, Ozanne A, place of birth, Place Of Death, Retrospective Study, Stenmarker M, Sweden

Tags: 2024, Adams S, Adolescent, Adult, Aged, Article, August List 2024, Buchanan F, Caregiver, Chakravarti V, Child, Decision Making, Dewan T, Female, Finlay M, Human, Interview, Journal of Pain and Symptom Management, Learning, Mahant S, Male, McGuire KM, Nelson KE, Nicholas D, Palliative Therapy, Parent, Patient Referral, Qualitative Research, Semi Structured Interview, Skill, Widger K

Tags: 2024, Aacn Advanced Critical Care, Adolescent, Adult, August List 2024, Child, Crain N, Decision Making, Ethics, Female, Human, Infant, Male, Miller J, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, Preschool Child

Tags: 2024, Adolescent, Anne-Kathrin G, August List 2024, Bereavement, Caregiver, Child, Comparative Effectiveness, conference abstract, Eva B, Health Care Personnel, Human, Karin Z, longitudinal study, Major Clinical Study, Male, Palliative Therapy, Quality Of Life, Swiss Medical Weekly

Tags: 2024, Adolescent, adverse outcome, August List 2024, Bias, Caregiver, Child, Child Health Care, Child Preschool, Children With Medical Complexity, Chronic Disease, Cochrane Database of Systematic Reviews, Cohen E, community care, Comprehensive Health Care, Connell TG, Controlled Before-After Studies, controlled clinical trial (topic), Cox GR, D’Aprano AL, Decision Making, Emergency Health Service, Emergency Ward, Epidemiology, Functional Status, Gibb SM, Harvey AR, Health Care, Health Care Cost, Health Care Delivery, health care need, health care organization, Health Care Personnel, Health Care Quality, Health Care Utilization, health Insurance, Hospital Admission, hospital readmission, Human, Humans, Infant, Interrupted Time Series Analysis, life satisfaction, Medical Care, Meehan E, Merrick N, meta analysis, Mountford NJ, Multidisciplinary team, Multiple Chronic Conditions, Non-Randomized Controlled Trials as Topic, outcome assessment, Patient Safety, Perception, Preschool Child, Primary Health Care, Program Evaluation, pulmonary aspiration, Quality Of Health Care, Quality Of Life, Randomized Controlled Trial (topic), Randomized Controlled Trials as Topic, remuneration, Review, social determinants of health, Social Worker, statistical bias, Survival Rate, Telemedicine, Therapy, Transition To Adult Care, Williams K

Tags: 2024, Adolescent, Adult, Alves SP, Article, August List 2024, Braz AC, Cerebral Palsy, Child, Child Health, Childhood Disease, Chronic Disease, cohesion, confirmatory factor analysis, construct validity, Disease, Educational Status, Emotional Stress, Family Life, family relation, Family Relations, Female, Fontaine AM, Graça L, Human, Humans, impact on family, Impact on Family Scale, International Journal of Environmental Research and Public Health, life satisfaction, Likert scale, Male, Middle Aged, Parent, parental care, Parents, pediatric complex chronic illness, Perception, Personal Satisfaction, Portugal, Psychology, psychometry, Questionnaire, Reproducibility, Reproducibility of Results, Satisfaction, satisfaction with life, scoring system, social cohesion, sociodemographics, Surveys And Questionnaires, test retest reliability, validation study

Tags: 2024, Adolescent, August List 2024, Child, Child Preschool, Cohort Studies, Espinoza J, Female, Humans, Immunocompromised Host, Infant, Intensive Care Units Pediatric, Intensive Care Units Pediatric/sn [Statistics & Numerical Data], Journal of Palliative Medicine, Kegel A, Male, Palliative Care, Rahrig A, Retrospective Studies, Rowan CM, Schade-Wills T, Terminal Care, Time Factors

Tags: 2024, Adolescent, Bereavement, Caucasian, Cause Of Death, Child, conference abstract, Critical Care Medicine, date of death, do not resuscitate order, Family, Family Structure, Female, fetus death, household, Human, Infant, Intensive Care, July List 2024, Major Clinical Study, Male, Morbidity, Mortality, Palliative Therapy, Parrillo M, Pediatric Intensive Care Unit, pediatric patient, poverty level, Qualitative Research, Remy AM, Remy K, Retrospective Study, Social Class, University Hospital

Tags: 2021, Adolescent, Aged, Bereavement Support, BMJ Paediatrics Open, Child, Chromosome Aberration, Clinical Article, community support, conference abstract, congenital disorder, Congenital Malformation, do not resuscitate order, Drug Therapy, Emergency Ward, endocrinologist, Female, Follow Up, Gastrostomy, Hong Kong, Human, Intensive Care Unit, Intensivist, July List 2024, Kwong CH, Lee TYH, Li CH, limited mobility, Male, Man SS, Medical Record Review, Metabolic Disorder, Morbidity, Neonatal Intensive Care Unit, Neonatologist, Neurologic Disease, neurologist, Noninvasive Ventilation, nose feeding, Oncologist, Pain, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, pediatric ward, Pediatrician, perinatal morbidity, Quality Of Life, Therapy, Tracheostomy

Tags: 2024, Adolescent, Adult, Aland, Article, Birgisdottir D, BMC Palliative Care, Castor C, Child, Child Health Care, Controlled Study, Denmark, evidence based medicine, Faroe Islands, Finland, Greenland, Gronroos M, health care need, health care planning, Health Service, Holmen H, Human, Iceland, July List 2024, Kero J, Kristinsdottir O, Lövgren M, Lykke C, Medical Research, Neergaard MA, Norway, Only Child, Palliative Care, Palliative Therapy, Petursdottir AB, Sweden, Winger A

Tags: 2024, Adolescent, Child, Donation, Experience, Journal of Pediatric Nursing, July List 2024, Only Child, Ora I, Parent, Pergert P, Rinaldo C, Stem Cell Transplantation, Stenmarker M