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INTRODUCTION: Evaluation for death by neurologic criteria (DNC) may help inform family decisions around end of life care and organ donation in pediatric patients with severe neurologic injury. Knowledge is limited on which children who undergo DNC…

Families and clinicians approaching a child's death in the paediatric intensive care unit (PICU) frequently encounter questions surrounding medical decision-making at the end of life (EOL), including defining what is in the child's best interest,…

Children with rare or life-limiting chronic conditions and their families are at high risk of psychosocial distress. However, despite its impact on patient and family health and functioning, psychosocial distress and its antecedents may not routinely…
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